1. Down Syndrome Title Page A listing of organizations worldwide, support groups, and toy catalogs for childrenof special needs. http://www.nas.com/downsyn/

The Down Syndrome WWW Page was established in February of 1995 and has been (and still is) compiled from the contributions of members of the Down Syndrome Listserv and others. Organizations Worldwide About this page Family Essays FAQ ... The Foreign Site O THER I MPORTANT L INKS Down Syndrome: Health Issues by Len Leshin, M.D., F.A.A.P. Medical essays on Down Syndrome and issues common to children with Ds. Extensive listing of other Down Syndrome Websites Recommended Books Family Village Family Village A global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, their families, and those that provide them services and supports. Disability Solutions Disability Solutions The free publication of The Enoch-Gelbard Foundation. It's mission is: "To provide in a widely accessible manner, free of charge information that is useful, sensitive, and current to everyone concerned with developmental disabilities: parents, families, self-advocates, and professionals." Back issues and current issues are available in Adobe Acrobat format.

2. National Down Syndrome Society: Welcome The National down syndrome Society is a notfor-profit organization that hasbecome the largest non-governmental supporter of down syndrome research in the http://www.ndss.org/

WELCOME TO NDSS.ORG! To get more out of NDSS.org, please login or sign-up to be a registered user. Wall Street Journal Articles Awesome Kids for NDSS Donate to the Katrina Fund Scholarship Winners ... Locate a support group near you Community Info for everyone who cares. Learn More... Professionals Community Learn More... Organizations Community For affiliates, parent support groups and other orgs. Learn More... You make NDSS work! Get involved by becoming a member, donating or volunteering for the society. Get information here. GO! Find great baby items, educational materials and more at the NDSS Store. Every purchase you make helps to support our work. GO! SEARCH NDSS Get Help Now Site Map Careers Contact Us ... Help National Down Syndrome Society, (800) 221-4602, www.ndss.org

3. Growth Charts For Children With Down Syndrome Charts included are for height, weight, and head circumferences. Printable. http://www.growthcharts.com

Growth Charts for Children with Down Syndrome by Greg Richards (background by Bridget, age 9) www.growthcharts.com Site Navigation Down Syndrome General Overview Photos of our girls Growth Charts for Children w/DS Head Circumference Growth Charts for Typical Children Clinical and Individual Growth Charts from the Center for Disease Control (CDC) website Frequently Asked Questions (coming soon) About the author About Down Syndrome Down syndrome is a genetic condition in which there are three 21st chromosomes instead of the usual two. Most people have 46 chromosomes per cell originating from the 23 chromosomes in the mother's egg and 23 in the father's sperm. Not all people with Down syndrome have the same chromosomal arrangement, however. Ninety-five percent of people with Down syndrome (trisomy 21) have 47 chromosomes per cell (they have an extra #21 chromosome). This common type of trisomy 21 is called non-disjunction Three to four percent of people with Down syndrome have Robertsonian Translocation , where the number of chromosomes is normal, but the extra chromosome 21 material is attached with chromosome 14. The remainder have a rare type of Down syndrome in which some of their cells have 46 chromosomes and some have 47 chromosomes. This is called

4. Down Syndrome Learn about this genetic disorder, the causes, other health problems that can happen, and what life is like. http://kidshealth.org/kid/health_problems/birth_defect/down_syndrome.html

KidsHealth Kids Kids' Health Problems You have probably seen people who have Down syndrome. They have certain physical features, such as a flatter face, upward slanting eyes, and a somewhat larger tongue. They may have medical problems, too, such as heart defects. And they usually have some mental retardation, which means they may have trouble learning. But despite their challenges, kids with Down syndrome can go to regular schools, make friends, enjoy life, and get jobs when they're older. To understand why Down syndrome happens, you need to understand a little about chromosomes. What's a chromosome? They are thread-like structures within each cell and are made up of genes. Genes provide the information that determines everything about people, from hair color to whether they are girls or boys. Most people have 23 pairs of chromosomes, for a total of 46. But something goes wrong with the chromosomes for a baby with Down syndrome. He or she either has an extra chromosome (47 instead of 46) or one chromosome has an extra part. This extra genetic material causes problems with the way their bodies develop. Health Problems Are Common Babies with Down syndrome tend to develop more slowly than other babies do. They may start walking later than other babies. About half are born with

5. Down Syndrome: Health Issues - Medical Essays And Information Medical essays and information about down syndrome for parents and professionals,by Len Leshin, MD. http://www.ds-health.com/

Last Updated: Aug 5, 2005 by Len Leshin, M.D., F.A.A.P. Search this site! powered by FreeFind Author's note: I'm a pediatrician and the father of Avi, 11 years old, and Nathan, 13 years old. (Photos!) Avi has Down Syndrome ("DS" for short) and has inspired me to write these essays about children with DS for other parents. I have put them here for general reading. You may E-mail me with any questions about these essays. I have also included some other pediatric items of interest for parents. More up-to-date photos of Avi here June 2005: A new photo! Been here before? Check out what's new! For students writing reports, I have put together this page on Down syndrome to help you. The Kennedy Krieger Institute in Baltimore is recruiting children with Down syndrome to participate in a study to identify genetic and environmental factors related to congenital heart disease in Down syndrome. They need children born with Down syndrome and atrioventricular septal defect (AVSD), or AV canal, and children born with Down syndrome and without any structural heart defect for comparisons. You do not need to be near the Baltimore area. For more information, see their announcement here.

6. Down Syndrome Learn about symptoms, causes, and additional medical problems that can occur. http://www.mamashealth.com/syndrome/downsyn.asp

Mamashealth.com Home Syndromes Pages Acute Respiratory Asperger's Burning Foot Burning Mouth ... Myelodysplastic Links More Syndromes Email Mama What is Down Syndrome? A "syndrome" is a medical condition that is categorized by a multitude of symptoms. Down syndrome, also called Trisomy 21 is the most common cause of mental retardation and malformation in a newborn. It occurs because of the presence of an extra 21st chromosome. Chromosomes are the materials that store people's genetic information. Each person inherits 23 chromosomes from their mother and twenty three chromosomes from their father. Sometimes an accident occurs and one of the parents gives an extra chromosome. When the extra chromosome happens to be chromosome number 21, Down Syndrome occurs. Down Syndrome is not contagious. Symptoms Individuals with Down Syndrom may not experience all of the symtoms. Some of the common symptoms are: decreased muscle tone at birth, asymmetrical or odd-shaped skull, round head with flat area at the back of the head, small skull, slanting eyes, small mouth with protruding tongue (see tongue problems), broad short hands, single crease on the palm, retarded growth and development, delayed mental and social skills (mental retardation) What are the physical Characteristics?

7. Canadian Down Syndrome Society A support group for families with children with down syndrome. http://www.cdss.ca/

Canadian Down Syndrome Society 2006 CDSS Calendar CDSS ART COMPETITION Connecting to the Wheel Download toolkit Please click on images for more information. Resources for Free Because of changes to our Shopping Cart, you will not be able to order Free Items through our Online Store. While we are working on a better solution to this problem, please order Free Items by sending an email to dsinfo@cdss.ca or calling our office at 1-(800)-883-5608 or (403) 270-8500. Personal Health Record Download Your Copy Down Syndrome and You Download Your Copy FREE DVD: Adults with Down Syndrome: Understanding their Complex Health Needs Sales Olly Takes Fiddle to the Hospital I Can, Can You? Understanding How Children with Down Syndrome Learn: Proven and Effective Techniques for Parents and Professionals Teaching Math to People with Down Syndrome and Other Hands-On Learners View Cart Canadian Down Syndrome Society 811 - 14 Street NW, Calgary, Alberta T2N 2A4 Phone: Toll Free: Fax: Email: dsinfo@cdss.ca Website: www.cdss.ca

8. Down Syndrome Educational Trust - Home Page Based in the United Kingdom. Working to advance the development and education ofindividuals with down syndrome. http://www.downsed.org/

our work needs your support donate today ... ... e-Visitors' centre The Down Syndrome Educational Trust online our work needs your support - donate today Welcome to The Down Syndrome Educational Trust's Web site. The Down Syndrome Educational Trust is a registered charity, based in the UK, and a recognised leader in scientific research into the development and education of individuals with Down syndrome. Building on this foundation of original research, the Trust publishes practical information about Down syndrome, organises conferences and workshops , and provides advice and consultancy services For more information about our activities, and the values and principles that guide our work, see the section 'About the Trust'. This Web site provides information about our activities and services. If you are looking for detailed information about Down syndrome, please see the Trust's comprehensive online information resources at http://www.down-syndrome.info/ Latest news July 2005 - 'Information for parents: Down syndrome' book now available The UK government has launched an Information for parents: Down syndrome book as part of its Early Support project to improve the services for children with disabilities and their families. The Trust worked together with the Down's Syndrome Association and the Early Support team to write this book. To download a copy of the book or to find out how to order a free printed copy, visit

9. Down Syndrome Ireland 2005 Information about the condition, resources available, events and contact details. http://www.downsyndrome.ie/

home about us national resource centre ... contact us Welcome to the Web pages for Down Syndrome Ireland. Welcome to the Web pages for Down Syndrome Ireland. I hope you find material on the site interesting and informative. Down Syndrome Ireland was established in 1971 by a group of parents who wanted to change the way people with Down syndrome were perceived. Society has come a long way since our founding members set up this wonderful organisation. It is accepted that our children will go to be educated in the same schools as their brothers and sisters. They will catch the same bus and enjoy being part of the whole community. My daughter Megan has Down syndrome but her status should not be diminished in any way by virtue of an arrangement of her chromosomes. In fact it is as natural to be a person with Down syndrome as it is to be tall or short, stocky or thin, red hair or brown hair, fair skinned or dark skinned. Down Syndrome Ireland has made a difference. It has made a difference to me because Megan is going to the same school her brother and sister went to. Down Syndrome Ireland has made a difference to society because everybody is better off when we do not hide our children away just because they have a disability. Ireland now has an opportunity to prove itself and move forward with confidence. The Disability Bill has been passed and the Education Bill is also in place. These measures should have a profound effect on our lives. The follow through and commitment of Government to people with disabilities remains to be confirmed. The legislation is in place but the will to move forward has to be demonstrated. I am confident that we are part of the good society and people with Down syndrome will be accepted as naturally as people with brown eyes.

10. National Association For Down Syndrome In Chicago. Includes a bulletin board. http://www.nads.org/

Click Here. NADS members hit a home run for Down Syndrome Awareness Month! Read More! If People with Down syndrome Ruled the World... Humorous insight about what makes people tick...and makes them special... Read More! Bookmarks! NADS has developed a new series of bookmarks... Read more! Primarily serving the Chicago Metropolitan Area

11. Facts About Down Syndrome Named after John Langdon Down, the first physician to identify the syndrome, down syndrome is the most frequent genetic cause of mild to moderate http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Down Syndrome Sites On The Internet Directory of down syndrome Sites on the Internet http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Welcoming Babies With Down Syndrome -- English If you are welcoming a new baby with down syndrome into your family, Although babies and children with down syndrome are early customers for extensive http://www.nas.com/downsyn/welcome.html

WELCOMING BABIES WITH DOWN SYNDROME If you are welcoming a new baby with Down Syndrome into your family, you probably have many questions and concerns, as do your extended family, friends, and neighbors. We have written this information keeping in mind our own diverse experiences when our children were born with DS. Congratulations on the birth of your baby. We wish you all the best. What is Down Syndrome? Down Syndrome is a chromosomal anomaly that occurs in 1.3 per 1000 births. For some unexplained reason, an error in cell development results in 47 chromosomes rather than the usual 46. The extra gene material slightly changes the orderly development of the body and brain. About 5000 babies with Down Syndrome are born in the United States every year. The national population of individuals with Down Syndrome is estimated to be 250,000. About 80% of babies with Down Syndrome are born to mothers under the age of 35. About 1 in 400 babies born to women over 35 have Down Syndrome. People with Down Syndrome are more like typically developing individuals than they are different. There is great diversity within the population in terms of personality, learning styles, intelligence, appearance, compliance, humor, compassion, congeniality, and attitude. Favorite pastimes vary from person to person and range from reading, gardening and travel to baseball, music, and beyond.

14. Down Syndrome Title Page The down syndrome WWW Page was established in February of 1995 and has been (and still is) compiled from the contributions of members of the Down http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Down Syndrome: For New Parents Dedicated to providing parents with information about down syndrome. http://www.downsyn.com/

"Just when you think you have learned what you need to know in life, someone truly special comes into it and shows just how much more there is." On April 11, 1997, our son Michael was born. Mikey is a wonderful little boy and we love him with all our hearts. Mikey has Down Syndrome. This web site will attempt to be a resource for new parents of children with Down Syndrome. We will also try to provide a personal perspective by explaining how this has affected us and what it is like to be the parent of a child with Down Syndrome. Book of the Month for August 2005 The Best Worst Brother Written by Stephanie Stuve-Bodeen Illustrated by Charlotte Fremaux Woodbine House In this sequel to the popular storybook We’ll Paint the Octopus Red , Isaac is almost three years old and Emma is in elementary school. Emma misses the adoring baby brother Isaac used to be. Now that he’s older, he’s a pain. Emma used to be able to make Isaac laugh. He used to let her hold him without squirming. But no more. Now Isaac spits out his food and knocks down her blocks when Emma tries to play with him. Sometimes his behavior is downright embarrassing. Emma thinks Isaac would be more fun if he’d hurry up and learn some of the sign language she and her mom are trying to teach him. His slower pace is maddening at times! The Best Worst Brother is an endearing and realistic look at how a relationship evolves between a typically developing older sister and her younger brother with a developmental disability. It also shows how sign language can help a child that acquires speech more slowly. As Emma is pleased to discover, Isaac can learn to sign, he just learns when he’s ready.

16. Mosaic Down Syndrome On The Web A central location for Mosaic down syndrome information. http://www.mosaicdownsyndrome.com/

NEW - IMDSA Membership Application - Click Link Below, Left-Hand Menu - For More Information International Mosaic Down Syndrome Association Information IMDSA HomePage 1st Annual MDS Convention - CANCELLED!!! Mosaic Down Syndrome FAQ's Read Personal Stories Share Your Story Transfer Factor for Kids ... E-Mail Linda Beets, the MDS Family List Facilitator, if you'd like to become a part of the growing family network, and if you'd like to correspondend with other parents of children diagnosed with MDS. Welcome to Mosaic Down Syndrome on the Web. My name is Linda Beets, and I am the proud mommy of Karlee, my beautiful angel girl, born on April 27, 1999, and diagnosed with MDS. When my daughter was born, there was absolutely nothing on the Internet about MDS. I was devastated. It was because of this devastation and lack of information that this website now exists...so new parents won't ever have to experience what I did (and so many others). I (and many others) personally thank Bree Prive of NJ DesignWorks , for taking such an enthusiastic approach in creating, designing and maintaining this website. I know that this site's contents may appear "general" to many of you, but I wish I had a website such as this to go to last April, the day I found out what my daughter's diagnosis was. I do not feel alone anymore. This site continues to be updated, so do check back frequently. Thank you.

17. Down Syndrome Health Issues - Medical Essays And Information Medical essays and information about down syndrome for parents and professionals, by Len Leshin, M.D. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Down Syndrome Sites On The Internet A list of over 200 important sites on the internet dealing with down syndrome,compiled by Len Leshin, MD. http://www.ds-health.com/ds_sites.htm

Last Updated: Sept 8, 2005 Recommended Down Syndrome Sites on the Internet Compiled by Len Leshin, MD If you do a web search for "Down syndrome" on any of the major search engines, you'll now get thousands of websites in return. When I first started this list, my intention was to make it as comprehensive as I could, and with only a few hundred sites, it used to be easier. With the rapid expansion of the internet over the last three years, however, that goal has become almost impossible. So here are the sites that I feel have the most to offer parents of children with Down syndrome ("DS" for short). If any of these links are incorrect or out of date, please let me know. (To quote Chris Gravell: "this is what happens when you go on leave for 3 weeks - all the links have changed when you get back.") Any omissions or errors are my responsibility alone. Also, please let me know if you have any sites to add. Many of these sites contain medical information. My linking to such a site does not imply my endorsement of such medical (or other) advice. As always, caveat lector: "let the reader beware."

19. National Down Syndrome Society Welcome The National down syndrome Society is a notfor-profit organization that has become the largest non-governmental supporter of down syndrome research http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Down Syndrome Maybe your child was just diagnosed with down syndrome or she has a classmate who is affected by it. Or maybe you're pregnant and you've heard about http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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