1. MACS Homepage Registered charity offering emotional and practical support for parents of children with these conditions. Newsletter, details of events. http://www.macs.org.uk/

Your browser does not support script Friday, September 09, 2005 - 12:02:19 BST WELCOME TO THE MACS WEB SITE This is the home of information about Microphthalmia, Anophthalmia, Coloboma and related conditions. We offer support and information to parents and professionals in the UK and around the world. Please use our menu to find your way around our site. The MACS weekend was again very successful. Thanks to everyone who attended. New Trustees were elected Please click link New Trustees NEW NEW NEW Try our MACS screensaver MACS Chat Thanks for taking part in our regular chats, please join us in the chat room for our next session a representative from MACS will be online to answer any questions you may have: Message board Visit our message board to find help and advice or offer someone the benefit of your experiences. Ask the Specialist We are fortunate to have the help of a specialist who is happy to answer questions on our children's eye conditions. If you are worried on a particular problem please visit this page.

2. Anophthalmia And Microphthalmia Resource Guide [NEI Health Information] Publication about anophthalmia and microphthalmia (small eye syndrome). http://www.nei.nih.gov/health/anoph/index.asp

Text size: S M L Health Funding News Laboratories ... Health Information Anophthalmia and Microphthalmia Related Topics: To order Anophthalmia and Microphthalmia Resource Guide visit our online catalog New! Diagram of the Eye Vision-Related TermsSelected Online Sources Finding an Eye Care Professional Talking to Your Doctor ... Eye Health Organizations Database New! On this page: Other Names What are anophthalmia and microphthalmia? What causes anophthalmia and microphthalmia? Can anophthalmia and microphthalmia be treated? ... Medical Literature The information provided in this Resource Guide was developed by the National Eye Institute to help patients and their families in searching for general information about anophthalmia and microphthalmia . An eye care professional who has examined the patient's eyes and is familiar with his or her medical history is the best person to answer specific questions. Other Names Anophthalmos and microphthalmos, small eye syndrome. What are anophthalmia and microphthalmia? Anophthalmia and microphthalmia are often used interchangeably. Microphthalmia is a disorder in which one or both eyes are abnormally small, while anophthalmia is the absence of one or both eyes. These rare disorders develop during pregnancy and can be associated with other birth defects. What causes anophthalmia and microphthalmia?

3. Fran's Page: Children With Anophthalmia Franchesca is a teenager with anophthalmia. Here she, her mother, and a friend share their thoughts. http://bvi.growingstrong.org/fran.html

FRANCHESCA Last modified May 28, 2001 Franchesca was born on August 2, 1986, with anophthalmia, a condition in which the child has no eyes. An MRI when she was six indicated that she may have some optic nerve development. The above picture was taken when she was 9 years old. She is now 14 years old and still very tiny for her age. Franchesca has had numerous surgeries in the attempt to provide her with prosthetic eyes. These surgeries were done incorrectly, and during some of them she was not anesthetized. She was given Phenobarbital daily for 18 months as a sedative to keep her from doing things which would interfere with the healing process. Franchesca is classified educationally as mentally retarded and speech handicapped, in addition to being totally blind. It is not known how much her speech difficulties and blindness interfere with her ability to display her intellectual abilities. She has a large vocabulary and is quite expressive; however, her words are difficult to understand much of the time. I met Franchesca when she was two and a half years old. I was one of several teenagers providing child care at a local support meeting for parents. Franchesca and her two older sisters were among the children for whom we were caring. Franchesca was very active but still unable to walk. Shortly after I met her, she began wearing AFO's, a special kind of brace designed to correct the turning inward of her feet. When I met Franchesca, she could not talk or perform any self-care skills.

4. MACS - Anophthalmia, Microphthalmia Or Coloboma Provides support and information for parents and professionals with microphthalmia, anophthalmia, coloboma and related conditions. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

5. Microphthalmia, Anophthalmia And Other Related Eye Disorders microphthalmiaAnophthalmia. A site dedicated to bringing families together. http://www.angelfire.com/mi/microphthalmia/

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire Dukes of Hazzard Share This Page Report Abuse Edit your Site ... Next Microphthalmia, Anophthalmia and other related eye disorders Hi, I'm Diann. I decided to build a site for Microphthalmia and Anophthalmia when our youngest son, Jacob was diagnosed with Microphthalmia with cyst,and Coloboma of the right eye when he was 3 weeks old. Jacob at 8 months old: 1 month after getting his first artificial eye. Jacob at 7 1/2 years old: Searching for information on Jakes condition was extremely frustrating and disappointing. There didn't seem to be much out there to help satisfy my urgency to know more about what our son was born with, not to mention what we can do to help him. It wasn't until I started corresponding with other families around the world, that I felt less alone. Being able to talk with others who know what you are going through and what your about to go through makes all the difference in the world!

6. Anophthalmia And Microphthalmia Resource Guide [NEI Health Information] Provides patient information about this rare eye disorder, including causes, treatment and additional resources. http://www.nei.nih.gov/health/anoph/

Text size: S M L Health Funding News Laboratories ... Health Information Anophthalmia and Microphthalmia Related Topics: To order Anophthalmia and Microphthalmia Resource Guide visit our online catalog New! Diagram of the Eye Vision-Related TermsSelected Online Sources Finding an Eye Care Professional Talking to Your Doctor ... Eye Health Organizations Database New! On this page: Other Names What are anophthalmia and microphthalmia? What causes anophthalmia and microphthalmia? Can anophthalmia and microphthalmia be treated? ... Medical Literature The information provided in this Resource Guide was developed by the National Eye Institute to help patients and their families in searching for general information about anophthalmia and microphthalmia . An eye care professional who has examined the patient's eyes and is familiar with his or her medical history is the best person to answer specific questions. Other Names Anophthalmos and microphthalmos, small eye syndrome. What are anophthalmia and microphthalmia? Anophthalmia and microphthalmia are often used interchangeably. Microphthalmia is a disorder in which one or both eyes are abnormally small, while anophthalmia is the absence of one or both eyes. These rare disorders develop during pregnancy and can be associated with other birth defects. What causes anophthalmia and microphthalmia?

7. Microphthalmia, Anophthalmia And Other Related Eye Disorders microphthalmiaAnophthalmia. A site dedicated to bringing families together. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. Anophthalmia (anophthalmos) Is A Condition That Means One, Or Both Eyes Didn’t At the other end of the scale there is extreme microphthalmia which is really Distinguishing between extreme microphthalmia and anophthalmia in such a http://www.angelfire.com/mi/microphthalmia/MACSmicroLeaflet.html

Thanks to the gracious contribution from MACS (our sister support group in the United Kingdom), I now have a comprehensive definition leaflet about Anophthalmia, Microphthalmia, and Coloboma for you. THANK YOU MACS! setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire 40 Yr Old Virgin Share This Page Report Abuse Edit your Site ... Next A nophthalmia P rimary anophthalmia is a complete absence of eye tissue due to a failure of the part of the brain that forms the eye. I n secondary anophthalmia the eye starts to develop and for some reason stops, leaving the infant with only residual eye tissue or extremely tiny eyes which can only be seen under close examination. I n degenerative anophthalmia the eye started to form and, for some reason, degenerated. One reason for this occurring could be a lack of blood supply to the eye. T reatment T here is no cure for this condition. Sometimes the child may have other conditions or complications that may require monitoring. Prosthetic eyes can be fitted to the empty eye sockets which can sometimes involve surgery for reasons such as putting implants into the socket to make it easier to fit the prostheses. Prostheses are not just for cosmetic purposes but also help to promote the growth of the eye socket. Conformers, which are a bit like balloons that can be expanded inside the socket, are sometimes used to further encourage the growth of the socket. M icrophthalmia

9. Anophthalmia - Microphthalmia / Family Village Anophthalmia / microphthalmia http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. Microphthalmia related terms ocular dysgenesis syndrome (microphthalmia with multiple microphthalmia with multiple defects (ocular dysgenesis) is often seen in dogs http://www.upei.ca/~cidd/Diseases/ocular disorders/microphthalmia.htm

related terms: ocular dysgenesis syndrome (microphthalmia with multiple anomalies), ocular dysgenesis associated with albinism and deafness, coloboma What is microphthalmia? Affected dogs have prominent third eyelids and small eyes which appear recessed in the eye socket (enophthalmos). A defect early in development results in the smaller than normal eye (microphthalmia).This is often associated with other eye abnormalities, including defects of the cornea, anterior chamber, lens and/or retina. Microphthalmia is also seen with coloboma - a cleft in a portion of the eye, particularly the iris. Microphthalmia with multiple defects (ocular dysgenesis) is often seen in dogs with a merle hair coat with excessive amounts of white. The eyes are commonly different colours. Partial deafness may also be part of this syndrome. These dogs are frequently blind. Cataracts (opacity of the lens) often occur with microphthalmia, causing some degree of visual impairment. How is microphthalmia inherited?

11. Microphthalmia microphthalmia http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Anophthalmia - Microphthalmia / Family Village Anophthalmia, microphthalmia, and Coloboma From the Micro Anophthalmia Children sSociety (MCAS); Anophthalmia and microphthalmia Resource Guide http://www.familyvillage.wisc.edu/lib_microph.htm

Anophthalmia / Microphthalmia Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Anophthalmia" and "Microphthalmia" Who to Contact International Children's Anophthalmia Network (ICAN) c/o Center for Developmental Medicine and Genetics 5501 Old York Road Genetics, Levy 2 West Philadelphia, PA 19141 Phone: 1-800-580-ican Email: ican@anophthalmia.org Website: http://www.anophthalmia.org/ The International Children's Anophthalmia Network (ICAN), a voluntary not-for-profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia (eyes that are abnormally small, completely absent, or consist only of vestigial portions). Established in 1993, ICAN also enables parents with affected children to share personal experiences, information, and support; take advantage of the Network's database of physicians and educational resources; and learn about ongoing research and medical issues. ICAN provides referrals to genetic counseling, support groups, and other services and promotes professional and patient education. It provides a variety of educational and support materials through its computer database, directory, and regular newsletter. 22 Lower Park Street Holyhead Isle of Anglesey North Wales E-mail: enquiries@macs.org.uk

13. Home Page A charity offering information and support for families affected by Anophthalmia, microphthalmia or Coloboma. http://www.eyeless.org.uk/

Welcome to the Eyeless Trust Website This Charity helps children suffering from Anophthalmia, Microphthalmia or Coloboma By providing professional help and advice on medical and educational matters, counselling, respite care, independence training and where necessary, financial assistance Registered Charity 1028896

14. Microphthalmia-A Singular View The author explains how microphthalmia has affected her son. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Microphthalmia And Anophthalmia microphthalmia and Anophthalmia. International Children s Anophthalmia Network (ICAN) Micro Anophthalmic Childrens Society (MACS) information about http://www.ability.org.uk/Microphthalmia_and_Anophthalmia.html

Our Aims Services Stats ... Z Microphthalmia and Anophthalmia International Children's Anophthalmia Network (ICAN) - information about Microphthalmia, Anophthalmia, Coloboma and related conditions. Microphthalmia and Anophthalmia Microphthalmia Chat RNIB: Anophthalmia and Microphthalmia Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

16. Ican: Parent support group for families with a child with anophthalmia or microphthalmia. http://www.ioi.com/ican/

ican (International Children's Anophthalmia Network) is a parent support group for families with a child with anophthalmia or microphthalmia. The original objectives of the group are to: Support parents and children Connect parents Share information Provide education Gather medical/legal/governmental information Support and encourage research about microphthalmia and anophthalmia Support scholarships and grants Bulletin Board -the latest information about ican Issues of ican's family newsletter , are now available. ican Brochure To contact ican please call 1-800-580- ican ican Homepage Movements On-Line Homepage To ... Comments

17. Home Page Story and updates of a baby born without eyes. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Fran's Page: Children With Anophthalmia for discussion of anophthalmia and microphthalmia and related issues.Lens microphthalmia Syndrome This document from the National Organization for Rare http://www.growingstrong.org/bvi/fran.html

FRANCHESCA Last modified May 28, 2001 Franchesca was born on August 2, 1986, with anophthalmia, a condition in which the child has no eyes. An MRI when she was six indicated that she may have some optic nerve development. The above picture was taken when she was 9 years old. She is now 14 years old and still very tiny for her age. Franchesca has had numerous surgeries in the attempt to provide her with prosthetic eyes. These surgeries were done incorrectly, and during some of them she was not anesthetized. She was given Phenobarbital daily for 18 months as a sedative to keep her from doing things which would interfere with the healing process. Franchesca is classified educationally as mentally retarded and speech handicapped, in addition to being totally blind. It is not known how much her speech difficulties and blindness interfere with her ability to display her intellectual abilities. She has a large vocabulary and is quite expressive; however, her words are difficult to understand much of the time. I met Franchesca when she was two and a half years old. I was one of several teenagers providing child care at a local support meeting for parents. Franchesca and her two older sisters were among the children for whom we were caring. Franchesca was very active but still unable to walk. Shortly after I met her, she began wearing AFO's, a special kind of brace designed to correct the turning inward of her feet. When I met Franchesca, she could not talk or perform any self-care skills.

19. Targeted Disruption Of Exons 1 To 6 Of The Fanconi Anemia Group A 1 to 6 of the Fanconi Anemia group A gene leads to growth retardation, strainspecific microphthalmia, meiotic defects and primordial germ http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Microphthalmia Definition - Medical Dictionary Definitions Of Popular Medical Te Online Medical Dictionary and glossary with medical definitions. http://www.medterms.com/script/main/art.asp?articlekey=16198

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