1. Fanconi Anemia Research Fund To find effective treatments and a cure for this disease, and to provide educationand support services to affected families worldwide. http://www.fanconi.org/

Site Navigation Home About Fanconi Anemia What is Fanconi Anemia? Diagnosis ... Search Our Mission: To find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Charity Navigator Awards the Fanconi Anemia Research Fund a Four Star Rating ... Research Projects Funded in 2004-2005 WWW www.fanconi.org

2. Fanconi Anemia / Family Village Features contact information for the fanconi anemia Research Fund. Links to personal accounts and areas where one can learn about the disease. http://www.familyvillage.wisc.edu/lib_fanc.htm

Fanconi Anemia Who to Contact Where to Go to Chat with Others Personal Accounts Learn More About It ... Search Google for "Fanconi Anemia" Who to Contact Fanconi Anemia Research Fund, Inc. [FARF] 1801 Willamette Street, Suite 200 Eugene, Oregon, USA, 97401 541-687-0548 (fax) E-mail: info@fanconi.org Web: http://www.fanconi.org/ The Fanconi Amenia Research Fund raises money for research which can lead to discovery of defective genes and the development of treatments or a cure. They also mantain a growing communication support network of parents and adults with Fanconi Anemia. FARF supports the development of life-saving gene transfer therapies, and sponsers and conducts scientific symposia. They distribute support materials for affected families and their physicians. The Fund develops and maintains a growing communication support network, here parents and clinicians receive research updates, families may find expert care, cell lines are submitted for research, and parents locate others in their area for support or to develop joint fundraising projects. The FA Handbook , the FA Family Newsletter Scientific Supplement , and Bulletin all provide up-to-date education and links to latest research findings. The Fund maintains a family directory by alphabetical and geographical lists and refers families to each other according to similiar needs or age groups.

3. Fanconi Anaemia Resource Page fanconi anemia A Handbook for Families and Their Physicians by Lynn and Dave FA Family Newsletter and FA Science Letter (fanconi anemia Research Fund, http://www.cancerindex.org/ccw/fanconi.htm

Home Site Map Cancer Types Treatments ... About Fanconi Anaemia Menu Cancer-Types Fanconi Anaemia What is Fanconi Anaemia ? Fanconi Anaemia is a rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia , hypoplasia of the bone marrow, and patchy discoloration of the skin. This is an autosomal recessive condition, affected children usually develop severe aplastic anemia by age 8 to 9 years. Treatment usually consists of bone marrow transplant. Fanconi Anaemia is not a cancer, though recent research has shown an association between Fanconi Anaemia and leukaemia. There are 8 types of Fanconi Anaemia; known as complementation groups A through to H. Some definitions: Anemia below normal levels of erythrocytes (red blood cells) Aplastic anemia anemia that is resistant to treatment; often accompanied by deficiencies of other blood cells. Hypoplasia incomplete / under development of a part of the body. Pancytopenia deficiency of all types of blood cells. Recessive (genetics) if the required allele (a type of gene) is not present in both members of a pair of chromosomes then that allele is not expressed.

4. Hope For Henry This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, fanconi anemia. http://www.hsg.org/

The Hope for Henry Foundation Read the N.Y. Times.com article about Henry! Publish Date June 30, 2001 Read Allen's Letters to Henry Henry Strongin Goldberg was born on October 25, 1995. Henry knows all there is to know about Pokémon, believes that Disney World is the best place on earth, plays soccer, worships superheroes and wrestles with his younger brother Jack way past bedtime. Everything he does makes his parents smile. In these and so many other ways, Henry is a lot like other boys his age. But this lover of life and everything Batman is different from other kids because Henry has a horrible disease that threatens his life. After a scary and difficult five years of endless waiting rooms, doctor's visits, blood tests, EKG's, bone marrow aspirations, IV's, surgeries, transfusions, drugs, scars and a bone marrow transplant in July 2000 that met with innumerable complications, Henry faces a very uncertain future. This web site is dedicated to helping people learn more about what a special and brave young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia (FA). Through raising awareness and money for research and encouraging people to register to be a bone marrow donor, our family strives to give Hope for Henry and other children suffering from this killer. We welcome you to the site and encourage you to tell others about it and to bookmark this page so you can keep abreast of Henry's progress.

5. Fanconi Anemia Research Fund Site Navigation. Home. About fanconi anemia. What is fanconi anemia? Diagnosis. Treatment. Relationship to Cancer. Research. Scientific http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

6. Fanconi Anemia Research Fund About fanconi anemia What is fanconi anemia? Diagnosis Treatment Relationshipto Cancer Research Scientific Symposium Scientific Advisory Board http://www.fanconi.org/pubs/FamilyHandbook.htm

Site Navigation Home About Fanconi Anemia What is Fanconi Anemia? Diagnosis ... Search Fanconi Anemia: A Handbook for Families and Their Physicians The third edition of this handbook, published in 2000, is available for download. Adobe Reader is required to view this publication. Download a free copy. If you would like a copy of the book, e-mail your request and contact details to info@fanconi.org , call us toll-free at 1-800-828-4891 in the United States or at 541-687-4658 outside the United States. Fanconi Anemia: A Handbook for Families and their Physicians (Third Edition, 2000) The handbook is also available in Spanish and French Anemia de Fanconi: Un Manual Para Las Familias y sus Medicos (Tercera edicion, 2000)

7. Fanconi Anemia Disease Fact Sheet on this anemia with emphasis on FANCC variant of disease being a Jewish Genetic Diseases, including support resources. http://www.mazornet.com/genetics/fanconi_anemia.htm

8. Fanconi-Anaemia Summer Camp for Fanconi Anaemia Families News Update Sponsor our runner in the 2004 Flora London Marathon News Update http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

9. Graphic Momentum Offers backgrounds, textures, dividers, and GIFs. Web site design, custom graphics, and photo restoration, a large portion of proceeds are donated to The fanconi anemia Research Fund. http://members.tripod.com/graphicmomentum/

var TlxPgNm='index'; setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Free Games Share This Page Report Abuse Edit your Site ... Next Pages may load slowly. Thank You for your Patience! :) (Must be viewed with window maximized to display correctly) Free graphics in every catagory for your web sites FREE Webmaster Resources! Free Software! Heavy Metal Fonts!! Web Site Builder Resources FREE SOFTWARE DOWLOADS!! Best virus free Software on the net!!! Click to GO TO DOWLOAD PAGE Click to GO TO DOWLOAD PAGE Create your own 3-D Header!! Right Now! :) In REAL TIME!!! Play with my LIVE Interactive " 3-D HeaderMaker!!! " Save them to your disk FREE!!! var refID=135264; FastCounter by bCentral Graphic Momentum' Has absolutely beautiful Inspirational Art This is a new Gallery and will be growing in content. For any "Web Site Design" needs: Business Personal Non-Profit Christian You Name it!!! Your Site can be as simple or as complex as you wish. You may have as many pages as needed. Price very negotiable for Web Sites over 6 pages and appropriately so depending on complexity.

10. Fanconi Anaemia Resource Page fanconi anemia Home Page Carrie's pages (A fanconi anemia family page) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Fanconi Mutation Database The fanconi anemia Mutation Database has been established as a cooperative effortin an effort to accelerate the availability of information. http://www.rockefeller.edu/fanconi/mutate/

Fanconi Anemia Mutation Database The Fanconi Anemia Mutation Database has been established as a cooperative effort in an effort to accelerate the availability of information. The database is divided into a public section listing mutations that have already been reported in the literature, and a private section with unpublished data. The private section is available to interested researchers who agree to a set of guidelines for sharing data. Database Co-Curators Arleen D. Auerbach, PhD The Rockefeller University, NY Detlev Schindler,MD,PhD University of Wuerzburg, Germany Database Manager The Auerbach Lab The Rockefeller University, NY

12. Welcome To Jake' Information on life with fanconi anemia. http://www2.eos.net/jake

Welcome to Jake's World Shortcut to Journal Updates Enter

13. Fanconi Anemia Web fanconi anemia Web has documented Medical information downloads for this rare terminal childhood disease and support for patients and their families. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. EMedicine - Anemia, Fanconi : Article By Blanche P Alter, MD, MPH Anemia, Fanconi fanconi anemia (FA) is the most frequently reported of the rareinherited bone marrow failure syndromes, with more than 1200 cases http://www.emedicine.com/ped/topic3022.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Hematology Anemia, Fanconi Last Updated: March 10, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Blanche P Alter, MD, MPH , Expert, Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, Warren Magnuson Clinical Center, National Institutes of Health Coauthor(s): Jeffrey M Lipton, MD, PhD , Professor, Department of Pediatrics, Albert Einstein College of Medicine; Chief, Hematology-Oncology, Stem Cell Transplantation, Schneider Children's Hospital; Director, Hematology-Oncology, Children's Health Network Blanche P Alter, MD, MPH, is a member of the following medical societies: Alpha Omega Alpha American Academy of Pediatrics American Association for the Advancement of Science American Federation for Medical Research ... Phi Beta Kappa , and Society for Pediatric Research Editor(s): J Martin Johnston, MD

15. Tests And Indications Information about a test for seven common inherited diseases in the Ashkenazi Jewish population TaySachs disease, Canavan disease, cystic fibrosis, Gaucher disease, Bloom syndrome, familial dysautonomia and fanconi anemia. http://cfar-www.med.nyu.edu/genetics/lab/ashkenazi_screen.html

NYU Medical Center Home NYU School of Medicine Home Research Home Administration ... Calendars Tests and Indications Cystic Fibrosis Cystic fibrosis is the most common genetic disorder among Caucasians (1:29) and is less common among other ethnic groups (see table below). The American College of Medical Genetics (ACMG) recommends that CF screening be offered to couples considering starting a family and recommends the mutation panel listed below for all ethnicities. The detection rate differs with ethnic origin and is shown along with after testing residual risk estimates in the table below. Mutations Analyzed: 621+1G->T 1717-1G->A 711+1G->T 1898+1G->A 3849+10kbC->T 2789+5G->A 3120+1G->A This test distinguishes the F508C, I507V, and I506V polymorphisms and the poly T allele is reported where clinically significant. Sensitivity and Estimated Carrier Risk: Estimated Carrier Risk Ethnic Group Detection Rate Before Test After Test Ashkenazi Jewish ~1 in 930 European Caucasian ~1 in 140 African American ~1 in 207 Hispanic American ~1 in 105 Asian American ND ND Ashkenazi Jewish Genetic Disease Screening A video entitled: "The Importance of Genetic Screening for Ashkenazi Jewish People" is available on our website and may be shared with your patients.

16. MedlinePlus Anemia Epoetin Treatment (American Society of Clinical Oncology) fanconi anemia Treatment (fanconi anemia Research Fund) Nutrition http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Fanconi Anemia fanconi anemia (FA), first described in 1927 by a Swiss pediatrician Guido Fanconi, Canadian fanconi anemia Research Fund / La Fondation Canadienne de http://www.fanconicanada.org/sys-tmpl/fanconianemia/

Home 2006 Toronto Fundraiser 2005 National Anemia Patient Conference Fanconi Anemia ... Donate Now FAMILIES Families Welcome Page PHYSICIANS/RESEARCHERS Sitemap Fanconi Anemia Fanconi Anemia What is FA? Fanconi Anemia (FA), first described in 1927 by a Swiss pediatrician Guido Fanconi, is the most common of the inherited anemias that lead to progressive, severe bone marrow failure, also known as aplastic anemia. The effects of the disease are devastating, leaving patients weak, prone to severe bleeding due to insufficient blood clotting and susceptible to infection. FA is a genetic disorder that occurs equally in males and females and is found in all ethnic groups. Though considered primarily a blood disease, it may affect all systems of the body. A Fanconi Anemia patient often, but not always, has other physical defects detectable at the time of birth ranging from minor to serious. Patients are also at an increased risk for developing leukemia and other cancers. Many children do not survive to adulthood. How is FA diagnosed?

18. Fanconi Anemia Web An informational site for this disorder. http://members.tripod.com/fanconianemiaweb

var TlxPgNm='index'; setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Dating Search Share This Page Report Abuse Edit your Site ... Next Quality Web Site Design that is helping to save terminally ill kids lives by donating 15% of their web design fee to The Fanconi Anemia Research Fund! FastCounter by bCentral (View Maximized to display correctly) Pages may load slowly, Thank you for your patience! Welcome to the: "Fanconi Anemia Web" WEB SITE Fanconi Anemia is a rare and terminal genetic childhood disease that results in death due to Bone marrow failure. See Tucker's "Tucker Time!" photo page My baby boy Tucker's fatal Fanconi Anemia diagnosis totally devastated and encompassed my life with despair...Never have I experienced such a profound weeping of my soul... The only way I Knew that I was going to be able to break the paralyzing depression I was in, was to try to turn my despair into Hope . By devoting myself to "Taking Action" And doing all I can to offer help and resources to others dealing with this heartbreaking disease, and to provide up to date access to medical documentation for Doctors, researchers, medical students and anyone seeking knowlege on this very rare genetic childhood disease. I pray there is a "Miracle" behind the tragedy of this disease...for it is well documented that researchers world wide are learning more and more that equal to the extreme rareness of Fanconi Anemia is counter matched by concentrated properties and similarities that with continued research could unveil a cure for cancer and Leukemia as well. That truly would be a breakthrough for all mankind not just the rare several thousand Fanconi Anemia cases reported globally. The urgency of continued research is also why I created this Web Site to generate a comradery of Fundraising efforts, volunteers and contributions to The Fanconi Anemia Research Fund. I also donate 20% of my web site design fee to the Research Fund as well at my other site:

19. Hope For Henry learn more about what a special and brave young man Henry is and to educate everyone about the disease he is fighting, fanconi anemia (FA). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. WELCOME TO FANCONI CANADA Fanconi Canada is a charity which supports medical research into fanconi anemiaand serves as a support group for affected Canadian families. http://www.fanconicanada.org/sys-tmpl/

Home 2006 Toronto Fundraiser 2005 National Anemia Patient Conference Fanconi Anemia ... Donate Now FAMILIES Families Welcome Page PHYSICIANS/RESEARCHERS Sitemap Home Virtual Office of Janelle Redekop April 25, 1990 - June 9th, 2004 GIVE THEM TOMORROW Fanconi Canada is a registered charity whose mission is to fund research in Canada into an effective treatment and, ultimately, a cure for Fanconi Anemia and to serve as a support network for affected Canadian families. Canada Revenue Agency reg'n no. 868951724 RR 0001 Pour francais, pousser ici OVER $50,000 RAISED FOR FA RESEARCH 2005 Fundraiser Sponsors Thanks for Visiting! Canadian Fanconi Anemia Research Fund / La Fondation Canadienne de Recherche de L'Anemie de Fanconi Home 2006 Toronto Fundraiser 2005 National Anemia Patient Conference Fanconi Anemia ... Families Welcome Page

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