81. Opera Directory Offers support and understanding to individuals of facial difference. Friendship and support for people who have a facial difference. Let s Face It USA http://portal.opera.com/directory/?cat=58483

82. Projects if any, does living with a facial difference have on the quality of life ofadolescents? and Are there positive aspects of having a facial difference? http://depts.washington.edu/yqol/projects.htm

PROJECTS Current Projects Project First Impressions One purpose of this study is to assess levels of social stigma among youth ages 11-14 with facial differences. A second purpose will be to develop methodologies for examining the association among social skills, stigma, and quality of life of youth with facial differences. We are currently conducting focus groups with adolescents without facial differences, medical and dental students, teaching students, and adults to test and discuss the first draft of the First Impressions Rating Scale, a scale developed in this project to measure stigma among youth with facial differences. If you are interested in being a part of this study, and are between the ages of 11 and 18, are an adult, or are a medical, dental, or teaching student, please contact us at: seaqol@u.washington.edu or at 1-800-291-2193. Hello All, Well, we are getting close to our video shoot this weekend! I am really looking forward to meeting you all, and working on this important project with you! Here are some final details: We are having the rehearsal Friday night (9/9) from 5:00-8:15 p.m. at the Forward Face office

83. A Word To Families When a child is born with a facial difference or other birth anomaly, Raising a child with a facial difference is a unique challenge. http://dentistry.ucsf.edu/cranio/families.htm

The birth of a child brings immense pride and joy. When a child is born with a facial difference or other birth anomaly, a wave of unexpected emotions often floods a new parent. Fear, shock, anger, confusion, guilt are commonly felt but never planned. You are not alone. Most parents experience some combination of these emotions, mixed of course with the wonder and excitement of this new birth. Here we provide a list of things to consider as you begin this journey of parenting a child with a facial difference. They are gleaned from parents and professionals with extensive experience with children like yours. Learn from what seems important to you and disregard the rest. Learn about your child's condition As a parent, you have a new role as advocate for your child's unique needs. Find out about your child's condition from your Craniofacial Anomalies team and other medical professionals, parents of children with the same condition, organizations specializing in support and treatment of your child's condition, medical journals, and the Internet. Ask questions and take notes. However, be discerning. Some sources are incorrect or exaggerate statistics. Also, another parent's experience of the condition may vary considerably from your own. Use your best judgment and keep your child's best interest in mind.

84. Hemifacial Microsomia Children with facial Difference A Parent s Guide. Written by Hope Charkins, MSW . A must for anyone with a facial difference. Published yearly. http://www.faces-cranio.org/Disord/Hemi.htm

The National Craniofacial Association P. O. Box 11082 * Chattanooga, TN 37401 Hemifacial Microsomia What is Hemifacial Microsomia? Hemifacial Microsomia is a condition in which the lower half of one side of the face is underdeveloped and does not grow normally. It is sometimes also referred to as first and second brachial arch syndrome, oral-mandibular-auricular syndrome, lateral facial dysplasia, or otomandibular dysostosis. The syndrome varies in severity, but always includes the maldevelopment of the ear and the mandible. This is the second most common facial birth defect after clefts. Why did this happen? Researchers are still not sure why this happens, however, most agree that something occurred in the early stages of development such as a disturbance of the blood supply to the first and second branchial arches in the first 6 to 8 weeks of pregnancy. Studies do NOT link this condition with the mother's activities or actions during her pregnancy. Will this happen to children I have in the future? For parents with one child with hemifacial microsomia, the chances are between and 1%. Adults with this condition have a 3% chance of passing it to their children.

85. VCFS Children with facial Difference A Parent s Guide. Written by Hope Charkins, MSW.Published by Woodbine House, 1996. 1800-843-7323. http://www.faces-cranio.org/Disord/Velo.htm

The National Craniofacial Association P. O. Box 11082 * Chattanooga, TN 37401 Velo-cardio-facial Syndrome What is Velo-cardio-facial Syndrome? Velocardiofacial Syndrome, also known as VCFS or as Shprintzen Syndrome, is the most common syndrome associated with cleft palate. Approximately 1 in 2,000-5,000 children are born with VCFS. Characteristics include: a long face with a prominent upper jaw flattening of the cheeks an underdeveloped lower jaw a bluish color below the eyes a prominent nose with narrow nasal passages a long thin upper lip and a down-slanting mouth cleft palate or submucous cleft palate Why did this happen? Velocardiofacial Syndrome is an autosomal dominant condition. Genetic studies of children with this condition show that a microscopic segment on the long arm of chromosome 22 is missing. The genetic test for diagnosis of this condition is called "FISH analysis" and can be performed in many medical centers. It is not because of anything the mother did or did not do during the pregnancy. Will this happen to children I have in the future?

86. Welcome To Adobe GoLive 5 Having a facial difference is also hard because people often say such She specializes in helping children with a facial difference and their families. http://www.nagerormillersynd.com/new/NewArticles.html

New Articles Chicago Tribune This article ran in 7/1/00 A BRAVE FACE WHEN YOU LOOK DIFFERENT, LIFE DEMANDS A UNIQUE KIND OF COURAGE By Darrell E. Ward. Special to the Tribune. Published: Sunday, July 2, 2000 Section: FAMILY Page: 1 Ask parents whose children have facial disfigurements to describe their lives, and the stories are strikingly similar. For starters, these parents say, they and their child regularly endure stares, double-looks, pointing and thoughtless and even cruel remarks and questions. "People look at you like you did drugs or something to cause this," said one Chicago father of a 12-year-old girl with a facial difference. "People don't stop and think before they make comments or lay blame." Having a facial difference is also hard because people often say such individuals "act kind of weird; act different," said Will Eiserman, an educational specialist in the University of Colorado's Department of Speech, Language and Hearing Sciences. The reason they act differently isn't due to the congenital condition that caused the facial difference, he said. Rather, it's because other people don't interact normally with them. Research has shown, Eiserman said, that when people talk to someone with a facial difference, they tend to begin and end conversations more abruptly, ask intrusive questions and make eye contact for shorter periods. "How are they supposed to learn normal social cues if everybody is interacting with them in a weird way?" said Eiserman.

87. Explore Living With Facial Difference And Deformity - Barnes And Noble Books Bermant PlastiWeb cleft lip cleft palate barnes and noble - facial difference. http://www.plasticsurgery4u.com/web_links_folder/barnes_noble_difference2.html

Plastic Surgery Book Store (Advertising) Want to read books about living with facial difference? This section is for understanding facial difference for both the individual and the family. Find books written for the public. Listing of these books does not mean that Dr. Bermant has read them nor does he endorse the book and the material contained within. Reviews are from various sources. Those "reviewed by Dr. Bermant" will be so indicated. Michael Bermant, MD Board Certified by the American Board of Plastic Surgery Plastic Surgery Liposuction Cosmetic Surgery Tummy Tuck Breast Otoplasty Rhinoplasty Facial Plastic Surgery About Dr. Bermant Find us Multimedia Lectures Kid's view Bulletin boards PlasticWeb PlasticArt Home Explore Living with Facial Difference in Books from Barnes and Noble Bestsellers 40% off Millions of books at great discounts Bargain books up to 90% off Almost always less expensive than going to the bookstore To buy or find out more about books from barnesandnoble.com, click on the links below Title: Beauty Is the Beast: Appearance-Impaired Children in America Author: Ann H. Beuf

88. Facial Difference And Deformity - Barnes And Noble Books Bermant PlastiWeb cleft lip cleft palate barnes and noble - facial difference. http://www.plasticsurgery4u.com/web_links_folder/barnes_noble_difference.html

Plastic Surgery Book Store (Advertising) Want to read books about living with facial difference? This section is for understanding facial difference. Find books written for the public. Listing of these books does not mean that Dr. Bermant has read them nor does he endorse the book and the material contained within. Reviews are from various sources. Those "reviewed by Dr. Bermant" will be so indicated. Michael Bermant, MD Board Certified by the American Board of Plastic Surgery Plastic Surgery Liposuction Cosmetic Surgery Tummy Tuck Breast Otoplasty Rhinoplasty Facial Plastic Surgery About Dr. Bermant Find us Multimedia Lectures Kid's view Bulletin boards PlasticWeb PlasticArt Home Explore facial difference in books from Barnes and Noble Bestsellers 40% off Millions of books at great discounts Bargain books up to 90% off Almost always less expensive than going to the bookstore To buy or find out more about books from barnesandnoble.com, click on the links below Title: Arthur's Eyes Author: Marc Talon Brown Publisher: Date Published: February 1986 Synopsis For children ages 4 to 8.

89. Craniofacial Disorders LFI is dedicated to helping people with facial difference, their loved ones, theprofessionals who care for them, and the communities in which they live, http://www.familyvillage.wisc.edu/lib_cran.htm

Craniofacial Disorders Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Craniofacial Disorders" Who to Contact AboutFace USA P.O. Box 969 Batavia, IL 60510-0969 E-mail: info@aboutfaceusa.org Web: http://www.aboutfaceusa.org/ AboutFace provides emotional support and information to individuals with facial differences and their families and increases public awareness regarding facial differences. They have local chapters and a current listing is available through their 800 number. They provide parent-to-parent matching through their national database of families who are willing to share experiences and provide encouragement to each other. New parents are matched with those in the most similar circumstances. Children's Craniofacial Association 13140 Coit Road Suite 307 Dallas, Texas 75240 e-mail: contactCCA@ccakids.com Web: http://www.ccakids.com/ See also: Apert Syndrome, Craniosynostosis, Hemifacial Microsomia, Microtia, Treacher Collins Syndrome. CCA promotes the improvement in the quality of life for facially disfigured individuals and their Families, address the medical, financial, psychosocial, emotional and educational concerns relating to craniofacial conditions, and advocates on behalf of and promotes awareness for the facially disfigured.

90. Dragonflytoys.com / Dragonfly / Products / All / All / Children With Facial Diff Children with facial Difference helps parents understand and cope with thechallenges presented by their child s condition diagnosis; causes and the http://www.dftoys.com/specialneeds/dragonfly/products/details/usa/All/All/P0127/

Dragonfly Store Members PLAY Pen ... Info usa dragonflytoys.com Dragonfly Products All ... All / Children with Facial Differences A Parents' Guide Quick Search Keyword: Search for: Products Articles New Product Programmable Formboard Improves memory and hand-eye co-ordination Hot Product Peg-It Therapetic Tool A portable therapeutic modality Classic Product Word Retrieval A picture manual to help stimulate aphasic individuals in automatic speech tasks Children with Facial Differences A Parents' Guide The first comprehensive book to provide parents with up-to-date information and support View Price Typical Access Profile Auditory Normal Low Extremely Low Not Using Hearing Hyper-Acute Vision Normal Low Extremely Low Not Using Vision Gross Motor All Some Few Not Using Gross Motor Fine Motor All Some Few Not Using Fine Motor Developmental Age Range 13 and Over Language Typical Some Spoken Receptive Only Sign Assistive/Augmentitive Not Using Language Member Services New to Dragonfly?

91. Network / Le Réseau - Winter 2003, Volume 5/6, Number 4/1 When a baby is born with a facial difference, or when a facial Clients inthe focus groups suggested facial difference as a term that is more http://www.cwhn.ca/network-reseau/6-1/6-1pg4.html

Text Index What's Hot Databases Network ... Main Page Winter 2003, Volume 5/6, Number 4/1 Inside this edition of Network Feature Articles Reclaiming Menopause "Miracle Pills" for Disease Prevention an Alarming Trend, Researcher Finds Invisible Advertising Building Bridges Across Difference and Disability ... Hot Dates in Women's Health Building Bridges Across Difference and Disability by Julia Allen When an Ontario body image project set out to explore self-concepts with women who have facial and physical differences, they were not sure what they would find. They did not expect, however, that the women’s treatment by their care providers would be one of the most prominent themes to emerge from their discussions. As a result, the project that began as the Disabilities and Physical Differences Initiative of the Body Image Project, corun by Sunnybrook and Women’s College Health Sciences Centre and AboutFace International, became Building Bridges Across Difference and Disability , a new booklet designed to help care providers treat clients with facial and physical differences. Anna Pileggi, Executive Director of AboutFace International, a support organization for people with facial differences and disabilities, and one of the partners in the Body Image project, recalls that disempowerment by health care providers was one of the overwhelming concerns expressed in the focus groups held across Ontario. Women interviewed indicated that their health care providers had a tremendous impact on their self-concepts. Unfortunately, that impact was typically negative.

92. Procedures And Management: Contact A Family - For Families With Disabled Childre Let s Face It (for contact details see facial Difference) Let s Face It has builtup an extensive resource of information for people for whom automobile http://www.cafamily.org.uk/procedures.html

printer friendly The Contact a Family Directory - Procedures and Management home how we can help medical information index of conditions ... how you can help In the course of the management of many of the disorders described in the Contact a Family Directory of Specific Conditions, Rare Disorders and UK Family Support Groups, various procedures and management programmes are used. For some of these there are organisations which can provide further information. A range of useful addresses can be found in the Helpful Organisations entry. Contact a Family publishes a factsheet Aids, Equipment and Adaptations which gives extensive information about a wide range of services and suppliers useful for families of disabled children and adults. Access to full range of Contact a Family factsheets, Guides for Parents, Reports, Newsletter and Group Action pack can be found at Web: http://www.cafamily.org.uk/publications.html . Access and subscription for Contact a Family's eNewsletters can be found at Web: http://www.cafamily.org.uk/whatsnew.html Artificial feeding Many individuals and families have to use artificial nutrition therapy (enteral or parenteral). Parenteral Nutrition is nutrition delivered directly into a main vein near to the heart. Enteral Nutrition refers to nutrition delivered via tubes into the digestive system. Tubes can inserted down the nose into the stomach (Naso-gastric feeding) or directly into the stomach (Gastrostomy) or small bowel (Jejunostomy; this is also called a Percutaneous Endoscopic Jejunostomy: PEJ).

93. Children With Facial Difference: A Parent's Guide The book, Children with facial Difference A Parents Guide , is intended toaddress these information needs by discussing various craniofacial anomalies, http://www.isong.org/education/reviews/children.html

Children with Facial Difference: A Parents' Guide By: Hope Charkins, MSW. Reviewed by Julia F. Houfek Families caring for children with cranio-facial anomalies have informational needs about their child's condition and care that is not easily obtainable or user-friendly. The book, Children with Facial Difference: A Parents' Guide , is intended to address these information needs by discussing various cranio-facial anomalies, their treatment, and strategies to promote positive coping. The author, a medical social worker and parent of a child with Treacher Collins Syndrome, has written a sensitive book filled with practical advice for parents as they navigate the medical system and larger social systems in light of their child's special needs and differences. A distinguished advisory committee assisted with editing. The first chapter describes the manifestations of common conditions, such as cleft lip and palate, as well as less common disorders, such as various multiple suture craniostenoses, hemifacial microsomia, and Treacher Collins Syndrome. The causes of these disorders, both genetic and environmental are explained comprehensively in nontechnical language. The chapter offers anticipatory guidance in working with an interdisciplinary treatment teach and the need for an early and comprehensive evaluation of the child's condition. The chapter and others could be strengthened by including captions for the pictures that illustrate the text. Subsequent chapters address the following aspects of care:

94. BBC - Radio 4 - Woman's Hour -Facial Disfigurement It s estimated that 1 in every 100 children has some form of facial difference . facial disfigurement, 05 May 2005 http://www.bbc.co.uk/radio4/womanshour/2005_18_thu_04.shtml

@import url('/includes/tbenh.css') ; @import url(/radio4/womanshour/secondary.css); Home TV Radio Talk ... A-Z Index 9 September 2005 Text only BBC Homepage BBC Radio Listen online to Radio 4 Listen Live Woman's Hour home Listen Again ... Help Like this page? Send it to a friend! Facial disfigurement 05 May 2005 Listen to this item It's estimated that 1 in every 100 children has some form of facial difference A large variety of different conditions affect facial appearance. Birth marks, cleft lips or palates, are congenital, but other facial differences will be the result of crano-facial conditions, injury or trauma. Changing Faces The BBC is not responsible for the content of external websites. Recent items about Health Rheumatoid arthritis Infant Mortality Hormones: Oestrogen More items in the Health Archive listen to the latest Woman's Hour listen again to previous programmes Clothes Why do we become so emotionally attached to clothes? Send your views Zadie Smith Talks about her new book On Beauty Best of the Best Celebrating women's fiction Arts Family + Relationships Fashion + Beauty ... Work

95. Reading List Resources for People With facial Difference (annual publication). Reprints.April 1993 search of medical literature pertaining to the psychosocial aspects http://www.nffr.org/FamilySupportReadingList.htm

Children's Reading List Books for Parents Children's Reading List A Hospital Story: An Open Family Book for Parents and Children Together A Visit to the Sesame Street Hospital By Deborah Hautzig (Random House, 1985) At the Hospital By Amy Moses (Child's World, 1997) Chris Gets Ear Tubes By Betty Pace (Gallaudet University Press, 1995) Curious George Goes to the Hospital By Anne Civardi (EDC Publishing, 1994) Back to Top Funny Face By Debbie Breslow http://members.aol.com/djbreslow/funnyface/index.html funnyfacestory@aol.com. Let's Talk About Going to the Hospital By Marianne Johnson (Powerkids Press, 1998) The Hospital Scares Me By Paula Z. Hogan (Raintree Children's Books, 1980) Tubes in My Ears: My Trip to the Hospital By Virginia Dooley (Mondo Publishing, 1996) When Molly was in the Hospital: A Book for Brothers and Sisters of Hospitalized Children By Debbie Duncan (Rave Productions, 1994) Why am I Going to the Hospital? By Claire Ciliotta and Carole Livingston (Lyle Stuart Inc., 1981) Back to Top Books for Parents Abbott, Marcia. My Face . Piedmont , CA : Marcia Abbott ( 59 Sylvan Way , 94610). Marcia wrote this book about and for her daughter, Natalie. Natalie has Moebius syndrome.

96. Let S Face It Their large umberella encompasses many other groups whose aim is to support peoplewith a facial difference. They offer these resources to people who http://www.timewarp.demon.co.uk/letsface.html

Let's Face It Let's Face It is a support network for children and adults who have a different face. It was founded in 1984 by Christine Piff who remains the director. In 1977 Christine had a cancerous tumour in her left cheek. The treatment she underwent was a six week course of radiotherapy combined with chemotherapy. The tumour was resistant to both treatments and she had to undergo surgery which resulted in the loss of half her palate, her upper teeth and, a few months later after another tumour presented itself, her left eye. During this traumatic period, Christine felt that there was no one there for her who had experienced anything like it. She was made to feel unique and totally isolated and on her own. Seven years later she had the opportunity to appear on television and there launched Let's Face It. She didn't realise what would happen but, fourteen years later, Let's Face It is an international registered charity working throughout the UK and advising and helping set up similar groups all over the world. The aims of the network are to offer a hand of friendship on a one to one basis.

97. EnableLink: Article: Sticks And Stones - Parenting A Child With A Facial Differe For a child with a significant facial difference, often the torment they endure from A support and information network concerned with facial difference. http://enablelink.org/include/article.php?pid=&cid=&subid=&aid=1078

98. Langeloth Foundation ---- Welcome facial Difference Beyond The Medical Issues For the support of a psychosocialsymposium and for the creation and dissemination of postsymposium booklets. http://www.langeloth.org/grants_more.php?id=317

99. Eyeglass Each participant types A to D has a different facial shape, therefore, theframe which is considered to be frame 1 varies among participants. http://www.dh.aist.go.jp/research/awaseru/eyeglass/index.html.en

Well Fitting Eyeglass Frames for Japanese Faces Japanese Page In a collaboration study with the Charmant Group/ Horikawa Inc. , the Digital Human Research Center analyzed the variations of the 3-D face shapes of 56 Japanese adult males in order to improve the morphological fit of eyeglass frames. As a result, it was found that the existing method of size classification for eyeglass frames did not conform to the actual individual facial differences. Horikawa Inc. classified faces into four types and designed new eyeglass frames accordingly. In addition to a 3-D morphological fit, this new frame offers a level of comfort which has never been experienced before. The new fit feels as if it is wrapping around the back of one's ears, not like the tight feeling a person gets on the sides of the face with existing frames. This frame has been sold by Charmant Group/ Charmant Inc. as the "Co-Co-Chi" brand and has been targeted for seniors since July, 2001. Research Background Traditional eyeglass frames were designed using face dimensions. Size classifications were also based on face dimensions. In addition, final custom fitting of eyeglass frames onto individual faces was done by retailers. For these reasons, while these eyeglasses were easily adjustable, most of them had a tendency to require re-adjustment at some point. Moreover, many complaints about discomfort around the ears and nose were received. Horikawa Inc. decided to develop a new frame that is more comfortable than traditional frames, and fits properly from the beginning with little adjusting needed.

100. Making Faces A support group for children of facial difference and their parents. Operation SmileA volunteer medical services organization providing nocost facial http://soundprint.org/radio/display_show/ID/222/name/Making Faces

Thursday September 8, 2005 Radio Weekly Update Meet the Host Program Calendar Program Archives ... Unsubscribe Shop Order a CD Shop Online Checkout Services Web Hosting Web Design Online Portfolio DAW Training Education Television Radio Making Faces Produced by: Cate Cochran Michael Williams-Stark gives comedy improv workshops to a special group of children. Like Michael, they're kids who have cleft palates, or no palates. They meet regularly, and through comedy and performing, they learn to stand up for themselves, to gain confidence and feel less alone. Producer Cate Cochran of the Canadian Broadcasting Corporation presents this program as part of our international documentary exchange series, Crossing Boundaries. Program Credits Making Faces was produced by Cate Cochran of the Canadian Broadcasting Corporation. It aired as part of the international exchange series, Crossing Boundaries. Resources Links: Smiles A support group for children of facial difference and their parents. Operation Smile A volunteer medical services organization providing no-cost facial surgery to youth around the world. Let's Face It This non-profit organization creates a community of people with facial differences and their families.

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