61. Floating Harbor Syndrome - St. Joseph Mercy, Ann Arbor Michigan Floating Harbor syndrome St. Joseph Mercy Health System Hospitals serving AnnArbor, SE Michigan, Washtenaw County, Livingston County, Wayne County, http://www.sjmercyhealth.org/13691.cfm

@import url(default.css); Online Health Information Health Information - Rare Diseases and Disorders Back to Health Library Print This Page Email to a Friend National Organization for Rare Disorders, Inc. Floating Harbor Syndrome Synonyms Disorder Subdivisions General Discussion Resources ... For a Complete Report Important It is possible that the main title of the report Floating Harbor Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms FHS Pelletier-Leisti syndrome Disorder Subdivisions None General Discussion Floating-Harbor syndrome (FHS) is an extremely rare disorder characterized by short stature, delayed language skills, and a triangular shaped face. A broad nose, deep-set eyes and a wide mouth with thin lips give an affected individual a distinct appearance. FHS was named after the hospitals at which the first two cases were seen: the Boston Floating Hospital and Harbor General Hospital in California. The cause of this disorder is not known. Resources Human Growth Foundation 997 Glen Cove Avenue Glen Head, NY 11545

62. Fatty Oxidation Disorder - St. Joseph Mercy, Ann Arbor Michigan Pictures of children with Floating Harbor syndrome. WRITE FOD Family SupportGroup c/o Deb and Dan Gould 805 Montrose Dr. Greensboro, NC 27410 http://www.sjmercyhealth.org/13646.cfm

@import url(default.css); Online Health Information Health Information - Support Groups Back to Health Library Print This Page Email to a Friend Self Help Clearinghouse Fatty Oxidation Disorder FOD Family Support Group This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. FOD Family Support Group International network. Founded 1991. Provides mutual support and networking for parents of children with Floating Harbor syndrome. Newsletter, literature, phone support. Pictures of children with Floating Harbor syndrome. WRITE: FOD Family Support Group c/o Deb and Dan Gould 805 Montrose Dr. Greensboro, NC 27410 CALL: 336-547-8682 FAX: 336-292-0536 E-MAIL: deb@fodsupport.org WEBSITE: http://www.fodsupport.org VERIFIED: 10/8/2004 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

63. The Diagnosis Trail was diagnosed with a very rare disorder called Floating Harbor syndrome. give him a proper diagnosis because he had Floating Harbor syndrome. http://www.autismtas.org.au/oldsite/mitchell.htm

Hi my name is Lyn Leedham and I live in Tasmania. I am married to Brian and we have Nicholas who is 16 and in his first year of college and is a typical teenager, then we had Michael who was still born and if he was alive he would be 11 years. Then we have Mitchell who has turned 9 of June this year. Mitchell was a hard baby and I knew that something was not right with this child as beautiful as he is, I just knew. I was for ever at the doctor's and as usual nothing wrong, or he might have a virus. This went on for 41/2 years until a new doctor came to our clinic. It just all went into place. He suggested that we see a paediatrician and that Mitchell could have a congenital abnormality. Gee, was we scared. After the paediatrician's visit, he suggested that we see a geneticist and on the 17 th November Mitchell was diagnosed with a very rare disorder called Floating Harbor Syndrome. Our lives would never be the same, but we went on living until Mitchell’s prep teacher asked if a child can have 2 syndromes. I asked what she meant and she thought that Mitchell might have Asperger's and it would be a good idea to have him assessed for it. I left the classroom to go and see the principal and well he suggested the same thing, so I got on the phone and so our journey began. I rang the Guidance officer and gee, what a shock. She said that she couldn’t assess him and with her own admission she knew nothing about Autism. She suggested this other person which I contacted and she performed a CARS on Mitchell and he scored 34 but she wouldn’t give him a proper diagnosis because he had Floating Harbor Syndrome.

64. FAQ visual impairment, Rhett s syndrome, William s syndrome, Floating Harborsyndrome, Angelman s syndrome, Tourette s syndrome, autoimmune diseases etc. http://www.autismtas.org.au/oldsite/faq.htm

Frequently Asked Questions What is autism? Autism is a life-long developmental disability that affects the individuals understanding of what he/she sees, hears and senses. This results in problems of social relationships, communication and behaviour. It is generally accepted that autism is an organic brain disorder. What causes autism? The cause or causes of autism are as yet unknown. No factors in the child's psychological or family environment cause autism. What are the characteristics of autism? The degree of severity of characteristics differs from person to person, but usually include disturbances in the following : 1. Communication · Delay or absence in language development · Difficulties understanding speech · Difficulties using language · Difficulties understanding and using gesture Social Interaction Difficulties with the following : · understanding social relationships · relating to others, may appear to "tune out" · maintaining eye contact · forming friendships · understanding other peoples thoughts and feelings · co-operative play 3. Unusual Sensory Responses

65. EMedicine - Sprengel Deformity : Article By Mihir M Thacker, MBBS Velocardiofacial syndrome (Pollard, 1999). Floating harbor syndrome (Hersh, 1998).Goldenhar syndrome (Avon, 1988). Xlinked dominant hydrocephalus, http://www.emedicine.com/orthoped/topic445.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Orthopedic Surgery Hand And Upper Extremity Sprengel Deformity Last Updated: March 7, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: Sprengel's deformity, Sprengel anomaly, Sprengel's anomaly, congenital high scapula, congenital elevation of the scapula, failure of scapular descent, Sprengel's shoulder, Sprengel shoulder, hochgradige dislocation der scapula, hypoplastic scapula, elevated scapula, absent ribs, fused ribs, chest wall asymmetry, Klippel-Feil syndrome, cervical ribs, congenital scoliosis, cervical spina bifida, diastematomyelia, omovertebral bone, high shoulder, shoulder deformity, Greig syndrome, Poland syndrome, VATER association, velocardiofacial syndrome, floating harbor syndrome, Floating-Harbor syndrome, Goldenhar syndrome, X-linked dominant hydrocephalus, skeletal anomalies, mental disturbance syndrome AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Indications Relevant Anatomy And Contraindications ... Bibliography Author: Mihir M Thacker, MBBS

66. VulgarisMedical - Encyclopédie || Clinodactylie Translate this page syndrome (ensemble de symptômes) se caractérisant la déviation des doigts Dubowitz (syndrome de ), Townes-Brocks (syndrome), Floating harbor syndrome. http://www.vulgaris-medical.com/front/?p=index_fiche&id_article=1112

67. The Genetic Disorders Floating Harbor syndrome dingbat1 2213 11/13/2002 (7). Floating Harbor syndrome -William Kearns PhD 1234 11/19/2002 (0). Re Floating Harbor syndrome http://www.inciid.org/cgi-brd/nph-showboard.pl/9/12

Web INCIID.ORG Become an INCIID Sustaining Member. Help INCIID to help more people. Please visit the Genetic Support Forum The newest posts are on the first page. I think my +HPT may be wrong. :( (m) Re: I think my +HPT may be wrong. :( (m) RachelK Gina, the color doesn't really matter, it is a Pos or Neg test only!!n ((Gina)) Floating Harbor Syndrome Floating Harbor Syndrome William Kearns PhD Re: Floating Harbor Syndrome LCL Re: Floating Harbor Syndrome Re: Floating Harbor Syndrome RachelK Have a read of this... oops that should read 13,14 Re: oops that should read 13,14 RachelK OMGosh OMGosh!!! (m) Praying this is it. KatBT Cynthia7 HOW ARE YOU? Please update (nt) LCL superovulation for BT RachelK one protocol doesn't fit everyone William Kearns PhD I too have am a BT carrier (14/21)...this past cycle (m/preg ment) Re: I too have am a BT carrier (14/21)...this past cycle (m/preg ment) RachelK doing it this cycle(m/c ment) Re: doing it this cycle(m/c ment) RachelK I had this same discussion with my RE(m, m/c, DS) stolmeierr Re: I had this same discussion with my RE(m, m/c, DS)

68. Full Listing FIRST ARCH syndrome, FITS AND FAINTS, FLOATING HARBOR syndrome, FOETALANTICONVULSANT syndrome, FOSTERING, FRAGILE X, FRANCESCHETTI-KLEIN syndrome, http://www.doctor.gp/help/full_listing.htm

DIRECTORY OF BRITISH SELF HELP GROUPS AND SUPPORT ORGANISATIONS by Steve and Julie Garrill Home

69. Yonsei Medical Journal First Turkish Patient with Floating Harbor syndrome with Additional FindingsCryptorchidim and Microcephaly. Mukadder Ayse Selimoglu, Erol Selimoglu, http://www.eymj.org/abstracts/subList.asp?year=2004&number=2

70. ORPHANET - Maladies Rares - Médicaments Orphelins Translate this page Version pour Impression. MALADIE Floating harbor syndrome. Synonyme(s) Leistihollister rimoin syndrome de. CIM Q87.8. Aucun descriptif disponible http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=FR&Expert=2044

71. ORPHANET® : Base De Données Sur Les Maladies Rares Et Les Médicaments Orpheli Facial dysmorphism shawl scrotum joint laxity syndrome Facial ectodermal dysplasia Floating harbor syndrome Flotch syndrome Flynn aird syndrome http://www.orpha.net/Pat/GBF.html

List of diseases starting by F Fabry disease Faces syndrome Facial asymetry temporal seizures Facial clefting corpus callosum agenesis ... Fused mandibular incisives

72. SEMERC: Information Services: Glossary: F Floating Harbor syndrome. Named after an American hospital where the syndromewas first observed. Features include growth delay becoming apparent in http://www.semerc.com/information_services/a_z/f.asp

Search our online shop SEMERC Information Services: Glossary : F The SEMERC Glossary is kindly provided by David Fulton Publishing. Click on a letter to jump to the appropriate page. A B C D ... Z Fabry Syndrome or Anderson-Fabry Disease, Diffuse Angiokeratoma A disorder of lipid metabolism. Features, which are variable, include: onset in childhood or adulthood, corneal opacities, burning pain in the hands and feet, clusters of small dark lesions around the knees, hips and genital area, progressive kidney disorder. In some cases: seizures, attacks of fever, blood and blood vessel disorders, partial paralysis, loss of previously acquired skills due to cerebral complications. Facies The expression or appearance of the face, often an indication of the presence of a general disorder or abnormality, or of disease in other parts of the body. Fading A term used in behaviour modification for the gradual removal of cues, prompts or rewards during teaching sessions, so that the desired behaviour begins to be produced without prompting. Familial The term used to describe a disease or disability which affects several members of the same family.

73. Maladies Rares, Maladies Orphelines Floating Harbor syndrome Focal Dermal Hypoplasia Forbes Albright syndrome ForbesDisease Forestier s Disease Formaldehyde Poisoning Fountain syndrome http://www.fmo.easynetonline.net/anciensite/listnord.html

Maladies rares maladies orphelines ATTENTION : VOUS ETES SUR L'ANCIEN SITE DE LA FEDERATION DES MALADIES ORPHELINES Vous pouvez vous diriger vers le nouveau site en cliquant - ici Retour Liste NORD http://www.rarediseases.org/lof/lof.html Rare Disease Database - RDB 5 Oxoprolinuria A Aarskog Syndrome Aase Syndrome Ablepharon Macrostomia Syndrome Acanthocheilonemiasis Acanthocytosis Acanthosis Nigricans Achalasia Achard Thiers Syndrome Achondrogenesis Achondroplasia Acidemia, Isovaleric Acidemia, Methylmalonic Acidemia, Propionic Acne Rosacea Acoustic Neuroma Acrocallosal Syndrome, Schinzel Type Acrodermatitis Enteropathica Acrodysostosis Acromegaly Acromesomelic Dysplasia Acromicric Dysplasia ACTH Deficiency Adams Oliver Syndrome Addison's Disease Adie Syndrome Adrenal Hyperplasia, Congenital (General) Adrenoleukodystrophy Afibrinogenemia, Congenital Agammaglobulinemias, Primary Agenesis of Corpus Callosum Agnosia, Primary Visual Agranulocytosis, Acquired Ahumada Del Castillo Syndrome Aicardi Syndrome AIDS (Acquired Immune Deficiency Syndrome) AIDS Dysmorphic Syndrome Alagille Syndrome Albinism Alexander's Disease Alkaptonuria Allan Herndon Syndrome Alopecia Areata Alpers Disease Alpha-1-Antitrypsin Deficiency Alport Syndrome Alstrom Syndrome Alternating Hemiplegia of Childhood Alveolitis, Extrinsic Allergic

74. Diet, Health, Diseases, Vitamins Iwant2bhealthy.com FLOATING HARBOR syndrome CONTACT GROUP – Sue Sinclair, 27 Hatfield Road, Dagenham,Essex, RM9 6JR. Tel 020 8517 6842. · FOSTERING see under Adoption and http://www.iwant2bhealthy.com/supportgroups/index_f.shtml

location: support groups healthy iwant2b.com Support groups Family Fat women Fibromyalgia Fostering Support groups quick finder Aids / HIV Anorexia Arthritis Asthma ... P Q R S T U ... X Y Z Information supplied by g-text FREEPOST NWW6775, BLACKPOOL. FY4 3GA. FABRY’S DISEASE FABRY’S DISEASE SUPPORT GROUP – Suzanne Hill, 10 Broadmeadow Rd, Wyke Regis, Weymouth, DT4 9BS.  Tel 01305 774 443.  Information/Contact. FACIAL DISFIGUREMENT see under Disfigurement FACIOAURICULOVERTEBRAL SYNDROME see under Goldenhar Syndrome FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY contact FSH Muscular Dystrophy Support Group under Muscular Dystrophy FAMILIAL ATHEROSCLEROSIS contact Family Heart Association under Heart FAMILIAL GOUT/FAMILIAL JUVENILE GOUT (Lesch-Nyhan Syndrome) contact PUMPA under Metabolic Diseases FAMILIAL HAEMORRHAGIC TELANG-IECTASIA contact Telangiectasia Group FAMILIAL HYPERCHOLESTEROLAE-MIA contact Family Heart Association under Heart FAMILIAL HYPERLIPIDAEMIA contact Family Heart Association under Heart FAMILIAL SPASTIC PARAPLEGIA also known as Strumpell-Lorrain FSP SELF HELP GROUP – Mrs Sally Langton, 116 Queens Road, Leicester, LE2 3FL.  Tel 0116 270 0450.  Collecting details on how the disease affects different families, ie age of onset, degree of disability and passes this information to research organisations.

75. Health Library - 12.42.224.150/library/healthguide/enus/illnesscon research04/2004Research04.phpSelimoglu MA, Selimoglu E, Ertekin V, Caner I, Orbak Z. First Turkish patientwith floating harbor syndrome with additional findings cryptorchidim and http://12.42.224.150/library/healthguide/en-us/SelfHelp/topic.asp?hwid=shc29flo

76. Network Of Care Floating Harbor syndrome Support Group Floating Harbor syndrome. Back to Top.FO. FOD Family Support Group - Fatty Oxidation Disorder http://sacramento.networkofcare.org/aging/library/articleList.cfm?type=Support G

77. A Listing Of Disorders Filippi syndrome. Fitz Hugh Curtis syndrome. Floating Harbor syndrome. Focal DermalHypoplasia. Forbes Albright syndrome. Forbes Disease http://medschool.umaryland.edu/BTBank/Family/Disorders_F.htm

Brain and Tissue Bank University of Maryland, Baltimore F Fabry Disease Facioscapulomueral Muscular Dystrophy Factor IX Deficiency Factor XIII Deficiency Fahr's Disease Fairbank Disease Farber's Disease Fascioliasis Felty Syndrome Femoral Facial Syndrome Fetal Alcohol Syndrome FG Syndrome Fiber Type Disproportion, Congenital Fibrodysplasia Ossificans Progressiva (FOP) Fibromatosis, Congenital Generalized Filippi Syndrome Fitz Hugh Curtis Syndrome Floating Harbor Syndrome Focal Dermal Hypoplasia Forbes Albright Syndrome Forbes Disease Forestier's Disease Fountain Syndrome Fox Fordyce Disease Fragile X Syndrome Fraser Syndrome Freeman Sheldon Syndrome Frey's Syndrome Froelich's Syndrome Frontofacionasal Dysplasia Frontonasal Dysplasia Fructose Intolerance, Hereditary Fructosuria Fryns Syndrome Fucosidosis

78. Metropolitan Society For Crippled Children & Adults Floating Harbor syndrome Support Group 160 Guild NE Grand Rapids, MI 49505Phone (616) 4479175 Floating Harbor syndrome is a rare genetic disorder. http://www.wheeler.org/pages/national_directory/natl_dir_f.html

click above to return to the home page) Directory for the Disabled: National Edition Michigan Edition Other Resources: Medical Economics Newsletter Archive Directory for the Disabled - National Edition A A A B ... E F G H I J ... P Q R S T U ... W X Y Z Families of Spinal Muscular Atrophy P.O. Box 196 Libertyville, IL 60048 Phone: (847) 367-7620 Toll Free: (800) 886-1762 Fax: (847) 367-7623 Website: http://www.fsma.org Families of SMA is dedicated to promoting and supporting research, helping families cope with SMA through informational programs and support and educating the public and professional communnity about SMA. Federation for Children with Special Needs 1135 Tremont Street Suite 420 Boston, MA 02120 Phone: (617) 482-2915 Toll Free: (800) 331-0688 TTY: (617) 236-7210 Fax: (617) 572-2094 Website: http://www.fcsn.org The federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. The federation operates a Parent Center which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs. 52 Association for the Handicapped, Inc.

79. Findings:@Everything2.com PostVietnam syndrome Peter Pan syndrome Floating Harbor syndrome syndrome If you Log in you could create a premenstral syndrome node. http://www.everything2.com/index.pl?node=premenstral syndrome

80. Findings:@Everything2.com Peter Pan syndrome Floating Harbor syndrome Gettingeaten-by-a-bear syndrome . If you Log in you could create a Napoleon syndrome node. http://www.everything2.com/index.pl?node=Napoleon Syndrome

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