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         Ehlers-danlos Syndrome:     more books (33)
  1. The Official Patient's Sourcebook on Ehlers-Danlos Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 1980
  2. Pregnancy and Childbirth in Ehlers-Danlos Syndrome by D. Merrid, 2000-07
  3. Hypermobility raises the risk for osteoporosis: patients may have comorbidities, suggesting that management would ideally be multidisciplinary.(Musculoskeletal ... An article from: Family Practice News by Denise Napoli, 2008-04-15
  4. Endoscopic view of a hypermobile tongue in the nasopharynx.(RHINOSCOPIC CLINIC): An article from: Ear, Nose and Throat Journal by Adam J. LeVay, Eiji Yanagisawa, 2006-09-01

41. HONselect - Ehlers-Danlos Syndrome
Disease, EhlersDanlos - Ehlers Danlos Disease - Ehlers Danlos Syndrome - Syndrome, Ehlers-Danlos. Français, Syndrome d Ehlers-Danlos
http://www.hon.ch/HONselect/RareDiseases/C14.907.934.240.html
List of rare diseases: English Deutsch
Language:
MeSH term:
Accepted terms:
English: Ehlers-Danlos Syndrome - Cutis Elastica
- Ehlers-Danlos Disease
- Disease, Ehlers-Danlos
- Ehlers Danlos Disease
- Ehlers Danlos Syndrome
- Syndrome, Ehlers-Danlos
Français: Syndrome d'Ehlers-Danlos - Cutis hyperelastica Deutsch: Ehlers-Danlos-Syndrom - Cutis hyperelastica - Fibrodysplasia elastica generalisata Español: Síndrome de Ehlers-Danlos - Cutis Elastica Português: Síndrome de Ehlers-Danlos - Cutis Elastica HONselect ressources Definition: Yes Articles: Yes Images: Yes News: No Conferences: No Clinical trials: No Web sites: English Yes Français No Deutsch No Español No Português No Home About us Site map Search ... Contact http://www.hon.ch/HONselect/RareDiseases/C14.907.934.240.html Last modified: Wed May 18 2005

42. Ehlers-Danlos Syndrome - Cutis Elastica - Information Page With HONselect
A heterogeneous group of inherited A HREF= /cgibin/HONselect?browse+C17.300.20
http://www.hon.ch/HONselect/RareDiseases/EN/C14.907.934.240.html
InitBulle("navy","#F8F8F8","#000066",1); HONcode sites All Web sites HONselect News ... Images HONselect Search English French German Spanish Portuguese
the word the part of word in MeSH term in MeSH term and description Information on "Ehlers-Danlos Syndrome": Medical hierarchy and definition Research Articles Web resources Medical Images Medical News Medical Conferences Clinical Trials Hierarchy English French German Spanish Portuguese
Ehlers-Danlos Syndrome Definition: A heterogeneous group of inherited COLLAGEN DISEASES . The most common manifestations of Ehlers-Danlos Syndrome are hyperextensible skin and joints, skin fragility and reduced wound healing capability.
Synonym(s): Cutis Elastica / Ehlers-Danlos Disease / Disease, Ehlers-Danlos / Ehlers Danlos Disease /
See also: Reticulin Cutis Laxa
See Related: Collagen Diseases
Browse
New search
Web resources for "Ehlers-Danlos Syndrome" English German = Site with HON description - = Site with a robot description info: enter the site: (click below) domain of the site: Ehlers-Danlos syndrome, classical type - Genetics Home Reference ghr.nlm.nih.gov HONcode - eMedicine - Ehlers-Danlos Syndrome : Article by G Bradley Schaefer, MD

43. Ehlers-danlos
Welcome to the ehlersdanlos syndrome UK Support Group. ehlers-danlos syndrome (EDS) is the name given to a group of heritable connective tissue disorders.
http://www.atv.ndirect.co.uk/
Ehlers-Danlos Support Group
Support for the New Millennium
Welcome to the Ehlers-Danlos Syndrome UK Support Group
Ehlers-Danlos Syndrome (EDS) is the name given to a group of heritable connective tissue disorders. EDS can affect the skin, ligaments, and internal organs.
New Site NOW COMPLETE! CLICK HERE Or paste HTTP://www.ehlers-danlos.org into your browser

44. Ehlers-Danlos Syndrome
ehlersdanlos syndrome Living a Restricted Life with ehlers-danlos syndrome. International Journal of Nursing Studies 37 (2000) 111-118.
http://www.healthatoz.com/healthatoz/Atoz/ency/ehlers-danlos_syndrome.jsp

45. Ehlers Danlos Syndrome
ehlersdanlos syndrome (EDS) is a group of hereditary connective tissue disorders characterized by defects of the major structural protein in the body
http://hw.healthdialog.com/kbase/nord/nord240.htm
document.write(''); var hwPrint=1; var hwDocHWID="nord240"; var hwDocTitle="Ehlers Danlos Syndrome"; var hwRank="1"; var hwSectionHWID="nord240"; var hwSectionTitle=""; var hwSource="us6.0"; var hwProdCfgSerNo="wsh_html_003_s"; var hwDocType="NORD";
National Organization for Rare Disorders, Inc.
Ehlers Danlos Syndrome
Important
It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Synonyms
  • E-D Syndrome EDS
Disorder Subdivisions
  • EDS Gravis Type (Type 1) Ehlers-Danlos Syndrome Type II EDS Mitis Type (Type II) Ehlers-Danlos Syndrome Type III Benign Hypermobility Syndrome (Type III) Ehlers-Danlos Syndrome Type IV EDS Arterial-Ecchymotic Type (Type IV) Ehlers-Danlos Syndrome Type V Ehlers-Danlos Syndrome Type VI EDS Kyphoscoliotic Type (Type VI) EDS Ocular-Scoliotic Type (Type VI) Ehlers-Danlos Syndrome Type VII, Autosomal Dominant EDS Types VIIA and VIIB Arthrochalasis Multiplex Congenita (Type VII) Ehlers-Danlos Syndrome Type VII, Autosomal Recessive

46. EHLERS-DANLOS SYNDROME : Contact A Family - For Families With Disabled Children:
Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders.
http://www.cafamily.org.uk/Direct/e21.html
printer friendly EHLERS-DANLOS SYNDROME home how we can help medical information index of conditions ... how you can help Did you find this page
helpful?
yes no Ehlers-Danlos: Arthrochalasis-Multiplex Congenita; Cutis Hyperelastica; EDS Ehlers-Danlos syndrome consists of several types of genetic connective tissue disorders. In general, these are due to collagen (a naturally occurring protein) abnormality. Common characteristics include abnormalities of the skin, ligaments and, in some instances, internal organs. Problems include fragile andIor stretchy skin, bruising, poor wound healing and loose joints, which are prone to dislocation and subluxation (partial dislocation). Chronic joint and limb pain is common even when skeletal radiographs are normal. Early degenerative arthritis, mitral valve prolapse and hernias may also present problems. Prematurity due to rupture of the fetal membranes can occur in pregnancy. When bruising presents in a child it may be incorrectly attributed to non-accidental injury. These problems form the major difficulties bringing patients to the notice of Medical and Surgical Specialists. Many patients will be directed to Physiotherapy and Occupational Therapy for help with the musculoskeletal and ergonomic aspects.

47. Ehlers-Danlos Syndrome / Family Village
This club is for those who have ehlersdanlos syndrome, This is a family and we discuss ehlers danlos syndrome here, and all things related to EDS.
http://www.familyvillage.wisc.edu/lib_e-ds.htm
Ehlers-Danlos Syndrome
Who to Contact
Where to Go to Chat with Others

Learn More About It

Web Sites
...
Search Goole for "Ehlers-Danlos Syndrome"
Who to Contact
Ehlers-Danlos National Foundation (EDNF)
6399 Wilshire Boulevard, Suite 200
Los Angeles, CA 90048
323-651-3038 (phone)
323-651-1366 (fax)
E-mail: staff@ednf.org
Website: http://www.ednf.org/ This organization seeks to provide emotional support and updated information to those affected by Ehlers-Danlos syndrome and to their family members. In addition, EDNF serves as a vital information link to and from the medical community. It desires to inspire and support research in the field of connective tissue disorders specifically Ehlers-Danlos syndrome. The Foundation publishes a quarterly newsletter, Loose Connections, which provides current information on medical advances in EDS, as well as a means to share in the everyday experiences of living with EDS. In addition, a computerized database is maintained which allows interested members to communicate with one another. Local Branches and support groups are forming throughout the U.S. These local branches enable members to meet and network with others affected by EDS, thus decreasing the feeling of isolation so many of us know all so well. Learning conferences are held in various locations throughout the country in an effort to allow patients, family members and medical professionals the opportunity to share information about EDS.
Where to Go to Chat with Others

48. Ehlers-Danlos Syndrome: Are Genes The Only Cause?
Explores environmental factors, such as diet and exercise, in ehlersdanlos syndrome and related connective tissue disorders.
http://www.ctds.info/ehlers_danlos_syndrome.html

Con
nective Tissue Disorder Home Search Site Map ... Links
Ehlers-Danlos Syndrome:
Is Diet A Treatment?
Read my
Contents:
Environmental and Genetic Factors in EDS and Related Connective Tissue Disorders
W elcome to my site on health, logic and hereditary connective tissue disorders. I started the research for this web site after I was diagnosed with Ehlers-Danlos syndrome, a genetic disorder with no known cure. In researching Ehlers-Danlos syndrome and related disorders, I found that much of the hereditary connective tissue disorder research is based on the premise that the various disorders are each caused by single genes unrelated to each other and unrelated to environmental factors. After spending a lot of time researching Ehlers-Danlos syndrome, related disorders, and the field of genetics in general, I disagree with this premise. I found lots of links between EDS and environmental factors, especially nutrition. I used much of this research to improve my own condition and that of my children, and I think there is every reason to think that environmental factors may be considerations for others with Ehlers-Danlos syndrome and similar connective tissue disorders.

49. Ehlers-Danlos Syndrome: Diet Considerations
Personal account of diet changes found helpful for one family with ehlersdanlos syndrome. May also be helpful for related connective tissue disorders.
http://www.ctds.info/ehlers_danlos_diet.html

Con
nective Tissue Disorder Home Search Site Map ... Links
Ehlers-Danlos Syndrome
Diet Changes I Found Helpful
Diet tips that helped my fibromyalgia, breathing problems, allergies, bleeding and other EDS problems
Part I
Also see Ehlers-Danlos Syndrome Diet Changes - Part II Read my Contents: Overview - What My Basic Problems Have Been I've been working with a nutrition oriented doctors and a nutritionist this last year or so, and I must say I've learned more about what's really been wrong with me in the last couple of years than I did in the previous four decades of my life. I was helpful to finally get diagnosed with Ehlers-Danlos syndrome because it provided a rational link for all of my diverse symptoms, but the diagnosis itself didn't help me to improve my health since EDS is considered by most doctors to be an inherited genetic disorder with no known cure. Bit by bit, I've been assembling pieces of information about my health problems, researching nutrition and lately everything has been starting to all fit together and make sense.

50. Ehlers-Danlos Syndrome (www.whonamedit.com)
ehlersdanlos syndrome An inherited disorder of the elastic connective tissue characterised by hypereleasticity of the skin, hypermobility of the joints
http://www.whonamedit.com/synd.cfm/2017.html

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Ehlers-Danlos syndrome Also known as: Chernogubov's syndrome Danlos’ syndrome Meekeren-Ehlers-Danlos syndrome Sack’s syndrome Sack-Barabas syndrome Van Meekeren’s syndrome I Synonyms: Arthrocalasia multiplex congenita, cutis elastica syndrome, cutis hypereleastica, cutis hyperelastica dermatorrhexis, cutis laxa, dermatorrhexis with dermatochalasis and arthrochalasis, dystrophia mesodermalis, dystrophia mesodermalis congenita, cutis hyperelastic dermatorrhexis, elastic skin, fibrodysplasia elastica, fibrodysplasia elsatica generalisata, marfanoides Hypermobilitäts-Syndrom (German), mal de Meleda, rubber man, rubber skin. Associated persons: Andras P. Barabas

51. Ehlers-Danlos Syndrome (3)
ehlersdanlos syndrome (3). Loyola University Medical Center. ehlers-danlos syndrome, marked hyperextensibility of the shoulders.
http://www.meddean.luc.edu/lumen/MedEd/medicine/dermatology/melton/eds3.htm
Ehlers-Danlos syndrome (3)
Ehlers-Danlos syndrome, marked hyperextensibility of the shoulders.
non-frame version

Jason R. Swanson and Jeffrey L. Melton, M.D.
Last Updated: 1996-12-17 21:17:06
Created: 1996-12-09 22:44:09 Contact Us
Jason R. Swanson

Jeffrey L. Melton, M.D.
Dermatology
LUMEN
Clinical Research
Opportunities
About LUMEN Dermatology Search for Derm Images More Dermatology Sites Other Medical Sites Other Links Loyola University Medical Center Stritch School of Medicine Medical Center Departments LUMEN Home Loyola University Chicago

52. Ehlers-Danlos Syndrome (1)
ehlersdanlos syndrome (1). Loyola University Medical Center. Hyperextensibility of the MCP, PIP, and DIP joints seen in ehlers-danlos syndrome.
http://www.meddean.luc.edu/lumen/MedEd/medicine/dermatology/melton/eds1.htm
Ehlers-Danlos syndrome (1)
Hyperextensibility of the MCP, PIP, and DIP joints seen in Ehlers-Danlos Syndrome.
non-frame version

Jason R. Swanson and Jeffrey L. Melton, M.D.
Last Updated: 1996-12-09 20:35:33
Created: 1996-12-07 22:52:04 Contact Us
Jason R. Swanson

Jeffrey L. Melton, M.D.
Dermatology
LUMEN
Clinical Research
Opportunities
About LUMEN Dermatology Search for Derm Images More Dermatology Sites Other Medical Sites Other Links Loyola University Medical Center Stritch School of Medicine Medical Center Departments LUMEN Home Loyola University Chicago

53. Ehlers-Danlos Syndrome
Ehlers Danlos information, national and international support groups, clinics with genetic counselors and geneticists.
http://www.kumc.edu/gec/support/ehlers.html
Ehlers-Danlos syndrome
Ehlers-Danlos National Foundation (EDNF) 6399 Wilshire Boulevard, Suite 510
Los Angeles, CA 90048
Fax: (213) 651-1366
E-mail: loosejoint@aol.com
Web site: http://www.ednf.org/
Regional Support Groups

Canadian Ehlers-Danlos Association (CEDA)
183 Charlton Avenue
Thornhill, Ontario L4J 6E9 Canada
Phone: (905) 761-7552
Fax: (905) 761-7567
E-mail: ceda@rogers.com or pghand@shaw.wave.ca Web site: http://www.ehlersdanlos.ca/
Ehlers-Danlos Support Group , United Kingdom and Irish Republic Support Group P. O. Box 335 Farnham, England GU10 1XJ Phone UK: 01252 690 940 or World +44 1252 690 940 (UK Office Hours ONLY) Fax: 01252 404573 E-mail: director@ehlers-danlos.org Includes photos Australian EDS Support Group PO Box 106 Marulan NSW 2579 Phone / Fax 0011 61-2-4841 1111 E-mail: prairie@goulburn.net.au or EDSAussie@altavista.net Danish Ehlers-Danlos Society Eskildsvej 12 2990 Nivaa, Denmark Phone / Fax: 45 49 14 9632 E-mail: betina.boserup@image.dk

54. THE MERCK MANUAL--SECOND HOME EDITION, Ehlers-Danlos Syndrome In Ch. 279, Heredi
ehlersdanlos syndrome is a rare disorder of connective tissue that results ehlers-danlos syndrome is caused by an abnormality in one of the genes that
http://www.merck.com/mmhe/sec23/ch279/ch279b.html
var externalLinkWarning = "The link you have selected will take you to a site outside Merck and The Merck Manuals.*n*nThe Merck Manuals do not review or control the content of any non-Merck site. The Merck Manuals do not endorse and are not responsible for the accuracy, content, practices, or standards of any non-Merck sources."; Search The Second Home Edition , Online Version Search Index A B C D ... Z Sections Accidents and Injuries Blood Disorders Bone, Joint, and Muscle Disorders Brain, Spinal Cord, and Nerve Disorders ... Women's Health Issues Resources Anatomical Drawings Multimedia Pronunciations Weights and Measures ... , Online Version Section Children's Health Issues Chapter Hereditary Connective Tissue Disorders Topics Introduction Chondrodysplasias Cutis Laxa Ehlers-Danlos Syndrome Marfan Syndrome Mucopolysaccharidoses Osteogenesis Imperfecta Osteopetroses ... Pseudoxanthoma Elasticum Ehlers-Danlos Syndrome Buy The Book Print This Topic Email This Topic Pronunciations diverticula mucopolysaccharidoses osteopetroses Ehlers-Danlos syndrome is a rare disorder of connective tissue that results in unusually flexible joints, very elastic skin, and fragile tissues. Ehlers-Danlos syndrome is caused by an abnormality in one of the genes that controls the production of connective tissue. There are several variations (with widely varying severity), each affecting a different gene and producing slightly different changes. The result is abnormally fragile connective tissue, which causes problems in joints and bones and may weaken internal organs.

55. Ehlers-Danlos Syndrome - Cause - Diagnosis - Symptoms - Treatment
Information on the cause, diagnosis, symptoms and treatment of ehlersdanlos syndrome (EDS) a group of six genetic connective tissue disorders that affect
http://arthritis.about.com/od/ehlersdanlossyndrome/
zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a02' About Arthritis Types of Arthritis Ehlers-Danlos Syndrome Arthritis Essentials Arthritis Symptoms Is It Arthritis? ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb);
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Ehlers-Danlos Syndrome - Cause - Diagnosis - Symptoms - Treatment
Information on the cause, diagnosis, symptoms and treatment of Ehlers-Danlos Syndrome (EDS) a group of six genetic connective tissue disorders that affect the skin and joints. EDS is characterized by abnormalities in the chemical structure of the connective tissues, resulting in fragile skin, unstable and hypermobile joints and other problems.
Alphabetical
Recent Ehlers-Danlos syndrome Ehlers-Danos syndrome is a group of inherited disorders characterized by excessive looseness of the joints, hyperelastic skin that is fragile and bruises easily, and/or easily damaged blood vessels and it sometimes involves rupture of internal organs. Ehlers-Danlos syndrome (EDS) can occur in different forms, involving the vessels, skin and/or joints. Joint Hypermobility And Fibromyalgia It has been suggested that joint hypermobility may be associated with the pathology of fibromyalgia.

56. Ehlers-Danlos Syndrome
ehlersdanlos syndrome Updated May 5, 2005. ehlers-danlos syndrome (EDS) Arthritis Foundation; ehlers-danlos syndrome Ehlers-Danlos Support Group, UK
http://www.noah-health.org/en/skin/conditions/ehlers.html
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Skin and Skin Disorders Change text size: Ehlers-Danlos Syndrome
Updated: May 5, 2005
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57. Search Result For "Ehlers-Danlos Syndrome"
ehlersdanlos syndrome (EDS); ehlers-danlos syndrome; ehlers-danlos syndrome; Types of ehlers-danlos syndrome; What is ehlers-danlos syndrome?;
http://www.noah-health.org/search/results.php?lang=1&keyword=Ehlers-Danlos Syndr

58. GeneReviews: Ehlers-Danlos Syndrome, Kyphoscoliotic Form
Your browser does not support HTML frames so you must view ehlersdanlos syndrome, Kyphoscoliotic Form in a slightly less readable form.
http://www.geneclinics.org/profiles/eds6/
Your browser does not support HTML frames so you must view Ehlers-Danlos Syndrome, Kyphoscoliotic Form in a slightly less readable form. Please follow this link to do so.

59. AllRefer Health - Ehlers-Danlos Syndrome
ehlersdanlos syndrome information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs, tests, support groups,
http://health.allrefer.com/health/ehlers-danlos-syndrome-info.html

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Definition Ehlers-Danos syndrome is a group of inherited disorders characterized by excessive looseness (laxity) of the joints, hyperelastic skin that is fragile and bruises easily, and/or easily damaged blood vessels. The syndrome sometimes involves rupture of internal organs. Ehlers-Danlos syndrome (EDS) can occur in different forms involving vessels, skin, and/or joints with a variety of different genetic defects as their cause. Different forms of EDS have different modes of inheritance. Family history is a risk factor in some cases.

60. DermAtlas: Online Dermatology Image Library Dermatology Image,Ehlers-Danlos Synd
Half of patients with ehlersdanlos syndrome can touch the tip of the nose with their tongue (Gorlin’s sign), compared with 10% of persons without the
http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=-903490152

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