1. Hemihypertrophy Online Support And Information Group Families of those with hemihypertrophy need to be aware of these related have hemihypertrophy? If so, and if you d like to be added to the Hemi email http://www.geocities.com/HotSprings/Spa/6112/

Introduction Hi! My name is Katie. I decided to have a Web site devoted to a rare disease called Hemihypertrophy, which I like to refer to as "Hemi." Why am I doing this? Well, I've tried to search for as much information regarding Hemi as possible, on the Web but I've found that there really isn't a lot available, and what is available isn't presented in a manner that someone other than a doctor could understand. There's a good chance that this may be the only Web site specifically about Hemi. I hope to be educating my visitors about this condition, as well as providing a support network for those who have it, and for their families. In case you're wondering Yes, I have Hemi. Although I've had this condition since I was a "tiny onion" ( that's just a little joke there, about the name I chose for my e-mail address ), it wasn't until a couple of years ago that I learned much about it including things such as my having to be hospitalized twice a year as a child, to be sure that I wasn't developing any tumors. ( Please click here if you want to view my baby picture! )

2. Hemihypertrophy An article about hemihypertrophy, what it is, the features, follow up and prognosis. http://www.drhull.com/EncyMaster/H/hemihypertrophy.html

Help for sleepless parents Encyclopedia Index H hemihypertrophy Search hemihypertrophy Hemihypertrophy refers to the overgrowth (hypertrophy) of one side of the body. A person with hemihypertrophy will be found to have enlargement of the body on the affected side, so that the chest may be more full on the affected side as well as the arm and leg being longer and thicker in diameter. Hemihypertrophy in infants and young children is important because such children have a much higher incidence of certain abdominal cancers, notably Wilm's tumor of the kidney and hepatoblastoma (liver cancer). Unequal leg length cause some walking difficulties as well. Children with hemihypertrophy require careful periodic followup examinations to detect any early sign of malignancy. This followup must continue for a number of years. Hemihypertrophy can be a familial trait or may occur sporadically.

3. Hemihypertrophy A description from International Birth Defects Information Systems. http://www.ibis-birthdefects.org/start/hemihype.htm

Tips for printing Hemihypertrophy About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Turner S. William S. Support Groups Professional Associations ... Key Information Sources Topics include Title and Hemihyperplasia Hemihyperplasia, Isolated Hemi - 3 Syndrome, Included Medullary Sponge Kidney Special Resources Hemihypertrophy A Selection of Internet Sites [*] Outstanding [P] For Professionals [French] [Ukrainian] Under Development Hemihypertrophy from Hemihypertrophy Online Support and Information Group The rare condition in which one side of the body seems to grow faster than the other is called Hemihypertrophy. The disease can be caused by genetic factors, and it can also occur by chance ... include cancer of the kidney, cancer of the liver, and a condition called Beckwith - Wiedemann Syndrome. The problem I mentioned above, for which I was checked twice per year as a child, is Wilms Tumor ... [French] Signe clinique de: Hemihypertrophie from ORPHA.net

4. Hemihypertrophy An article about hemihypertrophy, what it is, the features, follow up and prognosis. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

5. Screening Protocol Tumor Screening Protocol for Idiopathic hemihypertrophy Hoyme et al Isolatedhemihyperplasia (hemihypertrophy) report of a prospective multicenter http://www.geocities.com/beckwith_wiedemann/protocol.html

Screening Protocol for Beckwith-Wiedemann Syndrome Michael R. DeBaun, MD, MPH Principal Investigator for BWS Registry For a printer friendly version of the screening protocol, click here French: Protocole de suivi des enfants atteints par le syndrome de Wiedemann de Beckwith German: Protokoll für Beckwith Wiedemann Syndrom überprüfen Hebrew: Beckwith-Wiedemann Italian: P rotocollo di Screening per la Sindrome di B eckwith ... iedemann Russian: Spanish: Pr otocolo de la investigación para el síndrome Beckwith-Wiedemann We recommend screening for cancer in children with BWS, despite the observation that most children with BWS do not develop cancer. Approximately 1 of 10 children with BWS develops cancer, however the risk is high enough to warrant screening for cancer. The incidence of cancer is age dependent with the risk being higher in the first four years, lower between 5 and 10 years and near the baseline risk of cancer in the general population by 10 years of age. J Pediatr 1998; 132:398-400. The major reason to screen for cancer is because early identification of the cancer leads to improved survival and/or decreased morbidity associated with cancer treatment. Fortunately, the two most common cancers in BWS, namely Wilms tumor and hepatoblastoma, meet these criteria.

6. Hemihypertrophy Online Support And Information Group What is hemihypertrophy? The rare condition in which one side of the body seems to grow faster than the other is called hemihypertrophy. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. Hemihypertrophy A description from International Birth Defects Information Systems. http://ibis-birthdefects.org/start/hemihype.htm

Tips for printing Hemihypertrophy About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Turner S. William S. Support Groups Professional Associations ... Key Information Sources Topics include Title and Hemihyperplasia Hemihyperplasia, Isolated Hemi - 3 Syndrome, Included Medullary Sponge Kidney Special Resources Hemihypertrophy A Selection of Internet Sites [*] Outstanding [P] For Professionals [French] [Ukrainian] Under Development Hemihypertrophy from Hemihypertrophy Online Support and Information Group The rare condition in which one side of the body seems to grow faster than the other is called Hemihypertrophy. The disease can be caused by genetic factors, and it can also occur by chance ... include cancer of the kidney, cancer of the liver, and a condition called Beckwith - Wiedemann Syndrome. The problem I mentioned above, for which I was checked twice per year as a child, is Wilms Tumor ... [French] Signe clinique de: Hemihypertrophie from ORPHA.net

8. BECKWITH-WIEDEMANN AND RELATED DISORDERS VICTORIA : B.A.R.D. VICTORIA Information resource for families affected by the overgrowth disorders BeckwithWiedemann Syndrome, Simpson-Golabi-Behmel Syndrome or Isolated hemihypertrophy. http://www.geocities.com/bwsandsgbs/BARDVicindex.html

BECKWITH-WIEDEMANN AND RELATED DISORDERS VICTORIA : B.A.R.D. VICTORIA B.A.R.D. VICTORIA 4 CROUCH COURT DONCASTER VICTORIA 3108. TEL. 03 98485745 "Beckwith-Wiedemann and Related Disorders Victoria" is a contact and information point set up by a parent whose background is in paediatric nursing. Its aim is to offer parents new to Beckwith-Wiedemann Syndrome, particularly those living in Victoria Australia, with information on this uncommon disorder and with links to local resources. Some parents also welcome the opportunity to meet with another family similarly affected and this can also be arranged. As the medical issues surrounding Simpson-Golabi-Behmel Syndrome and Isolated Hemihyperplasia are similar to those of BWS, parents of children with these disorders may also benefit from using this contact point. Telephone contact from families is always welcome at the number above. Brenda Lawless Fearon Updated: 1st October 2004 Linked to: BARDVictoria@Yahoo groups My Info: Name: B.A.R.D. Victoria Email: Please contact by phone or letter post.

9. Hemihypertrophy.html TITLE KlippelTrenaunay syndrome frequency of cerebral and cerebellar hemihypertrophy on MRI. AUTHOR Torregrosa -A; Marti-Bonmati -L; http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. Cancer Syndromes The syndrome of aniridia, hemihypertrophy and other congenital anomalies withWilms tumor, Associated conditions include aniridia, hemihypertrophy, http://ibis-birthdefects.org/start/cancersy.htm

Tips for printing Cancer Syndromes About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Support Groups Professional Associations Key Information Sources Topics include Title and Nephroblastoma Aniridia,Type II Wims Tumor-Aniridia-Genitourinary Anomalies-Mental Retardation Wilms Tumor 3 Wilms Tumor 2 Multiple Tumor Associated Chromosome Region 1 Special Resources Cancer Syndrome A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Groups [Ukrainian] Online Mendelian Inheritance in Man by OMIM ANIRIDIA ... ANIRIDIA, CEREBELLAR ATAXIA ... WAGR SYNDROME ... ANIRIDIA AND ABSENT PATELLA ... WILMS TUMOR 1 ... ECTOPIA PUPILLAE ... CAT EYE SYNDROME ... PETERS ANOMALY ... EXOSTOSES ... SPLIT-HAND/FOOT ... Wilms Tumor Nephroblastoma by OMIM Rather numerous instances of multiple sibs with Wilms tumor have been described ... The syndrome of aniridia, hemihypertrophy and other congenital anomalies with Wilms tumor, subsequently known as the WAGR syndrome, was first described by Miller et al. (1964) ... . Riccardi et al. (1978) observed a triad of aniridia, ambiguous genitalia and mental retardation (AGR triad) in 3 patients with an interstitial deletion of the short arm of chromosome 11 ... Marshall et al. (1982) studied 14 patients with aniridia .... 6 had interstitial deletion of 11p of various lengths. Band 11p13 was included in the deletion in all 6 cases ...

11. Hemihypertrophy And Cancer - DrGreene.com - Caring For The Next hemihypertrophy, also called hemihyperplasia, is a greaterthan-normal asymmetry between the right and left sides of the body. Because http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Hemihypertrophy & Hemihyperplasia - DrGreene.com - Caring For The Next Generatio hemihypertrophy, also called hemihyperplasia, is a greaterthan-normal asymmetrybetween the right and left sides of the body. http://www.drgreene.com/21_634.html

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13. Hemihypertrophy Hemihyperplasia - DrGreene.com - Caring For The hemihypertrophy, also called hemihyperplasia, is a greaterthan-normal asymmetry between the right and left sides of the body. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Hemihypertrophy.html hemihypertrophy, mentioned in the referred BWScase, is distinctive to the A large number of patients presented with a tumor and hemihypertrophy on the http://www.indiana.edu/~pietsch/hemihypertrophy.html

Web Contact: pietsch@indiana.edu return to ShuffleBrain Main Menu HEMIHYPERTROPHY A literature search at Indiana University, Bloomington, Indiana The following MEDLINE items were compiled by SilverPlatter and are presented with their generous co-operation and permission. ( See SilverPlatter's Worldwide Library for bibliographic search information Record 1 of 66 in MEDLINE(R) on CD 2001/07 TITLE: Neurofibromatosis type 1: a diagnostic mimicker at CT. AUTHOR: Fortman,-B-J; Kuszyk,-B-S; Urban,-B-A; Fishman,-E-K ADDRESS OF AUTHOR: Russell H. Morgan Department of Radiology and Radiological Science, Johns Hopkins Hospital, 600 N Wolfe St, Baltimore, MD 21287, USA. SOURCE: Radiographics. 2001 May-Jun; 21(3): 601-12 INTERNATIONAL STANDARD SERIAL NUMBER: 0271-5333 PUBLICATION YEAR: 2001 LANGUAGE: English COUNTRY OF PUBLICATION: United-States MAJOR MESH DESCRIPTORS: *Neurofibromatosis-1-radiography; *Tomography,-X-Ray-Computed MINOR MESH DESCRIPTORS: Diagnosis,-Differential; Magnetic-Resonance-Imaging; Neurofibromatosis-1-pathology CHECKTAGS: Human PUBLICATION TYPE: Journal-Article; Review; Review,-Tutorial

15. Hemihypertrophy hemihypertrophy http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. Hemihypertrophy a CHORUS notecard document about hemihypertrophy. hemihypertrophy. unilateralenlargement (one digit to entire 1/2 of body) http://chorus.rad.mcw.edu/doc/00449.html

CHORUS Collaborative Hypertext of Radiology Multisystem entities About CHORUS Search Feedback hemihypertrophy unilateral enlargement (one digit to entire 1/2 of body) associated with benign + malignant neoplasms: kidney nephromegaly medullary sponge kidney polycystic kidney disease Wilms tumor nephroblastomatosis adrenal cortical hyperplasia / adenoma / adenoCa pheochromocytoma liver focal nodular hyperplasia hepatoblastoma hemangioendothelioma gonads phakomatoses Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 26 May 2004 Related CHORUS documents: hepatoblastoma medullary sponge kidney Wilms tumor liver cyst ... Ehlers-Danlos syndrome Search for related articles: AJR American Journal of Roentgenology PubMed : index to biomedical literature ... Medical College of Wisconsin

17. Questions Answers the body being larger than the other is called hemihypertrophy. The most important conditions associated with hemihypertrophy are Wilms' tumor http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Hemihypertrophy hemihypertrophy. unilateral enlargement (one digit to entire 1/2 of body).associated with benign + malignant neoplasms http://chorus.rad.mcw.edu/to-go/00449.html

hemihypertrophy unilateral enlargement (one digit to entire 1/2 of body) associated with benign + malignant neoplasms: kidney nephromegaly medullary sponge kidney polycystic kidney disease Wilms tumor nephroblastomatosis adrenal cortical hyperplasia / adenoma / adenoCa pheochromocytoma liver focal nodular hyperplasia hepatoblastoma hemangioendothelioma gonads phakomatoses Home Multisystem entities

19. Hemihypertrophy godinsonline.com Jennifer's Story Jennifer exhibited signs of hemihypertrophy on her right side not long after birth. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Hemihypertrophy Online. Support and information for persons with hemihypertrophy, a rarecondition in which one side http://my.webmd.com/hw/health_guide_atoz/shc29hmh.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center XML News via RSS Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Health Tools Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... Hemihypertrophy Support and Information Page Hemihypertrophy Hemihypertrophy Support and Information Page Online. Support and information for persons with hemihypertrophy, a rare condition in which one side of the body grows faster than the other. Mailing list, chat room. WEBSITE: http://groups.yahoo.com/group/hemi http://www.geocities.com/HotSprings/Spa/6112 VERIFIED: 5/18/2004 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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