121. Accueil - Association Française Du Syndrome De Rett - AFSR http://www.afsr.net/

" Leurs yeux parlent, je suis sûr qu'elles comprennent tout mais elles ne peuvent rien faire de cette compréhension. Elles sont très sensibles à l'amour, il existe bien des mystères, l'un d'eux se trouve dans leurs yeux. " Andréas RETT 24, avenue de la Côte Vermeille 66740 LAROQUE DES ALBERES tél. : 04 68 95 54 05 Fax. : 04 68 89 28 86 contact@afsr.net A vous, nouveaux parents ou amis, un petit mot... Vous venez d'apprendre que votre enfant, une enfant de votre entourage, est touchée par le syndrome de Rett. Avant de parcourir notre site, il nous semble nécessaire que vous disposiez des informations suivantes : Le syndrome de Rett ne touche pas de manière égale toutes nos enfants et ses manifestations sont donc très variables. Le contenu de notre site est exhaustif, il présente le syndrome de Rett et ses conséquences sous toutes ses formes. Celles-ci sont parfois dures, voire alarmantes pour certains d'entre vous. Soyez sûrs qu'elles ne s'appliqueront pas obligatoirement à votre enfant et le simple fait que vous accédiez à ces informations peut changer bien des choses.

122. SandDude On Gardner's Syndrome Patient's point of view on this condition (familial adenomatous polyposis), experiences with the condition and after colostomy, information, and related links. http://mywebpages.comcast.net/sanddude

Introduction Gardner's syndrome is a disease that affects many parts of the body. The primary problems with Gardner's syndrome are in the digestive system Patients will have hundreds, sometimes thousands, of polyps throughout the large intestine more Support ... Caring and Sharing Yahoo! Groups - FAP/Gardner's syndrome Yahoo! Groups - Kids with Gardner's syndrome Yahoo! Groups - Desmoid tumour survivors The Desmoid Tumor Online Support Group ... FAP.org - FAP Support Group In a Nutshell SandDude's osteoma and the hairdresser SandDude's polyps SandDude's genetic mutation SandDude's ampulla of Vater ... What is a desmoid tumor? Surgery and More It was late June of 1988. I was 37 years old. Something didn't feel exactly right ... a little bit of pain, but nothing really that alarming. I told myself that I would go to the doctor if things were not any better after the July 4th weekend. And then ... more Food Food. I really love the food I use. After I lost my colon, I had a heck of a time figuring out what to eat. Some foods caused too much gas. Some foods ... more medterms.com

123. Hydrops Fetalis With Polymalformative Syndrome Medical report on two consecutive pregnancies with this diagnoses, as well as intrauterine growth retardation and Dysmorphic syndrome. http://www.hydropsfetalis.org/index.html

HYDROPS FETALIS FRANÇAIS My both pregnancies ended in non immune hydrops fetalis because of possible cardiomyopathy. The first case report describes a polymalformative syndrome. Some congenital malformations could be attributed to Seckel syndrome. The following address we refer you to will give you a good idea of this complex phenomenon called hydrops fetalis : Universal edema of the newborn Our site is intended for : physicians (gynecologists, geneticists, pathologists ) who have a real passion for uncommon and complex mechanisms before birth, who love caring for patients with humanity, who can question their knowledge and proceed like detectives paying attention to each detail ; couples whose pregnancy was affected who look for information desperately because no scientist was able to answer their questions. After your visit, you will know that you are not alone. We are most grateful to the specialists who really helped us in our search : Dr Raymonde Bouvier, Edouard Herriot Hospital in Lyon (France) Dr Géraldine Viot, Cochin Hospital Complex, Port-Royal in Paris (France)

124. Fibromyalgia Information, Treatments And Research News Resource Research and treatment news, support, free email bulletins. http://www.fibromyalgiasyndromenews.com

Fibromyalgia News and Fibromyalgia Treatment Information Your Fibromyalgia resource for breaking research and treatment news. This site is updated daily with the latest Fibromyalgia news to help you learn the latest information to manage Fibromyalgia. Simply click on any of the links below to read the complete Fibromyalgia information. Fibromyalgia Recent Fibromyalgia Treatment news and Research Fibromyalgia: Treating Overlapping Conditions (Excerpt From “The Complete Idiot’s Guide to Fibromyalgia”) Lynne Matallana writes, "Overlapping conditions are a case of bad news and good news. The bad news is that people with fibromyalgia experience a variety of overlapping conditions; the good news is that many treatment options are available to successfully treat these conditions." Dr. Mark Pellegrino writes, "we can learn how to reduce stress and minimize its effect on FM. Everyone with FM can benefit from mental techniques to manage their physical problems." Learn a few of those effective techniques. Fibromyalgia and Fatigue: Practical Coping Tips In this excerpt from their newly revised book, "Taking Charge of Fibromyalgia," Rosalie Devonshire, MSW, LCSW, and Julie Kelly, MS, RN, provide very useful tips for coping with the fatigue of fibromyalgia.

125. Prevent Shaken Baby Syndrome American Academy of Pediatrics provides information on preventing shaken baby syndrome. Defining how the serious injuries can occur when an infant or toddler is severely or violently shaken. http://www.aap.org/family/preshake.htm

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126. Autistic Spectrum Disorders: Sorting Out Autism, Asperger's Syndrome And Other C Explains the shared symptoms of the Autistic Spectrum Disorders, and then describes each syndrome along with its defining features. http://www.pediatricneurology.com/autism.htm

Pediatric Neurological Associates (Click to see our patient offices in NY and NJ) Click here for print format. Listen to the speech pattern of kids with Asperger's Autistic Spectrum Disorders: Sorting It Out Martin L. Kutscher, MD Departments of Pediatrics and Neurology, New York Medical College, Valhalla, NY. Pediatric Neurological Associates, New York and New Jersey ... www.PediatricNeurology.Com Scroll down the page to view the entire article, or click each topic below: Introduction The Skills Involved in Communication Secondary Problems Categories of Non-Verbal Disorders ... Further Reading and Links REVIEW: " If you cannot provide an explanation in simple terms, you do not really understand what you are writing about. Dr Martin Kutscher knows what he is writing about. He explains ADHD in a clear and simple style . This book has a wealth on information on every page. No words are redundant and the format is reader friendly. When a child has ADHD and Asperger’s Syndrome, I will recommend Martin Kutscher

127. Janis Cortese: Marfan Syndrome Personal site by which describes the pathology and gives a bit of advice. http://www.io.com/~cortese/marfan/

This page is here to educate people in general as to how to recognize Marfan, what it's like to live with it, to provide me with a bit of a soapbox, and to tell you, Gentle Reader, where you can go to learn more. If you suspect that you or someone you know has Marfan Syndrome, do not write to me describing yourself and asking me if you have it. I am not a doctor. In order to be diagnosed, you must be examined by a doctor who is very familiar with the disorder. Not only can I not do that, it isn't possible for anyone to diagnose you without seeing you. You must see a Marfan doctor in order to be diagnosed, and you can find out more about doctors and support groups at the National Marfan Foundation Also, for any students reading this who want to write to me and ask me for "everything you know about Marfan Syndrome" and "any personal experiences you have had with it" it's all here. Just read this. Read the page thoroughly before writing to me , feel free to quote not plagiarize and please list my URL in your bibliography or footnotes. You may also wish to check out the links I list to learn more. Good luck with your projects! THIS PAGE IS NOT MEANT TO BE USED AS A DIAGNOSTIC TOOL OR TO REPLACE A CONSULTATION WITH A TRAINED CARDIOLOGIST FAMILIAR WITH MARFAN SYNDROME. IF YOU ARE CONCERNED ABOUT YOUR OWN HEALTH OR THAT OF SOMEONE ELSE, YOU MUST SEE A QUALIFIED HEALTH PROFESSIONAL.

128. PAS: An Age-Old Custody Problem Paper by Michael R. Walsh and J. Michael Bone in the Florida Bar Journal. http://www.deltabravo.net/custody/pas-walsh.htm

Ad-Free Signup Ad-Free Login PAS: An Age-Old Custody Problem You can double-click any word on this page to do a search on that word. THE FLORIDA BAR JOURNAL, JUNE 1997 Parental Alienation Syndrome: An Age-Old Custody Problem by Michael R. Walsh and J. Michael Bone The term parental alienation syndrome (PAS), first described by Richard Gardner, is also sometimes referred to as "brainwashing."( ) Its concept and dynamics include a complex network of involvement and motives on the part of all members acting in this family drama. Furthermore, each of them usually takes his or her role in the alienation process well before the dissolution or separation process begins. Additionally, one should be mindful that in some instances a child does not reject a parent immediately following a parental separation but rather based upon actual or true life experiences. Thus, this syndrome affects intact, as well as divided, families. PAS, in its most extreme form, refers to a disturbance in which a child is preoccupied with viewing one parent as all "good" and the other as all "bad." The former is loved and idealized, while the other is hated and verbally vilified. The PAS hostility expressed by the child is generally characterized without any outward expression of guilt, embarrassment, or ambivalence. Accordingly, this conduct may be especially puzzling, even to a trained observer, if there is no apparent factual basis to justify the depth of the emotions involved.

129. Rett Syndrome Facts and various information containing links. http://expage.com/page/curerettnow

Rett Syndrome Race for the cure! Cure Rett Now! Please see the "The Great Mississippi River Race for Rett Syndrome" at http://www.dreamkeeper.org to see the World's longest non stop canoe/kayak race for Rett Syndrome or check out "The Great Mississippi River Race for Rett Syndrome" at http://www.mississippichallenge.org to see how we smashed a World Record for best time down the Mississippi River - The Mississippi Challenge for Rett Syndrome and Leukodystrophy! to find out more about Rett Syndrome from the Rett Syndrome Research Foundation (RSRF) - the largest private funder of Rett Syndrome research worldwide! Rett parents - want to meet other Rett parents on a free listserv? to join a Rett forum full of new and experienced Rett parents. This listserv is run by 2 Rett moms, and everyone is screened to make sure they have a valid interest in Rett Syndrome. Rett education - Want to join a listserv that discusses education issues for those who have Rett syndrome? to join a listserv full of good information and help and to talk with other parents and educators who can help! Knowledge is power!

130. ERROR Resource for parents and patients suffering from Neonatal Onset Multiinflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups. http://pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm

Sorry...Page Temporarily Unavailable The Web page or file that you requested is temporarily unavailable. It has been so popular this month that it exceeded its free monthly traffic allotment. Access to this Web site will be restored on the first of next month. Please come back then. Thank you for your visit! If you are the owner of the Web site in question, please refer to your Community Web Space Terms and Conditions under Web Site Size and Space Limitations for more information. The Web EarthLink

131. CHARGE Syndrome Foundation Home Page Provides information about CHARGE syndrome, related disorders, therapies and outcome. http://www.chargesyndrome.org/

CHARGE Syndrome Foundation Inc. CHARGE Syndrome Foundation, Inc. 409 Vandiver Dr. Suite 5-104 NEW Columbia, MO 65202 ADDRESS (800) 442-7604 or (573) 499-4694 (Voice/Fax) Marion Norbury: (Executive Director) marion@chargesyndrome.org The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management. Revised February 3, 2005 info@chargesyndrome.org chargesyndrome foundation inc.

132. What Causes Carpal Tunnel Syndrome And Repetitive Strain Injuries? What causes carpal tunnel syndrome and repetitive strain injuries? Also a look at the symptoms and treatments. http://www.repetitive-strain.com/causes.html

WHAT ARE OFTEN THE CAUSES OF REPETITIVE STRAIN INJURIES? What Are The Causes? Repetitive and/or static wrist and finger flexion causes the flexor muscles which 'close' the hand to develop more strength than the wrist and finger extensor muscles that 'open' the hand. This quickly leads to a "muscle imbalance" of the wrist and hand because of the lack of activities that require direct stimulation of the extensor muscles; such as opening a door or holding onto the steering wheel of a car with the backside of the hands. Performing repetitive wrist and finger flexion causes inflammation of the flexor tendons due to friction within the severely compressed carpal tunnel; ultimately aggravating the existing symptoms, and leading to possible irreversible damage of the underlying tendons, blood vessels and median nerve. Can The Symptoms Of These Injuries Be Reversed? In Most Cases. Performing active stretches and exercises with FLEXTEND can often help correct the strength and length differences between muscle groups. Equalizing the flexor to extensor strength and length ratio will often create balance on both sides of the finger, wrist and elbow joints, which can help reduce the impingement/compression within and around these joints. Order Flextend from Sheerfitness.com

133. A Guide For The Patient (aka "the Dr. Fox Paper") From Scripps Clinic and Research Foundation http://www.dry.org/ss95gui.html

A Guide for the Patient (aka "the Dr. Fox Paper") Click here for the "Dr. Fox Paper, 2002 edition" Click here for the "Dr. Fox Paper, 1995 edition" Or click here for: Sjogren's Syndrome: New approaches to treatment by Dr. Robert I Fox (Continuing education for medical professionals) Dry.Org Home Contact Dry.Org

134. Welcome To AboutBFS.com An Online Community For Those Suffering From BFS (Benign Information on Benign Fasciculation syndrome. http://www.aboutbfs.com

An online community for those suffering from Benign Fasciculation Syndrome Frequently Asked Questions Articles Message Forums Web Links Welcome to AboutBFS.com AboutBFS.com is an Online Community for people suffering from BFS - Benign Fasciculation Syndrome, and those who wish to know more about the illness. It is my desire to be a place to find support, get information, have your questions answered, and raise awareness about this illness. I am always striving to make this site better, so please visit the forums and give me any suggestions or comments you may have about the site. I certainly welcome your input. Please help me to make this the best place to find information about Benign Fasciculation Syndrome on the Web! Have you been recently diagnosed with BFS or are expriencing it's symptoms? Make sure you check out the Frequently Asked Questions section for answers about BFS. Also, the Featured Articles Section has more in depth information. If you have a question that hasn't been answered in the FAQ section, you can post it in the Forums and someone is sure to help.

135. Restless Legs Syndrome And Leg Cramps In Fibromyalgia Syndrome: A Controlled Stu British Medical Journal article, 1996 a controlled study. http://www.bmj.com/cgi/content/full/312/7042/1339

Home Help Search Archive ... Table of Contents Author Keyword(s) Vol Page [Advanced] This article Respond to this article Read responses to this article Alert me when this article is cited Alert me when responses are posted ... Alert me when a correction is posted Services Email this article to a friend Find similar articles in BMJ Find similar articles in PubMed Alert me to new issues of the journal ... Read articles citing this article PubMed PubMed Citation Articles by Yunus, M. B Articles by Aldag, J. C BMJ Papers Restless legs syndrome and leg cramps in fibromyalgia syndrome: a controlled study Muhammad B Yunus professor of medicine, section of rheumatology a Jean C Aldag associate professor of preventive medicine in medicine a a Department of Medicine, University of Illinois College of Medicine at Peoria, Box 1649, Peoria, IL 61656, USA Correspondence to: Professor Yunus. Restless legs syndrome is characterised by an unpleasant, difficult-to-describe sensation in the legs that produces an invariable urge to move them frequently.

136. Arthritis - UW Medicine - Department Of Orthopaedics And Sports Medicine A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department. http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01

Home Site Map Contact Us Links ... Arthritis The Arthritis Source Our articles (listed to the left) feature information about managing arthritis, medications for arthritis, more than 20 types of arthritic conditions, and more. All articles were written or edited by our medical faculty . Some of them were developed with help from the Arthritis Foundation If you have specific questions about arthritis, you might want to search our site by typing in your question. On our search page , you can also search for a doctor or surgeon. The Department of Orthopaedics and Sports Medicine The UW Medicine Bone and Joint Surgery Center and the UW Medicine Eastside Specialty Center offer subspecialized surgical care for arthritis patients. UW surgeons provide the most current approaches for patients with arthritis affecting: The hips and knees The shoulders and elbows The neck and back The wrists and hands ... The feet and ankles UW Rheumatoid Arthritis Service The UW Medicine Bone and Joint Surgery Center at UWMC-Roosevelt offers a specialty program for rheumatoid arthritis. The

137. EMedicine - Klinefelter Syndrome : Article By Harold Chen, MD, MS, FAAP, FACMG Overview and medical information. http://www.emedicine.com/PED/topic1252.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease Klinefelter Syndrome Last Updated: December 17, 2004 Rate this Article Email to a Colleague Synonyms and related keywords: XXY male XXY syndrome XXXY syndrome XXYY syndrome ... cryptorchidism AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Harold Chen, MD, MS, FAAP, FACMG , Chief, Professor, Department of Pediatrics, Section of Perinatal Genetics, Louisiana State University Medical Center Harold Chen, MD, MS, FAAP, FACMG, is a member of the following medical societies: American Academy of Pediatrics American College of Medical Genetics American Medical Association American Society of Human Genetics , and Teratology Society Editor(s): Ian Krantz, MD , Assistant Professor, Department of Pediatrics, University of Pennsylvania and Children's Hospital of Philadelphia; Robert Konop, PharmD

138. GlaxoSmithKline - La Santé Et Vous - Nos Dossiers - Le Syndrome Des Jambes Sans Translate this page GlaxoSmithKline, un laboratoire pharmaceutique engagé pour la santé. Site de laFondation GSK. http://www.glaxosmithkline.fr/gsk/votresante/syndrome_jambe_ss_repos/maladie_neu

Accueil Nos dossiers L'Asthme L'Epilepsie Maladies des Voyageurs Maladies Infectieuses de l'Enfant ... Une maladie neurologique méconnue Le Syndrome des Jambes Sans Repos Une maladie neurologique méconnue Un syndrome pénible et usant Le diagnostic ... Pour en savoir plus Une maladie neurologique méconnue Le syndrome des jambes sans repos , appelé aussi « impatiences » est mal connu, et pourtant fréquent. Une étude de prévalence réalisée en 2003 par le laboratoire GlaxoSmithKline a montré que 8,5% de la population adulte sont atteints dont 2 à 3 % souffrent d'une forme sévère très pénible nécessitant un traitement. Les femmes sont deux fois plus touchées que les hommes.

139. Premenstrual Syndrome Forum Join a supportive forum where women share symptoms, experiences, treatments, and living with PMS. http://forums.about.com/ab-wmshealth2

140. GlaxoSmithKline - La Santé Et Vous - Nos Dossiers - Le Syndrome Des Jambes Sans Translate this page GlaxoSmithKline, un laboratoire pharmaceutique engagé pour la santé. Site de laFondation GSK. http://www.glaxosmithkline.fr/gsk/votresante/syndrome_jambe_ss_repos/syndrome.ht

Accueil Nos dossiers L'Asthme L'Epilepsie Maladies des Voyageurs Maladies Infectieuses de l'Enfant ... Les Vaccinations Dernière mise à jour : 18 octobre 2004 Accueil Le Syndrome des Jambes Sans Repos Un syndrome pénible et usant Le Syndrome des Jambes Sans Repos Une maladie neurologique méconnue Un syndrome pénible et usant Le diagnostic ... Pour en savoir plus Un syndrome pénible et usant Comme son nom l'indique, le syndrome des jambes sans repos affecte principalement les membres inférieurs, de la cheville au genou. Mais dans les formes les plus sévères, il touche aussi les bras. Les patients emploient des termes très variés pour décrire des sensations désagréables : du trac, de l'énervement, des démangeaisons, des tiraillements, des brûlures, tension en profondeur dans les muscles, dans une ou les deux jambes.

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