1. Mayer-Rokitansky-Kuster-Hauser Syndrome MayerRokitansky-Kuster-Hauser Syndrome I was born without a uterus. I have been trying to find out more information on this. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

2. YOUNG-WOMEN Messages For March, 2001 Mayer Rokitansky Kuster mayer rokitansky kuster hauser syndrome From bano (anonymous@obgyn.net) Fri, 9 Mar 2001 072759 0600 (CST) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

3. WOMENS-HEALTH Messages For March, 1998 Re Mayer Rokitansky Re mayer rokitansky kuster hauser syndrome/absent uterus/vagina http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

4. Mayer-Rokitansky-Kuster-Hauser Syndrome MAYERROKITANSKY-KUSTER-HAUSER SYNDROME Clinical Information The patient is a 16 year old white female who had undergone normal http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

5. Comments About Mayer-Rokitansky-Kuster-Hauser Syndrome (Congenital MayerRokitansky-Kuster-Hauser Syndrome (congenital total or partial absence of uterus and vagina) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

6. MAGIC FOUNDATION What is MayerRokitansky-Kuster-Hauser syndrome? Mayer- Rokitansky-Kuster-Hauser (MRKH) syndrome is an uncommon variation in the prenatal http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. Mayer- Rokitansky-Kuster-Hauser Syndrome, Also Known As Mullerian MayerRokitansky-Kuster-Hauser Syndrome What is Mayer-Rokitansky-Kuster-Hauser syndrome? Mayer- Rokitansky-Kuster-Hauser (MRKH) syndrome is an http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. Women's Health The Comfort Zone - March 11, 1998 MayerRokitansky-Kuster-Hauser (MRKH) syndrome is a fairly rare syndrome that affects about 1 in 10 000 women. This syndrome can cause a http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

9. UCL Hospitals - Gynaecology Absence of the vagina (Rokitansky syndrome, MayerRokitansky Syndrome, MRKH syndrome) Vaginal septae, absent uterus, abnormal clitoris http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. YOUNG-WOMEN Messages For March, 2001: Mayer Rokitansky Kuster Hauser Syndrome I have been diagnosed to have mayer rokitansky kuster hauser syndrome have beentold that there is no treatment for my rudimentary uterus I cannot bear http://forums.obgyn.net/young-women/YOUNG-WOMEN.0103/0057.html

-VISIT OUR OTHER FORUMS- Breast Health Forum Endo@OBGYN.net Mujer (en español) PCOS Forum PCOS Diet Forums PCOS Medication Forum Vrouw en Gezondheid (nederland) Women's Health Forum Young Women's Health Forum s earch this forum: Mayer Rokitansky kuster Hauser Syndrome From: bano anonymous@obgyn.net Fri, 9 Mar 2001 07:27:59 -0600 (CST) Messages sorted by: [ date ] [ thread ] [ subject ] [ author ] Next message: William McIntosh, MD: "Re: Mayer Rokitansky kuster Hauser Syndrome" Previous message: Lilly: "Vagina concern" Next in thread: William McIntosh, MD: "Re: Mayer Rokitansky kuster Hauser Syndrome" Reply: William McIntosh, MD: "Re: Mayer Rokitansky kuster Hauser Syndrome" Next message: William McIntosh, MD: "Re: Mayer Rokitansky kuster Hauser Syndrome" Previous message: Lilly: "Vagina concern" Next in thread: William McIntosh, MD: "Re: Mayer Rokitansky kuster Hauser Syndrome" Reply: William McIntosh, MD: "Re: Mayer Rokitansky kuster Hauser Syndrome" recommended search... OBGYN.net only forums endozone.org Web use when must restrict search to only the young women's forum... Enter search keywords: Returns per screen: Require all keywords: Return to POST A MESSAGE to this Forum MAIL a message directly to this Forum: YOUNG-WOMEN@OBGYN.net

11. TASC The American Surrogacy Center. Comprehensive Information For Welcome to the MayerRokitansky-Kustur-Hauser Syndrome Listserv Online Support Center, a forum open only to women with this syndrome. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Mayer Rokitansky Kuster Hauser Syndrome | Intersex Society Of North America A resource for women with mayer rokitansky kuster hauser syndrome Also known asMullerian Agenesis, Vaginal Agenesis, Congenital Absence of Vagina. http://www.isna.org/taxonomy/term/15

@import "misc/drupal.css"; @import url(modules/event/event.css); home faq links contact ... agenda Our Supporters Arcus Foundation The California Endowment Gill Foundation Kicking Assets Small Change Foundation Over 1,000 individual supporters like you Sections About Board Members Emeritus Funders ... Recent Publications Featured Research Agonize, then Cut this way! Effects of Clitoral Surgery Better Browsing! Home Mayer Rokitansky Kuster Hauser Syndrome MRKH Org Classification: Mayer Rokitansky Kuster Hauser Syndrome A resource for women with Mayer Rokitansky Kuster Hauser Syndrome Also known as Mullerian Agenesis, Vaginal Agenesis, Congenital Absence of Vagina. visit MRKH Org AIS Support Group Classification: Androgen Insensitivity Syndrome Mayer Rokitansky Kuster Hauser Syndrome AIS read more visit AIS Support Group Building a world free of shame, secrecy, and unwanted sexual surgeries since 1993 Get ISNA News Get the Video! Upcoming events (event) (8 days) Cheryl Chase at Gay and Lesbian Medical Association Annual Conference (event) (14 days) (event) (69 days) Intersex Activists present keynote at RWJ Human Sexuality Course (event) (116 days) First World Congress on Gender-Specific Medicine (event) (167 days) Nina Williams moderates panel at New Jersey Psychological Association (event) (232 days) more Contact ISNA Detailed contact info Who's online There are currently users and 13 guests online.

13. Directory | Intersex Society Of North America mayer rokitansky kuster hauser syndrome MRKH Org A resource for women withmayer rokitansky kuster hauser syndrome Also known as Mullerian Agenesis, http://www.isna.org/directory/15

@import "misc/drupal.css"; @import url(modules/event/event.css); home faq links contact ... agenda Our Supporters Arcus Foundation The California Endowment Gill Foundation Kicking Assets Small Change Foundation Over 1,000 individual supporters like you Sections About Board Members Emeritus Funders ... Recent Publications Featured Research Agonize, then Cut this way! Effects of Clitoral Surgery Better Browsing! Home directory Mayer Rokitansky Kuster Hauser Syndrome AIS Support Group - "We are an international support group providing information and support to young people and adults with complete and partial Androgen Insensitivity Syndrome, and to parents of AIS youngsters. We also support those affected by Swyer's syndrome (XY gonadal dysgenesis), 5 alpha reductase deficiency, Leydig Cell Hypoplasia, Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome, Mullerian dysgenesis, Mullerian duct aplasia, vaginal atresia, and other related conditions." Excellent resources at this site, even if you don't have one of the conditions or gender identities that they address. See their website for chapters around the world, including US and Canada. There's no site search at this valuable website, so we've provided one below.

14. Mrkhorg mayer rokitansky kuster hauser syndrome. Also known as Mullerian Agenesis, VaginalAgenesis, Congenital Absence of Vagina http://mrkhorg.homestead.com/

The Myth of the Vaginal Orgasm - posted in memory of Anne Koedt May her contribution to women's sexuality live on... Beyond the Monologue Journal of Gay and Lesbian Psyschotherapy In Press, July 2005 Read the Monologue first The Self I will Never Know The New Internationalist: Jan/ Feb 2004 THE MISSING VAGINA MONOLOGUE Please contact Info@mrkh.org to copy information from this web site. This information was collected from a variety of resources who need to be contacted for permission. THANKS. MRKH.org, inc P.O Box 301494, Jamaica Plain, MA 02130 info@mrkh.org A resource for women with M ayer R okitansky K uster H auser Syndrome Also known as Mullerian Agenesis, Vaginal Agenesis, Congenital Absence of Vagina Please contact Info@mrkh.org to copy information from this web site. This information was collected from a variety of resources who need to be contacted for permission. THANKS. last updated on: 8/30/05 Women's Health Edition-Sojourner, March 2001 THE MISSING VAGINA MONOLOGUE The Self I will Never Know The New Internationalist: Jan/ Feb 2004 Beyond the Monologue Journal of Gay and Lesbian Psyschotherapy In Press, July 2005

15. Birth Disorder Information Directory - M mayer rokitansky kuster hauser syndrome (Mullerian Agenesis, Vaginal Agenesis,Congenital Absence of Vagina). mayer rokitansky kuster hauser syndrome http://www.bdid.com/defectm.htm

HOME M Machado Joseph Disease (Autosomic Dominant Spinocerebellar Ataxia, Autosomic Dominant Cerebellar Ataxia, Cerebelloolivary Atrophy, Olivopontocerebellar Atrophy, Pierre Marie Cerebellar Ataxia) List of Sites Macrencephaly List of Sites Macrocephaly List of Sites Macrodactyly/Megalodactyly Macrodactly of the Right Foot Macrodactyly of Both Hands and Foot Associated with Cutaneous Hemangiomata MEGALODACTYLY Macroglossia Macroglossia (Includes Ultrasounds and Photos) Also see Beckwith Wiedemann Syndrome Blomstrand Syndrome Congenital Hypothyroidism Mucopolysaccharidosis and Simpson Golabi Behmel Syndrome Macrogyria MACROGYRIA Asperger's Syndrome Macular Dystrophy Vitelliform See Best Disease/Macular Dystrophy Atypical MACULAR DYSTROPHY, ATYPICAL VITELLIFORM; VMD1 Macules Hereditary Congenital Hypopigmented and Hyperpigmented See Westerhof Beemer Cormane Syndrome Madelung's Deformity See Leri Weill Syndrome Majewski Syndrome See Short Rib-Polydactyly Syndrome, Type IV Mal de Meleda See Meleda Disease Male Pseudohermaphroditism Due to 5-Alpha-Reductase Deficiency See Pseudovaginal Perineoscrotal Hypospadias Due to Androgen Insensitivity See Androgen Insensitivity Syndrome Male Turner Syndrome See Noonan Syndrome Malignant Hyperthermia See Hyperthermia, Malignant

16. Registration: Mayer Rokitansky Kuster Hauser Syndrome , Only in Swedish. URL,http//biphome.spray.se/torahr/. Categories......mayer rokitansky kuster hauser syndrome. http://katalogen.sunet.se/reginfo.html?id=108212&lang=english

17. Registration: Mayer Rokitansky Kuster Hauser Syndrome MRKH, eller mayer rokitansky kuster hauser syndrome innebär att en kvinna födsutan livmoder och slida. MRKH kallas även vaginal och livmoderagenesis eller http://katalogen.sunet.se/reginfo.html?id=108212

18. MRKH Syndrome mayer rokitansky kuster hauser syndrome is a condition that affects approximately1 in 5000 women. Learn more about it by reading this article. http://ncnc.essortment.com/mayerrokitansky_rknh.htm

MRKH syndrome Mayer Rokitansky Kuster Hauser Syndrome is a condition that affects approximately 1 in 5000 women. Learn more about it by reading this article. We've heard of heart malformations and limb deformities but genital malformations? This is part of Mayer Rokitanksy Kuster Hauser Syndrome(MRKH) which includes a short or nonexistent vagina, no cervix, and a partial or absent uterus. The causes are unknown. Most women find about this when they are teenagers. Some girls may find out at a young age when they have surgeries for some other problems such as hernias. Yet the majority find out when their periods won't come. They despair because sisters got their periods at earlier ages. They think they're "late bloomers". A visit to the obstetrician-gynecologist will be futile when the doctors are unable to do pelvic exams on them because of their short or nonexistent vaginas. Instead doctors use laparoscopic surgery where they insert a light through the navel or they use ultrasound to make a diagnosis. This way, the doctors are able to ascertain the condition of the reproductive organs. Doctors should find normal ovaries and fallopian tubes. However, they should find no uterus or an incomplete one. An incomplete one is usually removed because it may cause cramps. Once the doctors find these problems, the question changes from why haven't I gotten a period to how can a doctor "cure" it? A doctor can't cure the 'no periods' part because the women don't have uteruses.

19. Vaginal Hypoplasia female conditions such as MRKH (mayer rokitansky kuster hauser syndrome). Popp LW New approach to the Mayer von RokitanskyKuster-Hauser syndrome. http://www.medhelp.org/www/ais/31_HPLASIA.HTM

Androgen Insensitivity Syndrome Support Group Website (If you came to this page directly, please go to our entry page by clicking here.) Vaginal Hypoplasia [last updated 10 Aug 2004] Introduction (Embryology) During fetal development in females, the Mullerian ducts mature into the Fallopian tubes, uterus, cervix, and upper third of the vagina, (the so-called "Mullerian organs"). The lower part of the vagina is derived from a primitive structure called the urogenital sinus, which comes from the perineum. In males, the Mullerian ducts regress under the influence of a hormone, Mullerian Inhibitory Factor or MIF, from the developing testes. In AIS, although the testes fail to masculinize the external genitalia, they do produce sufficient MIF to suppress development of Fallopian tubes, uterus, and upper vagina. The upper third of the vagina is invariably missing, but the lower two-thirds may be fully developed and sufficient for intercourse. The reason is not clear, but in some cases the vagina may be even shorter, perhaps only a few centimeters, or even just a "dimple". The incidence of significant vaginal hypoplasia among AIS patients does not seem to be known. It has been suggested to the group by one pediatrician that significant shortening of the vagina in AIS indicates some degree of partial sensitivity to androgens (PAIS) and that those with the complete form (CAIS) should not have a major problem. This is obviously not the case since we know that two sisters, each diagnosed as CAIS (and with no androgen-dependent pubic/axillary hair), can have vaginal lengths at opposite ends of the spectrum. We also know of women with grades 4 and 5 Partial AIS who were born with fairly well-developed partial vaginas and who were able to achieve sufficient vaginal length for intercourse without surgery.

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