1. Klinefelter Syndrome Support Group Website Educational and support information about klinefelter syndrome/XXY and its variants. http://klinefeltersyndrome.org

Klinefelter Syndrome Support Group Home Page What is Klinefelter Syndrome? Living with Klinefelter Syndrome - My Story Hurricane Katrina Relief Information Click here to translate this web site to a different language ... Variant and Prenatal Diagnosis Information (47XYY, 47XXX, 48,XXXY, 48,XXYY, 49,XXXXY E-mail lists for support and information Current Research Studies Informative Resources Klinefelter Syndrome Organizations ... Websites for non-Klinefelter links especially other genetic conditions Send any comments or questions to the webmaster. Bookmark This Site To Return For Updates This page created by Stefan Read my Dreambook! Sign my Dreambook! The information, text, graphics, and links provided on this site are provided for those seeking information about Klinefelter Syndrome/XXY. The opinions of the webmaster are his alone and do not necessarily reflect the opinions of any organization with which he is affiliated. The webmaster does not warrant the accuracy, or completeness of any links provided herein. Submit your page to 34 popular sites for free, using one form!

2. KS&A Home Page Information about klinefelter syndrome, when it was first discovered, the common characteristics, and treatment. http://www.genetic.org/

Search Support Newsletter Additional Resources ... Sex Chromosome Variations Special Events: Study Announcements The Listservs are available!! Update your records via the Internet at http://www.genetic.org/ks/member_info or call (888)999-9428. Providing services and support to individuals and their families; Educating educational and healthcare professionals; Working to ensure that scientifically up to date information is in the hands of people when they need it and reported accurately in the media; Identifying and promoting unexplored research opportunities; and Helping to bring to market new, improved and affordable treatments that directly address the health needs of our adults, adolescents and children. On this site, you will find information about X and Y chromosome variations (or aneuploidies), which are commonly known as 47,XXY or Klinefelter syndrome, Triple-X or XXX, 47,XYY and 48-plus X and Y chromosome conditions. In the aggregate, these conditions affect approximately 1 out of every 500 people and translate to approximately 600,000 persons in the U.S. alone. X and Y chromosome variations are common conditions that are rarely diagnosed. And because of that too many individuals do not receive the proven treatments that can significantly diminish symptoms and enhance productivity, physical health and ability to reach life potential. The first of these conditions to be identified was 47,XXY (referring to the fact that the male has 47 chromosomes including 2 X’s and 1 Y). Without proper identification and treatment, persons who are 47,XXY can develop one or more symptoms of Klinefelter syndrome. This web site provides information about when 47,XXY was first discovered, the common characteristics of Klinefelter syndrome, on-going research and treatment. In the near future, we will post information about other X and Y chromosome variations, such as Triple X (referring to females with 47 chromosomes, including 3 X’s) and 47,XYY (referring to males with 47 chromosomes including 1 X and 2 Y chromosomes).

3. Klinefelter Syndrome Specific health and educational resources for Ohio KS individuals and their families. Links to local and national healthcare, ongoing research, conferences, and support meetings. http://www.klinefelter-ohio.com

Klinefelter Syndrome of Ohio and Beyond enter website Last updated September, 2005

4. SmartGroups - The Free Service For Group Communication A list for people with Klinefelter's to talk about how it affects their lives, families, friends, relationships, and work, and where to get good medical treatment. http://www.smartgroups.com/groups/ksa-uk

New Users Register Existing Users Login What is SmartGroups? Take Tour Help Centre About Us Advertise Groups Search Groups What is SmartGroups? Invited to a Group? Start your own Group ... Place an Advert email password Remember me (this activates a cookie) Wanadoo Broadband Surf up to 20 times faster for only £17.99 a month. Get Broadband now! SmartGroups Announcements Find out what is happening on SmartGroups by subscribing to SG Announce , for regular alerts. More about Smartgroups Smartgroups is not just about group email. Find out how you can easily arrange events, share pictures, group opinions and much more! Home Help Find Group Create Group ... Privacy and Cookie policy

5. NICHD - Publications On-line For this reason, the term klinefelter syndrome has fallen out of favor with For example, some people may confuse the term klinefelter syndrome with http://www.nichd.nih.gov/publications/pubs/klinefelter.htm

Home Search Sitemap Contact ... Publications Understanding Klinefelter Syndrome A Guide for XXY Males and Their Families Written by: Robert Bock Office of Research Reporting, NICHD NIH Pub. No. 93-3202 August 1993 CONTENTS What is Klinefelter Syndrome? Chromosomes and Klinefelter Syndrome Causes Diagnosis ... Resources WHAT IS KLINEFELTER SYNDROME? In 1942, Dr. Harry Klinefelter and his coworkers at the Massachusetts General Hospital in Boston published a report about nine men who had enlarged breasts, sparse facial and body hair, small testes, and an inability to produce sperm. By the late 1950s, researchers discovered that men with Klinefelter syndrome, as this group of symptoms came to be called, had an extra sex chromosome, XXY instead of the usual male arrangement, XY. (For a more complete explanation of the role this extra chromosome plays, see the accompanying section, "Chromosomes and Klinefelter syndrome." In the early 1970s, researchers around the world sought to identify males having the extra chromosome by screening large numbers of newborn babies. One of the largest of these studies, sponsored by the National Institute of Child Health and Human Development (NICHD), checked the chromosomes of more than 40,000 infants. Based on these studies, the XXY chromosome arrangement appears to be one of the most common genetic abnormalities known, occurring as frequently as 1 in 500 to 1 in 1,000 male births. Although the syndrome's cause, an extra sex chromosome, is widespread, the syndrome itself-the set of symptoms and characteristics that may result from having the extra chromosome-is uncommon. Many men live out their lives without ever even suspecting that they have an additional chromosome.

6. American Association For Klinefelter Syndrome Information And American Association for klinefelter syndrome Information and Support (AAKSIS) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. XXY Information Klinefelter Syndrome A medical and information site for klinefelter syndrome, XXY, and variants http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. Klinefelter's Syndrome What is Klinefelter s Syndrome? Booklet on klinefelter syndrome Contact Group. Klinefelter s syndrome is found in approximately 1 of 700 men, http://www.aaa.dk/TURNER/ENGELSK/KLINEN.HTM

Klinefelter's Syndrome. What is Klinefelter's Syndrome? Booklet on Klinefelter Syndrome Contact Group Klinefelter's syndrome is found in approximately 1 of 700 men, i.e. there are approximately 3600 boys and men with Klinefelter's syndrome in Denmark with 5 million inhabitants. Men usually have but one X and one Y chromosome, i.e. the chromosomeconstitution 46,XY. Men with Klinefelter's syndrome have more than one X chromosome, usually two X chromosomes, i.e. the chromosome constitution 47,XXY. At birth the testicles of Klinefelter boys are of normal size. When the testicles grow quickly in boys with normal chromosomes at the age of 11-12 years, the testicles of Klinefelter boys stay very small, as a rule only 2 cms. from pole to pole. Usually only few sperms are developed in the testicles, and men with Klinefelter's syndrome are as a rule infertile. Boys with Klinefelter's syndrome should be treated with testosterone, usually from the 11 or 12 years of age, best with Restandol tablets (Testosteroneundecanoat), which does not affect the liver, or with injections of other testosterone preparations. Klinefelter boys more often than other boys have delayed motor function, speech, and maturation development, which does not make them patients demanding special treatment. It is important that these boys at an early age go to a good day-care institution, and that there is a close cooperation between parents and day-care institution staff. If the speech development is delayed, it is important to get help from a speech-therapist for a period. Regarding the motor function development, the participation of parent/child in sports activities and group activities of any kind is of great value. The same is the case with regard to stimulating the delayed development in maturation. In this connection it must be mentioned, that it is also important to stimulate these boys to independence, and not in any way to overprotect them.

9. EMedicine - Klinefelter Syndrome : Article By Harold Chen, MD, MS, FAAP, FACMG Overview and medical information. http://www.emedicine.com/PED/topic1252.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease Klinefelter Syndrome Last Updated: December 17, 2004 Rate this Article Email to a Colleague Synonyms and related keywords: XXY male XXY syndrome XXXY syndrome XXYY syndrome ... cryptorchidism AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Harold Chen, MD, MS, FAAP, FACMG , Chief, Professor, Department of Pediatrics, Section of Perinatal Genetics, Louisiana State University Medical Center Harold Chen, MD, MS, FAAP, FACMG, is a member of the following medical societies: American Academy of Pediatrics American College of Medical Genetics American Medical Association American Society of Human Genetics , and Teratology Society Editor(s): Ian Krantz, MD , Assistant Professor, Department of Pediatrics, University of Pennsylvania and Children's Hospital of Philadelphia; Robert Konop, PharmD

10. Klinefelter Syndrome klinefelter syndrome of Ohio http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Klinefelter's Syndrome Gynecomastia (enlarged Male Breast Male chest recontouring for large male breasts (gynecomastia) found in Klinefelter's Syndrome with surgical reduction by excision and liposuction. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. KS&A Home Page klinefelter syndrome and Associates, 11 Keats Court, Coto de Caza, CA 92679 Toll Free Number 888XXY-WHAT (888-999-9428). For additional information on X http://www.genetic.org/ks/

Search Support Newsletter Additional Resources ... Sex Chromosome Variations Special Events: Study Announcements The Listservs are available!! Update your records via the Internet at http://www.genetic.org/ks/member_info or call (888)999-9428. Providing services and support to individuals and their families; Educating educational and healthcare professionals; Working to ensure that scientifically up to date information is in the hands of people when they need it and reported accurately in the media; Identifying and promoting unexplored research opportunities; and Helping to bring to market new, improved and affordable treatments that directly address the health needs of our adults, adolescents and children. On this site, you will find information about X and Y chromosome variations (or aneuploidies), which are commonly known as 47,XXY or Klinefelter syndrome, Triple-X or XXX, 47,XYY and 48-plus X and Y chromosome conditions. In the aggregate, these conditions affect approximately 1 out of every 500 people and translate to approximately 600,000 persons in the U.S. alone. X and Y chromosome variations are common conditions that are rarely diagnosed. And because of that too many individuals do not receive the proven treatments that can significantly diminish symptoms and enhance productivity, physical health and ability to reach life potential. The first of these conditions to be identified was 47,XXY (referring to the fact that the male has 47 chromosomes including 2 X’s and 1 Y). Without proper identification and treatment, persons who are 47,XXY can develop one or more symptoms of Klinefelter syndrome. This web site provides information about when 47,XXY was first discovered, the common characteristics of Klinefelter syndrome, on-going research and treatment. In the near future, we will post information about other X and Y chromosome variations, such as Triple X (referring to females with 47 chromosomes, including 3 X’s) and 47,XYY (referring to males with 47 chromosomes including 1 X and 2 Y chromosomes).

13. Klinefelter Syndrome Support Group Website Educational and support information about klinefelter syndrome/XXY and its variants. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. NICHD - Publications On-line Variations Sexuality Infertility Health Considerations Adulthood Resources WHAT IS klinefelter syndrome? In 1942, Dr. Harry Klinefelter and http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. EMedicine - Klinefelter Syndrome : Article By Harold Chen, MD, MS, FAAP, FACMG klinefelter syndrome In 1942, Klinefelter et al published a report on 9 men who had enlarged breasts, sparse facial and body hair, small testes, http://www.emedicine.com/ped/topic1252.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease Klinefelter Syndrome Last Updated: December 17, 2004 Rate this Article Email to a Colleague Synonyms and related keywords: XXY male XXY syndrome XXXY syndrome XXYY syndrome ... cryptorchidism AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Harold Chen, MD, MS, FAAP, FACMG , Chief, Professor, Department of Pediatrics, Section of Perinatal Genetics, Louisiana State University Medical Center Harold Chen, MD, MS, FAAP, FACMG, is a member of the following medical societies: American Academy of Pediatrics American College of Medical Genetics American Medical Association American Society of Human Genetics , and Teratology Society Editor(s): Ian Krantz, MD , Assistant Professor, Department of Pediatrics, University of Pennsylvania and Children's Hospital of Philadelphia; Robert Konop, PharmD

16. My Klinefelter's Syndrome Page What is Klinefelter's Syndrome? In the "perfect" human genetic body, there are 23 pairs of chromosomes in the nuclei of every gene. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Klinefelter Syndrome? klinefelter syndrome? Or is he XXY? There IS a difference! Understanding klinefelter syndrome A Guide for XXY Males and their Families. http://xxy.50megs.com/

Free Web Site Free Web Space and Site Hosting Web Hosting Internet Store and Ecommerce Solution Provider ... High Speed Internet if(window.ivnRotate) window.ivnRotate1 = new window.ivnRotate('ivnRotate1',0,document.awsSearch1.Keywords) Popular Searches: OUTSTANDING WEBSITE AWARD sponsored by Disability Network Inc. Klinefelter Syndrome? Or is he XXY? There IS a difference! A Parent's View Boys are made of special things and sometimes some Xtra special things! Allow me to begin by telling you that many doctors and researchers do not refer to Klinefelter Syndrome when referring to a child because a child can not and does not have the symptoms of what Harry Klinefelter researched and not all babies and boys will go on to develop the symptoms associated with Klinefelters Syndrome and until they do, they do not have a syndrome. There is the blessing of the early diagnosis. SO much can be changed but just having that advantage. Use it to yours!! So you have just been told that your baby has an extraX.......There is so much more to know than just that! Please take the time to educate yourself. The unknown is a scary place to be and usually the FACTS are not as bad as they first may seem. Please read on! I was in your shoes just a short time ago when I was told that my two month old baby had this disorder. I was terrified....but I also love my child with all of my heart so I took the time to learn. I will share with you what I felt, heard, read and learned and hopefully provide you with something I wished I had had available to me the day I was told.

18. Klinefelter Syndrome Gives A Genetic Twist To Tales About George klinefelter syndrome Gives a Genetic Twist to Tales about George Washington, Napoleon, Lincoln Why was George Washington infertile? http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

19. AAKSIS American Association for klinefelter syndrome Information and Support (AAKSIS) http://www.aaksis.org/

skip navigation links About AAKSIS Contact Education ... Visitor Center b Information Understanding Klinefelter Syndrome : A Guide for XXY Males and their Families, by Robert Bock, Office of Research Reporting, NICHD. NIH Pub. No. 93-3202 August 1993. A Spanish translation of the complete "Understanding Klinefelter Syndrome: A Guide for XXY Males and Their Families," by Robert Bock. About 47XXY/Klinefelter Syndrome , the AAKSIS introductory Brochure. The complete AAKSIS Introductory Brochure is also available for download: 151K Adobe Acrobat PDF document . The brochure may be printed out and distributed. Klinefelter Syndrome - What to expect, how to respond? by Wolfram E. Nolten, M.D. F.A.C.P. University of Wisconsin Medical School Dr Nolten gives a broad overview of the syndrome based on his reading of current research. Announcement For anyone who has been approached to participate in a study being conducted by researcher@klinefelter-xxy.org , please click here Studies Brain-imaging study at the NIMH Sex Chromosome Tetrasomy and Pentasomy , by Bruce G. Bender, PhD; Mary G. Linden, MS; Arthur Robinson, MD. This 59K document (without graphics) is courtesy of the National Jewish Medical and Research Center Transdermal Testosterone Gel Improves Sexual Function, Mood, Muscle Strength, and Body Composition Parameters in Hypogonadal Men

20. Klinefelter Syndrome? A parent's point of view, with articles. http://xxy.50megs.com/INDEX.HTML

Free Web Site Free Web Space and Site Hosting Web Hosting Internet Store and Ecommerce Solution Provider ... High Speed Internet if(window.ivnRotate) window.ivnRotate1 = new window.ivnRotate('ivnRotate1',0,document.awsSearch1.Keywords) Popular Searches: OUTSTANDING WEBSITE AWARD sponsored by Disability Network Inc. Klinefelter Syndrome? Or is he XXY? There IS a difference! A Parent's View Boys are made of special things and sometimes some Xtra special things! Allow me to begin by telling you that many doctors and researchers do not refer to Klinefelter Syndrome when referring to a child because a child can not and does not have the symptoms of what Harry Klinefelter researched and not all babies and boys will go on to develop the symptoms associated with Klinefelters Syndrome and until they do, they do not have a syndrome. There is the blessing of the early diagnosis. SO much can be changed but just having that advantage. Use it to yours!! So you have just been told that your baby has an extraX.......There is so much more to know than just that! Please take the time to educate yourself. The unknown is a scary place to be and usually the FACTS are not as bad as they first may seem. Please read on! I was in your shoes just a short time ago when I was told that my two month old baby had this disorder. I was terrified....but I also love my child with all of my heart so I took the time to learn. I will share with you what I felt, heard, read and learned and hopefully provide you with something I wished I had had available to me the day I was told.

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