61. CFS, CFIDS, Myalgic Encephalomyelitis (M.E.) Seminars Helpful information on Chronic Fatigue Syndrome (CFS), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS)-, and myalgic encephalomyelitis (ME)-related http://chronicfatigue.about.com/od/seminars/

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a54' About Chronic Fatigue Syndrome / Fibromyalgia Chronic Fatigue Syndrome Seminars Chronic Fatigue Essentials What is Chronic Fatigue Syndrome? What is Fibromyalgia? ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); FREE Newsletter Sign Up Now for the Chronic Fatigue Syndrome / Fibromyalgia newsletter! See Online Courses Search Chronic Fatigue Syndrome / Fibromyalgia CFS, CFIDS, Myalgic Encephalomyelitis (M.E.) Seminars Helpful information on Chronic Fatigue Syndrome (CFS)-, Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS)-, and Myalgic Encephalomyelitis (M.E.)-related seminars. Alphabetical Recent Up a category Advances in Understanding and Treating Chronic Fatigue Syndrome and Fibromyalgia Conference ... New York Times Company Hurricane Katrina About's Hurricane Blogs NY Times Coverage Where to Donate Exclusive: One Family's Story ... How to Explain to Kids Related Topics Thyroid Disease Sleep Disorders Exercise Walking Headlines Canadian Support Groups One of the most difficult things to deal with when confronted with a Chronic Fatigue Syndrome, Fibromyalgia, or Myalgic Encephalomyelitis (M.E.) diagnosis is finding the support you need.

62. A CALL FOR ACTION: THE RECOGNITION OF MYALGIC ENCEPHALOMYELITIS AS A SERIOUS AND A CALL FOR ACTION THE RECOGNITION OF myalgic encephalomyelitis AS A SERIOUS AND DEBILITATING DISEASE Petition, hosted at PetitionOnline.com. http://www.petitiononline.com/MEitis/petition.html

A CALL FOR ACTION: THE RECOGNITION OF MYALGIC ENCEPHALOMYELITIS AS A SERIOUS AND DEBILITATING DISEASE View Current Signatures Sign the Petition To: United States Department of Health and Human Services, National Institutes of Health, and Centers for Disease Control We, the undersigned, respectfully demand that Myalgic Encephalomyelitis (ME), an internationally recognized neurological disease, be also formally recognized as a distinct clinical entity in the United States by the National Institutes of Health and the Centers for Disease Control. It is time to make the case definition/diagnostic criteria explicit in the name. Currently, most patients are diagnosed with Chronic Fatigue Syndrome, a poorly defined, misunderstood, controversial syndrome which remains underfunded and underresearched. The name Chronic Fatigue Syndrome itself has trivialized the illness and further subjected these patients to incredulity and ridicule. The CFS rubric has not only neglected and failed to help those with ME, it has harmed them. ME patients will not improve with cognitive behavioral therapy (CBT) or graded exercise (in fact, exercise will make them worse) - yet these are considered treatments for CFS. Simply "renaming" CFS will not solve this problem. ME should not be considered a subset of CFS, for the hallmarks of ME will not be present in the population of CFS patients once the Ramsay criteria are established in the US. Patients with Myalgic Encephalomyelitis under the CFS criteria must wait for six (6) months before acquiring a diagnosis, a critical period in which possible recovery is diminished by lack of proper treatment. The ME definition does not require a six month wait. (See Ramsay Definition at: http://www.egroups.co.uk/message/ME-itis_NOW/2.)

63. Myalgic Encephalomyelitis And Fibromyalgia (MEFM) Society Of BC Provides support for people with myalgic encephalomyelitis (chronic fatigue syndrome) and/or fibromyalgia. Offers public education through phone information http://www2.vpl.vancouver.bc.ca/dbs/redbook/orgpgs/8/898.html

Search Browse Help Myalgic Encephalomyelitis and Fibromyalgia (MEFM) Society of BC Other names: MEFM (Myalgic Encephalomyelitis and Fibromyalgia) Society of BC ME Society of BC BC Fibromyalgia Society Mailing address: Box 462, 916 West Broadway Vancouver BC 604-878-7707 or 1-888-353-6322 E-mail: info@mefm.bc.ca Web: www.mefm.bc.ca Provides support for people with myalgic encephalomyelitis (chronic fatigue syndrome) and/or fibromyalgia. Offers public education through phone information, newsletter, and educational materials. Also provides referrals to support groups and other community resources throughout BC. Membership is $25/year. Subject: EDUCATION (public awareness) , chronic fatigue EDUCATION (public awareness) , fibromyalgia INFORMATION AND REFERRAL , chronic fatigue syndrome INFORMATION AND REFERRAL , chronic fatigue syndrome , support groups ... Vancouver Public Library

64. Home The myalgic encephalomyelitis Association of Halton HamiltonWentworth is a charitable organization registered with Revenue Canada. http://www.hwcn.org/link/mehhw/

Our Mission We are a non-profit organization run by volunteers. We have been active in assisting and representing people with M.E. also known as Chronic Fatigue Syndrome. Company Profile The Association raises funds, fosters and supports research and educates government representatives, medical and educational professionals, and the public on M.E., its debilitating effects, and on the concomitant social and economic consequences. We are funded by Ontario Trillium foundation, our members and donations from other government agencies. Contact Information We have an office in Burlington, Ontario. Our office is run by volunteers. We have many resources, such as books, copies of medical journals and magazine articles relating to this illness. Please phone before you drop in. Telephone FAX Postal address 2230 Mountainside Drive Unit 5 Burlington, Ontario , L7P 1B5, Canada Electronic mail General Information: me-cfs@hwcn.org Sales: Customer Support: Webmaster: me-cfs@hwcn.org

65. A Hummingbirds Guide To M.E. :: Information On Severe Myalgic Encephalomyelitis In short, myalgic encephalomyelitis (ME/ICDCFS*) is a debilitating acquired illness which has been recognised by the World Health Organisation (WHO) since http://www.ahummingbirdsguide.com/

Home Hummingbirds A Million Stories Untold What is M.E.? ... The Guestbook Why this is a 'Hummingbirds' guide to M.E.... Because hummingbirds are tough little things with a lot more strength, bravery and determination than most people ever give them credit for - a lot like many of the people who have severe Myalgic Encephalomyelitis (M.E.) Why put together a website at all? The general public worldwide - including sufferers themselves - have been lied to repeatedly about the reality of Myalgic Encephalomyelitis. The idea behind this site was to try to create a guide to M.E. which doesn't just mindlessly repeat the same useless and inaccurate myths and propaganda again and again and instead focuses on the available facts: The fact is that there is now an abundance of irrefutable hard scientific evidence that proves beyond a doubt that M.E. is a severely debilitating (and potentially fatal) organic neurological illness that has occurred for centuries in both epidemic and sporadic forms. Enough evidence exists now to prove this literarally more than a THOUSAND times over.

66. A Hummingbirds Guide To M.E. :: Information On Severe Myalgic Encephalomyelitis Design 4 Justice for people with myalgic encephalomyelitis WHOICD-10 93.3 The idea that myalgic encephalomyelitis (ME) is a fatiguing illness is not http://www.ahummingbirdsguide.com/activismgear.htm

Home Hummingbirds A Million Stories Untold What is M.E.? ... The Guestbook Activism gear - tell the WORLD about ME/ICD-CFS! Items available for purchase are stickers, bags, a variety of shirts, buttons, magnets, mousepads, journals and coffee mugs . Each item is available in a variety of different designs. Profits made on all items are marginal and 100% of what there is will go towards research into ME/ICD-CFS. These items are made available for sale by CafePress.com. As a general guide to pricing; stickers, buttons and magnets start at $1.50, t-shirts start at $10 and so on (prices quoted in US dollars.) See below for further purchasing information. These are the designs available so far, as you can see, each design comes in two colours: Special offer for May, 5$ off orders over $50, just quote the code below! List of available slogans/designs... Design 1: Fatigue Shmatigue: ME/ICD-CFS has nothing to do with 'fatigue' Design 2: F#*% 'fatigue': ME/ICD-CFS has nothing to do with 'fatigue' Design 3: Exercise 'improves' Myalgic Encephalomyelitis like eating cream buns 'improves' Diabetes. Design 4: Justice for people with Myalgic Encephalomyelitis WHO-ICD-10 93.3

67. Chronic Fatigue Syndrome / Myalgic Encephalomyelitis Full title Chronic fatigue syndrome / myalgic encephalomyelitis (or encephalopathy); diagnosis and management. The full scope for this guideline can be http://www.nice.org.uk/page.aspx?o=111636

68. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Remit Chronic fatigue syndrome/myalgic encephalomyelitis remit. Chronic fatigue syndrome/myalgic encephalomyelitis remit Chronic fatigue syndrome/Myalgic http://www.nice.org.uk/page.aspx?o=111641

69. Myalgic Encephalomyelitis Sufferers And Support Providing support, advice and information to those with ME as well as their carers families. http://www.bordersdisabilityforum.org.uk/members/mess.html

scottish borders disability forum home members news ... contact Myalgic Encephalomyelitis Sufferers and Support Don't let Myalgic Encephalomyelitis (M.E.) get you in a mess.... Here for: M.E. (Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome) Also: Fibromyalgia or similar Please feel free to contact us. We have regular get togethers, a newsletter, or friendly help via the phone or internet. MESS will be a mess without your support. Carol Williams M.E.S.S. 3 Park Farm Cottages Earlston TD4 6AB Berwickshire Tel: 01896 84 89 83 Email: befriendingme@supanet.com

70. MERGE - Myalgic Encephalomyelitis Research Group - Patient UK MERGE myalgic encephalomyelitis Research Group - Patient UK. A directory of UK health, disease, illness and related medical websites that provide patient http://www.patient.co.uk/showdoc/27000345/

MERGE - Myalgic Encephalomyelitis Research Group The Gateway North Methven Street Perth Tel/Fax: 01738 451234 Web: www.meresearch.org.uk The primary aim of the Myalgic Encephalomyelitis Research Group for Education and Support (MERGE), a national UK charity, is to commission and fund biomedical esearch into the causes and treatment of ME/CFS and related conditions. They also provide high quality scientific and policy information on all aspects of the illness. On their website you will find research news, educational literature, and information. Checked October 2004 Sponsored links and adverts Patient UK has no control of the content of the following links. Inclusion does not imply endorsement by Patient UK. Health Related Books From Amazon - browse hundreds of books on health and disease. Also, worth a look... Related pages in Patient UK See also Northern Ireland ME Association ME Association Other - Leaflets Chronic Fatigue Syndrome / ME Other - Patient Support ME Group (The 25% ME Group) Young Action Online Patient Plus Chronic Fatigue Syndrome Other - Books M.E.

71. CFS/ME Chronic Fatigue Syndrome / Myalgic Encephalomyelitis - Patient UK CFS/ME is a condition where you have longterm disabling tiredness (fatigue). Most people with CFS/ME also have one or more other symptoms such as muscular http://www.patient.co.uk/showdoc/27000752/

CFS/ME Chronic Fatigue Syndrome / Myalgic Encephalomyelitis CFS/ME is a condition where you have long-term disabling tiredness (fatigue). Most people with CFS/ME also have one or more other symptoms such as muscular pains, joint pains, disturbed sleep patterns, poor concentration, headaches, etc. The cause is not known. Treatments which may help in some cases (but not all) include a programme of graded exercise, cognitive behaviour therapy, and 'pacing'. What is CFS/ME? CFS/ME is a condition that causes marked long-term fatigue and other symptoms (which are not caused by any other known medical condition). CFS stands for chronic fatigue syndrome. Chronic means persistent or long-term. ME stands for myalgic encephalomyelitis. Myalgic means 'muscle aches or pains'. Encephalomyelitis means inflammation of the brain and spinal cord. However, there is controversy about the nature of this condition. There is no test to diagnose the condition. The diagnosis is made in people who have a certain set of symptoms (which can vary in their type and severity). There is even controversy about what to call this condition. The term CFS is often used by doctors. This is because the main symptom is often fatigue and the condition is chronic (persistent). Also, there is no evidence of inflammation in the brain or spinal cord which is implied by the term encephalomyelitis.

72. Chronic Fatigue Syndrome (Myalgic Encephalomyelitis) Its full title is chronic fatigue syndrome/myalgic encephalomyelitis . What is fatigue? In normal circumstances the feeling of physical tiredness is http://www.tiscali.co.uk/lifestyle/healthfitness/health_advice/netdoctor/archive

// Show bread crumbs navigation path. breadcrumbs('five'); //> From: www.tiscali.co.uk/lifestyle/ Calculators Calorie Counter Diseases Examinations ... Medicines Frames not supported Frames not supported HOTLINKS Health shop Health forum Health amd Nutrition Diseases ... C Chronic fatigue syndrome (Myalgic encephalomyelitis) Written by Dan Rutherford, GP Fatigue What is fatigue? The size of the problem CFS/ME is a major world-wide public health problem. There are considerable difficulties in establishing good figures for the number of people affected, but accepting that the figures are approximate, the following generalisations can be made regarding the UK: CFS/ME affects between 2 and 4 people per 1000 of the population it affects people of all ages, including children as young as five years old the commonest age of onset is between the early twenties to mid-forties CFS/ME is diagnosed about twice as often in women compared to men it affects all social classes. There are therefore as many as 200,000 people with CFS/ME in the UK alone  a staggering number for a condition that has attracted so little serious enquiry until recently. Definitions From the point of view of conducting research on a condition, it is essential that agreement exists on what it is that is being studied, or conclusions made in one centre will have no relevance to anywhere else. Several groups around the world have therefore worked to produce definitions of CFS/ME that attempt to encapsulate the necessary features of the condition. The most widely used are those of the Centre for Disease Control (1994) in the USA, which are:

73. Managing Chronic Fatigue Syndrome (myalgic Encephalomyelitis) Managing chronic fatigue syndrome (myalgic encephalomyelitis). Written by Dan Rutherford, GP We don t know why people get CFS/ME, but it happens every day. http://www.tiscali.co.uk/lifestyle/healthfitness/health_advice/netdoctor/archive

// Show bread crumbs navigation path. breadcrumbs('five'); //> From: www.tiscali.co.uk/lifestyle/ Calculators Calorie Counter Diseases Examinations ... Medicines Frames not supported Frames not supported HOTLINKS Health shop Health forum Health and Nutrition Health Centres Managing chronic fatigue syndrome (myalgic encephalomyelitis) Written by Dan Rutherford, GP Individual treatment is essential in CFS/ME, making it difficult to present a set scheme that will work for everyone. Although the points listed below are the main ones you will need to consider, exactly how you do this will be up to you. How to manage CFS Accept the illness. Accept the equal importance of mind and body. Get connected to other people with CFS. Get a good doctor. Make sure family and friends understand CFS. Map out what you could do before CFS; compare it to what you can do now. Set priorities for improvement. Make a recovery plan. Sort out employment issues. Sort out pain control. Look at your illness beliefs and reactions. Allow time for relaxation. Consider complementary treatments.

74. Myalgic Encephalomyelitis Directory of charities and support organisations providing support and information on myalgic encephalomyelitis. http://www.supportfind.com/category/Myal01.asp

Home Category Myalgic Encephalomyelitis Action for M.E. Somerset, United Kingdom Action for M.E. is a national charity campaigning to improve the lives of people with M.E. in the UK. Our aim is to heighten understanding of the impact M.E. has on the lives of those who have it and to improve the quality of services for people who suffer from this debilitating illness. http://www.afme.org.uk Action for M.E. Bristol Services Bristol, United Kingdom Westcare UK was established in 1989 to provide specialist, high quality services for people with Chronic Fatigue Syndrome (CFS) also known as ME (Myalgic Encephalomyelitis). Westcare UK also provides services for health professionals involved in CFS/ME. These services have been highly valued by the people who have used them. http://www.westcareuk.org.uk Associated New Zealand Myalgic Encephalomyelitis Societies Inc Auckland, New Zealand Providing information and support for people with myalgic encephalomyelitis (also known as Chronic Fatigue Syndrome or Tapanui Flu) http://www.anzmes.org

75. A New Siber Imaging Web Site Is Coming Soon! Providing patients nationally and internationally who suffer from Chronic Fatigue Syndrome, myalgic encephalomyelitis, Fibromyalgia, Adult ADD, http://www.siberimaging.com/

A new Siber Imaging Web site is coming in the fall of 2005 New Way Media

76. Chronic Fatigue Syndrome - Myalgic Encephalomyelitis - Fibromyalgia - Neurothera Providing patients nationally and internationally who suffer from Chronic Fatigue Syndrome, myalgic encephalomyelitis, Fibromyalgia, Adult ADD, http://www.siberimaging.com/about_us.asp?id=2

77. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis myalgic encephalomyelitis (ME) is used in most other countries. It can be best understood when broken down into its individual parts. http://www.nsnet.org/idacan/pain.html

back to Table of Contents Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Definition Diagnosis Symptoms Treatment Definition: Chronic Fatigue Syndrome (CFS) is one of fifty names for an illness that has caused suffering since the 1850s. Some other names for this illness are Chronic Epstein-Barr Virus Disease, Chronic Fatigue, and Immune Dysfunction Syndrome (CFIDS), and Post-Viral Fatigue Syndrome (PVFS). The emphasis is put on 'fatigue'. Chronic means ongoing and therefore refers to a fatigue that is long-lasting. The term Chronic Fatigue Syndrome is used primarily in North America. Myalgic Encephalomyelitis (ME) is used in most other countries. It can be best understood when broken down into its individual parts. As you look at the term it becomes clear that the emphasis is on the central nervous system. My - muscle algic - pain encephalo - brain myel - spinal cord itis - inflammation Neither term is satisfactory. People with CFS have many other symptoms contributing to their disability besides fatigue. Seldom is an infection in the brain found in those who have ME as was once suspected. CFS/ME affects thousands of men, women and children. The majority of sufferers seem to be women between the ages of 30 and 50. Generally these people are high functioning, productive individuals. There are some differences in how children of different age groups are affected by the illness. This topic is dealt with later.

78. Inclusive Technology - Myalgic Encephalomyelitis (ME) myalgic encephalomyelitis (ME). A medical condition effecting the immune and central nervous systems. The cause is not clear, but onset is linked in most http://www.inclusive.co.uk/support/me.shtml

home catalogue search downloads ... support organisations Myalgic Encephalomyelitis (ME) A medical condition effecting the immune and central nervous systems. The cause is not clear, but onset is linked in most cases to an acute infection, although some people experience a slow insidious onset, and there is some evidence implicating various common viruses in the development of the syndrome. It is thought to effect 2-3 per 1000 of the population. Onset can occur at any age, but it is most common in persons aged 20-40 years, and in those whose employment exposes them to infection, such as health professionals. What are the symptoms? The person with ME experiences a disabling, exercise-induced muscle fatigue, muscle pain (myalgia), often severe, a 'flu-like' malaise, an abnormal exhaustion unrelieved by sleep, and various symptoms which indicate a disturbance in brain function (encephalitic symptoms), including loss of concentration and short term memory, dyslexia, nausea, clumsiness and disturbed balance, sensitivity to light and other problems with vision, sensitivity to noise, misjudgement of distance, and sometimes depression, mood swings, and problems with bladder control and bowel disturbance. The ME Association has information leaflets available which will answer most of your questions about ME. They also have two leaflets: What is ME? and A Guide for Young People.

79. Discovery Home & Health Website Its full title is ‘chronic fatigue syndrome/myalgic encephalomyelitis’. What is fatigue? In normal circumstances the feeling of physical tiredness is http://www.discoveryhealth.co.uk/encyclopaedia/default.asp?type=atoz&storyid=117

80. Myalgic Encephalomyelitis friendship, support and vital contact to children and young people with myalgic encephalomyelitis (ME); Daniela Busse s Home This site has a very good, http://www.reference.com/Dir/Health/Conditions_and_Diseases/M/Myalgic__Encephalo

Dictionary Thesaurus Encyclopedia Web Home Premium: Sign up Login YOUR AD HERE Dictionary ... Encyclopedia - Web Directory Web Directory Top Health Conditions and Diseases M / Myalgic Encephalomyelitis Association of Youth with M.E Association of Youth with M.E provides help, information and support to those with M.E/C.F.S.AYME (pronounced 'aim') is a UK-based independent registered charity dedicated to giving help, friendship, support and vital contact to children and young people with Myalgic Encephalomyelitis (M.E) Daniela Busse's Home This site has a very good, and interesting case study of a Student with ME studying at Glasgow university, It also has advice for students with special needs at Glasgow university. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Lexico Publishing Group, LLC ... Contact Us

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