1. CFS / M.E. Information From CFS-NEWS This is a resource page for chronic fatigue syndrome / myalgic encephalomyelitis, featuring news sources, discussion groups, FAQs, medical documents and http://www.cfs-news.org/

Chronic Fatigue Syndrome / Myalgic encephalomyelitis NEWS SOURCES INFO FILES DISCUSSION GROUPS CFS-RELATED WEB PAGES ... Non-CFS links This web page is provided by Roger Burns , the publisher of CFS-NEWS . See also the introductory essays about CFS Latest version: September 19, 2001 NEWS LATEST NEWS CFS-NEWS Newsletter LATEST NEWS about CFS/M.E. CFS-NEWS Electronic Newsletter CO-CURE info exchange: Search Archives ... Brussels CFS medical conference report, Sept. 9-11, 1999 ME-NET (Netherlands) Search Archives CFS Weekly Radio Show Texts ... CFIDS Assoc: News and Advocacy (USA) Youth Action Online (U.K.) CFS NewsWire archive Back to the Top INFORMATION FILES AND DOCUMENTS FAQ Doctors Page QUICK Index CFS FAQ (answers to frequently asked questions) Doctors CFS page CDC Definition article , 1994; Fukuda et al. American Journal of Medicine Symposium on CFS , Sept 1998 Myalgic encephalomyelitis ME-NET Research Papers Royal Colleges Report Psychiatric bias paper , by Jason, et al., 1997 U.K. National Task Force on CFS/ME, 30 Sep 1998 Dealing with Doctors When You Have CFS , by Camilla Cracchiolo, R.N. Where Can I find a good CFS doctor?

2. The No1 Domain Name Information about diagnosis, symptoms, treatments and links. http://www.theno1website.co.uk

theno1website.co.uk Your browser does not support frames. To view our web site click here: http://www.art-is-a-tart.com/web5/cindex.htm For more information contact webmaster@theno1website.co.uk

3. -Myalgic Encephalomyelitis- / -Chronic Fatigue Syndrome- :Criteria, Diagnostics, Advocacy for the continuing fight for recognition, funding and research, as well as the reasoning for name change to myalgic encephalomyelitis not chronic fatigue syndrome. http://uk.geocities.com/me_not_cfs

ME International WELCOME to ME International Myalgic Encephalomyelitis Chronic Fatigue Syndrome This site was created in response to the continued marginalization of people suffering from (Benign) Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome , Chronic Fatigue Immune Dysfunction Syndrome, Myalgic Encephalopathy There are other terms that are used in conjunction with this collation of symptoms describing ME , Post-viral Fatigue Syndrome, Post Polio Syndrome and the list goes on. All of these terms have validity in their origins but only Myalgic Encephalomyelitis is classified internationally by the World Health Organization, the chronic fatigue series are little more than pseudonym's are are recorded so, Neurology chapter G93.3 . It should be noted that fatigue syndrome (not Chronic Fatigue Syndrome) is in category F48, Neurasthenia and note that post-viral fatigue syndrome is explicitly excluded from F48.0. The point being that ME is a Neurological disorder and should be treated as such. The belittling term chronic fatigue syndrome arrived courtesy of the Centers for Disease Control (CDC), primarily for the purpose of enabling further research; that was the

4. ME/CFS Chronic Fatigue Syndrome. Info For Medical Profession And Sufferers Research and analysis on ME/CFS, hosted by David Axford with editorial assistance from Ellen Goudsmit, Ph.D. http://freespace.virgin.net/david.axford/me/me.htm

ME/CFS Myalgic Encephalomyelitis Chronic Fatigue Syndrome Search for any word on this web site Enter your words in the box below Use SEARCH to find the word you're looking for. The results will be presented in a list containing the first instance of your word. Click on any of the listed pages to view. Having viewed your word, then use your browsers FIND facility to check for any more occurrences of your word on that page. What is this diagnosis? May 12th Countdown to May the 12 th Only year, months, and days left until ME/CFS/CFIDS International Awareness Day Don't forget to mark your calendar too! Need the latest relevant ME/CFS information? Articles about news and views on the latest information on ME/CFS. Includes the very latest Medical Update, Capita Selecta, Medical Fact sheet, Book Reviews and other relevant medical information. This database is the only one we know of which evaluates the research and points out the evidence against the much hyped CBT/graded exercise model. Incidentally, one of the editors of the Medical Update was on the UK working party on CFS.

5. The Myalgic Encephalomyelitis Association Of Ontario Offers info, tips, and support to those coping with ME/CFS and related illnesses, including youth and parents. http://www.meao-cfs.on.ca/

6. Getting Well From Myalgic Encephalomyelitis Offers treatment for myalgic encephalomyelitis, Chronic Fatigue Syndrome and Fibromyalgia Syndrome. http://www.meprogramme.co.uk

The M.E. Programme (Fatigue Answers) has moved to a new website address . . . If you're not automatically redirected with a few seconds click here

7. Action For M.E. Information about myalgic encephalomyelitis from national charity campaigning to improve the lives of people with the condition. Includes an appeal for volunteers. http://www.afme.org.uk

Home Send us an email Printer friendly page 09 September 2005 Kindly supported by the Lloyds TSB Foundation Quick links Online Counselling Information Publications NHS services info Shop Research Become a member Make a donation Young people For professionals Media centre Support groups Telephone services Help fundraise Current campaigns Job opportunities Send to a Friend Contact Us Site Map Useful Links Improving the lives of people with M.E. M.E. is also known as Chronic Fatigue Syndrome (CFS). It is sometimes diagnosed as Post Viral Fatigue Syndrome (PVFS). An exciting new ethnic minority project is going ahead, with funding from...... more To help keep children safe, information is now available online to young people,...... more Enter your details to keep up to date First Name Last Name Email Back to top Home About Us Information Centre ... Send to a Friend

8. Waterloo Wellington Myalgic Encephalomyelitis Association A Canadian organization providing information about M.E., including coping strategies, diagnosing, the history, finding a physician and other related links. http://ca.geocities.com/wwmea/

Home The WWMEA M.E. - The Illness M.E. - Self-Help ... to Other Web Sites MAY 12 IS INTERNATIONAL M.E. AWARENESS DAY SUPPORT YOUR LOCAL M.E. ORGANIZATION WWMEA Waterloo Wellington Myalgic Encephalomyelitis Association P.O. Box 20075 Pioneer Park Post Office Kitchener, Ontario, Canada email: wwmea@yahoo.ca The Waterloo Wellington Myalgic Encephalomyelitis Association (WWMEA) is a registered charitable organization (not-for-profit) that provides support group meetings and information for those affected by M.E. (Myalgic Encephalomyelitis). M.E. is a painful, chronic, debilitating illness that affects many bodily systems. The WWMEA operates in Southwestern Ontario within Wellington County and the Region of Waterloo serving cities such as Cambridge, Guelph, Kitchener and Waterloo (KW). This area is also referred to as the Golden Triangle of Ontario as well as Canada's Technology Triangle. The WWMEA relies on membership fees and donations to cover operating expenses. Charitable Tax Receipts will be issued for donations from within Canada. Funds are also raised through the Zehrs Save-A-Tape Program of Zehrs Supermarkets. M.E. is comprised of numerous

9. Index A young woman's story of living with ME/CFS as a child, teenager and now as a young adult. http://www.geocities.com/hannah_butterworth/

FIGHTING M E Click to join FightingME I'm starting up these pages because I believe that the other web sites don't offer the chance for the younger generations to share their experiences with their peers, although I want to make it clear that you don't have to be young. It is my hope that people when they e-mail in will feel free to express their true feelings about whatever they feel is important to them you can do this at Talk to me. You can send in your pictures, poems, stories (funny or serious) or something that people will find inspirational. I want people to think that they can contribute to this site to help me make this as successful as I possibly can and so for that I would like and need your feed-back and comments whether they are positive or not quite so. I believe strongly in the freedom of expression and that there is not always a right or a wrong answer to what people think or say. I think that what people believe is more important than being concerned about what's right and what's wrong! You can contact me at: hannah_butterworth@yahoo.co.uk

10. M.E. Society Of America The myalgic encephalomyelitis Society of America concentrates on CFS research information and advocacy issues. http://www.cfids-cab.org/MESA/

"This illness is to fatigue what a nuclear bomb is to a match. It’s an absurd mischaracterization." Laura Hillenbrand, Bestselling author of Seabiscuit “The term[s] ‘fatigue’ and ‘chronic fatigue’ never existed in this entity until it was put into [the name] in 1988 The whole concept of fatigue has warped our understanding of this illness.” Byron Hyde, M.D., The Nightingale Research Foundation, Ottawa, Canada References American M.E. Review Advocacy ... Reprint Policy The M.E. Society of America is an organization that seeks to promote understanding of the disease known as myalgic encephalomyelitis (ME/CFS), a multi-system disease adversely affecting the heart, brain, neuroendocrine, immune, and circulatory systems. M.E. was first described in the 1950’s following the recognition of many cases around the world, including a number of cases at the Royal Free Hospital in England. Many different viruses, bacteria, or toxins in combination with genetic factors may be involved in the etiology of the disease. Studying research-based subsets is the key to scientific progress in this area of investigation. In a number of publications, Dr. A. Melvin Ramsay outlined a definitional framework for M.E. that described abnormal muscle metabolism, circulatory impairment, and cerebral involvement. Unfortunately, in 1988, what was historically known both as myalgic encephalomyelitis and as the well-documented epidemic neuromyasthenia was renamed “Chronic Fatigue Syndrome” by employees at the Centers for Disease Control (CDC), who imposed the misleading “fatigue” term onto patients and researchers. In 1994, more damage was done when the CDC broadened the definition for CFS to include many diverse, unrelated diseases, for which “CFS” became an umbrella term. Broadening the case definition led to conflicting research data, but there is a more current, research-updated case definition compiled by the Canadian Consensus Panel for ME/CFS, which includes neuroendocrine, immune, and cardiocirculatory symptoms as well as abnormal muscle metabolism, circulatory impairment, and cerebral/neurological involvement, available on this Web site. The ICD-10 code for ME/CFS is G93.3.

11. CFS / M.E. Information From CFS-NEWS This is a resource page for chronic fatigue syndrome / myalgic encephalomyelitis, featuring news sources, discussion groups, FAQs, medical documents http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Myalgic Enchephalomyelitis This is a resource page for myalgic encephalomyelitis (ME), sponsored by the publisher of CFSNEWS. ME has also been known as myalgic encephalopathy, http://www.cfs-news.org/me.htm

MYALGIC ENCEPHALOMYELITIS Updated: Tuesday, October 5, 1999 Introduction Definitions Lancet, 1956 Acheson, 1959 ... Resources Introduction Recent discussions at the Brussels conference and elsewhere have helped to clarify that myalgic encephalomyelitis (M.E.) and CFS are not the same entity. There has been confusion about this, even in Britain where M.E. was first defined and studied under that name. What exactly is M.E.? According to M.E. experts the key difference between M.E. and chronic fatigue syndrome is that M.E. requires the criterion of easy fatiguability following minimal exertion and a delay in recovery of muscle strength. Definitions M.E. has been described several times in medical literature. It was first defined in an editorial published in the Lancet in 1956 which discussed several epidemic outbreaks of prior years. This first description was rather loose and was not very specific. In later years Ramsay, EG Dowsett and others refined the definition of M.E. in various published papers. After Ramsay died in 1990, Dowsett et al. wrote the latest version of the M.E. definition now known as the "London criteria". These have been used in recent papers by Costa (Brainstem perfusion is impaired in patients with CFS, QJM 1995; 88:767-773) and Scholey (A comparison of the cognitive deficits seen in M.E. to Alzheimer's Disease, Proceedings of the British Psychological Society, 1999, January, 12).

13. The ME Association Home Page Practical help is offered by this organisation, including information on benefits and other sources of assistance. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Action For M.E. Information about myalgic encephalomyelitis from national charity campaigning to improve the lives of people with the condition. Includes an appeal http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Personality Of Patients With Myalgic Encephalomyelitis. myalgic encephalomyelitis (ME) is a condition characterised by profound fatigue, muscle weakness and a general malaise. It occurs both sporadically and in http://freespace.virgin.net/david.axford/articl01.htm

The personality of patients with myalgic encephalomyelitis. A replication of a study by McEvedy and Beard. EM Goudsmit PhD C.Psychol. Chartered Health Psychologist. ME Research Online Volume 1 Number Abstract Introduction Method Results Neuroticism Extraversion Discussion Acknowledgements References Table 1 Table 2 This article was written in 1988. ABSTRACT The aim of this study was to replicate earlier research by McEvedy and Beard, using a group of people with a clear diagnosis of Myalgic Encephalomyelitis (M.E.). Their scores on the EPI were compared to those recorded by a non-symptomatic control group as well as a group of patients suffering from another chronic illness (M.S. group). The results suggest that the slightly raised Neuroticism scores of people with M.S. do not necessarily indicate a hysterical personality or neuroticism. Both the limitations of the EPI as a measure of Neuroticism and Extraversion in people with physical illnesses and the psycho-social sequelae of conditions such as M.E. may have affected the responses on the inventory. These factors should also be considered when interpreting the data obtained by McEvedy and Beard. Consequently, it was impossible to draw any firm conclusions about the role of personality in the aetiology of M.E. INTRODUCTION

16. TCJRME - The Facts And The Politics Of M.E. The facts, history, science and politics affecting the international patient community disabled by M.E. Protect yourself, learn about ME, educate your doctors, and alert the public. http://www.geocities.com/tcjrme/

The Committee for Justice and Recognition of Myalgic Encephalomyelitis T HE H ISTORY , S CIENCE AND P OLITICS A FFECTING P ATIENTS D ISABLED BY M.E. A ROUND T HE G LOBE. P ROTECT Y OURSELF - L EARN A BOUT M.E. - E DUCATE Y OUR D OCTORS - A LERT T HE P UBLIC Welcome to the TCJRME headquarters The Committee is an international patient based association dedicated to promoting Justice for the victims of Myalgic Encephalomyelitis; and we are dedicated to achieve the full public Recognition of the dangers of this worldwide disease epidemic. We will demand that the national health agencies of all governments admit that Myalgic Encephalomyelitis is a serious disease and an increasing worldwide health disaster. Toward that end The Committee will disclose the truth about the disease and history of myalgic encephalomyelitis. We will present the medical facts about ME, and examine the politics and motivations that have led to the public health agencies’ mismanagement of, and dishonest response to this disease epidemic. To advance the goals of Justice and Recognition of ME, the Committee will promote patient advocacy efforts and support patient campaigns that demand the end to the programs of delay and deception.

17. Home Page ME (Myalgic Encephalopathy) is a debilitating disease that can affect anyone. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. BBC NEWS | Health | Medical Notes | Myalgic Encephalomyelitis myalgic encephalomyelitis or chronic fatigue syndrome has only been recognised by doctors in recent years after originally being dismissed as yuppie flu . http://news.bbc.co.uk/1/hi/health/medical_notes/97509.stm

Home TV Radio Talk ... Newswatch Last Updated: Wednesday, 20 May, 1998, 17:39 GMT 18:39 UK E-mail this to a friend Printable version Myalgic encephalomyelitis Myalgic encephalomyelitis or chronic fatigue syndrome has only been recognised by doctors in recent years, after originally being dismissed as 'yuppie flu'. The first symptoms are, in fact, often similar to flu, but they do not go away and, in many cases, may become worse. Some experts remain to be convinced of its existence as a discrete illness, mainly because no one cause has been identified and symptoms often vary for different patients. What are the symptoms? The main symptoms are debilitating fatigue, muscle pain, and mental fogginess. The cause of chronic fatigue cannot be explained by other conditions, such as depression, and it does not improve substantially after periods of rest. Some patients also have difficulty in concentrating, short-term memory impairment, sore throats, headaches and insomnia. Some people have such severe symptoms that they are confined to bed while others only suffer fatigue when they come up against stressful situations. What causes ME?

19. MCS Heightened Sense Network Support group and forum for those suffering from multiple chemical sensitivity, chronic fatigue syndrome, fibromyalgia and myalgic encephalomyelitis. http://p217.ezboard.com/bmcsheightenedsensesnetwork

"); else document.write(""); // > "Society will ignore its canaries at its own peril, for rather than being pitiful freaks we are the barometers of all humankind." Diana Crumpler Announcements Site search Web search powered by FreeFind Internet Resources What Is MCS? What’s Really In That Perfume You Love? MCS On Film: "The Tomato Effect" Today's Top Environmental News Stories! ... Environmental Yellow Pages more to come..... Suggested Reading Books About MCS What Pollutants Are In Your Neighborhood? Click Here To Find Out In Memoriam Cindy Duehring Julia Kendall Elizabeth Streightif Coach Dan Allen ... Invisible Cripples By S.C. Rowat MCS-Heightened Senses Network Join Live Chat! Login Register Your Free Account Search Help ... Need help logging in? Multiple Chemical Sensitivity- Heightened Senses Network is an online chemical injury support group and forum for those who have been chemically injured and suffer from any of the following chemically related illnesses: Multiple Chemical Sensitivity (MCS), Myalgic Encephalomyelitis (ME), Environmental Illness, Sick Building Syndrome, Toxic Injury, Fibromyalgia, Chronic Fatigue Syndrome (CFS) and Gulf War Syndrome among many other forms of chemical injury. MCS is a disorder triggered by exposures to chemicals in the environment. Individuals with MCS can have symptoms from chemical exposures at concentrations far below the levels tolerated by most people. Symptoms typically occur in more than one area in the body, such as the nervous system and the lungs. Exposure may be from the air, from food or water, or through skin contact. The symptoms may come and go with exposures, though some individuals may have delayed reactions. As MCS gets worse, reactions become more severe and increasingly chronic, often significantly affecting bodily functions. (Envionmental Illness Society of Canada)

20. The Disability Benefits Information Page Information about private disability insurance and U.S. Social Security Disability Insurance. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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