21. IngentaConnect McArdles Disease Diagnosed Following Statin-induced Myositis McArdle s disease diagnosed following statininduced myositis. Authors CallumLivingstone1; Said Al Riyami1; Peter Wilkins2; Gordon AA Ferns1 http://www.ingentaconnect.com/content/rsm/acb/2004/00000041/00000004/art00014

Home About Ingenta Ingenta Labs Help For Publishers Why go online? Why choose IngentaConnect? Why choose CustomConnect? Access and authentication ... Contact us For Researchers About IngentaConnect Search and browse Publications available Accessing articles ... Register For Librarians Why choose IngentaConnect? Why choose IngentaConnect Premium? Activating Subscriptions Purchasing articles ... Browse Publications Authors: Callum Livingstone ; Said Al Riyami ; Peter Wilkins ; Gordon A.A. Ferns Source: Annals of Clinical Biochemistry , Volume 41, Number 4, 1 July 2004, pp. 338-340(3) Publisher: Royal Society of Medicine Press View Table of Contents full text options Abstract: Document Type: Case report DOI: Affiliations: Department of Clinical Biochemistry, Royal Surrey County Hospital, Guildford GU2 7XX, UK The full text article is available for purchase $18.76 plus tax The exact price (including tax) will be displayed in your shopping cart before you check out. You will be able to remove this item from your shopping cart at any time before you have completed check-out. View Table of Contents Back to top Terms and Conditions Page Help Quick Search Electronic content Fax/Ariel content Journal or book title Sign in: User name Password Remember me forgotten your password?

22. Count On 3 - WRCB Chattanooga DECADES LATER SHE LEARNED SHE HAD mcardles disease, A GENETIC MUSCULAR DISORDER THERE IS NO CURE FOR mcardles disease, BUT RESEARCH AT THE INSTITUTE FOR http://www.wrcbtv.com/special_reports/health.cfm?DID=10495

23. NOT FIBROMIALGIA !(sp) Please (for your own sake) have yourself tested for mcardles disease. Please (for your own sake) have yourself tested for mcardles disease. http://www.rxlist.com/rxboard/effexor.pl?read=1534

24. Re: Susie - Fibromyalgia Need Big Time Help I was diagnosed with it 4 yrs ago and they were wrong! I have mcardles disease.Check it out. It has alotta the symptoms that fibro has http://www.rxlist.com/rxboard/effexor.pl?noframes;read=1533

25. Billies' Help Page For Pain Understanding mcardles disease Information, 1, 1, MSN Nickname ™Billie1, 3/22/2004 407 AM.mcardles disease, 1, 1, MSN Nickname ™Billie1, 3/22/2004 402 AM http://groups.msn.com/Billieshelppageforpainunderstanding/rarediseases.msnw

var nEditorialCatId = 96; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(' Groups Groups Home My Groups Language ... Help Billies' help page for pain understanding Billieshelppageforpainunderstanding@groups.msn.com What's New Join Now Welcome to BHP Population 1536 ... Choose another message board View: Discussions Only Prev 50 Next 50 New Discussion Send to my Inbox Subject Messages Started By Last Reply Immunization schedule for Children 9/8/2005 9:32 AM GOUT? 9/6/2005 7:24 AM 8/24/2005 9:29 AM 8/22/2005 8:33 AM Lyme disease 8/15/2005 11:41 AM Cystic fibrosis 8/12/2005 11:13 AM Polycystic kidney disease 7/18/2005 9:29 AM Fever 6/28/2005 10:35 AM Hemophilia 5/27/2005 9:51 AM Help for Hepatitis C 5/25/2005 6:33 AM 5/19/2005 10:45 AM Drug mix boosts pancreatic cancer survival - study 5/12/2005 9:36 AM Gallbladder polyps 5/11/2005 9:13 AM Monitoring your blood sugar: Why, when and how 5/3/2005 10:21 AM Evaluating your risk: How likely are you to catch an infectious disease? 5/1/2005 10:46 AM 4/11/2005 11:23 AM 4/10/2005 11:54 AM MedIndia.net - Disease Conditions And Information 3/16/2005 6:44 AM Dental Disease Info 3/16/2005 6:43 AM Cystic fibrosis 3/10/2005 11:57 AM Flu information links from Deerlover 2/13/2005 8:46 AM From bacteria to parasistes: Understanding infections 1/21/2005 10:01 AM What do you want to know about?

26. Other Metabolic Diseases Of The Muscle | MDA Ask The Experts SUBJ (11/97) mcardles disease DIET EXERCISE. Through a glycogen storagedisease mailing list I have met 18 others who have myophosphorylase deficiency, http://www.mdausa.org/experts/ask_metab.html

Information contained in "Ask the Experts" is for informational and educational purposes only. Such information is not intended to replace, and should not be interpreted or relied upon as, professional advice, whether medical or otherwise. I have read the complete MDA Ask the Experts' , understand and agree to its terms. Previous Experts' Responses Ask a New Question Transcripts of Online Conferences Summary of Previous Responses: OTHER METABOLIC DISEASES OF THE MUSCLE Last Updated 11/01 Approximate date of response given after each "SUBJ" below. SUBJ (11/01): SEEKING EXPERIMENTAL TREATMENT FOR MCARDLE DISEASE I am 33 years old and at age 20 was diagnosed with McArdle disease (phosphorylase deficiency, MPD or PYGM). After many years of hospital stays, misdiagnoses and needles, I find that things are getting worse. I live with pain every day. Sometimes I think the muscle that is contracting is going to break my bones. I do not take any kind of medication nor pain pills. I never have. I have learned to block the pain out. It is now an emotion to me that I can shut out. Nonetheless, nothing helps me to walk or work when I need to. I am willing to be involved in any experimental work being done. Any side effects that may occur can't be any worse than what I go through on a daily basis. I truly believe I can help. I have pushed this disease to the limit. I have found foods that make the sick feeling go away during an episode of myoglobinuria. I have found myself getting third and fourth winds instead of just a second wind. Sometimes I pay dearly for my personal experiments but I can't just sit back and wait. I read about tests being performed sheep and that these tests are not working. I would like to volunteer for any test. I say let's leave the sheep alone and cut to the chase. I am ready to be the sheep.

27. Muscular Dystrophy Association | Research News Archives - 2001 Treatment of mcardles disease by Dr. Ronald Haller 5/23/01; MDA Adds to LouGehrig s Disease Program During ALS Awareness Month 4/30/01 http://www.mdausa.org/whatsnew/researchnews_archives01.cfm

Search Our Site Enter Your Zip Code: Click on your state for local offices in California Florida or New York Recent Research Developments Top Story: MDA Research Advances Rapidly Active Clinical Trials Many of MDA's clinical trials listings have been updated recently. Check the offerings for your disease of interest. The Ross Report Robert Ross (Last updated: 9/2/05) Receive e-mail news, tips and updates from MDA or ask us a quick question. Research News Archives - 2001 Remember to also visit our current Research News MDA News sections. Caution with Anesthesia Urged for Children With Mitochondrial Myopathies President Signs MD-CARE Act Mandating More NIH Emphasis on MD Research Research News: Study Finds Increased Risk of ALS Among Gulf War Veterans MDA Researchers Combine Stem Cells, Gene Therapy in Duchenne MD ... Treatment of McArdles Disease by Dr. Ronald Haller [5/23/01] MDA Adds to Lou Gehrig's Disease Program During ALS Awareness Month Research News: Coaxing Cells to Read Through Genetic Mistakes Could Provide New Gene Therapy Strategy MDA Scientists Show That Boosting Protein Could Treat Muscular Dystrophies Research News: New Drug Shows Promise in MG ... Research News New Mouse Model for SBMA [2/12/01]

28. Ribose - Swedish Medical Center, Seattle, Washington Duchenne Muscular Dystrophy; mcardles disease; Sports Performance Enhancement (HighIntensity Exercise). Page Navigation Requirements/Sources http://www.swedish.org/110948.cfm

PDF Version Search Send-to-Friend Health Library Home Ribose Principal Proposed Uses   ¢ None Other Proposed Uses   ¢ AMPD; Angina Probably Not Effective Uses   ¢ Duchenne Muscular Dystrophy; McArdles Disease; Sports Performance Enhancement (High Intensity Exercise) Page Navigation Requirements/Sources Therapeutic Dosages Therapeutic Uses What Is the Scientific Evidence for Ribose? ... References Ribose is a carbohydrate vital for the body's manufacture of ATP, which is the major source of energy used by our cells. Quite a few studies have been done on ribose, mostly relating to its potential usefulness for individuals with heart disease. When the heart is starved for oxygen, as can occur with a heart attack or angina, it loses much of its ATP, and its ATP levels remain low for several days, even after blood flow is resumed. Scientists have found that supplying extra ribose in the blood helps restore the heart's normal ATP levels more quickly. This finding has raised hopes that ribose supplements might improve heart functioning and increase exercise capacity. Ribose is better known as a sports supplement. However, current evidence indicates that it is not effective for this purpose.

29. McArdle's Disease Resources Nutritional and Metabolic DiseasesA Case of mcardles disease (Glycogen Storage Disease, Type V) Lacomis Giuliani U of Pittsburgh (US). On Pompe Disease - RareDiseases.org http://hometown.aol.com/itsgumby/

htmlAdWH('93212816', '728', '90'); Main links page. This site is the result of 10 years spent searching for information about McArdle's Disease. Most of the information I managed to find through those years turned out to be either confusing, misleading or of little use to anyone outside the scientific community. With this site, I hope to provide the "good stuff" - information you can use to help yourself and, in most cases, your physician to find the treatment and support that is available. Within these pages you will find everything you need to contact the people places that have the most useful information about McArdle's - those who have it and those who treat it. Hopefully, this site will also help to clear up some of the confusion that surrounds this disease. You may find that much of the information you were given is out of date. Most of all, after your visit here you will know that you are not alone. If that is the only bit of information you take with you then this site has served its purpose. E-Mail

30. McArdles Disease : On Medical Dictionary Online mcardles disease defined on the Free Online Medical Dictionary. mcardles disease.Glycogenosis due to muscle phosphorylase deficiency. http://www.online-medical-dictionary.org/?q=McArdles Disease

31. Mc : On Medical Dictionary Online McArdle Disease mcardles disease MCC Gene MCC Genes MCF Virus MCF Viruses MCGF2 McGill Pain Questionnaire McGill Pain Scale http://www.online-medical-dictionary.org/mc.asp?q=~Mc

32. Mdforums.org I was recently diagnosed with mcardles disease after noticing my strength has beenweakening, and I seemed to constantly have issues with Rhabdo after any sort http://mdforums.org//archive/o_t/t_3/my_introduction_dane.html

mdforums.org mdforums.org

33. Mdforums.org A drink was brought to my attention by a mcardles disease sufferer as wellwho uses EnduroxR4 and claims it has helped some. The http://mdforums.org//archive/o_t/t_36/glycogen_storage_disease_and_sports_drinks

mdforums.org mdforums.org

34. Penn State Faculty Research Expertise Database (FRED) Disease, McArdle, Disease, McArdle s. Glycogenosis 5s, mcardles disease.Muscle Phosphorylase Deficiencies, Phosphorylase Deficiencies, Muscle http://fred.hmc.psu.edu/ds/retrieve/fred/meshdescriptor/D006012

35. New Alabama Chapter It was then that I was diagnosed with Muscular Dystrophy a very rareform called mcardles disease (phosphorylase deficiency). http://vhl.org/newsletter/vhl2001/01coalab.htm

Basic Facts About VHL Managing Your Health Information for Health Care Professionals Research ... Press Room Families, Friends, Physicians, Researchers working together to improve diagnosis, treatment, quality of life for people affected by von Hippel-Lindau disease. New Alabama Chapter Linda D. is our new chapter chairperson for Alabama. She shares her story, and her goals for the chapter. I am 48 years of age, one of seven children, with me being number seven and twin to number six. There are 4 boys and 3 girls in our family. I graduated High School and went into the paramedic program at the University of Alabama, Birmingham, Alabama. I worked for Carraway Hospital in the emergency room at the time and wanted to train for the Life Saver Helicopter that was just being introduced. In my second level of paramedic training I was sent to NIH in Bethesda, Maryland, for evaluation of muscle problems. It was then that I was diagnosed with Muscular Dystrophy a very rare form called McArdles Disease (phosphorylase deficiency). This ended my dream of becoming a flight medic or even a paramedic. Since I could not be a paramedic, I worked as an office manager with several companies, and then started my own cleaning business approximately 8 years ago. I have two children. My son, Patrick, is a Staff Sgt. in the Air Force in Louisiana. My daughter-in-law, Brandy, graduated from the Police Academy in June. My daughter, Candi, lives near me and helps me with my cleaning business. I have two grandsons, Justin (5) and Hunter (1), the joy of my life.

36. Mcardles Hi, my name is Norm, and I have mcardles disease. With mcardles disease it snot healthy to do too much strenuous activities and at the same time, http://www.angelfire.com/on/worldwideweb/norm.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire 40 Yr Old Virgin Share This Page Report Abuse Edit your Site ... Next Mcardles Disease Hi, my name is Norm, and I have Mcardles disease. I am 45 years old and I am in the process of getting an electric wheelchair. I started feeling the affects of Mcardles at a very young age (around 6 years old.) Exhaustion was my worst symptom. School was brutal, especially gym where my muscles cramped up so bad that they locked, I couldn't stand up straight and my arms would seize up...but no one even noticed! I went years like this until I was finally diagnosed in the 70's. Then I started to get myoglobin in my urine which could cause kidney failure, in which I was fortunate that that never happened. With Mcardles disease it's not healthy to do too much strenuous activities and at the same time, it's not very healthy to not get your daily exercise. At this time there is no cure for Mcardles. Mcardles is recognized by the Muscular Dystrophy Association.

37. Bodybuilding.com - Anssi Manninen - Creatine Loading Strategies! What Works Best disuse atrophy, gyrate atrophy, mcardles disease, Huntington´s disease,miscellaneous neuromuscular diseases, mitochondrial diseases, muscular dystrophy http://www.bodybuilding.com/fun/anssi1.htm

Advanced Search Articles Home Main Page Brand Listing ... Printable Page Did you know? Each body part you work needs at least 24-48 hours of adequate rest and sometimes up to 5-7 days. Main Articles Supplements Creatine Loading Strategies! What Works Best? With many types of creatine on the market, all claiming to be the best, how do you choose the best one for you? Here is the scientific truth! By: Anssi Manninen Reprinted with permission from Muscular Development C reatine is a nitrogenous amine. Normal daily dietary intake of creatine from an omnivorous diet approximates 1 g. Exogenous dietary sources of creatine include meat, fish, and other animal products, but it may also be formed endogenously in the liver, kidney, and pancreas from the amino acids glycine, arginine, and methionine. One-half kg of fresh, uncooked steak contains about 2 g creatine. Creatine has become a popular nutritional supplement among athletes. In 1998, about $US200 million was spent on creatine monohydrate. Of the approximately 300 studies that have evaluated the potential ergogenic value of creatine supplementation, about 70% of these studies report statistically significant results while remaining studies generally report non-significant gains in perfomance. However, studies that have reported no significant benefit of creatine supplementation often have low statistical power, have evaluated performance tests with large test-to-test variability, and/or have not incorporated appropriate experimental controls.

38. Journal Of Clinical Neuromuscular Disease - UserLogin mcardles disease presenting as recurrent cryptogenic renal failure due to occultseizures. Muscle Nerve. 2003;28640643. CrossRef 2. http://www.jcnmd.com/pt/re/jclnnmd/fulltext.00131402-200406000-00006.htm

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39. Young Australians to assist the Australian Physiology community in further researching musclefatigue and its impact on sufferers of diabetes and mcardles disease. http://www.youngaustralians.org/our/ya_our_fund_for_04.asp

hilite(document.navItem2,2); Initiatives Funded in 2005 Initiatives Funded in 2004 Youth Development Initiatives Initiatives Funded Prior to 2004 Fund for Individuals 2004 Erin Masters, NSW To fund the travel and equipment costs to attend the National Circus Festival and Training program in Launceston, Tasmania in February 2005. On return from the Festival, the grant recipient will utilise the skills acquired to facilitate circus workshops with young people who suffer from poor self-esteem, learning difficulties, body image issues and substance abuse with young people. Amount: $708 Holly Carchich, SA To fund the travel costs to The Netherlands to undertake a three-month legal internship with the United Nations International Criminal Tribunal from January to April 2005. On return, the grant recipient will disseminate the knowledge acquired to members of the University of Adelaide’s law community and members of Amnesty International in South Australia. Amount: $2,543

40. Adult Outpatient Programs And Services Muscular Dystrophy Association Clinic Peroneal muscular atrophy (Charcot Marie Tooth Disease); Frederick s Ataxia deficiency(mcardles disease); Acid Maltase Deficiency (Pompe s disease) http://www.njrehab.org/MDA.htm

Adult Outpatient Programs and Services Muscular Dystrophy Association Clinic The JFK Johnson Rehabilitation Institute's Muscular Dystrophy Association (MDA) Clinic provides a multidisciplinary approach to the diagnosis and treatment of over 40 muscular dystrophies. Adult and pediatric clinics are held once a month throughout the year. Services consist of examination, testing and counseling performed by a physiatrist, physical, occupational and speech therapist. A social worker and registered nurse also assist in assessing the patient's/family's needs. After establishing the diagnosis and treatment plan, the patient is monitored two to three times a year through follow-up clinic visits. The clinic, partially supported by the Muscular Dystrophy Association through a grant, is one of 230 hospital-based clinics affiliated with the MDA. If you suspect that you or your child may have the diagnosis of muscular dystrophy, you may call for a clinic appointment. Appointments for the adult clinic can be made by calling (732) 321-7733 and the pediatric clinic can be reached at (732) 548-7610. Diseases treated through the MDA clinic include: Muscular dystrophies Myotonic Dystrophies Duchenne's Becker's Limb-Girdle Facioscapularhumeral Congenital Distal Emery-Dreifus Motor neuron diseases Amyotrophic lateral sclerosis(ALS) Infantile progressive spinal muscular atrophy (Type 1 Werdnig Hoffman disease) Intermediate Spinal Muscular Atrophy (Type 2)

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