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         Down Syndrome:     more books (100)
  1. Including Children with Down's Syndrome in the Foundation Stage by Clare Beswick, 2009-04-26
  2. Down's Syndrome (Need to know) by Kristina Routh, 2005-03-04
  3. Down Syndrome: Advances in Medical Care (Advances in Membrane Fluidity Series) by Ira T. Lott, 1992-09
  4. He Has Up Syndrome Not Down Syndrome by Caroline Jean Brandt, 2004-11-30
  5. Living with Downs Syndrome by Jenny Bryan, 2006-02-23
  6. Taking Tamar: Adopting and Bringing Up a Child with Down Syndrome by Martha Lev-Zion, 2006-07-10
  7. Down's Syndrome: Children Growing Up by Janet Carr, 1995-11-24
  8. Down Syndrome, One Family's Journey: Beth Exceeds Expectations by Donald Bakely, 2002-03-01
  9. Let's Talk About It - My Friend has Down's Syndrome (Spanish Edition) by Jennifer Moore-Mallinos, 2008-09-19
  10. Down Syndrome (Heinemann First Library) by Angela Royston, 2005-09-15
  11. Coping with Down's Syndrome (Overcoming Common Problems) by Fiona Marshall, 2005-02-01
  12. Alzheimer's Disease, Down's Syndrome and Aging by F. Marott Sinex, 1982-06
  13. Alzheimer disease, Down Syndrome, and their relationship (Oxford Medical Publications)
  14. First years of a Down's syndrome child by Elizabeth Dunkman Riesz, 1978

101. Down Syndrome. ERIC Digest
Provides fulltext access to the ERIC Digest of this name.
http://www.ericdigests.org/pre-9211/down.htm
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ERIC Identifier:
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Manfredini, Dianne
Source: ERIC Clearinghouse on Handicapped and Gifted Children Reston VA.
Down Syndrome. ERIC Digest #457.
The term Down syndrome is taken from the name of the English physician, Dr. John Langdon Down, who is credited with first describing the condition in 1866. It was not until 1959 that the actual chromosomal abnormality associated with the syndrome was discovered. Dr. Jerome Lejuene found that individuals with Down syndrome possessed additional genetic material in their cells, usually an extra chromosome. Instead of having 46 chromosomes in each cell (22 pair of autosomes or non-sex chromosomes and one pair of sex chromosomes, xx in females, xy in males), individuals with Down syndrome most commonly have 47 chromosomes with the extra chromosome associated with the 21st pair. The term Trisomy 21 is therefore used to describe this configuration of three #21 chromosomes. About 95% of all individuals with Down syndrome have Trisomy 21.
WHAT ARE THE CHARACTERISTICS OF INDIVIDUALS WITH DOWN SYNDROME?

102. Disability Solutions: A Publication For Families And Others Interested In Down S
A resource for families and others interested in down syndrome.
http://www.disabilitysolutions.org/
Welcome to Disability Solutions' Website Disability Solutions is the quarterly publicaton of Creating Solutions, a project of The San Francisco Foundation Community Initiative Funds, a 501(c)(3) public charity, our fiscal sponsor. Please visit our Information page to learn more about fiscal sponsorship Editor' s Blog Entry
H urricane Relief for People with Disabilites and Their Familie s
What's New?
Along with the new web site design, check our latest edition: a Calendar of Ideas and Inspirations . Each month, beginning with August, we will share ideas, inspirations, and innovations based on a specific theme. For August, we chose the theme of getting your child ready for school. The calendar also includes our exhibits, writing deadlines, meetings, and presentations. If you are attending a conference where we are exhibiting, please stop by to say "hello." Article,reviews, and photo submissions are always welcome. The calendar feature makes it easier to participate. Another new addition is the Editor's Blog. We are searching for a way to create a true blog so you can add your comments as well. We hope to have this up and running with the comment feature during September. For now, send your comments to The Editor.

103. Down Syndrome Magazine
To Read More Articles and Essays from down syndrome Amongst Us magazine, pleasefeel free to subscribe by contacting downsyndrome@earthlink.net or
http://www.pirchei.co.il/specl_ed/down/

Previous Issues
Issue #12
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104. Down Syndrome Message Board - Archived 8/29/98-12/19/00
need friends w/down syndrome children in carroll county md lisa lewis Re Expectant Parent of child with down syndrome - mary jo 225804 9/01/00 (0)
http://www.healthboards.com/down-syndrome/

HealthBoards
Archive 1996-1999 Down Syndrome Message Board - Archived 8/29/98-12/19/00
Down Syndrome Message Board - Archived 8/29/98-12/19/00 You are viewing an archived message board.
Click here to view our new Down Syndrome Message Board
  • Re:emotional effects on parents Dori
  • anyone live in georgia, need school info karen
  • T18 baby left to die in UK hospital Neelu Berry
  • question about Downs molly
  • tonsilectomy Debbie
  • Calcium spot in heart - a marker for DS Nancy
  • Level II Ultrasound with 2 "soft indicators" of DS Karen
  • emotional effects of parents Marie
  • my friend needs help! mikki
  • netherland studies meagan davison
  • DOWN SYNDROM LYNN MERTENS
  • my angel nikky
  • Testosterone therapy and DS Sheri
  • high risk for downs syndrome Krissy
  • Any Downsyndrom teenagers looking for a Pen pal and Friend. Kelly Rogers
  • My friend is trusting Jesus.
  • 105. RSSI Of Charlotte, North Carolina
    A nonprofit organization that provides residential services and community support to individuals with developmental disabilities including mental retardation, down syndrome, cerebral palsy, and traumatic brain injuries.
    http://www.rssi.cncoffice.com/
    Residential Support Services Inc.
    RSS Inc.

    Our History

    Donations, Directions, Contacts

    Group Homes
    ...
    Favorite Links

    Residential Support Services Inc.: RSS Inc.
    Virtual Office of
    Welcome to Residential Support Services Web Site
    Serving People with Developmental Disabilities.

    Our Mission Statement
    Residential Support Services, Inc. is dedicated to providing high quality services and housing to individuals with developmental disabilities.We are committed to supporting the individual in his or her effort to: *Develop self-reliance *Exercise freedom of choice *Achieve personal fulfillment *Establish and maintain relationships *Participate in community life Residential Support Services believes in joining with others to utilize all resources effectively for the benefit of individuals we serve, our employees, and the community.

    106. EMedicine - Down Syndrome : Article By Harold Chen, MD, MS, FAAP, FACMG
    down syndrome In 1866, Down described clinical characteristics of the syndromethat now bears his name. In 1959, Lejeune and Jacobs et al independently
    http://www.emedicine.com/ped/topic615.htm
    (advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease
    Down Syndrome
    Last Updated: December 6, 2004 Rate this Article Email to a Colleague Synonyms and related keywords: Down's syndrome, mongolism, trisomy 21, mental retardation AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography
    Author: Harold Chen, MD, MS, FAAP, FACMG , Chief, Professor, Department of Pediatrics, Section of Perinatal Genetics, Louisiana State University Medical Center Harold Chen, MD, MS, FAAP, FACMG, is a member of the following medical societies: American Academy of Pediatrics American College of Medical Genetics American Medical Association American Society of Human Genetics , and Teratology Society Editor(s): James Bowman, MD , Senior Scholar of Maclean Center for Clinical Medical Ethics, Professor Emeritus, Department of Pathology, University of Chicago; Robert Konop, PharmD

    107. EMedicine Health - Down Syndrome Introduction
    Provides an introduction to the disease and its characteristics, symptoms and treatment.
    http://www.emedicinehealth.com/articles/50095-1.asp
    Search September 8, 2005 Registration Healthcare Professionals You are in: Brain and Nervous System
    Down Syndrome
    Down Syndrome Introduction
    Down syndrome was first described in 1866. The cause of Down syndrome (trisomy 21) was discovered in 1959. Down syndrome is relatively well known, with distinctive characteristics such as mental retardation, distinguishing facial features, and other traits. In the United States, Down syndrome occurs in 1 in 800 live births, and approximately 6000 children are born with Down syndrome each year. About 85% of infants with Down syndrome survive 1 year, and 50% of people with Down syndrome live longer than 50 years.
    Last updated: Aug 4, 2005 Sections Down Syndrome Introduction Characteristic Features of Down Syndrome Down Syndrome Treatment Screening for Down Syndrome For More Information ... Authors and Editors Dementia is not something that happens only to older people. Learn about causes and treatment options. Stress, fear, or worries can lead to severe anxiety, which can have a serious impact on your life. Do you need to seek help? Anxiety
    Asthma

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    We subscribe to the HONcode principles.

    108. Down Syndrome Finding Out Your Child Has Down Syndrome
    Information for parents about finding out their child has down syndrome from theAmerican Academy of Family Physicians.
    http://familydoctor.org/338.xml

    Advanced Search
    familydoctor.org Home For Parents Special Conditions in Children Down Syndrome: Finding Out Your Child Has It What is Down syndrome? How is Down syndrome diagnosed? What are the physical signs and birth defects of Down syndrome? Since I learned my baby has Down syndrome, I've been confused and upset. What can I do? ... If I've had one baby with Down syndrome, am I at greater risk of having another?
    Down Syndrome: Finding Out Your Child Has Down Syndrome
    Printer-friendly version Email this article
    What is Down syndrome?
    Down syndrome is a genetic disorder caused by an extra chromosome number 21. It's named after the doctor who discovered its cause. Return to top
    How is Down syndrome diagnosed?
    Tests can be done before birth to find out if a baby has Down syndrome. Tissue and fluid in the womb around the baby can be checked for the extra chromosome. After birth, if the baby has any of the physical signs or birth defects of Down syndrome, the baby's blood can be tested to check for the extra chromosome. Return to top
    What are the physical signs and birth defects of Down syndrome?

    109. Facts About Down Syndrome
    Most of the time, the occurrence of down syndrome is due to a random event For parents of a child with down syndrome due to translocation trisomy 21,
    http://www.nichd.nih.gov/publications/pubs/downsyndrome/down.htm
    Home Search Sitemap Contact ... Publications
    Facts About Down Syndrome
    Contents Down syndrome
    The Chromosomal Basis of Down syndrome

    The Occurrence of Down syndrome

    Prenatal Screening and Diagnostic Testing
    ...
    Additional Resources for Information on Down syndrome

    D own Syndrome Named after John Langdon Down, the first physician to identify the syndrome, Down syndrome is the most frequent genetic cause of mild to moderate mental retardation and associated medical problems and occurs in one out of 800 live births, in all races and economic groups. Down syndrome is a chromosomal disorder caused by an error in cell division that results in the presence of an additional third chromosome 21 or "trisomy 21." T he Chromosomal Basis of Down Syndrome To understand why Down syndrome occurs, the structure and function of the human chromosome must be understood. The human body is made of cells; all cells contain chromosomes, structures that transmit genetic information. Most cells of the human body contain 23 pairs of chromosomes, half of which are inherited from each parent. Only the human reproductive cells, the sperm cells in males and the ovum in females, have 23 individual chromosomes, not pairs. Scientists identify these chromosome pairs as the XX pair, present in females, and the XY pair, present in males, and number them 1 through 22.

    110. :: Lip Trainer Patakara ::
    Offers apparatus for sleep apnea, snoring, bad breath, atopic eczema, blocked nose, gum disease, face slimming and also effect on stroke, dementia, down syndrome, speech and swallowing disorder. Using in clinics.
    http://www.liptrainer.com
    Baby Liptrainer Bottle Liptrainer Quick Understand Recovering Process ... Testimonials Face is covered with some kind of muscles. It needs exercise just like our bodies. is a unique patented Myofunctional Therapy Device in the world which originated in year of 2000 in Japan. The natural health and beauty lost due to lack of facial muscles can be improved. And also by training 4 times a day for 3 minutes, it can rehabilitate synapse in brain and improve the IQ and behavior. How about you?
    • Are you worried by the Sore throat, Phlegm, Snoring, Sleep apnea (OSA), Bad breath, Blocked nose, Bleeding from gum(Periodontal), Mouth ulcer(Stomatitis), Temporomandibular disorders(TMD), Teeth grinding? Aren't you looking at this screen now with your mouth open? Having chronic disease asuch as Hypertesion, Diabetis, Rheumatism (arthritis), Headache in the morning, Stiff neck, Toilet in the night, Sleep disorders, Dry mouth and Sjogren's syndrome ?

    111. Nutritional Supplements For Down Syndrome
    down syndrome is a genetic disorder caused by the presence of a third 21st Dr. Turkel administered his formula to children with down syndrome for almost
    http://www.quackwatch.org/01QuackeryRelatedTopics/down.html
    Quackwatch Home Page
    Nutritional Supplements for Down Syndrome:
    A Highly Questionable Approach
    Len Leshin, M.D.
    Down syndrome is a genetic disorder caused by the presence of a third 21st chromosome. It occurs once in every 600 to 700 births, making it the most common genetic disorder. Its common features include poor muscle tone, short stature, a small nose with flat nasal bridge, small skin folds on the inner corner of the eyes (epicanthal folds), dry skin, immune-system suppression, developmental delays, speech difficulties, and mental retardation. Even before Down syndrome was found to be caused by a genetic abnormality, nutritional therapies were proposed, usually focusing on one or two items. Mixtures that included vitamins, hormones and enzymes were advocated in the 1960s by Haboud, a German physician [1]; however, other investigators found no beneficial effect [2]. At about the same time, Henry Turkel, MD, in the United States claimed that a mixture of 48 different ingredients could improve intelligence and the appearance of children with Down syndrome [3]. No double-blind study was ever performed with Turkel's formula. Dr. Turkel administered his formula to children with Down syndrome for almost 40 years; if there had been some benefit, we should have had such evidence by now. Yet no such group of children or adults have been identified to date. In the 1980s, Ruth Harrell, MD, and associates [4] reported that supplementary vitamins and minerals and thyroid hormone improved their IQ scores, and caused "physical changes toward normal" among children with various types of mental deficiency, with the best results in three children with Down syndrome. However, the study was neither controlled nor blinded, and seven different studies during the next decade showed no positive results from Harrell's mixture. Haps Caps, another mixture of vitamins, minerals and enzymes that hit the marketplace during the 1980s, is frequently given with thyroid hormone. No study of Haps Caps has been published.

    112. Down Syndrome Information
    A family site providing links and information on specific treatments and general therapies, with movies of their affected child.
    http://www.cdadc.com/ds/
    Match: any search words all search words MAIN INDEX DOWN SYNDROME INDEX OUR SITE MAP TO ALL OUR PAGES Linking with www.cdadc.com ... Computer Programming Tutorials and Tips OUR DOWN SYNDROME INFORMATION PAGES: Your choice: Fast Links to all our Down Syndrome Information Pages or Detailed Link Descriptions to our Down Syndrome Information Pages or Why not start with our important Introduction to our Down Syndrome Information on Increasing Intelligence, Lessening Mental Retardation, Improving Health and Abilities page OUR INTRODUCTION TO OUR DOWN SYNDROME INFORMATION ON INCREASING INTELLIGENCE, LESSENING MENTAL RETARDATION, IMPROVING HEALTH AND ABILITIES PAGES - Just Look at all this Down Syndrome information, as well as all these Down Syndrome treatments we Reviewed and or Used: Any Down Syndrome child nearly always has mental retardation. However, in the course of trying to help our own son, Jacob, we searched out a great deal of Down Syndrome information, facts and research - much of which we now share with you. We have also applied much of that information to improving the treatment of our son's intelligence, health and abilities. This first page is an introduction to that walk of discovery with our son. What worked, what didn't. Through other webpages of this website, many, many of the Down Syndrome facts, information, therapies, causes and treatments are expanded upon. We also provide a free Down Syndrome Chat Forum for the open exchange of all Down Syndrome information. THIS WEBSITE CONTAINS MANY PAGES:

    113. Wiley InterScience: Book Table Of Contents: Down Syndrome
    down syndrome Research Online Advocacy GroupThe down syndrome Online Advocacy Group (DSOAG) purpose is to increase supportfor clinical, biomedical, and scientific research into down syndrome.
    http://www3.interscience.wiley.com/cgi-bin/booktoc/104085683
    @import url(http://download.interscience.wiley.com/freeflow/css/wis.standards.css); Skip to Content If you are seeing this message, you may be experiencing temporary network problems. Please wait a few minutes and refresh the page. If the problem persists, you may wish to report it to your local Network Manager. It is also possible that your web browser is not configured or not able to display style sheets. In this case, although the visual presentation will be degraded, the site should continue to be functional. We recommend using the latest version of Microsoft or Mozilla web browser to help minimise these problems. Maintenance Message Home Medicine and Healthcare Public Health
    Book Collection: ISBNGroup: 9
    Down Syndrome
    Published Online: 21 Mar 2003 Editor(s): William I. Cohen, Lynn Nadel, Myra E. Madnick Print ISBN: Online ISBN:
    Frontmatter (p i-xvii)
    get_link("/summary/104085685/SUMMARY", "Summary"); get_pdf_link("/booktext/104085685/BOOKPDFSTART", "PDF", "85");
    Part I: Self-Determination
    Chapter 1:
    Understanding Self-Determination (p 1-15)
    Thomas Nerney
    get_link("/summary/104085686/SUMMARY", "Summary");

    114. 9th World Down Syndrome Congress August 22 - 26, 2006
    9th World down syndrome Congress. Congress, Conference, down syndrome,Vancouver, Canada, World, World Congress, Venue West
    http://www.wdsc2006.com/
    9th World Down Syndrome Congress August 22 - 26, 2006
    Important Dates
    Congress Secretariat
    • Venue West Conference Services Ltd.
      645 - 375 Water Street
      Vancouver, B.C. V6B 5C6
      Canada
      Tel: 1-604-681-5226
      Fax: 1-604-681-2503 congress@venuewest.com
    Home
    Welcome to the home page of the 9th World Down Syndrome Congress, being held in Vancouver, British Columbia, Canada, from August 22 - 26, 2006. At present, you will find details in regards to the City of Vancouver. Further information will be available shortly. Please visit the site often for updates and additional information. We look forward to your participation and to welcoming you to Vancouver. Hosting Organization Down Syndrome Research Foundation Under the auspices of Down Syndrome International
    • You are visitor number to this website as of September 08, 2005
    Back to top Venue West

    115. Special Needs Software - Geddes Productions
    Assists with language development for children with Autism, down syndrome and language delay.
    http://www.geddesproductions.com/
    Geddes Productions
    Educational Software For Children with Special Needs
    Products
    Support Downloads Online Store ... About us News:
    Our on-line store
    A tutorial
    Click here

    StoryMaker 2.5
    has been released!
    Major updates

    Click here
    We produce multi-media software for children with learning disabilities, with special needs such as Autism, Down Syndrome and other intellectual disabilities or with English as a second language.
    New Release StoryMaker 2.5
    has been released. Now runs in 1024x768 screen resolution and supports a wide range of video formats as well as mp3 audio for rewards. Click for more information.
    Having a child diagnosed with multiple special needs, we struggled to find appropriate Down Syndrome software or autism software. Failing to find what we sought, eight years ago we began writing our own software. This began a journey from which our company was born. Our software extends from basic language development tools such as learning the alphabet and developing sight vocabulary, through to tools for developing story reading and writing. This has been shown to be a primary pathway to developing spoken language for the child with special needs or the child with language delay. Children with special needs (such as Down syndrome and/or autism) often are stronger visually than orally. Thus their development in reading may be far in advance of their ability to communicate verbally. As a result, programs that develop their reading and writing skills can be the key to developing their spoken language.

    116. Down Syndrome Association Of Tulsa
    Includes meeting schedule, photos, related links, and discussion board.
    http://www.dsat.org/
    Caution!
    Visit Microsoft's Web site to obtain the newest version of Internet Explorer, or visit
    Visiting this web site without first upgrading your browser may result in unreliable behavior.
    DSAT Web Site

    Home

    Original DSAT Home Page

    2004 Calendar Pictures

    2003 Calendar Pictures
    ...
    Communication

    Vision/Objectives
    View

    E-Mail Directory
    DSACO Down Syndrome Association of Central Oklahoma Muskogee/Tahlequah Support Group INTERACTIVE Contact Us Discussion Group / Bulletin Board DSAT Links DSAT Links I am Sam Report of the Surgeon General Stevenson Reading Conference 2005 Buddy Walk Oct 3rd Buddy Walk Description Buddy Walk Sponsorship Buddy Walk Sponsor Info email form Sitemap Mark Your Calendar Now To Attend The 2005 Buddy Walk October 3rd. DSAT P.O. Box 54877 Tulsa, Oklahoma 74155 erin-adam@prodigy.net Web site of
    Down Syndrome Association of Tulsa
    Our DSAT kids cooling off this summer! The Down Syndrome Association of Tulsa (DSAT) is a non-profit organization that exists to enhance the lives of individuals with Down syndrome, their families and caregivers. This is accomplished by providing support, encouragement, current information, education, opportunities for socialization and by promoting community recognition of the inherent dignity of all people with developmental disabilities.
    Upcoming Events Listed August 6th: DSAT Drillers Night Out - Picnic at 6:00 PM. Game starts at 7:05 PM. All DSAT members will get a picnic ticket and game ticket. Pick up tickets outside the gate at the big DSAT table.

    117. Risk Factors For Down Syndrome-Population-Based Case-Control Study, NCBDDD, CDC
    Information on autism. Provided by the US Centers for Disease Control Prevention.
    http://www.cdc.gov/node.do/id/0900f3ec8003d9b9
    Home About CDC Press Room Funding ... Contact Us Search: Birth Defects Birth Defects Home Research Key Findings Risk Factors for Down Syndrome (Trisomy 21): Maternal Cigarette Smoking and Oral Contraceptive Use in a Population-Based Case-Control Study
    CDC and Emory University scientists examined maternal smoking and oral contraceptive use as possible risk factors for Down syndrome of maternal origin. This is the first epidemiologic study to categorize Down syndrome by parental origin and timing of the chromosome error before assessing possible risk factors.
    • Down syndrome, the most commonly identified cause of mental retardation, occurs in about 1 in 800 births. Despite many years of research to identify risk factors associated with Down syndrome, only one factor, advanced maternal age, has been well established.
      Previous studies of risk factors for Down syndrome have pooled all cases regardless of parental origin or timing of the chromosome error. With new DNA technology and chromosome 21-specific genetic markers, determining the parental origin of the chromosome error and the timing of that error during meiosis is possible. [Meiosis is the special process of cell division that creates egg and sperm cells so that each has half the number of chromosomes normally found in other cells in the body.]
      This is the first population-based epidemiologic study to categorize Down syndrome cases by the parental origin and the timing of the chromosome error to identify important environmental and maternal health-related risk factors.

    118. BUBL LINK: Down Syndrome
    Resource type article; down syndrome Health Issues Information about Down Includes articles, controversies in down syndrome, list of international
    http://bubl.ac.uk/link/d/downsyndrome.htm
    BUBL LINK Catalogue of Internet Resources Home Search Subject Menus Countries ... Z
    Down syndrome
    Titles Descriptions
  • Down Syndrome Down Syndrome: Characteristics and Etiology Down Syndrome: Health Issues Down's Syndrome Scotland ... Human Neurological Diseases
  • Comments: bubl@bubl.ac.uk
    Down Syndrome
    Includes FAQ on Down Syndrome and healthcare guidelines for individuals with Down Syndrome.
    Author: Finch, Tracey
    Subjects: down syndrome
    DeweyClass:
    Resource type: documents
    Down Syndrome: Characteristics and Etiology
    Illustrated article about general aspects of Down Syndrome, diagnosis, characteristics, and genetic causes.
    Author: Center for Biomedical Informatics, State University of Campinas, Brazil
    Subjects: down syndrome
    DeweyClass:
    Resource type: article
    Down Syndrome: Health Issues
    Information about Down Syndrome. Includes articles, controversies in Down Syndrome, list of international clinics and a bibliography.
    Author: Leshin, Len
    Subjects: down syndrome DeweyClass: Resource type: documents
    Down's Syndrome Scotland
    Organisation working to improve the quality of life for everyone with Down's syndrome in Scotland. Includes information about standard medical checks for Down's syndrome, and on living with Down's Syndrome. Also include the latest SDSA news. Author: Scottish Down's Syndrome Association Subjects: down syndrome DeweyClass: Resource type: documents
    Human Neurological Diseases
    Extensive searchable and browsable index of neurological diseases.

    119. InteliHealth: In Down Syndrome
    InteliHealth Featuring Harvard Medical School s consumer health information.For more than 550 diseases and conditions, learn What Is It?, Symptoms,
    http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/10332.html
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    Down Syndrome
  • What Is It? Symptoms Diagnosis Expected Duration ... Additional Info
  • What Is It? Symptoms In addition to the characteristic physical features and decreased mental abilities, other health problems frequently are seen in people with Down syndrome. These include:

    120. Epilepsy-Down Syndrome Foundation
    Research into the dual diagnoses of down syndrome and epilepsy. Emphasizes nutritional and nonmedical interventions.
    http://members.aol.com/dsepilepsy/org.htm
    Down Syndrome-Epilepsy Foundation
    A better vision The Down Syndrome-Epilepsy Foundation (DSEF) is a part of the non-profit Center for Natural Health Research and is devoted to looking into the best, natural, methods to help those who have both Down syndrome (trisomy 21) and various forms of epilepsy (including Lennox-Gastaut syndrome). These methods include clinical nutrition, real naturopathy, manipulative techniques, exercise, and other natural methods intended to improve the quality of life for those with Down syndrome, especially those who also suffer with seizures. The Down Syndrome-Epilepsy Foundation is directed up by Robert J. Thiel, Ph.D., N.H.D. . He is not a medical doctor. He possesses a doctorate (Ph.D.) in nutrition science and a doctorate in natural health (N.H.D.). Thiel believes that DSEF has a better vision for those with both disorders. Why? Because he believes that natural is better. Because he believes that many health professionals and therapists have expectations for the disabled that are too low. Because he believes combining nutrition, exercise, and parental motivation results in better outcomes. Because he believes that science and common-sense show that the combination of natural interventions is the most logical to pursue and because that combination gets results. Because he has met with many of the so-called experts and researchers in this field and found many of their approaches lacking. He does not believe that he, nor DSEF, have all the answers, but does believe that in many respects, DSEF is at the forefront for practical research to benefit those with both Down syndrome and epilepsy.

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