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         Hemophilia:     more books (100)
  1. Let Harold (A Boy with hemophilia) Do it by Nan Frelander, 0001-01-01
  2. People With Hemophilia: Ryan White, Jason Robertson, Alexei Nikolaevich, Tsarevich of Russia, Prince Leopold, Duke of Albany, Alfonso
  3. Beloved Warrior: Hemophilia and Other Battles
  4. Hemophilia, SCID: Early Gene Therapy Trials Look Promising.(Brief Article): An article from: Family Practice News by Sherry Boschert, 2001-02-15
  5. Hemophilia: A manual of outpatient management
  6. Prothrombin in enzymology, thrombosis, and hemophilia, (American lecture series, publication no. 681. A monograph in the Bannerstone divi-sion of American lectures in hematology) by Walter H Seegers, 1967
  7. Activated Prothrombin Complex Concentrates: Managing Hemophilia with Factor VIII Inhibitor
  8. Recent Advances in Hemophilia by Louis M. Aledort, 1975
  9. Hemophilia,: Clinical and genetic aspects, (Illinois medical and dental monographs) by Carroll L Birch, 1937
  10. Living with hemophilia.(Neighborhood Heart Watch)(Brief Article): An article from: Medical Update by Douglas Zipes, 2003-08-01
  11. Hemophilia and other Hemorrhagic States by Kenneth M. - editor Brinkhous, 1959
  12. Raising a Child with Hemophilia: A Practical Guide for Parents by Laureen A. Kelley, 1993
  13. Challenges for social work in hemophilia care.(Practice Forum): An article from: Health and Social Work by Gregory Taylor, 2004-05-01
  14. Hemophilia and Hemostasis by Doris, Douglas MacN. Surgenor, Harlan D. Anderson, editors. Menache, 1981

101. Baxter U.S. - Hemophilia
hemophilia is a rare genetic blood clotting disorder that primarily affects males. People with hemophilia do not produce enough of, or are missing,
Conditions Therapies Products Services ... Baxter Worldwide > United States Training and Education Sustainability Contact Us < Back To Conditions ... Kidney Disease
Home Conditions Mild hemophilia A patients have factor VIII levels of 6% to 50% of normal.
Moderate hemophilia A patients have factor VIII levels of 1% to 5% of normal.
There is presently no cure for hemophilia, but with treatment using clotting factors, people with even severe hemophilia can get bleeding under control and enjoy a full and active life. Find Help and Support Hemophilia Treatment Centers (HTCs) are available at most large medical centers and are an excellent resource to help you and your family get the best care for this condition. The centers feature a team approach, with hematologists, nurses, social workers, physical therapists and dentists who specialize in treating people with hemophilia.
Baxter Resources
Hemophilia Galaxy
Other Resources
National Hemophilia Foundation Privacy Print this page

102. Baxter U.S. - Hemophilia
It was made available to hemophilia A patients prepared using recombinant Learn about other hemophilia therapies that Baxter offers including PROPLEX T
Conditions Therapies Products Services ... Baxter Worldwide > United States Training and Education Sustainability Contact Us < Back To Biopharmaceuticals ... Hemophilia
Home Products Biopharmaceuticals Hemophilia ... Print this page

103. Hemophilia / Family Village Library
The World Federation of hemophilia is an international notfor-profit organization To this effect, the WFH works with national hemophilia organizations,
Who to Contact
Where to Go to Chat with Others

Learn More About It

Web Sites
Search Google for "Hemophilia"
Who to Contact
National Hemophilia Foundation (NHF)
116 West 32nd Street, 11th Floor
New York, NY 10001
800-424-2634 (toll-free)
212-431-0906 (fax)
Web: NHF publishes a monthly newsletter, Community Alert , at no charge, and has numerous brochures that are free if you are requesting one copy. They also provide a new parent packet for parents of newly diagnosed children. The Foundation has a library of journals, books and articles relating to bleeding disorders/HIV that are free to members. NHF collects information on physicians and researcher who treat/study the condition and disseminates the research information to its members. They operate a toll-free information line that provides referrals and information. They host a national conference, call for further information.
World Federation of Hemophilia
1425 René Lévesque Blvd. W. Suite 1010 Montréal, Québec, H3G 1T7 Canada

104. English
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105. Bayer Hemophilia Awards Program
Early Career Investigator Award Clinical Scholarship Award hemophilia Caregivers Education Award Bayer hemophilia Awards Program, Bayer HealthCare
Application Process Deadlines for Awards Review Process Research Priorities ... Browser Requirements Attention: Your browser does not support Javascript, or Javascript support has been disabled. This web site utilizes the latest Internet technology, and in order to experience the full functionality of this web site you will need to ensure that Javascript is enabled. Bayer Global Bayer US Living with Haemophilia Kogenate FS ...
See timelines for 05/06 awards

Dr Maria Vittoria Rizzo receives her certificate of recognition at the Bayer Hemophilia Awards gala dinner, held in Bangkok during the WFH congress. Professor Gil White (left) and Mr Mike Mathews (Bayer, right) made the presentation. For more than 30 years, scientists and researchers at Bayer Biological Products have been dedicated to developing and producing novel treatments that extend and enhance the lives of people with hemophilia. Bayer believes the Hemophilia Awards Program can improve the lives of patients with hemophilia by supporting research and education worldwide.

106. New Page 2
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107. HIV & Hemophilia: Introduction
hemophilia is a disorder in which one of the plasma proteins needed to form a clot is The most common type of hemophilia is factor VIII deficiency,
Introduction to Hemophilia
What Is Hemophilia?
How Common Is Hemophilia? How Does Someone Get Hemophilia? Symptoms and Treatment of Bleeding Episodes ...
Return to the Hemophilia Menu
What Is Hemophilia?
Hemophilia is a disorder in which one of the plasma proteins needed to form a clot is missing or reduced. The most common type of hemophilia is factor VIII deficiency, or hemophilia A. The second most common type is factor IX deficiency or hemophilia B. When a person with hemophilia is injured, he does not bleed harder or faster than normal, but will have prolonged bleeding because he cannot make a firm clot. Small cuts on the skin are usually not a problem, but bleeding in any deeper area can be prolonged. Some bleeding episodes occur as a result of injury, but many occur seemingly without cause.
Go to the Main Menu
Return to the Hemophilia Menu
How Common Is Hemophilia?
Estimates indicate that approximately one in 10,000 males born in the US has hemophilia. All races and socio-economic groups are affected equally.
Go to the Main Menu

108. HIV & Hemophilia Menu
Introduction to hemophilia Important Questions Answers About HIV and hemophilia Report from The Institute of Medicine

Introduction to Hemophilia

HIV and Hemophilia
Report from The Institute of Medicine New Recombinant Product for Hemophilia B

Introduction to Hemophilia

HIV and Hemophilia
Report from The Institute of Medicine New Recombinant Product for Hemophilia B ...
Go to the Main Menu

109. Federal Hemophilia Treatment Centers / Region IX
Visit this site to learn more about hemophilia Treatment in California, Nevada, Hawaii and Guam!
Welcome to the
Federal Hemophilia Treatment Centers / Region IX
Web Site 2005

Regional Grantee, Children's Hospital of Orange County
Regional Director, Diane J. Nugent, M.D.

Browse: Community Treatment Centers Hemophilia? Von Willebrand Disease? ... CDC TREATMENT CENTERS Choose... Alta Bates CHLA CH Oakland CHOC CH San Diego City of Hope Hawaii Nevada Orthopedic LA Stanford UC Davis UCSD UCSF Valley COMMUNITY-BASED ORGANIZATIONS Choose... CCHF HASDC HF Hawaii HF Nevada HFSC HFNC
Hemophilia Information Articles
Von Willebrand Disease Information Articles
Thrombophilia Information More Articles
Federal Program
CDC CDC Web Site Information To view or print PDF documents, you need Adobe Acrobat Reader. A free copy is available from the Adobe website. Follow the instructions to download and save this software to your hard drive, return to this site, then click on any PDF document link to view or print. Acrobat Reader 6.0.1 What's New? Federal Hemophilia Treatment Centers / Region IX Annual Conference at the Hilton Pasadena Pasadena, California INVITATION AGENDA FORM Registration deadline: Jan 30, 2004

110. Hemophilia
hemophilia is a rare genetic bleeding disorder that prevents the blood from clotting properly. About one in every 8000 boys is born with hemophilia.
by Dr. Saul Greenberg What is it? Hemophilia is a rare genetic bleeding disorder that prevents the blood from clotting properly. About one in every 8,000 boys is born with hemophilia. It is inherited as an X-linked disorder which means an affected male cannot pass the gene for hemophilia to his sons, but his daughters will be carriers of the disease gene. Every female who carries the gene for hemophilia has about a one in four chance of having a child who has hemophilia. Human blood contains special proteins, known as clotting factors , which help stop bleeding. People with hemophilia are deficient in one of those factors, either factor VIII or IX and as a result, their blood cannot clot properly. Hemophilia A , also known as factor VIII deficiency, is the cause of about 80% of cases. Hemophilia B, which comprises the majority of the remaining 20%, is a deficiency of factor IX. Patients are classified as mild, moderate, or severe, based on the amount of factor present in the blood. What does is look like? A patient with hemophilia may only bleed occasionally, whereas another patient with a milder form may bleed more often. About 30% of infant males with hemophilia bleed excessively with circumcision and 1% to 2% of newborns with hemophilia may have an intracranial hemorrhage (bleeding within the skull). Once babies with hemophilia begin crawling and cruising, parents may notice raised bruises on the stomach, chest, buttocks, and back. The most common type of bleeding in hemophilia involves muscles and joints. A child with hemophilia will usually refuse to move the affected joint or muscle because of pain and swelling. Recurrent joint bleeding can also lead to chronic damage. Other signs may be prolonged nosebleeds, excessive bleeding following a tooth extraction or surgery, blood in the urine, or heavy menstrual periods in adolescents.

111. Hemophilia
hemophilia is the most common inherited coagulation factor deficiency. hemophilia A is a result of a deficiency of factor VIII, and hemophilia B of factor pathology/hemophilia.htm
related terms: hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency, Christmas disease) What is hemophilia? Hemophilia is a bleeding disorder of varying severity that is due to a deficiency in specific clotting factors. Normally the body responds to an injury that causes bleeding through a complex defence system. This consists of local changes in the damaged blood vessels, activation of blood cells called platelets, and the coagulation (clotting) process. Most inherited bleeding disorders are the result of abnormal platelet function or a deficiency in one or more of the factors involved in the blood clotting system. Hemophilia is the most common inherited coagulation factor deficiency. Hemophilia A is a result of a deficiency of factor VIII, and hemophilia B of factor IX. Hemophilia A is more common than hemophilia B, and varies in severity depending on the level of factor VIII activity. Hemophilia B is often a severe bleeding disorder. How is hemophilia inherited?

112. Medem: Medical Library: Hemophilia
hemophilia. Background. hemophilia is the oldest known hereditary bleeding disorder. There are two types of hemophilia, A and B (Christmas Disease).

113. Hemophilia Treatment Center
ALBANY REGIONAL hemophilia AND vonWILLEBRAND S TREATMENT CENTER The Regional Comprehensive hemophilia Treatment Center incorporates the skills and
at Albany Medical Center Hospital

Providing comprehensive health care for patients with mild to severe Hemophilia A, Hemophilia B, von Willebrand's disease and Thrombophilia in the Albany, New York region. What is Hemophilia?
Hemophilia is a hereditary clotting disorder. It occurs when a male individual lacks one of the blood proteins needed to clot blood. The only way to correct the effects of hemophilia is to infuse the missing clotting factor or to use DDAVP. Women, although carriers of the Hemophilia gene, do not generally exhibit symptoms of Hemophilia. Hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency) and other factor deficiencies are all coagulation (clotting) disorders. They are treated with a variety of products that enable a person with hemophilia to lead a very normal life.
What is vonWillebrand's Disease?
Also a heredity clotting disorder. Both men and women may have this diagnosis, some more seriously than others. Generally, the patient lacks what is known as the vonWillebrand protein, which causes varying degrees of blood loss, usually in and around mucus membranessuch as frequent nosebleeds, heavy uterine bleeding, and extended bleeding after surgeries or dental work. Medications are also available to treat this disorder and patients lead a normal life.
What is "Comprehensive" Care?

114. Hemophilia, HIV, Hepatitis C HCV Lawsuit 2005 Update
hemophiliacs around the world have filed lawsuits in the United States courts against American manufacturers for allegedly selling blood factor contaminated

115. UniProt Knowledgebase Keyword: Hemophilia
Protein which, if defective, causes hemophilia, a genetic disease characterized by libs={swiss_prot}keywords hemophilia libs-keywords hemophilia.

116. Department Of Medicine - Hemophilia Treatment Center
The hemophilia Treatment Center provides comprehensive services to children, adults and their families with hemophilia, Von Willebrand Disease and related
Comprehensive Hemophilia Treatment Center
At Long Island Jewish Medical Center
Richard Lipton, MD, MPH; Physician-In-Charge
Steven Arkin, MD, Pediatric Hematologist
Martin Schachter, DMD, Hemophilia Dentist
Jahan Roofeh, MD, Orthopedist About the Hemophilia Treatment Center
The Long Island Jewish Hemophilia Treatment Center serves as the Federally designated regional hemophilia program for Long Island. The center provides comprehensive services to children, adults and their families with hemophilia, von Willebrand Disease and related disorders. The Treatment Center is located in the Hematology/Oncology Building in Room 350. Telephone:
ER Hotline:
Mission/Purpose "We are committed to providing lifelong, accessible, state of the art, family centered hemophilia treatment. Our mission is to foster a high level of autonomy in the management of hemophilia through continuous family and patient education. We believe this goal is facilitated through community advocacy that promotes optimum treatment for all affected families." The Team Approach The Regional Comprehensive Hemophilia Treatment Center offers the skills of experienced hemophilia specialists and provides the following services:

117. Hemophilia Association

118. Hematology And Blood Disorders - Hemophilia
hemophilia is an inherited bleeding, or coagulation, disorder. hemophilia may be mild, moderate, or severe, depending upon the level of the blood
Hematology and Blood Disorders
What is hemophilia?
Hemophilia is an inherited bleeding, or coagulation, disorder. Children with hemophilia lack the ability to stop bleeding because of the low levels, or complete absence, of specific proteins, called "factors," in their blood that are necessary for clotting. Proper clotting of blood helps prevent excessive bleeding. In the US, there are about 20,000 people with hemophilia. Each year, approximately 400 babies are born with the disorder.
What are the different types of hemophilia?
There are many factors in the blood that are involved in the function of forming clots to stop bleeding. A child with hemophilia is missing, or has a low supply of, one of the factors needed in order for the blood to clot. Two factors that affect blood clotting are factor VIII and factor IX. Hemophilia is classified by its level of severity. Hemophilia may be mild, moderate, or severe, depending upon the level of the blood clotting factors in the blood. The three main forms of hemophilia include the following:
  • hemophilia A - caused by a lack of the blood clotting factor VIII; approximately 85 percent of hemophiliacs have type A disease.

119. Hemophilia Foundation Of Oregon | Welcome - Hemophilia Oregon Information
Welcome to the hemophilia Foundation of Oregon s website! Find links to the Oregon hemophilia Treatment Center, pharmaceutical companies and home health
Hemophilia Foundation of Oregon HOME CONTACT ABOUT SERVICES ... Sponsor Your Camper with a "Camper Connection" Welcome
Welcome to the Hemophilia Foundation of Oregon's website!
This site is dedicated to providing information to Oregon and SW Washington families who are affected by Hemophilia or von Willebrand disease. If you or a member of your family have been diagnosed with an inherited bleeding disorder, we invite you to contact us for more information. Services
We offer:
Information and Referral Quarterly Newsletter Summer Youth Camp Education Programs ... Advocacy Assistance News
Read the latest:
Summer 2005 Newsletter NEW eLines Sign Up Events
Current events include A Trip to the Zoo! NEW HFO Parent Support Grou p Women's Issues
Get your questions answered regarding carrier information and women's bleeding. - more Medical Insurance Resource Center
Finding, keeping, and understanding medical insurance and all its related issues can be complicated, especially for the bleeding disorders community. Our Medical Insurance Resource Center is designed to give you the tools to advocate for your family’s insurance needs. -more- Resources
Find links to the Oregon Hemophilia Treatment Center, pharmaceutical companies and home health care companies and other informational sites. -

120. Texas Central Hemophilia Association
Get the latest news on hemophilia and blood disorders, plus information on hemophilia resources, hemophilia treatment centers, and membership and donation
Texas Central Hemophilia Association, Inc. 3530 Forest Lane Suite 116 Dallas, Texas 75234 (214) 351-4595 Robert E. Champagne President About Us Calendar of Events Medical Advisories www.resources ... From the President Home Your browser does not support inline frames or is currently configured not to display inline frames.

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