1. Hemophilia Dedicated to improving the quality of life for persons with hemophilia and other inherited bleeding disorders, as well as ensuring the safety of the blood http://www.hemophilia.ca/

2. Hemophilia Disease management, progress and possible cures. http://www.medceu.com/tests/hemophilia.htm

HEMOPHILIA Objectives By the end of the course the student will be familiar with: A. Medical advancements and prospect for the future B. Management of Hemophilia and treatments for the disease C. Safety products for Hemophiliacs Hemophilia is the oldest known hereditary bleeding disorder. There are two types of hemophilia, A and B (Christmas Disease). Low levels or complete absence of a blood protein essential for clotting causes both. Patients with hemophilia A lack the blood clotting protein, factor VIII, and those with hemophilia B lack factor IX. There are about 20,000 hemophilia patients in the United States. Each year, about 400 babies are born with this disorder. Approximately 85% have hemophilia A and the remainder has hemophilia B. The severity of hemophilia is related to the amount of the clotting factor in the blood. About 70% of hemophilia patients have less than one percent of the normal amount and, thus, have severe hemophilia. A small increase in the blood level of the clotting factor, up to five percent of normal, results in mild hemophilia with rare bleeding except after injuries or surgery. Enormous strides made in assuring the safety of the blood supply and in the genetic aspects of hemophilia research allow us now to focus on issues, which will improve the quality of life of the hemophilia patient and, ultimately, develop a cure.

3. Von Willebrand Disease Offers information about Von Willebrand disease. Includes the types, the symptoms, treatment, and heredity. http://www.hemophilia.ca/en/2.2.php

Von Willebrand Disease Von Willebrand Disease Introduction Types of Von Willebrand Disease Heredity Symptoms ... Precautions Researched and written by David Page Reviewed by David Lillicrap, M.D., FRCPC Personal Stories Related Articles

4. Hemophilia Of The Sunshine State hemophilia Association in America. http://www.hemophilia.com/

Are You Newly Diagnosed? Adult Child Hemophilia of the Sunshine State is a Hemophilia Service Organization designed to accept the challenge of today's hemophilia community. Our mission is to understand and meet the needs of persons affected by hemophilia, their families, clinicians, and comprehensive treatment centers. Our goal is to offer the hemophilia community the most cost effective and comprehensive range of products and services possible. JCAHO Accredited Extranet

5. National Hemophilia Foundation For All Bleeding And Clotting Disorders, Includin National hemophilia Foundation s 57th Annual Meeting The National hemophilia Foundation and ZLB Behring present the 2005 Junior National Championship! http://www.hemophilia.org/

Featured Story NIH Funds Study of New Hemophilia Inhibitor Drug Sign up to to receive the latest news via e-mail National Hemophilia Foundation Continues Efforts Following Hurricane Katrina As more information emerges from the Gulf States region, we know that members of our communities are scattered. Many people have no idea when they will able to return home. Individuals with bleeding disorders may not know where to obtain factor or treatment. The National Hemophilia Foundation (NHF) is continuing to direct people to necessary services such as hemophilia treatment centers and to serve as a clearinghouse for information and resources.. LATEST DEVELOPMENTS Factor Availability Information One chief concern is access to factor. Many people have no factor or only a limited supply. NHF is working with HTCs and manufacturers to assist with this problem.

6. The Body: Hemophilia And HIV/AIDS A collection of resources related to hemophiliacs and HIV, including topics such as the safety of the blood supply and tained blood products, from The Body. http://www.thebody.com/whatis/hemophilia.html

@import url(/css/thebody.css); @import url(/css/subtopic.css); var zflag_nid="362"; var zflag_cid="1"; var zflag_sid="0"; var zflag_width="728"; var zflag_height="102"; var zflag_sz="26"; Just Diagnosed HIV Treatment Living With HIV HIV Around the World ... Conference Coverage Hemophilia and HIV/AIDS HIV Hemophiliacs: "Too Easy to Forget" (December 2, 2003) Meet Robert James, one of more than 1,200 British hemophiliacs who received HIV-infected blood products in the 1980s From BBC News New Hemophilia Treatment Has Virtually No HIV Transmission Risk (August 8, 2003) In The Prevention News Update , from Centers for Disease Control and Prevention Lawsuit Alleges Companies Sold Contaminated Blood Overseas (June 3, 2003) In The Prevention News Update , from Centers for Disease Control and Prevention Report: Documents Show Bayer Unit Sold HIV-Risky Blood-Clotting Medicine Abroad (May 22, 2003) In The Prevention News Update , from Centers for Disease Control and Prevention World-Wide Legal, Financial, and Public Health Consequences of HIV Contamination of Blood and Blood Products in the 1980s and 1990s (March 5, 2002) From Annals of Internal Medicine The Forgotten Ones: Chatting with Jack Silliman, a Hemophiliac with HIV/AIDS

7. Hemophilia Foundation Of Michigan Information about the organization, the services offered, education, research, camp programs and events. http://www.hfmich.org/

Event Calendar Mission History Staff Board Map to HFM Publications Videos Privacy Statement Home Newly Diagnosed Youth Women HIV/AIDS Support Groups Telephone Counseling Financial Aid Scholarships SpringFest Advocacy Information and Referral Mission In Motion Events Direct Support Building Campaign Volunteer Memorial Recognition Hemophilia VWD Hepatitis HIV/AIDS Helpful Resources Treatment Centers Regional Data Products Product Recalls Medical Advisories Pharmaceuticals and Home Care Serving the Bleeding Disorders Community The Hemophilia Foundation of Michigan strives to improve the quality of life for all people affected by hemophilia, von Willebrand's disease, other coagulation disorders, and related complications, including HIV/AIDS and hepatitis. LET YOUR VOICE BE HEARD CALL YOUR LEGISLATORS UPDATE ON 2005 - 2006 CSHCS FUNDING Reflections on Our Path - A Memorial 1921 W. Michigan Avenue, Ypsilanti, MI 48197 . Phone (734) 544-0015 . FAX (734) 544-0095 . Toll Free (800) 482-3041

8. Www.wfh.org/ hemophilia Galaxy Patients CaregiversSupport information specifically designed for people with hemophilia, their families, and health care professionals. http://www.wfh.org/

English Français Español Home ... Other Language Publications World Federation of Hemophilia 1425 René Lévesque Blvd. W. Suite 1010 Montréal, Québec H3G 1T7 Canada Tel.: +1 (514) 875-7944 Fax: +1 (514) 875-8916 E-mail: wfh@wfh.org Hemophilia 2006 World Congress, Vancouver, Canada - 21-25 May 2006 The WFH World Hemophilia Congress in Vancouver , May 21-25, is shaping up to be the largest and most exciting to date. “By gathering eminent scientists, doctors and other experts, the WFH congress strengthens the world hemophilia community, raises its profile and demonstrates its significance,” says Congress President, Dr. Georges-Etienne Rivard. “Congress is an opportunity for the hemophilia community to become more effective as an international group seeking improved support from governments, international organizations, and the pharmaceutical industry.” For more information on Hemophilia 2006 and to register on-line, visit www.hemophilia2006.org The 4th WFH Global Forum on the Safety and Supply of Treatments for Bleeding Disorders The next WFH Global Forum will take place September 26-27, 2005 in Montreal, Canada. The theme for the 2005 Global Forum is “Increasing the worldwide supply of safe, affordable factor replacement therapy.” Topics will include: The latest thinking on dosage;

9. Hemophilia Village | Welcome To Hemophilia Village Information on the signs, symptoms, causes and treatments of hemophilia A and B. http://www.hemophiliavillage.com/

Hemophilia Village is here for the hemophilia community: people with hemophilia, family and friends who care for them, and health care professionals who treat them. When you visit Hemophilia Village you can learn about hemophilia and treatment for hemophilia A and hemophilia B, including two recombinant clotting factors: ReFacto and BeneFIX . Find out about helpful programs, services, organizations, and more. The information on this site is intended for U.S. residents only. Terms and Conditions

10. Welcome To Hemophilia Ontario Committed to improve the quality of life of people affected by hemophilia and related blood conditions, and to work towards a cure. http://www.hemophilia.on.ca/

news: Aug 31/05 Run 2005 is coming! Get your Pledge Forms here... [more] This website is generously supported in part by Worldwide Online Hemophilia Ontario welcomes your comments on our site.

11. Summer Camp 2005 Staff Application Supports those affected by hemophilia, related bleeding disorders, and complications of these disorders or their treatment. Activities and events, programs and services offered are featured. Offices in Chicago. http://www.hemophiliaillinois.org/

Our Mission Factor Net Newsletter Gene Therapy Volunteer ... Camp Warren Jyrch Hemophilia Foundation of Illinois for All Bleeding Disorders Bleeding Disorders About Us The Hemophilia Foundation of Illinois is an organization dedicated to improving the quality of life for persons affected by hemophilia and other inherited bleeding disorders, and complications of these disorders or their treatment. The Hemophilia Foundation of Illinois provides and promotes Advocacy, Consumer Services, Education and Research. We are a not-for-profit 501(c)(3) organization and members of the National Hemophilia Foundation, the Hemophilia Federation of America, and Community Health Charities. Hemophilia Hot Button Aug / Sep 2005 July 24-30, 2005 Camp Warren Jyrch a big success! Pictures coming soon! New Date for Wine Tasting Dinner November 18, 2005 332 S. Michigan Avenue, Suite 1135 Chicago, IL 60604-4305

12. International Hemophilia Club Global Network of people suffering with hemophilia their families. http://www.geocities.com/hemophiliaclub/

13. Hemophilia Galaxy | Homepage Support information specifically designed for people with hemophilia, their families, and health care professionals. http://www.hemophiliagalaxy.com

14. National Hemophilia Foundation For All Bleeding And Clotting The National hemophilia Foundation and ZLB Behring present the 2005 Junior National Championship! http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. National Hemophilia Foundation | Research BaxterSponsored Awards Designed to Promote Excellence in hemophilia Care The National hemophilia Foundation Clinical Fellowship Program, funded through http://www.hemophilia.org/research/research.htm

Treatment Guidelines Gene Therapy HOME ... Baxter and NHF Announce Awards Under NHF Clinical Fellowship Program Baxter-Sponsored Awards Designed to Promote Excellence in Hemophilia Care NHF funds a broad range of research. Funds raised under NHF's It's Time for a Cure campaign are used to provide Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von Willebrand disease. Areas of investigation may include, but are not limited to, gene therapy. Studies may be carried out at the subcellular, cellular, animal, or patient level. NHF has also fostered bleeding disorders research by awarding Judith Graham Pool Postdoctoral Fellowships to physicians and scientists embarking on research careers. The National Hemophilia Foundation Clinical Fellowship Program, funded through the generous support of Baxter Healthcare Corporation, is intended to increase the number of skilled clinicians committed to providing comprehensive care for individuals with bleeding and clotting disorders and to prepare candidates for academic careers. The program is designed for licensed physicians who are seeking hands-on training in bleeding and clotting disorders care and research. Training will take place in qualified hemophilia/thrombophilia treatment centers in the United States.

16. Hemophilia hemophilia Objectives By the end of the course the student will be familiar and prospect for the future B. Management of hemophilia and http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. AHF - What Is Hemophilia? Disclaimer Privacy Policy WHAT IS hemophilia? hemophilia is a disorder caused by an error in a person's genetic code. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Iranian Hemophilia Society Resources and news. http://www.hemophilia.org.ir/

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19. European Hemophilia Consortium The World Federation of hemophilia's comprehensive web site offers a wealth of information for the global hemophilia community. It includes http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Bayer Hemophilia Village è¡€å‹ç— ã®æ‚£è€ å®¶æ—ã‚„å­¦æ ¡ã®æ•™å¸«å‘ã‘ã®ç–¾æ‚£è§£èª¬ã¨æƒ å ±èªŒã‚’æŽ²è¼‰ã€‚ãƒ¡ãƒ¼ã‚«ãƒ¼æä¾›ã‚µã‚¤ãƒˆã€‚ http://www.bayer.co.jp/byl/hemophilia/

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