1. Hemochromatosis Education & Research UW hemochromatosis education and research site for patients and providers about HHC iron overload disease including screening tests, genetics and research. http://www.uwgi.org/hemochromatosis/

2. American Hemochromatosis Society This organisation provides information and educates the public about hemochromatosis. They publish a newsletter and have an online support group. http://www.americanhs.org/

Click here to Sign our Guest Book We subscribe to the HONcode principles of the Health On the Net Foundation The AHS is now registered with several United Way chapters. If you donate to the United Way, please make AHS your charity of choice. The American Hemochromatosis Society is proud to have all of our current financial and tax documents listed with GuideStar, the charitable giving watchdog group. Annie's Mailbox (formerly Ann Landers ' advice column) written by Marcy Sugar and Kathy Mitchell (pictured above) featured the letter below on Hereditary Hemochromatosis on June 24, 2005! If you can , please send us a copy of the article to our address at: AHS, 4044 W. Lake Mary Blvd., #104, Lake Mary, FL 32746-2012 U.S.A. You may call us at: 407-829-4488. DEAR ANNIE: I am a female nurse, 46, married with two small boys, ages 7 and 8. Ten years ago, my brother was diagnosed with hemochromatosis. I had a physical recently and told the doctcor to check for this. My serum iron came back slightly high, and I have now had the lab test to diagnose this disorder.

3. Links On Hemochromatosis, Hemochromatosis, Haemochromatosis, Iron Overload, Heam A collection of links to sites, including scientific articles, related to the genetic iron overload disease. http://hemochromatose.tripod.com

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod TV, Movie News Share This Page Report Abuse Edit your Site ... Next LINKS ON HEMOCHROMATOSIS Last update: June 5, 2005 Add LINK or report a dead LINK Information sorted by COMPLAINTS Information sorted by ... on hemochromatosis Click here for: Special bloodbags for phlebotomy on hemochromatosis patients * THE BEST PROTOCOL ON DIAGNOSIS AND TREATMENT / British Protocol Newsgroups (talk to doctors and patients) on hemochromatosis! Book on hemochromatosis ($10,85 352 p.)!!! Pictures and videos on hemochromatosis ... IRON DISORDERS INSTITUTE (their magazine is highly recommended!) The Haemochromatosis Society UK (England, Scotland, Wales and Northern Ireland CANADIAN Hemochromatosis Society INSTITUT QUEBECOIS DE L'HEMOCHROMATOSE ... BELGIUM homepage Belgen kunnen ook lid worden van de Nederlandse Hemochromatose Vereniging Deutsche/English/Francais information(en) uber/about/par Haemochromatose BERN Haemochromatosis Society of South Africa SPANISH Hemochromatosis Organisation ... Hemochromatosis foundation AMERICA ITALY Italian article on hemochromatosis with adresses!

4. [THE CANADIAN HAEMOCHROMATOSIS SOCIETY...... Parent Frame.] Volunteer based organization which provides information to patients and physicians about hemochromatosis. http://www.cdnhemochromatosis.ca/

Weclome to The Canadian Hemochormatosis Society If you have received this message then your browser can not process frames. Please upgrade your browser by clicking on on of the links below. Microsoft Explorer

5. University Of Pennsylvania Health System: News And Periodicals: World's First H Article on hemochromatosis from the Medical Genetics Division, Department of Medicine, Hospital of the University of Pennsylvania. http://www.uphs.upenn.edu/news/News_Releases/july96/iron.html

Contact: Rebecca Harmon Internet: harmonf@mail.med.upenn.edu Monday, July 29, 1996 World's First Hemochromatosis Clinic Opened At The University Of Pennsylvania Medical Center 21st-Century Genetics Works With 17th-Century Treatment Genetic specialists at the University of Pennsylvania Medical Center have established the world's first clinic dedicated to diagnosing and treating hemochromatosis a genetic disorder causing excessive iron build-up in the body. Although the majority of these cases are highly curable, early detection is critical in preventing long-term disease complications from excessive iron that may accumulate in organs of the body, including the heart, pancreas, pituitary gland, liver, muscular joints and under the skin. These complications may include congestive heart failure, diabetes, impotence and early menopause, liver cirrhosis or liver cancer, arthritis, or bronzed skin. According to the national Iron Overload Disease Association, hemochromatosis is the most common of all genetic diseases affecting over one million American adults and children. "Once detected, simple and preventive treatment is available for patients," says Christopher Friedrich, MD, PhD, assistant professor of medicine in the Division of Medical Genetics of the Department of Medicine. "Patients may lead normal, active lives once properly treated," he adds.

6. Hemochromatosis Information Society Offers information about the symptoms and treatment of hereditary hemochromatosis. http://www.hemoinfo.org

"Information you can't live without" Home About Us What is HH? Treatment ... Phlebotomize Welcome Health Headlines Publications Download our brochure and share the information with your loved ones. Brochure The goal of the Hemochromatosis Information Society web site is to provide valuable information for people with hereditary hemochromatosis. We want to be THE online resource for hemochromatosis information. Updates August 2005 in Dallas, Texas. This spectacular event raised over $1,700 dollars! Special thanks to Dang! Designs for the amazing men’s blazers they designed and for the overall styling of the fashion show. Also, thank you to the following for donating raffle prizes: The Melrose Hotel Westin Stonebriar Whole Foods Market Spike Global Grill ... Cinemark Movies CDC April 2005 Iron Overload and Hemochromatosis: Study on Hemochromatosis to Begin in Early 2005 Whole Foods Market March 2005 We would like to express our sincere thanks to Whole Foods Market for their recent donation. This makes two years in a row that the people at Whole Foods Market have made the choice to help save lives and promote awareness about hemochromatosis, one of the most common genetic disorders in the United States.

7. Hemochromatosis: Diagnosis - Treatment - Maintenance And Diet Information on hemochromatosis. Covered are the accepted protocols for diagnosis, treatment, maintenance and diet. http://www.ironoverload.org

Hemochromatosis - Diagnosis, Treatment, Maintenance and Diet Table of Contents is Below Site Preface In your search for health information regarding hemochromatosis or excess iron you will encounter other groups with web sites of varying degrees of expertise. Be careful of health information from hobbyist. How are we different than those other groups? We have been doing this for over 25 years. When IOD first began its work in 1980 no one else was handling the problems of hemochromatosis, not the medical community, not the insurance industry, not the blood banks and not the government. Early on physicians looked us in the eye and said "....never heard of it." The NIH in Bethesda, Maryland asked " How do you spell it." Through IOD's unremitting efforts that has all been changed. Now more recently, when the topic of excess iron began to heat up, people flocked to us offering help. When the scale of the problem became apparent hemochromatosis became a hot subject. A few of these helpers decided to form their own fringe or splinter groups. IOD does not pay high salaries but instead puts its money into 10 major programs and a number of sub programs. Some differences from some of the other sites are that are that we do not recommend either genetic testing or liver biopsy as necessary for diagnosis or to begin treatment for hemochromatosis.

8. Haemochromatosis - My Silent Illness A laymans nontechnical account of living with hemochromatosis by Alan Mannering. http://www.alan.mannering.btinternet.co.uk

Haemochromatosis Hemochromatosis my personal experience, by Alan Mannering This website contains facts, information and personal experiences of haemochromatosis Hi, my name is Alan Mannering , I come from Birmingham in the West Midlands of the UK , and I have haemochromatosis Haemochromatosis is my silent illness. You haven't heard of it? Well not many people have. I was diagnosed quite accidentally when I was 55. This is the most common of all the genetic conditions; it is even more common than cystic fibrosis or muscular dystrophy. The incidence is now reckoned to be between 1 in 200 to 300 with 1 person in 10 being carriers of the mutant gene . It is a condition in which the body does not metabolise iron, which then accumulates over the years in various organs. Notably, it is in the liver and pancreas etc. My own stored iron level was about 2000% too high; this excess having accumulated over 55 years. I was diagnosed purely by chance after a cardiac check at my local hospital. The heart specialist noticed a bronze colouring on my body, which alerted him to the possibility of me having the

9. MedlinePlus: Hemochromatosis hemochromatosis. Disease Management; Iron Overload and hemochromatosis Information for Patients (National Center for Chronic Disease Prevention and http://www.nlm.nih.gov/medlineplus/hemochromatosis.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Hemochromatosis Contents of this page: From the NIH Overviews Diagnosis/Symptoms Prevention/Screening ... Organizations Search MEDLINE/PubMed for recent research articles on Hemochromatosis You may also be interested in these MedlinePlus related pages: Blood/Lymphatic System Digestive System Genetics/Birth Defects From the National Institutes of Health Hemochromatosis (National Digestive Diseases Information Clearinghouse) Learning about Hereditary Hemochromatosis (National Human Genome Research Institute) Overviews Hemochromatosis (Mayo Foundation for Medical Education and Research) Iron Overload and Hemochromatosis (National Center for Chronic Disease Prevention and Health Promotion) What Is Hemochromatosis? (Dolan DNA Learning Center) Diagnosis/Symptoms Ferritin Test (American Association for Clinical Chemistry) Serum Iron Test (American Association for Clinical Chemistry) (American Association for Clinical Chemistry) Prevention/Screening Iron Overload and Hemochromatosis: Detection and Diagnosis (National Center for Chronic Disease Prevention and Health Promotion) Disease Management Iron Overload and Hemochromatosis: Information for Patients (National Center for Chronic Disease Prevention and Health Promotion) Specific Conditions Acquired Iron Overload (Iron Disorders Institute) Hemochromatosis (American Diabetes Association) Iron Overload and Hemochromatosis: Hereditary Hemochromatosis (National Center for Chronic Disease Prevention and Health Promotion)

10. THE MERCK MANUAL, Sec. 11, Ch. 128, Iron Overload Merck Manual looks at this disorder, its signs and symptoms, diagnosis and treatment. http://www.merck.com/pubs/mmanual/section11/chapter128/128a.htm

Hemosiderosis; Hemochromatosis) var locationOverride = "http://www.merck.com/pubs/"; This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 11. Hematology And Oncology Chapter 128. Iron Overload (Hemosiderosis; Hemochromatosis) Topics [General] [General] (For acute iron poisoning, see Table 307-3 Chronic iron (Fe) overload is characterized by increased focal or generalized deposition within the tissues. On tissue examination, this has been commonly termed hemosiderosis. hemochromatosis has been applied (see Table 128-1 ). Hemochromatosis, an HLA-linked genetic Fe overload disorder, must be differentiated from other inherited disorders accompanied by increased Fe stores (eg, aceruloplasminemia, hypotransferrinemia/atransferrinemia) and from nongenetic Fe overload and Fe overload of undetermined etiology. Hemochromatosis in its primary form is a genetic disorder with a homozygous frequency of 1:200 and a heterozygous frequency of 1:8. The hemochromatosis gene ( HLA-H ) was recently identified on the short arm of chromosome 6 as a single point mutation in which the amino acid cysteine at position 282 changes to a tyrosine (nt 845 A, 845A; Cys 282 Tyr). Of patients with clinical hemochromatosis, 83% are homozygous for this mutation, which encodes for an HLA-A-like molecule. A mutation at nt 187C

11. Hemochromatosis Diagnosis - Treatment - Maintenance And Diet Information on hemochromatosis. Covered are the accepted protocols for diagnosis, treatment, maintenance and diet. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. MedlinePlus Medical Encyclopedia: Hemochromatosis hemochromatosis is a disorder that interferes with iron metabolism and results in hemochromatosis may also be caused by having a large number of blood http://www.nlm.nih.gov/medlineplus/ency/article/000327.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Hemochromatosis Contents of this page: Illustrations Definition Causes, incidence, and risk factors Symptoms ... Prevention Illustrations Hepatomegaly Definition Return to top Hemochromatosis is a disorder that interferes with iron metabolism and results in excess iron deposits throughout the body. Causes, incidence, and risk factors Return to top Primary hemochromatosis is the most common genetic disorder in the US, affecting an estimated 1 of every 200-300 Americans. Similar symptoms may occur from the secondary form of hemochromatosis, which can be caused by other diseases such as thalassemia or sideroblastic anemia. Hemochromatosis may also be caused by having a large number of blood transfusions, particularly in patients who get them for inherited or pre-malignant anemias. Occasionally, it may be seen with hemolytic anemia, porphyria cutanea tarda, excessive oral iron ingestion, or chronic alcoholism. First, excess iron accumulates in the liver and causes

13. American Hemochromatosis Society This organisation provides information and educates the public about hemochromatosis. They publish a newsletter and have an online support group. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Iron Disorders Institute Nonprofit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Hemochromatosis Information on the causes, risk factors, symptoms, diagnosis, treatment, diagnostic tests for, and current research on hemochromatosis. http://digestive.niddk.nih.gov/ddiseases/pubs/hemochromatosis/

Email To A Friend Also see: CME credit course (free from the Centers for Disease Control and Prevention) Home Digestive Diseases A-Z List of Topics and Titles : Hemochromatosis Hemochromatosis On this page: Causes Risk Factors Symptoms Diagnosis ... For More Information Excess iron is stored in body tissues, especially the liver, heart, and pancreas. Hemochromatosis, the most common form of iron overload disease, is an inherited disorder that causes the body to absorb and store too much iron. The extra iron builds up in organs and damages them. Without treatment, the disease can cause these organs to fail. Iron is an essential nutrient found in many foods. The greatest amount is found in red meat and iron-fortified bread and cereal. In the body, iron becomes part of hemoglobin, a molecule in the blood that transports oxygen from the lungs to all body tissues. Healthy people usually absorb about 10 percent of the iron contained in the food they eat to meet the body needs. People with hemochromatosis absorb more than the body needs. The body has no natural way to rid itself of the excess iron, so it is stored in body tissues, especially the liver, heart, and pancreas. Top Causes Genetic or hereditary hemochromatosis is mainly associated with a defect in a gene called HFE , which helps regulate the amount of iron absorbed from food. There are two known important mutations in

16. Canadian Hemochromatosis Society Information about the symptoms, diagnosis and treatment of hemochromatosis. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Iron Disorders Institute Disorders Hemochromatosis Introduction hemochromatosis (HHC) is a genetic disorder of metabolism. Individuals with hemochromatosis absorb too much iron. Iron cannot be excreted therefore the http://www.irondisorders.org/disorders/hem/

18. CNN - Hemochromatosis: If You Don't Know What It Is, You Should - July 26, 1999 CNN http://www.cnn.com/HEALTH/9907/26/hemochromatosis/index.html

MAIN PAGE WORLD U.S. LOCAL ... daily almanac MULTIMEDIA: video video archive audio multimedia showcase ... more services E-MAIL: Subscribe to one of our news e-mail lists. Enter your address: document.write(' '); Or: Get a free e-mail account E-MAIL DISCUSSION: message boards chat feedback CNN WEB SITES: AsiaNow Svenska Norge Danmark ... Italian FASTER ACCESS: europe japan TIME INC. SITES: Go To ... Time.com People Money Fortune EW CNN NETWORKS: more networks transcripts SITE INFO: help contents search ad info ... jobs WEB SERVICES: health > story page Hemochromatosis: If you don't know what it is, you should July 26, 1999 Web posted at: 5:59 PM EDT (2159 GMT) In this story: What is hemochromatosis? Early detection is key Treatment Pitfalls ... RELATEDS By Kiki Alderon SYMPTOMS AND COMPLICATIONS If you have any of the following conditions, you should be screened for hemochromatosis: an enlarged liver, cirrhosis or cancer of the liver, arthritis, diabetes or heart irregularities. Other symptoms include: weakness and/or fatigue abdominal pain bronzed skin that is not the result of sun exposure decreased libido impotence loss of bone density (WebMD) If, say, 300 Americans had to name the most common genetic disorder in the United States, most of them probably wouldn't guess the correct answer.

19. MedlinePlus Hemochromatosis hemochromatosis http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Iron Disorders Institute - Hemochromatosis provides educational materials about hereditary hemochromatosis, iron overload, iron deficiency anemianemia, anemia of chronic disease, sideroblastic anemia http://www.irondisorders.org/Disorders/Hemochromatosis.asp

Home FAQ Glossary of Terms Enter Keyword DISORDERS PUBLICATIONS HELPFUL FORMS DONATE ... ABOUT IDI Hemochromatosis (HHC) is an inherited condition of abnormal iron metabolism; it is not a blood disease. Individuals with hemochromatosis absorb too much iron from the diet. Iron cannot be excreted therefore the metal can reach toxic levels in tissues of major organs such as the liver, heart, pituitary, thyroid, pancreas, and synovium (joints). These overburdened organs cease to function properly and eventually become diseased. Therefore, undiagnosed and untreated HHC increases the risk for diseases and conditions such as diabetes mellitus, irregular heart beat or heart attack, arthritis (osteoarthritis, osteoporosis), cirrhosis of the liver or liver cancer, depression, impotence, infertility, hypothyroidism, hypogonadism, and some cancers. Mismanaged iron in the brain is seen in those patients with neurodegenerative diseases: Alzheimer's, early onset Parkinson's, epilepsy, multiple sclerosis, and Huntington's disease. There are presently four types of hemochromatosis: Type I also called classic hemochromatosis is due to mutations of HFE, a gene located on chromosome 6. There are more than 20 known mutations of HFE, but the most important for iron loading to date are C282Y and H63D. When a person inherits any two mutations of HFE, the risk for iron overload is increased but inheriting 2 mutated copies of C282Y currently appears to present the greatest risk for iron loading. Type I hemochromatosis is seen mostly in whites (Caucasians), though cases of blacks who are homozygous for C282Y have been documented.

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