41. Health Library - 12.31.13.113/library/healthguide/enus/SelfHelp/to Web site InformationRosen, AC, Newby, R., Lubinsky, R., Saur, C. (1998) floating-harbor syndrome in CM, Rosen, AC, Newby, RF, and Lubinsky, MS floating-harbor syndrome in a http://12.31.13.113/library/healthguide/en-us/illnessconditions/topic.asp?hwid=n

42. CP References - Papers In Which CP Was Cited J Speech Hear Res 38 (6) 13031318 Dec 1995; Muir NY, Allard GB, Greenberg C.Oral language development in a child with floating-harbor syndrome. http://www.computerizedprofiling.org/references_papers.html

@import url(css/cp.css); This site will look much better in a browser that supports web standards , but it is accessible to any browser or Internet device. Computerized Profiling Home CP Information Downloads Support ... Other Language Analysis Software Steven Long Marquette University Speech Pathology and Audiology P.O. Box 1881 Milwaukee, WI 53201-1881 email: help@computerizedprofiling.org Page last modified: August 05, 2004 References Papers in which CP was cited Channell, R. (2003) Automated Developmental Sentence Scoring using Computerized Profiling software. Am J Speech-Language Pathology, 12, 3, 369-375 Chapman KL, Graham KT, Gooch J, et al. Conversational skills of preschool and school-age children with cleft lip and palate. Cleft Palate-Cran J 35: (6) 503-516 Nov 1998 Chapman KL, Hardin MA Phonetic And Phonological Skills Of 2-Year-Olds With Cleft-Palate Cleft Palate-Cran J 29: (5) 435-443 Sep 1992 Cochran PS, Masterson JJ Not Using A Computer In Language Assessment Intervention - In Defense Of The Reluctant Clinician Lang Speech Hear Ser 26: (3) 213-222 Jul 1995 Fey ME, Cleave PL, Long SH, et al. 2 Approaches To The Facilitation Of Grammar In Children With Language Impairment - An Experimental Evaluation J Speech Hear Res 36: (1) 141-157 Feb 1993

43. Links: - Alabama Council For Developmental Disabilities Kindler Syndrome An article and case study of this rare disease. FamilialDysautonomia Fanconi Anemia floating-harbor syndrome Friedreich Ataxia http://www.acdd.org/Links/conditions/Rare_Disorders.htm

Skip to content You are here: Home Links Conditions Rare Disorders Rare Disorders G rants Council In f ... me On this page: General Disorders General Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization. International Rare Disease Support Network - A community providing more than a 1000 different links to support groups for the people of all nations. Kindler Syndrome - An article and case study of this rare disease. Includes links. National Organization for Rare Disorders, Inc.

44. Floating Harbor Syndrome / Family Village Library Web Sites. Floating Harbor syndrome Support Group of North America Floating Harborsyndrome Contact Group UK. Back to E - F. Family Village Home http://www.familyvillage.wisc.edu/lib_fharbor.html

Floating Harbor Syndrome Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Floating Harbor Syndrome" Who to Contact Floating Harbor Support Group of North America 160 Guild NE Grand Rapids, MI 49505 E-mail: JDSwanson@aol.com Web: http://hometown.aol.com/jdswanson/ The support group was founded when one mom contacted another mom whose child also had Floating Harbor Syndrome. Our desire is to help others find a diagnosis and to offer solutions that we have found helpful in dealing with our own kids who have this syndrome. Where to Go to Chat with Others Floating Harbor Syndrome Discussion Group A group open to anyone interested in sharing information and/or support for persons affected by "Floating Harbor Syndrome." Floating Harbor Group This group is dedicated to support of parents of children with Floating Harbor Syndrome Learn More About It Floating Harbor Syndrome information from OMIM About Floating Harbor Syndrome Web Sites Floating Harbor Syndrome Support Group of North America Floating Harbor Syndrome Contact Group - UK Back to [ E - F Family Village Home Library Coffee Shop ... Information Last Updated 3/8/2004 by rowley@waisman.wisc.edu

45. Specific Diagnoses (E - F) Fibrodysplasis Ossificans Progressiva Fibromyalgia syndrome (FMS) Floating Harbor syndrome Fragile X syndrome FreemanSheldon syndrome http://www.familyvillage.wisc.edu/card_ef.htm

Specific Diagnoses (E - F) E Eagle-Barrett Syndrome— See Prune Belly Syndrome Ectodermal Dysplasia Ehlers-Danlos Syndrome Elective Mutism— See Selective Mutism Encephalitis Epidermolysis Bullosa— See Dystrophic Epidermolysis Bullosa Epilepsy Epiloia— See Tuberous Sclerosis Erb's Palsy— See Brachial Plexus / Erb's Palsy Esophageal Atresia and/or Tracheoesophageal Fistula Evans Syndrome Extracorporeal Membrane Oxygenation F Facioscapulohumeral Muscular Dystrophy Familial Dysautonomia— See Dysautonomia Family-Centered Care Fanconi Anemia Fatty Oxidation Disorder ... Freeman-Sheldon Syndrome Back to [ Specific Diagnoses Card Catalog A - B C - D E - F ... Information Last updated 3/23/2005 by rowley@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/card_ef.htm

46. Floating Harbor Syndrome Support Group Of North America Floating Harbor syndrome is a rare genetic disorder that was named for the first two As there is no treatment per se for Floating Harbor syndrome, http://hometown.aol.com/jdswanson/

htmlAdWH('93212816', '728', '90'); Main My First Home Page Floating Harbor Syndrome Support Group of North America FLOATING HARBOR SYNDROME THIS PAGE IS BEING MOVED TO: www.geocities.com/floatingharbor@sbcglobal.net/floating-harbor.html OR E-mail us at: floatingharbor@sbcglobal.net **None of this information is intended to be medical advice. Please see a geneticist for diagnosis and more information. Floating Harbor Syndrome is a rare genetic disorder that was named for the first two identified patients who were seen at Boston Floating Hospital and Harbor General Hospital in California. While a more extensive list can be found below, the main characteristics of this syndrome are: *short stature *delayed bone growth *delay in expressive language *distinct facial features. The exact cause is not known, and only around 20 cases have been indentified in medical journals and literature. More information can be obtained by contacting: Floating Harbor Support Group of North America 160 Guild NE Grand Rapids, Mi 49505 JDSwanson@aol.com

47. Floating Harbor Syndrome National network. Founded 1999. Provides mutual support and networking forparents of children with http://my.webmd.com/hw/health_guide_atoz/shc29flo.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center XML News via RSS Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Health Tools Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... Floating Harbor Syndrome Support Group Floating Harbor Syndrome Floating Harbor Syndrome Support Group National network. Founded 1999. Provides mutual support and networking for parents of children with Floating Harbor syndrome. Newsletter, literature, phone support. WRITE: Floating Harbor Syndrome Support of N. Amer. c/o Deana Swanson 160 Guild NE Grand Rapids, MI 49505 CALL: 616-447-9175 E-MAIL: JDSwanson@aol.com WEBSITE: http://hometown.aol.com/jdswanson VERIFIED: 4/30/2004 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

48. Floating Harbor Syndrome Floating Harbor syndrome (FHS) is an extremely rare disorder characterized byshort stature, delayed http://my.webmd.com/hw/raising_a_family/nord934.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center XML News via RSS Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Health Tools Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... For a Complete Report Floating Harbor Syndrome Important It is possible that the main title of the report Floating Harbor Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms FHS Pelletier-Leisti syndrome Disorder Subdivisions None General Discussion Floating-Harbor syndrome (FHS) is an extremely rare disorder characterized by short stature, delayed language skills, and a triangular shaped face. A broad nose, deep-set eyes and a wide mouth with thin lips give an affected individual a distinct appearance. FHS was named after the hospitals at which the first two cases were seen: the Boston Floating Hospital and Harbor General Hospital in California. The cause of this disorder is not known. Resources Human Growth Foundation 997 Glen Cove Avenue Glen Head, NY 11545

49. Floating Harbor Syndrome Articles, Support Groups, And Resources Floating Harbor syndrome articles, support groups, and resources for patientsfrom Med Help International (www.medhelp.org) http://www.medhelp.org/HealthTopics/Floating_Harbor_Syndrome.html

[Health Topics A-Z] A B C D ... Z Floating Harbor Syndrome Support Groups: Floating Harbor Syndrome Support Group of North America Med Help International Search Medical Forums / Message Boards ... Site Map Revised: 9/7/2005

50. Detail Sourcebook Listing Title Floating Harbor Syndrome Support ,Provides mutual support and networking for parents of children with Floating......Title, Floating Harbor syndrome Support Group of North America. http://www.medhelp.org/amshc/amshc360.htm

Detail Sourcebook Listing Title: Floating Harbor Syndrome Support Group of North America Description: Provides mutual support and networking for parents of children with Floating Harbor syndrome. Newsletter, literature, phone support, photos of children with FHS. Scope: National network Founded: Address: c/o Deana Swanson 160 Guild St. NE Grand Rapids, Michigan, 49505 United States Telephone: Email: JDSwanson@aol.com Web Address: http://hometown.aol.com/jdswanson This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International . Please send corrections/updates to admin@selfhelpgroups.org Updated: 02/2005

51. Floating Harbor Syndrome - [Support Group] This information is provided as a resource and does not constitute an endorsementfor any group. It is the responsibility of the reader to decide whether a http://www.bchealthguide.org/kbase/shc/shc29flo.htm

var hwPrint=1;var hwDocHWID="shc29flo";var hwDocTitle="Floating Harbor Syndrome";var hwRank="1";var hwSectionHWID="shc29flo-Header";var hwSource="en-caQ2_05";var hwDocType="Shc"; Self Help Clearinghouse Floating Harbor Syndrome This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. Floating Harbor Syndrome Support Group National network. Founded 1999. Provides mutual support and networking for parents of children with Floating Harbor syndrome. Newsletter, literature, phone support. WRITE: Floating Harbor Syndrome Support of N. Amer. c/o Deana Swanson 160 Guild NE Grand Rapids, MI 49505 CALL: 616-447-9175 E-MAIL: JDSwanson@aol.com WEBSITE: http://hometown.aol.com/jdswanson VERIFIED: 4/30/2004 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

52. Hill Health Topics A-Z List: F : Support Groups Floating Harbor syndrome, Top. Floating Harbor syndrome Support Group FloatingHarbor syndrome. FO. FOD Family Support Group - Fatty Oxidation Disorder http://www.healthwise.net/hillhealth/Find/list.aspx?LETTER=F&FILTER=Support Grou

53. ScienceDaily -- Browse Topics: Health/Conditions_and_Diseases/Genetic_Disorders/ Floating Harbor syndrome Support Group Provides a description, including a list The CaF Directory - A brief discussion about floating harbor syndrome, http://www.sciencedaily.com/directory/Health/Conditions_and_Diseases/Genetic_Dis

@import "/styles/navbar.css"; @import "/styles/tabStyles.css"; Set home page Bookmark site Add search Latest News ... Email to friend Text Size A A A Front Page ... Genetic Disorders : Floating-Harbor Syndrome Subtopics Search Google: Floating-Harbor Syndrome News Books Links ... Mayo Clinic Develops New Coma Measurement System (September 8, 2005) full story Nitric Oxide Could Extend Fertility (September 8, 2005) Biochemistry , an American Chemical Society journal. full story UCLA Study Helps ER Physicians Identify Previously Undetectable Spinal Injuries (September 7, 2005) full story New Observations Show Dynamic Particle Clumps In Saturn's A Ring (September 6, 2005) full story Flipped, Expelled, Copied, And Shrunk: Researchers Document Dramatic Genome Alterations During Primate Evolution (September 6, 2005) Genome Research presents a series of studies that provide insight into the evolution and variation of primate genomes. The issue will appear online and in print on September 1, concomitant with the publication of the chimpanzee genome sequence in the journal Nature full story Discovery Will Aid Identification Of Misregulated Genes In Rett Syndrome (September 4, 2005)

54. ScienceDaily -- Browse Topics: Health/Support_Groups/Conditions_and_Diseases/Gen Online Genetic syndrome Support Groups Sites are listed alphabetically by site for the parents and families of children with Floating Harbor syndrome. http://www.sciencedaily.com/directory/Health/Support_Groups/Conditions_and_Disea

@import "/styles/navbar.css"; @import "/styles/tabStyles.css"; Set home page Bookmark site Add search Latest News ... Email to friend Text Size A A A Front Page ... Conditions and Diseases : Genetic Disorders Subtopics See Also: Health: Conditions and Diseases: Genetic Disorders Search Google: Genetic Disorders News Books Links ... Prions Rapidly 'Remodel' Good Protein Into Bad, Brown Study Shows (September 8, 2005) full story Detecting Brain Infections Without Surgery (September 7, 2005) full story Breast Cancer Gene Increases Risk Of Several Cancers In Men (September 6, 2005) Journal of Medical Genetics . The mutation in the BRAC2 gene may also increase the risk of bone and throat cancers, the data suggest. full story Study Reveals Genomics Of Inflammation From Severe Injury (September 6, 2005) full story Marijuana-derived Drug Suppresses Bladder Overactivity And Irritation In Animal Models (September 6, 2005) full story RNA Research Reveals New Responsibilities (September 6, 2005) full story Flipped, Expelled, Copied, And Shrunk: Researchers Document Dramatic Genome Alterations During Primate Evolution (September 6, 2005) Genome Research presents a series of studies that provide insight into the evolution and variation of primate genomes. The issue will appear online and in print on September 1, concomitant with the publication of the chimpanzee genome sequence in the journal

55. Health Library - Floating Harbor syndrome. Synonyms Disorder Subdivisions FloatingHarborsyndrome (FHS) is an extremely rare disorder characterized by short stature, http://yalenewhavenhealth.org/library/healthguide/en-us/illnessconditions/topic.

56. Floating Harbor Syndrome, Eastern Carolina Floating Harbor syndrome University Health Systems of Eastern Carolina servestarboro, ahoskie, edento, winsor, maxhead, dear county, outebanks counties http://www.uhseast.com/117686.cfm

Health News Health Library Health Topics Healthy Living ... Nutrition Self-Help Resources Information about national and local self-help organizations and support groups. Floating Harbor Syndrome This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. Floating Harbor Syndrome Support Group National network. Founded 1999. Provides mutual support and networking for parents of children with Floating Harbor syndrome. Newsletter, literature, phone support. WRITE: Floating Harbor Syndrome Support of N. Amer. c/o Deana Swanson 160 Guild NE Grand Rapids, MI 49505 CALL: 616-447-9175 E-MAIL: JDSwanson@aol.com WEBSITE: http://hometown.aol.com/jdswanson VERIFIED: 4/30/2004 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

57. Floating Harbor Syndrome Synonyms, Eastern Carolina Floating Harbor syndrome Synonyms University Health Systems of Eastern Carolinaserves tarboro, ahoskie, edento, winsor, maxhead, dear county, http://www.uhseast.com/112884.cfm

Health News Health Library Health Topics Healthy Living ... Nutrition Information on diseases and health concerns, including symptoms, treatment options, and prevention. Floating Harbor Syndrome Synonyms Disorder Subdivisions General Discussion Resources ... For a Complete Report Important It is possible that the main title of the report Floating Harbor Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms FHS Pelletier-Leisti syndrome Disorder Subdivisions None General Discussion Floating-Harbor syndrome (FHS) is an extremely rare disorder characterized by short stature, delayed language skills, and a triangular shaped face. A broad nose, deep-set eyes and a wide mouth with thin lips give an affected individual a distinct appearance. FHS was named after the hospitals at which the first two cases were seen: the Boston Floating Hospital and Harbor General Hospital in California. The cause of this disorder is not known. Resources Human Growth Foundation 997 Glen Cove Avenue Glen Head, NY 11545

58. Floating Harbor Syndrome ThirdAid.com the world s first dedicated online patient to patient medical helpcommunity. http://www.thirdaid.com/conditions/Floating_Harbor_Syndrome.htm

59. Mental Diseases Floating Harbor syndrome. (FHS ). Floating Harbor syndrome. (FHS ). Food Allergies Fountain syndrome Fountain syndrome Fountain syndrome http://www.thirdaid.com/index/qfm/fuseaction/registrationStep3/catalog_id/10521/

60. Geneticalliance.org Floating Harbor syndrome Support Group of North America 160 Guild NE Grand Rapids,MI 49505 Phone 616.447.9175 Fax http://www.geneticalliance.org/ws_display.asp?filter=support_groups_by_disease&t

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