1. Ehlers-danlos This site offers extensive information for patients and doctors, plus links. http://www.ehlers-danlos.org

Ehlers-Danlos Support Group Support for the New Millennium Welcome to the Ehlers-Danlos Syndrome UK Support Group Ehlers-Danlos Syndrome (EDS) is the name given to a group of heritable connective tissue disorders. EDS can affect the skin, ligaments, and internal organs. New Site NOW COMPLETE! CLICK HERE Or paste HTTP://www.ehlers-danlos.org into your browser

2. EMedicine - Ehlers-Danlos Syndrome : Article By Enrico Ceccolini, MD ehlersdanlos syndrome - ehlers-danlos syndrome (EDS) is the name given to a group of more than 10 different inherited disorders; all involve a genetic http://www.emedicine.com/derm/topic696.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Ehlers-Danlos Syndrome Last Updated: February 10, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: EDS, tenascin-X deficiency syndrome, lysyl hydroxylase deficiency syndrome, inherited connective tissue disorders, inherited connective-tissue disorders AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Enrico Ceccolini, MD , Consulting Staff, Department of Dermatology, University of Bologna, Italy Coauthor(s): Robert A Schwartz, MD, MPH , Professor and Head, Dermatology, Professor of Pathology, Pediatrics, Medicine, and Preventive Medicine and Community Health, UMDNJ-New Jersey Medical School Enrico Ceccolini, MD, is a member of the following medical societies: American Academy of Dermatology Editor(s): Takuo Tsuji, MD

3. NORD - National Organization For Rare Disorders, Inc. Information about EDS from the National Organization for Rare Disorders. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers Danlos

4. Oral Manifestations Of Ehlers-Danlos Syndrome EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail. http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html

Oral Manifestations of Ehlers-Danlos Syndrome Yves Létourneau, DMD • Rénald Pérusse, DMD, MD • Hélène Buithieu, DMD, MSD • Abstract Ehlers-Danlos syndrome is a rare hereditary disease of the connective tissue which can present oral manifestations. A brief history of the disease is presented along with the epidemiology and characteristics of the 8 main phenotypes of the syndrome. The article also describes the case of a 12-year-old patient presenting with hypermobility of the temporo-mandibular joint and capillary fragility, and highlights the precautions to take when treating patients with this syndrome. MeSH Key Words: case report; dental care for chronically ill; Ehlers-Danlos syndrome © J Can Dent Assoc 2001; 67:330-4 This article has been peer reviewed E hlers-Danlos syndrome (EDS) is a hereditary collagen disease presenting primarily as dermatological and joint disorders. The first description of the syndrome in the literature was of a young Spaniard who was able to stretch the skin overlying his right pectoral muscle over to the left angle of his mandible. In 1901, Ehlers described the condition as a hyperelasticity of the skin and a strong tendency to bruising. In 1908, Danlos introduced the idea that the condition represented a pseudo-tumour of a molluscoid or fibrous type. It was not until 1934 that Pommeau-Delille and Soussie described the condition as Ehlers-Danlos syndrome. Other evocative terms such as “elastic man” (or woman) or “India rubber man” have been used.

5. Ehlers-Danlos Syndrome (EDS) ehlersdanlos syndrome (EDS) What Is It? What Are the Symptoms? How Is It Diagnosed? Treatment Options Resources and Suggestions What Is It? http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

6. Ehlers Danlos National Foundation What is ehlersdanlos syndrome? Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as http://www.ednf.org/whatiseds.html

Join EDNF Member Login Username Password In the Spotlight Download Spring Loose Connections Join the EDNF for as little as $15 a Year Find Your Local Group State Zip City Choose Why become a member? Access to the secure member-only area with message boards, chat and email Receive Loose Connections, a quarterly newsletter Support research Learn more What is Ehlers-Danlos Syndrome? Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Ehlers–Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular(joint) hypermobility, skin extensibility and tissue fragility.There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms.Each type of EDS is a distinct disorder that "runs true"in a family. This means that an individual with Vascular Type EDS will not have a child with Classical Type EDS. Symptoms Clinical manifestations of EDS are most often joint and skin related and may include: Joints : joint hypermobility; loose/unstable joints which are prone to frequent dislocations and/or subluxations; joint pain; hyperextensible joints (they move beyond the joint's normal range); early onset of osteoarthritis.

7. Arthritis - UW Medicine - Department Of Orthopaedics And Sports Medicine A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department. http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01

Home Site Map Contact Us Links ... Arthritis The Arthritis Source Our articles (listed to the left) feature information about managing arthritis, medications for arthritis, more than 20 types of arthritic conditions, and more. All articles were written or edited by our medical faculty . Some of them were developed with help from the Arthritis Foundation If you have specific questions about arthritis, you might want to search our site by typing in your question. On our search page , you can also search for a doctor or surgeon. The Department of Orthopaedics and Sports Medicine The UW Medicine Bone and Joint Surgery Center and the UW Medicine Eastside Specialty Center offer subspecialized surgical care for arthritis patients. UW surgeons provide the most current approaches for patients with arthritis affecting: The hips and knees The shoulders and elbows The neck and back The wrists and hands ... The feet and ankles UW Rheumatoid Arthritis Service The UW Medicine Bone and Joint Surgery Center at UWMC-Roosevelt offers a specialty program for rheumatoid arthritis. The

8. Ehlers Danlos National Foundation Support research Learn more. Welcome to the EhlersDanlos National Foundation. Knowledge. Community. Change. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

9. Booklets2000 Please help us by taking these surveys and explain your experiences with Connective Tissue Disorders like ehlersdanlos syndrome, Marfan's Syndrome, Stickler Involved Syndrome, and Fibromyalgia. http://www.angelfire.com/il2/booklets2000/index.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire Free Games Share This Page Report Abuse Edit your Site ... Next WHO HAS IT? Connective Tissue Disorders do not appear to favor one set of genes over another. People from every age, gender, race, religion, and hemisphere are candidates. DOES IT EFFECT YOUR LIFE? Can people with C.T.D. still contribute? You bet they can! with Connective Tissue Disorder. LIFE DOES GO ON . . . Focusing on the pace – not on the hurdles – makes life more worthwhile. There are ways to improve your condition: "Quality of Life" can always be improved! Medical breakthroughs, personal support systems, new medications and treatments, – appear on the scene every day. Review advice from others who share your symptoms. Share your thoughts and experiences. Find a good doctor in your area. Take Survey

10. Ehlers Danlos National Foundation Visitor 418923 since June 26 2002. What is ehlersdanlos syndrome? http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. What Is EDS? ehlersdanlos syndrome (EDS) is a heterogeneous group of heritable disorders The main problem with having ehlers-danlos syndrome is that the person can http://www.ehlers-danlos.org/eds.htm

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12. Ehlers-Danlos Syndrome Support Group What is EDS? ehlersdanlos syndrome (EDS) is the name given to a group of heritable connective tissue disorders. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. MedlinePlus: Ehlers-Danlos Syndrome Overviews; ehlersdanlos syndrome (Mayo Foundation for Medical Education and Research) Information from the Medical Encyclopedia; ehlers-danlos syndrome http://www.nlm.nih.gov/medlineplus/ehlersdanlossyndrome.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Ehlers-Danlos Syndrome Contents of this page: From the NIH Overviews Diagnosis/Symptoms Treatment ... Information from the Medical Encyclopedia Search MEDLINE/PubMed for recent research articles on Ehlers-Danlos Syndrome You may also be interested in these MedlinePlus related pages: Connective Tissue Disorders Skin Conditions Bones, Joints and Muscles Genetics/Birth Defects From the National Institutes of Health Questions and Answers about Heritable Disorders of Connective Tissue (National Institute of Arthritis and Musculoskeletal and Skin Diseases) What Are Heritable Disorders of Connective Tissue? (National Institute of Arthritis and Musculoskeletal and Skin Diseases) Overviews Ehlers-Danlos Syndrome (Mayo Foundation for Medical Education and Research) Ehlers-Danlos Syndrome (EDS) (Arthritis Foundation) What Is Ehlers-Danlos Syndrome? (Ehlers-Danlos National Foundation) Diagnosis/Symptoms Ehlers-Danlos Syndrome: Symptoms (University of Washington, Dept. of Orthopaedics and Sports Medicine)

14. Ehlers-Danlos Local Group - Michiana (South Bend, Indiana) Support group for individuals and families from Michigan and Indiana who have ehlersdanlos syndrome (EDS), a genetic connective-tissue disorder. Meetings are held in South Bend, Indiana. http://smackdabdesign.com/mednf/

Home Schedule Maps Officers ... Wristbands! Welcome! Michiana EDNF is a branch of the Ehlers-Danlos National Foundation . We provide support for individuals and families from Michigan and Indiana with Ehlers-Danlos Syndrome. Ehlers-Danlos Syndrome is a group of genetic connective tissue disorders, characterized by joint hypermobility, skin extensibility, and tissue fragility. Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as the skin, muscles, ligaments, blood vessels, and internal organs. The fragile tissues and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein that acts as a "glue" in the body, adding strength and elasticity to connective tissue. For further information about EDS, you can find many articles and informative websites through the links page. Our branch is based in South Bend, Indiana, five miles south of the Michigan border. We have several meetings each year, which give us an opportunity to get to know others with EDS, and learn from each other about living with EDS. We also participate in events to educate our community about EDS, and we have fund-raisers to help support our local branch, as well as the EDNF as a whole. Children are always welcome at our meetings. Michiana EDNF Officers meet them!

15. The Hypermobility Syndrome Association - Hypermobility Syndrome HMSA serves people with Hypermobility Syndrome, EhlersDanlos, and related joint disorders with information, referrals, message boards, and much http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. MedlinePlus Medical Encyclopedia: Ehlers-Danlos Syndrome There is no specific cure for ehlersdanlos syndrome, so individual problems Affected parents should be aware of the type of ehlers-danlos syndrome they http://www.nlm.nih.gov/medlineplus/ency/article/001468.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Ehlers-Danlos syndrome Contents of this page: Definition Causes, incidence, and risk factors Symptoms Signs and tests ... Prevention Definition Ehlers-Danos syndrome is a group of inherited disorders characterized by excessive looseness (laxity) of the joints, hyperelastic skin that is fragile and bruises easily, and/or easily damaged blood vessels. The syndrome sometimes involves rupture of internal organs. There are six major types that are characterized by distinctive features. Causes, incidence, and risk factors Ehlers-Danlos syndrome (EDS) can occur in different forms involving blood vessels, skin, and/or joints with a variety of different genetic defects as their cause. A variety of genetic mutations cause abnormality in collagen. Collagen provides structure and strength to connective tissue in skin, bone, blood vessels, and internal organs. Different forms of EDS have different modes of inheritance. Family history is a risk factor in some cases. Incidence is 1 in 400,000 in the USA.

17. EDS Today Search Now Welcome to EDS Today. EDS Today is the newsletter for, by, and about people with ehlersdanlos syndrome. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Ehlers-Danlos Syndrome (EDS) ehlersdanlos syndrome (EDS). What Is It? What Are the Symptoms? ehlers-danlos syndrome (A-lerz-DAN-los SIN-drome) describes a group of hereditary http://www.arthritis.org/conditions/DiseaseCenter/eds.asp

Welcome! Log In Create Profile Search Arthritis.org Keyword advanced search Español Questions and Answers Assess Your Joint Health ... 51 Ways to Be Good to Your Joints If your question is not answered here, please contact one of our information specialists. Ehlers-Danlos Syndrome (EDS) What Is It? What Are the Symptoms? How Is It Diagnosed? Treatment Options ... Resources and Suggestions What Is It? Ehlers-Danlos Syndrome (A-lerz-DAN-los SIN-drome) describes a group of hereditary disorders which mainly affect the skin and joints, but may affect other organs. EDS affects the connective tissues the tissues that support various parts of the body such as skin, muscles, tendons and ligaments. In EDS, the fibrous protein collagen is faulty, causing the connective tissue to not be elastic or strong. What Are the Symptoms? There are 9 types of EDS and symptoms differ depending on the type of EDS. Type I and III have the following: Skin problems, include fragile skin that bruises or tears; soft skin, and slow-healing wounds. Joint problems, including loose, unstable joints; "double-jointed" or overextension of the joints; arthritis-like problems.

19. Questions And Answers About Heritable Disorders Of Connective Tissue ehlersdanlos syndromeThe problems present in ehlers-danlos syndrome (EDS), a group of approximately 10 disorders, include changes in the http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Hypermobility & Fibromyalgia Support Site Information about joint hypermobility (ehlersdanlos syndrome), fibromyalgia and chronic fatigue syndrome. http://anaiis.tripod.com/hmedfm/index.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Dukes of Hazzard Share This Page Report Abuse Edit your Site ... Get in Touch Welcome! This site is dedicated to providing information and support for people with both joint hypermobility (including Ehlers-Danlos and Benign Joint Hypermobility Syndromes, or any form of Hypermobility Syndrome) and Fibromyalgia or Chronic Fatigue Syndrome (aka Chronic Fatigue Immune Dysfunction Syndrome, or Myalgic Encephalopathy in the U.K. and Australia). It is the first of its kind and provides information on these conditions, and also links to many sites with much more detailed information. It's important to note that this is an amateur site, not an official local, national or international support or information group. Hopefully, however, small individual endeavours like this will pave the way for such official groups to emerge. In addition, the Hypermobility & Fibromyalgia Group (hm-ed-fm) is the only discussion/support group online for people with both of these conditions. All are welcome! Click on the "Support: Talk to Others" link in the navigation bar on the left to learn more about the mailing list, as well as the vibrant Webforum and Chat Room.

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