1. Hydrocephalus Association The hydrocephalus Association was founded in 1983, incorporated as a nonprofit 501(c)(3) in 1986, is governed by a Board of Directors, and employs an http://www.hydroassoc.org/

The Hydrocephalus Association The Hydrocephalus Association was founded in 1983, incorporated as a nonprofit 501(c)(3) in 1986, is governed by a Board of Directors, and employs an Executive Director, Outreach Director, Operations Manager, and Director of NPH and Older Adult Services. Twenty prominent medical professionals actively serve on our Medical Advisory Board Our mission is to provide support, education and advocacy for individuals, families and professionals. Our goal is to ensure that families and individuals dealing with the complex issues of hydrocephalus receive: Personal support Comprehensive educational materials Ongoing quality health care We provide a wealth of services and resources to our members and non-members alike. We hope you'll explore all the information our website has to offer. To receive a free packet of information about hydrocephalus, click here. For personal, one-to-one support, call our office directly: 415-732-7040 or toll-free 888-598-3789. Our mailing address is: 870 Market Street, Suite 705, San Francisco, CA 94102. Our fax number is: 415-732-7044 New DVD Available!

2. HyFI Home Nonprofit support organization provides information and resources for patients and families affected by hydrocephalus. Saugus, MA. http://www.hydrocephalus.org/

Welcome... The Hydrocephalus Foundation, Inc. (HyFI) is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome. What You'll Find Here About Us Learn more about our organization's history; who our founder is, and who's on our board of directors. Facts Want to know more about hydrocephalus and how it is treated, check out our facts page. News Find out what's happening with new shunt technologies and treatments, as well as news from local and national support groups. Events Interested in attending a support group meeting or conference, or taking part in a fund-raising event, go here for more information. Resources Request our informational brochure, and see what other resources are available on hydrocephalus. Links Go to our Links page to find more information about hydrocephalus. MEETING ANNOUNCEMENT Hydrocephalus Support Group Wednesday, May 7, 2003

3. MedlinePlus: Hydrocephalus Overview, clinical trials, pictures and diagrams, organizations and treatment information. http://www.nlm.nih.gov/medlineplus/hydrocephalus.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Hydrocephalus Contents of this page: From the NIH Overviews Diagnosis/Symptoms Treatment ... Children Search MEDLINE/PubMed for recent research articles on Hydrocephalus You may also be interested in these MedlinePlus related pages: Head and Brain Malformations Brain and Nervous System Genetics/Birth Defects From the National Institutes of Health Hydrocephalus (National Institute of Neurological Disorders and Stroke) Also available in: Spanish Hydrocephalus (National Institute of Neurological Disorders and Stroke) - Short Summary Overviews Hydrocephalus (Mayo Foundation for Medical Education and Research) Diagnosis/Symptoms Computed Tomography (CT): Head (American College of Radiology, Radiological Society of North America) MR Imaging (MRI): Head (American College of Radiology, Radiological Society of North America) Treatment About Endoscopic Third Ventriculostomy (Hydrocephalus Association) About Shunts (Hydrocephalus Association) Neurosurgery - What is it?

4. Www.patientcenters.com -- Welcome To Patient-Centered Guides Hydrocephalus Cente Patient centered guide to hydrocephalus information, resources, and reading material. http://www.patientcenters.com/hydrocephalus/

Catalog Patient Centers Home This Center has been created especially for those with hydrocephalus and their families. This Month's Articles Archived Articles Treating Hydrocephalus: Part 1. This first of a two-part series looks at the primary means of treating hydrocephalus: the installation of shunt systems. There are articles on how they work where they can be placed in the body, and how shunts are designed and tested . There is also an article on non-surgical treatments of hydrocephalus. Coping with Hydrocephalus. This collection of articles looks at ways that families can cope with specific aspects of a diagnosis of hydrocephalus: Neurosurgery for infants and children Starting a local support group , and Insurance claims and denials Getting the Diagnosis: Part 3. The last of a three-part series focuses on the affect on families of a diagnosis of hydrocephalus. In particular, its effect on siblings and on marriage, and how to inform your child of the diagnosis. Getting the Diagnosis: Part 2. When the diagnosis is made, there is a wide array of possible responses: relief, shock, denial, sadness, anger, fear, and hope. This second of a three-part series focuses on emotional responses to the diagnosis. Getting the Diagnosis: Part 1.

5. IF - Home Its mission is to improve the quality of life of people with hydrocephalus and Spina Bifida throughout the world. To decrease the prevalence of hydrocephalus and/or Spina Bifida by primary prevention. http://www.ifglobal.org/

english español français nederlands ... contact About IF Spina Bifida Hydrocephalus Pregnancy Folate Human rights Developing countries Newsroom Forum Links Welcome !! Dear visitor, welcome to our website. Please join the IF global network on Spina Bifida and Hydrocephalus. Sharing knowledge is the is the first step towards limiting the effects of a disability. Therefore we are updating this website regularly and setting up the IF-Knowledge Centre. Please transmit us all your ideas and experiences so we can make this knowledge available to the rest of the world. Pierre Mertens President IF Home Hot News Hurricane Katrina affects also persons with spina bifida Hurricane Katrina hit the US gulf coast The hurricane Katrina is affecting more people than first estimated. Cindy Brownstein of SBAA thinks that about 1 million people are displaced and about 8000 to 10000 people with spina bifida are living in the affected area and are cut off their necessary supplies. This disaster is asking immediate reaction from the international (spina bifida) community. Therefore, the Spina Bifida Association of America started the Spina Bifida Hurricane Emergency Life-sustaining Program (SBHELP). Read more and find out how you can help

6. HYDROCEPHALUS Diagrams, charts and photos with information on hydrocephalus. Treatment and surgical procedure overview. http://www.health.adelaide.edu.au/paed-neuro/hydro.html

HYDROCEPHALUS Hydrocephalus is excessive accumulation of cerebrospinal fluid within the cranium. If persistent and progressive ,it is treated by shunt insertion. Recently other methods of treatment were introduced and these will be discussed in the appropriate section. About 30 years ago before shunts were available children with hydrocephalus, either died or left with severe disability. With the introduction of shunts procedures, hydrocephalic child can lead a reasonable normal life and normal life expectancy. Hydrocephalus is described either as obstructive or noncommunicating and non-obstructive or communicating. This relates to the level of obstruction and whether CSF exits from the foramina in the roof of the 4th ventricle or is fully trapped within the ventricular system. Hydrocephalus is also classified as acquired when it is caused by acquired causes or congenital. In congenital hydrocephalus it is caused by either excessive production of CSF, blockage to the CSF drainage or reduced excretion into the venous channels. The CSF is clear colourless fluid which has minimal content of protein. It is contained in the ventricular system as well as the subarachnoid spaces surrounding the brain and the spinal cord. The CSF is in hydrostatic equilibrium with the interstitial tissue of the brain and can permeate across the brain tissue in both directions. It is expected that the brain tissue and the CSF would have the same hydrostatic pressure in any part of the brain. As much as the brain tissue is protected by a blood brain barrier from changes outside the central nervous system, the CSF has the same protection and does not change biochemically as a result of changes in the systemic circulation. These barriers are at the level of the endothelium of brain capillaries, at the level of the epithelium of the choroid plexuses and the outer layers of arachnoid matter. These barriers protect the brain and the subarachnoid spaces from damaging influences outside the brain.

7. Pediatric Neurosurgery - Hydrocephalus This site is dedicated to providing families with information regarding various aspects of the field of pediatric neurosurgery. For those that have tried to http://cpmcnet.columbia.edu/dept/nsg/PNS/Hydrocephalus.html

Hydrocephalus Hydrocephalus is that state in which something has occurred to prevent this orderly procession of events. If this occurs, there is a relative build up of spinal fluid in the brain which can lead to injury or even death if not treated. It is very important to realize that hydrocephalus is the result of some event on the nervous system and that a child's prognosis is not so much based on the hydrocephalus as the cause of the hydrocephalus. While many cases have no clear cause, the following have been associated with the development of hydrocephalus; bleeding, infection, trauma, tumors, vascular problems, and structural problems. Some occur during pregnancy and others after birth. In addition, a small number can be transmitted genetically. It is important to realize that while hydrocephalus is very treatable, the underlying cause may not be or may have caused irreversible damage to the brain. It is important for the doctors taking care of a child with hydrocephalus to determine if the problem is ongoing or if it has resolved but left enlarged but stable ventricles. This can sometimes be difficult to tell and often the decision will be based on many factors including symptoms, eye exams, changes in level of activity or school performance. In addition to this often the child will have repeated (serial) radiographic exams to look for changes in the ventricles.

8. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Verband der Behindertenselbsthilfe f¼r Betreuung, Beratung, Information, Erfahrungsaustausch, Kontakte, Tagungen, Seminare, Freizeitangebote f¼r Betroffene mit Spina bifida und/oder hydrocephalus und Angeh¶rige. http://www.asbh.de/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Start Impressum Termine Selbsthilfe ... Diskussion

9. SB&H - The Spina Bifida Hydrocephalus Association Of Ontario Information, resources, support. http://www.sbhao.on.ca

Download Flash Player CLICK to ENTER WEBSITE Charitable Registration #10799 9310 RR0001

10. ASBHA Homepage Provides advocacy, services and information to the families of affected children, with contact details and educational material. Includes links to state bodies. http://www.asbha.org.au/

Welcome to ASBH A The Australian Spina Bifida and Hydrocephalus Association The Australian Spina Bifida and Hydrocephalus Association Your use of this site means that you agree to the terms and conditions detailed in our

11. Spina Bifida And Hydrocephalus Association Of Nova Scotia Offers information, lists of members only resources, special events, and links to related sites. http://www.chebucto.ns.ca/Health/SBANS/

12. Treatment Of Hydrocephalus: Shunts Brain tumor treatment information new treatments, virtual brain tumor trial, brain tumor links, important papers Treatment of hydrocephalus Shunts. http://virtualtrials.com/shunts.cfm

Home Find A Treatment Learn About Brain Tumor Virtual Trial ... About Us Clinical Trials and Noteworthy Treatments for Brain Tumors: Treatment of Hydrocephalus: Shunts Sponsored By Please Click On The Above Banner For More Details [Click HERE to print this page!] Childhood Hydrocephalus: Clinical Features, Treatment, and the Slit-Ventricle Syndrome Arno H. Fried, M.D., Mel H. Epstein, M.D. Abstract The use of shunting for hydrocephalus has a long history of improvements made through basic science, as well as clinical innovations and biomedical products. Shunting has dramatically changed the outlook of children with hydrocephalus, with many of them having normal life expectancies and attaining normal intelligence. The use of shunts, however, has created many unique problems of shunt dependence with frequent shunt revisions being the rule for most hydrocephalic children. Shunt problems assume a major amount of all neurosurgeon’s efforts. In addition, the slit ventricle syndrome has posed many new questions regarding what the post-shunting ventricular size should be, and what problems are created by having a slit-like ventricular system. This article reviews current concepts of childhood hydrocephalus with respect to the various hydrocephalic syndromes, and provides detailed descriptions of problems unique to various shunting systems. In addition, the slit ventricle syndrome is distinguished from asymptomatic post shunted slit-ventricles. The various forms of the slit-ventricle syndrome are described , and proposed guidelines for classifying, working up, and treating the slit ventricle syndromes are provided.

13. Hydrocephalus Association The hydrocephalus Association's mission is to provide support, education and advocacy for individuals, families and professionals. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Hydrocephalus Association hydrocephalus comes from the Greek hydro means water, cephalus means head. hydrocephalus is an abnormal accumulation of cerebrospinal fluid (CSF) http://www.hydroassoc.org/information/information.htm

What Is Hydrocephalus? Hydrocephalus comes from the Greek: "hydro" means water, "cephalus" means head. Hydrocephalus is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities called ventricles inside the brain. CSF is produced in the ventricles, circulates through the ventricular system and is absorbed into the bloodstream. CSF is in constant circulation and has many important functions. It surrounds the brain and spinal cord and acts as a protective cushion against injury. CSF contains nutrients and proteins necessary for the nourishment and normal function of the brain. It also carries waste products away from surrounding tissues. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. Hydrocephalus that is congenital (present at birth) is thought to be caused by a complex interaction of environmental and perhaps genetic factors. Aqueductal stenosis and spina bifida are two examples. Acquired hydrocephalus may result from intraventricular hemorrhage, meningitis, head trauma, tumors and cysts. Hydrocephalus is believed to occur in about 2 out of 1,000 births. The incidences of adult-onset hydrocephalus and acquired hydrocephalus are not known. How Is Hydrocephalus Treated?

15. Hydrocephalus Information Page National Institute Of Neurological hydrocephalus information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. Life NPH Offers details about normal pressure hydrocephalus, including treatment, screening tests, find a physician and a support center. http://www.allaboutnph.com/

If you believe you or a friend are experiencing symptoms of NPH, please follow these 5 simple steps to diagnosis. Are you a neurologist or neurosurgeon that would like to appear in our online physician database? Walking problems Dementia Urinary incontinence Find out more about NPH and how it may be treated. Bob Fowler had all the classic symptoms of NPH. And like many other sufferers, he went undiagnosed for a long time. But once the NPH diagnosis was confirmed, a shunt was implanted and Bob showed remarkable signs of recovery. Please email comments about this site to lifenph@dpyus.jnj.com This site is intended for residents of the United States only. Legal Notice Privacy Statement

17. Hydrocephalus Fact Sheet National Institute Of Neurological More about hydrocephalus Studies with patients Research literature Press releases. Disclaimer Search NINDS (help) Contact Us My Privacy http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. MedlinePlus Medical Encyclopedia: Hydrocephalus hydrocephalus is an accumulation of cerebrospinal fluid in the ventricles of In small children, hydrocephalus may be associated with infections acquired http://www.nlm.nih.gov/medlineplus/ency/article/001571.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Hydrocephalus Contents of this page: Illustrations Alternative names Definition Causes, incidence, and risk factors ... Prevention Illustrations Skull of a newborn Alternative names Return to top Water on the brain Definition Return to top Hydrocephalus is an accumulation of cerebrospinal fluid in the ventricles of the brain, leading to their enlargement and swelling. Causes, incidence, and risk factors Return to top Cerebrospinal fluid (CSF) is formed in a region of the brain known as the choroid plexus. CSF usually circulates through channels of the brain known as ventricles, as well as flowing around the outside of the brain and through the spinal canal. When the circulation or absorption of this fluid is blocked, or excessive fluid is produced, the volume of fluid in the brain becomes higher than normal. The accumulation of fluid puts pressure on the brain, forcing it against the skull and damaging or destroying the tissues. The symptoms vary depending on the cause of the obstruction, the person's age when the problem develops, and the extent of brain tissue damage caused by the swelling.

19. Pediatric Neurosurgery - Hydrocephalus hydrocephalus. Also known as "water on the brain " hydrocephalus is one of the most frequently seen problems in a busy pediatric neurosurgical http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Spina Bifida Association Of South Australia Offering services and information to the families of affected children, with contact details and educational material. http://www.spinabifida.asn.au/

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