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         Down Syndrome:     more books (100)
  1. The source for down syndrome by Catherine E Chamberlain, 1999
  2. Down Syndrome: Guidelines for Practice in Health Education And.. by Sue Buckley, 2010-10-30
  3. What Does it Mean to Have Downs Syndrome? (What does it mean to have/be ...?) by Louise Spilsbury, 2003-05-08
  4. The Phenotypic Mapping of Down Syndrome and Other Aneuploid Conditions: Proceedings of the National Down Syndome Society Conference Held in New York (Progress ... Clinical and Biological Research, Vol 384) by National Down Syndrome Society (U. S.), 1993-10
  5. The Psychobiology of Down Syndrome (Issues in the Biology of Language and Cognition)
  6. Down's Syndrome: The Psychology of Mongolism by David Gibson, 1979-04-30
  7. Down's Syndrome: Mongolism and Its Management by Clemens Ernst Benda, 1969-06
  8. Protein Expression in Down Syndrome Brain (Journal of Neural Transmission Supplementum)
  9. Down Syndrome (Genes and Disease) by F. Fay Evans-martin, 2009-06
  10. Health issues among persons with down syndrome, Volume 39 (International Review of Research in Mental Retardation)
  11. Asperger Syndrome in Adolescence: Living With the Ups, the Downs and Things in Between
  12. Etiology and Pathogenesis of Down Syndrome
  13. Schooling Children With Down Syndrome: Toward an Understanding of Possibility (Special Education Series (New York, N.Y.).) by Christopher Kliewer, 1998-04-01
  14. Everything You Need to Know About Down Syndrome (Need to Know Library)

121. Down Syndrome Association Of Middle Tennessee
The down syndrome Association of Middle Tennessee is a nonprofit organizationof families whose mission is to down syndrome Assoc. of Middle Tennessee
syndroma woif
About US
Summer Programs ... Buddy Walk 2005 Our Mission The Down Syndrome Association of Middle Tennessee is a non-profit organization of families whose mission is to enhance the quality of life throughout the lifespan of individuals with Down syndrome by providing support, information and education to those individuals, their families and the communities that make up the Middle Tennessee region. DSAMT is a nonprofit organization supported by its members, friends and fund raising events. The DSAMT provides peer support, information, and education about Down syndrome to families in Middle Tennessee. DSAMT has become the leading resource for parents in Middle Tennessee for accurate and useable information on Down syndrome issues. DSAMT has been recognized nationally as a leading support organization. Down Syndrome Assoc. of Middle Tennessee

122. Down Syndrome
down syndrome. down syndrome Web Page Tidewater down syndrome Association UPSIDE! This document maintained by Robert J. Huskey Last updated on March 6,
Down Syndrome
Down Syndrome Web Page
Tidewater Down Syndrome Association


This document maintained by Robert J. Huskey Last updated on March 6, 2000.

Archives of DOWNSYN@LISTSERV.NODAK.EDU. down syndrome. Search the archives Post to the list Join or leave the list (or change settings)
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124. Communicating Partners: Articles On Down Syndrome
How parents can teach their children with down syndrome to talk and communicate effectively.
Communicating Partners Dr. James D. MacDonald's Website
Information on the Website
More Materials Available from Communicating Partners
Books and Pamphlets Videos Audio Tapes
About Training Workshops and Seminars July 22 - 24, 2005 National Conference on Autism Minneapolis, MN
Dr. MacDonald's new book: Communicating Partners: 30 Years of Building Responsive Relationships with Late-Talking Children
Articles On Down Syndrome
In over 25 years of work with families and children, the Down syndrome population has been of special interest to me. Our first parent programs, that built the ECO programs in the 1970s, began with exciting successes with preschoolers with Down syndrome. Within the last five years, I have followed up several of our children with Down syndrome, sadly to find that many of them had also become socially isolated and communicated a lot less than the knowledge they had. I was very concerned. Consequently, I now work with groups of parents of infants with Down syndrome in order to impress on them the absolute importance of strongly socializing these children and not expecting it will happen automatically.

Sign Language in down syndromeArticle that discusses whether using sign language in down syndrome interfereswith speech later?

126. Parent Advocates Down Syndrome
Emotional, social and educational support for individuals with down syndrome and their families. Events, activities, newsletter, bylaws, and contact information.
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2005 Alabama Buddy Walk Coming October 22! PADS has many exciting events coming your way! Check them on Events on the sidebar! var DomainName = ''; Powered by Connect/E-zekiel v.2.0

127. 21 Trisomy Fundacio Catalana Down Syndrome
Activities for families and professionals, forums, international down syndromemedical review, ebooks, links and directory.




New sponsors welcome

Services and Methodology
Make this Down Syndrome site your Home Page

Bookmark this page

The FCSD is a private non-profit organization, founded on March 30th, 1984, and declared of public interest on October 24th of that same year. It is number 61 in the Foundations Register of the Generalitat de Catalunya.
Down syndrome Fundació Catalana Síndrome de Down web site
DS International Medical Review on Down Syndrome Last updated number 2004 March FREE Subscription SUBSCRIBE online now! Add your own website!! Down Syndrome Resources Join us! Ongoing forums Online store Down Syndrome books, posters, art collection, videos Grow charts! Down syndrome medical centre Down Syndrome International Medical Review on Down Syndrome Free subscription! Subscribe now! New! Press section: digital media news items dealing with Down Syndrome PLEASE HELP!! We want this site to be maximally useful for everybody. If you have any

128. Down Syndrome: Prenatal Risk Assessment And Diagnosis - August 15, 2000 - Americ
All forms of prenatal testing for down syndrome must be voluntary. Estimated riskof down syndrome according to maternal age. Data from reference 8.

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Journals Vol. 62/No. 4 (August 15, 2000)
Down Syndrome: Prenatal Risk Assessment and Diagnosis
State University of New York at Buffalo, Buffalo, New York
A patient information handout on Down syndrome, written by the author of this article, is provided on page 837. Down syndrome (trisomy 21) is the most commonly recognized genetic cause of mental retardation. The risk of trisomy 21 is directly related to maternal age. All forms of prenatal testing for Down syndrome must be voluntary. A nondirective approach should be used when presenting patients with options for prenatal screening and diagnostic testing. Patients who will be 35 years or older on their due date should be offered chorionic villus sampling or second-trimester amniocentesis. Women younger than 35 years should be offered maternal serum screening at 16 to 18 weeks of gestation. The maternal serum markers used to screen for trisomy 21 are alpha-fetoprotein, unconjugated estriol and human chorionic gonadotropin. The use of ultrasound to estimate gestational age improves the sensitivity and specificity of maternal serum screening. (Am Fam Physician 2000;62:825-32,837-8.) See editorial
on page 738.

129. National Down Syndrome Cytogenetic Register
It is now probably the largest single dataset on down syndrome and provides an Maternal age is the only wellrecognised association of down syndrome.
Click here for website news
National Down Syndrome Cytogenetic Register
(Wolfson Institute of Preventive Medicine)
National Down Syndrome Cytogenetic Register
Wolfson Institute of Preventive Medicine
Barts and the London School of Medicine and Dentistry
Charterhouse Square
London EC1M 6BQ Phone: +44 (0)20 7882 6220
Fax: +44 (0)20 7882 6221
Summary Annual Report 2003 (published December 2004) Supplementary Report 2005 (published June 2005) NDSCR team ... Glossary of terms Summary The NDSCR has accumulated over 17,000 anonymous records since the Register started in January 1989. It is now probably the largest single dataset on Down syndrome and provides an opportunity to search for possible causal factors. It also enables the study of the response of parents and clinical services to the new technologies of screening and diagnosis. Please see Annual Report (2003) for details. Maternal age is the only well-recognised association of Down syndrome. Mothers below 25 have an average risk of a DS pregnancy of about 1:1600 rising to about 1:340 at 35 and 1:40 at age 43. The data we have suggests that the risk of an affected birth does not increase above this age. Prenatal screening and diagnosis have expanded dramatically in the life of the Register. Despite this expansion, in 1999 44% of all diagnoses were at birth. Prenatal diagnosis depends on an invasive test to obtain fetal cells. Because this entails a risk of fetal loss, of 1 to 2%, it is only offered to mothers with a greater risk of having an affected child. The estimation of this risk, previously limited to high maternal age, is now much more precise with the addition of specific ultrasound and/or maternal serum findings.

130. Down Syndrome - Healthy Kids And Pediatrics - Health And Medical Information Pro
A complete listing of health information about kids and teens, including acne,AIDS awareness, allergies and asthma, attention deficit disorders and
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Down Syndrome
What is Down syndrome?
Down syndrome is a relatively common birth defect caused by the presence of an extra chromosome number 21 (three instead of two number 21 chromosomes, or, trisomy 21). This chromosome abnormality adversely affects both the physical and intellectual development of the individual. What are some of the features of Down syndrome?
Down syndrome causes mental retardation, a characteristic facial appearance, and multiple malformations. It is associated with a major risk for heart malformations, a lesser risk of duodenal atresia (part of the small intestines is not developed), and a small but still significant risk of acute leukemia What is the nature of the chromosome abnormality?

131. A Parents Resource
Information about down syndrome, and a collection of parents stories.
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132. NICHCY- General Info About Down Syndrome
General information about down syndrome including definition, incidence,characteristics, educational implications, and a list of resources and
General Information about Down Syndrome
Fact Sheet Number 4 (FS4), 1997
National Information Center
for Children and Youth with Disabilities
Definition of Down Syndrome


Educational and Employment Implications
Learning and Other Disabilities
Related Articles
General Information about Severe and/or Multiple Disabilities
A Guide to Children's Literature and Disability
Definition of Down Syndrome
Down syndrome is the most common and readily identifiable chromosomal condition associated with mental retardation. It is caused by a chromosomal abnormality: for some unexplained reason, an accident in cell development results in 47 instead of the usual 46 chromosomes. This extra chromosome changes the orderly development of the body and brain. In most cases, the diagnosis of Down syndrome is made according to results from a chromosome test administered shortly after birth. Back to the Table of Contents
Approximately 4,000 children with Down syndrome are born in the U.S. each year, or about 1 in every 800 to 1,000 live births. Although parents of any age may have child with Down syndrome, the incidence is higher for women over 35. Most common forms of the syndrome do not usually occur more than once in a family.

133. Down S Syndrome Screening Procedures
There are two methods of initial screening for Down’s syndrome This isnecessary in cases such as down syndrome to obtain a definite diagnosis.
Home What is Down's Syndrome? Screening policy Objectives of Programme ... Glossary
Information for women Leaflets, support groups
and websites

Publications Policies and reports References Home What is Down's Syndrome? ... Glossary
Information for women Leaflets, support groups
and websites

Publications Policies and reports References Screening procedures Home What is Down's Syndrome? Screening policy Objectives of Programme ... Glossary
Information for women Leaflets, support groups
and websites

Publications Policies and reports References 1. serum screening, the most common method being biochemical;
2. ultrasound screening. Biochemical screening The most common combination used in the second trimester is alphafetoprotein (AFP) and free beta-human chorionic gonadotrophin (beta-hCG); a combination used less frequently is that of unconjugated eostriol (UE3) and Inhibin A. The National Screening Committee is awaiting the outcome of a feasibility study before fully recommending the use of Inhibin A. It is expected that this will report at the end of 2004. Ultrasound glossary entry An ultrasound image of a fetus showing the nuchal translucency Both biochemical and ultrasound screening methods can be combined to give a better detection rate. This is the suggested way forward for screening in England where sufficient resources have been identified.

134. Australian Breastfeeding Association - Breastfeeding A Baby With Down Syndrome
About one baby in every 850 is born with down syndrome. Much progress has beenmade in recent years and continues to be made in the care and education of
loc="../aba_files/" loc="../aba_files/" Home Breastfeeding Information / Breastfeeding a baby with Down Syndrome loc="../aba_files/" loc="../aba_files/" Breastfeeding a baby with Down Syndrome Benefits of Breastfeeding Breastfeeding Information If Your Baby is Hospitalised In Conclusion ... Down Syndrome Web Ring About one baby in every 850 is born with Down Syndrome. These babies have 47 chromosomes in each body cell, instead of the usual 46, but the exact reason why this occurs is not yet known. Fortunately, much progress has been made in recent years and continues to be made in the care and education of children with Down Syndrome. Breastfeeding can be an important step in the early care of these babies. "Breastfeeding helped with my bonding to James initially when my world was turned upside down by his arrival." The extent to which children are affected by Down Syndrome varies widely. These children achieve the milestones of child development, but more slowly than the average. You may be experiencing mixed emotions - this is very natural as you wonder what lies ahead for you and your baby. A branch of the Down Syndrome Association or your doctor will be able to provide you with information on access to Early Intervention Programmes in your state and will be able to put you in touch with other parents of children with Down Syndrome. Many people find this contact very supportive. "The best solution is to talk to other mums who have actually experienced your situation."

135. Down Syndrome Research Online Advocacy Group
Information on clinical, biomedical, and scientific research into down syndrome.
var pageName = ""; var code = " "; document.write(code); Home Research Progress Clinical Trials Additional DS News Research Funding ... Site Credit
Welcome to the Down Syndrome Research Online Advocacy Group
Bridging the Gap Between Parents and Down Syndrome Research The Down Syndrome Research Online Advocacy Group (DSResearch, Inc.) is a non- profit scientific and educational effort aimed at increasing public understanding and support for clinical and biomedical research into Down syndrome. The DSResearch Online Advocacy Group is an affiliate member of the National Down Syndrome Society. How Can You Help? Thank you for visiting our site!
The following addresses are spamtraps. Do not use them or you will be banned from hundreds of web sites Webmaster Editor Sales

136. MDS Home Page
A support group for parents of children with Mosaic down syndrome.

Kids First, MDS Second!
Welcome to this new website intended to assist new parents of children
with Mosaic Down Syndrome, wherever you may be in the world.
You are not on your own - we are all here to support each other through
both good and bad times, achievements and struggles! We hope you find the links useful and feel free to join the MDS UK /
MDS KIDS egroups, where you will be able to exchange e-mails with
other parents/ children in your situation.
Check out the links where you can send in articles, about your child,
personal stories, achievements, poetry, photo's or anything you would
like on the website. Please email them to or with the link you require. Are you able to help with an MDS research study by Virginia Commonwealth University - to find out more, click here First Ever MDSUK Get Together - On the weekend of the 31st October 2003, families gathered in Blackpool to attend the first ever MDSUK Get

137. Down Syndrome Liverpool
Providing support and information to people with down syndrome, their parents and carers in the Liverpool area with links to other sites. Includes an online newsletter.

138. Down Syndrome -
Learn the cause of this genetic condition. Read about the common medical anddevelopmental problems associated with Trisomy 21.
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139. Colorado Springs Down Syndrome Association
Information about the organization as well as the disease. Includes membership, events, a photo album, articles and links.
CSDSA is a non-profit organization formed in 1989. We are affiliated with the National Down Syndrome Society and The National Down Syndrome Congress. CSDSA is a volunteer group of families with children who have Down syndrome, as well as people interested in helping us in our endeavor to inform and remain updated on Down syndrome. We are a non-profit organization, established as a family interaction group. We come together to exchange ideas and stories. We all give a great deal, and we all get a great amount of information from each other in areas of child development, the future and the family. We also offer the following
  • Meetings feature speakers and discussion on a variety of topics related to Down syndrome.
  • Social gatherings are held throughout the year. We also have a "teen group" that organizes events throughout the year.
  • Upon request from the family, a CSDSA parent will visit in the home, in the hospital, or by telephone. We provide support and share experiences and information.
  • CSDSA publishes a newsletter, "Hand in Hand", filled with information on meetings, news, stories, medical updates and educational issues.
  • We provide "New Parent Packets" with up-to-date information on Down syndrome.

140. Down Syndrome Of Louisville About Us Activities Awards Buddy Ride
down syndrome of Louisville, Inc. 1939 Goldsmith Lane 208. Louisville, KY 40218.502458-6392. 1-888-458-DOWN. Hours of Operation. 900a.m.
Down Syndrome of Louisville
About Us



Buddy Ride

To learn more or request an information packet contact
Diana Merzweiler, Executive Director
Down Syndrome of Louisville, Inc. 1939 Goldsmith Lane #208 Louisville, KY 40218 1-888-458-DOWN Hours of Operation: 9:00a.m.-5:00 p.m. Monday-Friday and by appointment Please contact the webmaster with comments or questions about this site.

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