61. Sharing Down Syndrome Arizona Sharing down syndrome Arizona Inc. is a nonprofit parent organization whose goalis to enhance the quality of life of people with down syndrome. http://www.sharingds.org/

About Us Mission Statement Board Members History Our Programs ... Welcome Video [Dialup] Newsletters September 05 Read past Subscribe Connect Discussion Board Upcoming events Latest Topic "My daughter who is six has an adult tooth coming behind her baby teeth. They want to pull the two b..." Support Us Ways To Donate Donate Online New Parents New Parent Packet Articles Links Welcome to our site! Sharing Down Syndrome Arizona Inc. is a non-profit parent organization whose goal is to enhance the quality of life of people with Down syndrome. SDSA is a 501-(c)(3) non-profit organization run by parents in Arizona, and an Affiliate member of the National Down Syndrome Society and the National Down Syndrome Congress. Please contact us, we'd love to hear from you! 745 N. Gilbert Rd., #124 PMB 273 Gilbert, Arizona 85234 E-mail: gina sharingds.org Note from webmaster We apologize for the recent down time on our site. Unfortunately, our web host had a server go very, very bad and destroyed our entire site. Much of the data we lost has been restored, but some is not recoverable. If you signed up for the newsletter, requested a new parent packet, or registered/pledged for the Buddy Walk recently, the data has been lost and you will need to re-enter it.

62. Down Syndrome Association Of Greater Cincinnati The down syndrome Association of Greater Cincinnati provide information, resourcesand support to individuals with down syndrome, their families, http://www.dsagc.com/

About Us What is Down Syndrome Meet the Staff Board Members ... Planned Giving 4th Annual 2005 DSAGC Buddy Walk Saturday, September 17, 2005, 8:00am The DSAGC Buddy Walk presented by AK Steel will take place on Saturday, September 17th, 2005 at Newport on the Levee. Registration begins at 8am, Walk at 9am. Honorary Chairperson Dave Wagner, Primary Anchor WLWT News 5, and Mix 94.1, media sponsors; and Michael Flannery, Host of 9 on Your Side Kids and parent will be the Event Emcee. Click on Events for more information, or contact the DSAGC for a registration brochure OR a Team Leader Packet. Download the Buddy Walk brochure (PDF) View the 2004 photo gallery 25th Annual Meeting Buddy Walk Tshirt Pick Up ... Support The DSAGC DSAGC, 644 Linn Street Suite 408 Cincinnati OH 45203-1734 Phone: 513.761.5400 Fax: 513.761.5401 Questions concerning our site? Email our webmaster Hosting services provided by:

63. DSA Information Provides links to other support and information sites regarding down syndrome.Also contains information about down syndrome and relates parents personal http://www.dpa.org.sg/DSA/

Please click here to go to DSA's New Web Site Please click here to go to DSA's New Web Site

64. NACD :: The National Association For Child Development The National Academy for Child Development, Inc. is an international organization of parents and professionals dedicated to helping children and adults reach their full potential. The over 15,000 clients served by NACD have come to us with labels including Learning Disabled, Dyslexic, Distractible, ADD, ADHD, Hyperactive, down syndrome, Fetal Alcohol Syndrome, Williams Syndrome, Tourettes Syndrome, Rett Syndrome, Fragile X, Developmentally Delayed, PDD, Autistic, Cerebral Palsy, Brain Injured, Comatose, Retarded, Minimal Brain Dysfunction, Normal, Accelerated and Gifted. http://www.nacd.org

549 25th Street Ogden, Utah 84401-2422 USA Phone: (801) 621-8606 Fax: (801) 621-8389 Send us your comments You're using an outdated browser. To view this content in a seperate window, click here.

65. Indiana Down Syndrome Foundation Mission is to raise awareness for people with this disorder and to provide ameans of information and support. http://www.indianadsf.org/

Omega Design Studio, Inc. Omega Design Studio, Inc.

66. CNN.com - Health - Researchers Studying New Tests For Down Syndrome - May 31, 20 CNN http://cnn.com/2000/HEALTH/05/31/downs.test/index.html

children Editions myCNN Video ... Feedback CNN Sites CNN CNN Europe CNNfn CNNSI myCNN CNNfyi AllPolitics Languages Search CNN.com CNNSI.com CNNfn.com The Web HEALTH TOP STORIES New treatments hold out hope for breast cancer patients MORE TOP STORIES Thousands dead in India; quake toll rapidly rising Israelis, Palestinians make final push before Israeli election Davos protesters confront police MORE ... MORE MARKETS 4:30pm ET, 4/16 DJIA NAS SPORTS Jordan says farewell for the third time ... LOCAL EDITIONS: CNN.com Europe change default edition MULTIMEDIA: video video archive audio multimedia showcase ... more services E-MAIL: Subscribe to one of our news e-mail lists Enter your address: DISCUSSION: chat feedback CNN WEB SITES: CNNfyi.com CNN.com Europe AsiaNow Spanish ... Korean Headlines TIME INC. SITES: Go To ... Time.com People Money Fortune EW CNN NETWORKS: CNN anchors transcripts Turner distribution SITE INFO: help contents search ad info ... jobs WEB SERVICES: Researchers studying new tests for Down syndrome Screening could be done earlier, more accurately May 31, 2000 Web posted at: 1:17 p.m. EDT (1717 GMT) From Rhonda Rowland CNN Medical Correspondent ATLANTA (CNN) Researchers at New York Presbyterian Hospital and Columbia University are evaluating a new screening method for Down syndrome that could detect cases earlier and more accurately. The project is called FASTER (First And Second Trimester Evaluation of Risk).

67. ACDS - 4 Fern Place, Plainview, NY 11803 - Tel: (516) 933-4700 · Fax: (516) 933 ACDS is dedicated to providing lifetime resources of exceptional quality, innovationand inclusion for individuals with down syndrome and other http://www.acds.org/

Our Mission: ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families. Enjoy your visit to our website! www.acds.org Li1st.com

68. Sharing Down Syndrome Arizona Nonprofit, parentrun group provides information and resources on the syndrome, with a newsletter, events details, photos and articles. http://sharingds.org/

About Us Mission Statement Board Members History Our Programs ... Welcome Video [Dialup] Newsletters September 05 Read past Subscribe Connect Discussion Board Upcoming events Latest Topic "My daughter who is six has an adult tooth coming behind her baby teeth. They want to pull the two b..." Support Us Ways To Donate Donate Online New Parents New Parent Packet Articles Links Welcome to our site! Sharing Down Syndrome Arizona Inc. is a non-profit parent organization whose goal is to enhance the quality of life of people with Down syndrome. SDSA is a 501-(c)(3) non-profit organization run by parents in Arizona, and an Affiliate member of the National Down Syndrome Society and the National Down Syndrome Congress. Please contact us, we'd love to hear from you! 745 N. Gilbert Rd., #124 PMB 273 Gilbert, Arizona 85234 E-mail: gina sharingds.org Note from webmaster We apologize for the recent down time on our site. Unfortunately, our web host had a server go very, very bad and destroyed our entire site. Much of the data we lost has been restored, but some is not recoverable. If you signed up for the newsletter, requested a new parent packet, or registered/pledged for the Buddy Walk recently, the data has been lost and you will need to re-enter it.

69. IRSC - Cognitive Disabilities, Down Syndrome The Internet Resources for Special Children (IRSC) Global disABILITY resourceis dedicated to communicating information relating to the needs of children http://www.irsc.org:8080/irsc/irscmain.nsf/sub?readform&cat=Cognitive Disabiliti

70. Suj's Site Born with down syndrome, Sujeet is a musician, black belt in Tae Kwan Do, and a World Game special Olympian. Listen to his music and read his inspiring story. http://www.sujeet.com/

SUJ'S SITE Information on purchasing my CD My wedding proposal Note from my parents My mom's publications ... My brother's essay "Down syndrome" Hi, My name is Sujeet Desai Suj is my nickname. I am 24 years old. I have an older brother Ninad, who drives a cool car. He is cool! He is a three times Jr. US Olympic Gold medals winner in Tae Kwon Do and was super soccer goalie while in school ! He is a great piano player too! My pet is a west highland terrier dog named Angel . My brother and I have the best teeth in the world as we love our dentists very much and see them every so often! Both my parents are Dentist! On June 22, 2001 I graduated from Fayetteville-Manlius High school in Syracuse, New York with (4.3 GPA) honor roll. I was the first special education student inducted in the Oak Chapter of FM High school as a National Honor Society member. In May 2003 I graduated from the Berkshire Hills Music Academy in South Hadley, Massachusetts after two-year residential Post-secondary study in Music and Human services. Emerging from the academy with higher music skills and the successful experience of independent living on a college campus, I will continue to do solo performances and self-advocacy workshops. I have a job in Rome, NY working as self-advocate with OMRDD. I have been involved in Special Education and Special Olympics. My mom says I am her very special son. Oh! I forgot to tell you I was born with

71. National Down Syndrome Cytogenetic Register Information about an anonymous register allowing researchers to analyse possible causal factors. Includes interpretation of the results. http://www.mds.qmw.ac.uk/wolfson/ndscr/

Click here for website news National Down Syndrome Cytogenetic Register (Wolfson Institute of Preventive Medicine) National Down Syndrome Cytogenetic Register Wolfson Institute of Preventive Medicine Barts and the London School of Medicine and Dentistry Charterhouse Square London EC1M 6BQ Phone: +44 (0)20 7882 6220 Fax: +44 (0)20 7882 6221 Email: ndscr@qmul.ac.uk CONTENTS Summary Annual Report 2003 (published December 2004) Supplementary Report 2005 (published June 2005) NDSCR team ... Glossary of terms Summary The NDSCR has accumulated over 17,000 anonymous records since the Register started in January 1989. It is now probably the largest single dataset on Down syndrome and provides an opportunity to search for possible causal factors. It also enables the study of the response of parents and clinical services to the new technologies of screening and diagnosis. Please see Annual Report (2003) for details. Maternal age is the only well-recognised association of Down syndrome. Mothers below 25 have an average risk of a DS pregnancy of about 1:1600 rising to about 1:340 at 35 and 1:40 at age 43. The data we have suggests that the risk of an affected birth does not increase above this age. Prenatal screening and diagnosis have expanded dramatically in the life of the Register. Despite this expansion, in 1999 44% of all diagnoses were at birth. Prenatal diagnosis depends on an invasive test to obtain fetal cells. Because this entails a risk of fetal loss, of 1 to 2%, it is only offered to mothers with a greater risk of having an affected child. The estimation of this risk, previously limited to high maternal age, is now much more precise with the addition of specific ultrasound and/or maternal serum findings.

72. MDSC Hit Counter. MDSC PO Box 866 Melrose, MA 02176 1800-664-MDSC. Content Copyright ©Massachusetts down syndrome Congress, 1999, 2000,2001,2002 http://www.mdsc.org/default.htm

Massachusetts Down Syndrome Congress News and Information SAVE THE DATE!!..... (Note that the Buddy walk is in September this year!) Click Here or picture below for details or to Register Online Sponsored in part by Oldies 103 FM OCTOBER is Down Syndrome Awareness Month In recognition of Down Syndrome Awareness Month Woodbine House is offering all their titles on Down syndrome books at 20% off during September and October 2005 (phone and online orders). www.woodbinehouse.com Also this fall.. ANNUAL PICNIC Sunday, September 25, Noon-4pm Cochituate State Park, Rt. 30, Natick (Watch this space for more details coming soon) MDSC FUNDRAISER This November, Team MDSC takes on the Boston Bruins Alumni for a rematch! Click here to sponsor a player or to learn more Fourth Annual Samantha's Harvest Charity Golf Open Wednesday, September 14, 2005 Stow Acres Country Club, Stow Ma. http://www.samanthasharvest.org/ LEGISLATIVE PLATFORM CHOSEN: MDSC has chosen its 2005 legislative platform. These are bills in congress that we have chosen to support and for some bills, advocate for passage. For more information about the bills, click

73. Down Syndrome Information Network - Home Page Includes a online library of books and articles. http://www.down-syndrome.net/

our work needs your support donate today ... ... The Down Syndrome Educational Trust depends on the generosity of private individuals for continuing its work and developing its range of activities. If you can support this vital work, please click here Welcome to the Down Syndrome Information Network The Down Syndrome Information Network offers a range of information resources and online services to the international Down syndrome community. It aims to provide information and services for families, carers, professionals and researchers worldwide. This website has over 1,000 pages of information, equivalent to at least 6,000 printed pages. New content added November 2004 - The full text versions of all articles published in Down Syndrome Research and Practice Volume 7 and Volume 8 , and Down Syndrome News and Update Volume 2 are now available to view for free. These articles, originally published during 2001-2003, cover a wide range of topics including: developing reading, counting and short-term memory skills providing effective speech and language therapy and early intervention services for pre-school children motor skills development for children with Down syndrome principles, practice and outcomes of effective inclusion in mainstream schools

74. Down Syndrome down syndrome, Trisomy 12 national and international support groups, clinics withgenetic counselors and geneticists. http://www.kumc.edu/gec/support/down_syn.html

National Down Syndrome Society 666 Broadway, New York, NY 10012-2317 Phone: 800.221.4602 or 212.460.9330, Fax: 212.979.2873 E-mail: info@ndss.org Web site: http://www.ndss.org National Down Syndrome Congress 7000 Peachtree-Dunwoody Road, N.E., Lake Ridge 400 Office Park Building #5 - Suite 100 Atlanta, GA 30328-1655 Phone: 800.232.NDSC or 770.604.9500 E-Mail: NDSCcenter@aol.com Down Syndrome Research Foundation 3580 Slocan Street, Vancouver, BC, Canada V5M 3E8 Phone: 604.431.9694 or 1.888.464.DSRF (British Columbia only), Fax: 604.431.9248 E-mail: dsrf@sfu.ca Web page: http://www.dsrf.org (Spanish, French, and Korean materials available Fall 1998) Links and Resources by Subject / Topic Babies with Down Syndrome - for parents whose baby has been recently diagnosed with Down Syndrome or patients continuing affected pregnancies, information and links to sources of support Welcoming Babies with Down Syndrome , English Bienvenidos Bebes con Sindrome de Down ,Spanish Accueillir les bébé trisomiques , French Also available in Chinese Swedish (Swedish Down Syndrome web site) Dr. Trumble's "

75. International Mosaic Down Syndrome Association A non profit organization to help and support parents around the world in researchand meeting new people. Includes research, education and contact details. http://www.imdsa.com/

Welcome to the International Mosaic Down Syndrome Associations website. We hope that by finding us, you'll be able to contact other families, and join our circle of friends and support. Also be sure to visit http://www.mosaicdownsyndrome.com for many personal stories and medical information. Join our Yahoo MDS Support Group IMDSA's 2nd Annual MDS Awareness Convention If you are interested in purchasing a DVD please go to: www.zenworksproductions.com/products_imdsa.htm You can download the order form there as well. If you prefer to purchase these through the telephone you can call Steve Janak of ZenWorks Productions at (805) 653-1728 If you live outside of the United States and wish to purchase these DVD's Just contact Steve Janak at stevejanak@zenworksproductions.com and tell him what country you live in and what set up you have for DVD. If you did not attend this conference, this is the next best thing to being there! The DVD's are done very professionally and you will be able to see the power point as well as the speaker at the same time! Each speaker was extremely informative and each topic complimented the next! You will learn so much from each of these professionals and will have a better understanding on how to raise your child with MDS! We would like to thank the following exhibitors for attending our conference. Please visit their

76.  Penang Down Syndrome Association Support and encouragement for parents and families of children with down syndrome. With information,links and photographs, in English and Malay. http://www.dsapenang.org

Penang Down Syndrome Association (Malaysia) In December 1998 parents of children with Down Syndrome met and decided, with the help of Kiwanis Club of Georgetown and the Penang Hospital, to form a Support Group in Penang (Malaysia). The main aims of this Support Group are as follows: To offer support and encouragement for parents and families of children with Down Syndrome To provide assistance and facilities to Individuals with Down Syndrome to enable them to contribute to society. To educate the community about Down Syndrome and highlight the needs of persons with Down Syndrome To gather experience, support and resources in order to form the Penang Down Syndrome Association. This aim was achieved on the 7th September 1999 when the Association was registered. Last updated: 11 July, 2005 18:19 So far Families are registered with the Support Group. but your browser doesn't support them. Click here to go to mainpage with frames

77. Down Syndrome Association Of Minnesota Home Page The down syndrome Association of Minnesota is affiliated with the National DownSyndrome Congress, National down syndrome Society and PACER. http://www.dsamn.org/

phone: 651-603-0720 or 800-511-3696 email: dsamn@dsamn.org About Us Mission Statement History ... Volunteer INDEX About Down Syndrome Events Internet Links Merchandise ... Guestbook What's New 2005 Buddy Walk Click on this link for information on funeral arrangements for Sean Maher. You may also use this CaringBridge link to post a message of condolence to the Maher family Welcome Welcome to the Down Syndrome Association of Minnesota. You will find good company here. The Association is composed of some 3,000 members; more than 900 people with Down syndrome, their families and friends, plus health-care, education and developmental professionals. We are the only organization in our region devoted exclusively to the needs of people with Down syndrome and their families. We are funded through memberships, private and corporate donations and various fund-raising events. As a result, all services are available to members throughout Minnesota and neighboring states at no cost. The Down Syndrome Association of Minnesota is affiliated with the National Down Syndrome Congress, National Down Syndrome Society and PACER.

78. Medical References: Down Syndrome down syndrome is one of the most common genetic birth defects, affectingapproximately one in 800 to 1000 babies. It generally is caused by an extra http://www.marchofdimes.com/professionals/681_1214.asp

View All Chapters Find Your Local Chapter September 8, 2005 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Down Syndrome What is Down syndrome? Down syndrome is a disorder that includes a combination of birth defects; among them, some degree of mental retardation, characteristic facial features and, often, heart defects, increased infections, problems with vision and hearing, and other health problems. The severity of all of these problems varies greatly among affected individuals. Down syndrome is one of the most common genetic birth defects, affecting approximately one in 800 to 1,000 babies. It generally is caused by an extra chromosome, the structures in cells that contain the genetic information (genes). According to the National Down Syndrome Society, there are approximately 350,000 individuals with Down syndrome in this country. Life expectancy among adults with Down syndrome is about 55 years, though life span varies depending on the individual and his or her medical condition. What causes Down syndrome?

79. Down Syndrome Liverpool Providing support and information to people with down syndrome, their parents and carers in the Liverpool area with links to other sites. Includes an online newsletter. http://www.ds-liverpool.org.uk/

Down Syndrome Liverpool: None None Down Syndrome Liverpool

80. Medical References: Maternal Blood Screening For Down Syndrome And Neural Tube D Health care providers offer their pregnant patients a screening test that identifiespregnancies at higherthan-average risk of certain serious birth http://www.marchofdimes.com/professionals/681_1166.asp

View All Chapters Find Your Local Chapter September 8, 2005 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Maternal Blood Screening for Down Syndrome and Neural Tube Defects Health care providers offer their pregnant patients a screening test that identifies pregnancies at higher-than-average risk of certain serious birth defects , including neural tube defects such as spina bifida (sometimes called open spine) and some chromosomal disorders (Down syndrome and trisomy 18). This blood test, which can provide valuable information about a developing fetus, has a number of names including maternal serum (blood) screening test, multiple marker screening test, triple screen, quad screen and others. It’s important to understand that, in most cases, an abnormal test result shows an increased risk, but not a definite problem with the baby. Further testing usually rules out the suspected problem. What does this test measure?

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