61. Lipoma This site references some articles dealing with dercum's disease, and provides synopses of them. http://www.thedoctorsdoctor.com/diseases/lipoma.htm

Background This is the most common benign soft tissue tumor of adults. They are sometimes multiple and usually painless and asymptomatic. Malignant transformation is virtually never seen. Angiolipoma is a common variant which has a proliferation of small vessels scattered throughout the fat. Unlike common lipomas, these tumors are usually painful. OUTLINE Epidemiology Disease Associations Pathogenesis Laboratory/Radiologic/Other Diagnostic Testing ... Internet Links EPIDEMIOLOGY CHARACTERIZATION INCIDENCE Most common benign soft tissue tumor in adults 1/1000 of general population AGE RANGE-MEDIAN 40-60 years SEX (M:F) Slightly greater in M DISEASE ASSOCIATIONS CHARACTERIZATION DFSP Multiple spindle cell lipomas and dermatofibrosarcoma protuberans within a single patient: Evidence for a common neoplastic process of interstitial dendritic cells? Harvell JD. Department of Pathology, Stanford University Medical Center. J Am Acad Dermatol 2003 Jan;48(1):82-5 Abstract quote This case report describes a 48-year-old man with multiple spindle cell lipomas of the neck and a dermatofibrosarcoma protuberans (DFSP) with fibrosarcomatous transformation of the chest. The presence of familial and nonfamilial multiple spindle cell lipomas within a single patient is a rare event, with only two reports in the current literature.

62. NORD - National Organization For Rare Disorders, Inc. about 50 known US cases today, and many more cases of related conditions suchas HIV lipodystrophy, dercum s disease, and multiple familial lipomatosis. http://www.rarediseases.org/search/orgdetail_full.html?org_name=About Madelung's

63. Brorson/Fagher Article On Dercum's Disease Or Adiposis Dolorosa This is an excellent overview article on the disease characterized by painful lipomas (benign fatty tumors). Note that the first part of the article is a biography of Dr. dercum. http://members.tripod.com/dercums_data/brorson.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Murderball Share This Page Report Abuse Edit your Site ... Next LÄKARTIDNINGEN VOLYM/ÅRGÅNG 93 · 10 APRIL 1996 PORTRAIT OF A MEDICAL ENIGMA [Translation: Adiposis dolorosa, a manifestation of pain in fatty tissue, affecting mainly women, has been named after an American neurologist. What is his name? Answer on the contents page.] NOTE: The first part of this article is a biography of Dr. Dercum, to get to the description of the disease, click here! This article is © 1996 by LÄKARTIDENINGEN - The Journal of the Swedish Medical Association Translation courtesy of Ruth Weaver (many thanks for an excellent job!) DERCUM'S DISEASE Fatty tissue rheumatism caused by immune defense reaction? Authors: Håkan Brorson, M.D., Ph.D. Department of Plastic and Reconstructive Surgery, Malmö University Hospital, S-205 02 Malmö, Sweden Birger Fagher, M.D., Ph.D. Associate Professor, Department of Internal Medicine, Lund University Hospital

64. Dercum English Page 3 American website about dercum’s disease, made by Maureen Rocchi who has done a A new German website about dercum s disease from the University Clinic of http://www.algon.dk/dercum/dercumeng3.php

Dorrit Hvam's homepage about Dercum's Disease Links to Other Dercum-Sites Home Further information More information can be found here: emedicine.com/derm/topic839.htm American website containing relevant and updated information about Dercum's Disease. Remember to scroll down. There are 9 sections altogether. http://dercum.org American website about Dercum’s Disease, made by Maureen Rocchi who has done a great job of spreading information about the disease. This is where you always end up when searching the internet for Dercum's. www.dercum.net A new German website about Dercum's Disease from the University Clinic of Magdeburg. Most of the content is also found in an English translation. www.lipomaforum.com An American website about lipomas, also featuring a section about Dercum's Disease. http://groups.yahoo.com/group/dercums_disease Support group at Yahoo with about 200 members. In spite of their rather personal character the contributions are open for everyone to read. In order to become a member you have to be registered which is done easily - and free of charge. http://hem.passagen.se/dercum/

65. CANCER: CAUSES AND EFFECTS Chapter from Dr. Ed Friedlander's online textbook. Adiposis Dolorosa (dercum's disease) is mentioned (search for adiposis ). Even though the lipomas (tumors) are benign, they can cause problems just by being, and he lists a number of examples. http://www.pathguy.com/lectures/neo-2-3.htm

CANCER: CAUSES AND EFFECTS Ed Friedlander, M.D., Pathologist scalpel_blade@yahoo.com Cyberfriends: The help you're looking for is probably here. Welcome to Ed's Pathology Notes, placed here originally for the convenience of medical students at my school. You need to check the accuracy of any information, from any source, against other credible sources. I cannot diagnose or treat over the web, I cannot comment on the health care you have already received, and these notes cannot substitute for your own doctor's care. I am good at helping people find resources and answers. If you need me, send me an E-mail at scalpel_blade@yahoo.com Your confidentiality is completely respected. DoctorGeorge.com is a larger, full-time service. There is also a fee site at myphysicians.com , and another at www.afraidtoask.com Translate this page automatically With one of four large boxes of "Pathguy" replies. I'm still doing my best to answer everybody. Sometimes I get backlogged, sometimes my E-mail crashes, and sometimes my literature search software crashes. If you've not heard from me in a week, post me again. I send my most challenging questions to the medical student pathology interest group, minus the name, but with your E-mail where you can receive a reply. Slice of Life videodisk. No medical student should be without access to this wonderful resource. Someday you may be able to access these pictures directly from this page.

66. BONES AND SOFT TISSUES Section of an online medical/pathology text book by Dr. Ed Friedlander. Buried in here are some comments on dercum's disease (search for dercum to find them). http://www.pathguy.com/lectures/bones.htm

BONES AND SOFT TISSUES Ed Friedlander, M.D., Pathologist scalpel_blade@yahoo.com Cyberfriends: The help you're looking for is probably here. Welcome to Ed's Pathology Notes, placed here originally for the convenience of medical students at my school. You need to check the accuracy of any information, from any source, against other credible sources. I cannot diagnose or treat over the web, I cannot comment on the health care you have already received, and these notes cannot substitute for your own doctor's care. I am good at helping people find resources and answers. If you need me, send me an E-mail at scalpel_blade@yahoo.com Your confidentiality is completely respected. DoctorGeorge.com is a larger, full-time service. There is also a fee site at myphysicians.com , and another at www.afraidtoask.com Translate this page automatically With one of four large boxes of "Pathguy" replies. I'm still doing my best to answer everybody. Sometimes I get backlogged, sometimes my E-mail crashes, and sometimes my literature search software crashes. If you've not heard from me in a week, post me again. I send my most challenging questions to the medical student pathology interest group, minus the name, but with your E-mail where you can receive a reply. Slice of Life videodisk. No medical student should be without access to this wonderful resource. Someday you may be able to access these pictures directly from this page.

67. Nunnie's Spot On The Web It is called Adiposis Dolorosa AKA dercum s disease. As I said, this illness isvery, very rare and is often times either misdiagnosed or not diagnosed at http://www.nunnie.com/

Hi, my name is Pam AKA "Nunnie". I'm 50. I live with my husband, Rick . We moved from Oregon to Montana about 5 years ago. Rick has a lot of hobbies and interests. His main interest is aircraft, especially military aircraft. Take a look at his "Favorite Military Aircraft" pages. He has photos, information, and specs on his 10 favorite military aircraft. His main hobby is photography. Be sure and check out his "Wildlife Photography" pages where you will find some fantastic photos that he has taken of wildlife on our many travels around Oregon and Washington. Among them you will see deer, elk, numerous kinds of birds, etc. Please be patient, with so many photos the pages are a little slow to load. I have many hobbies and interests. But, my main interest is animals. Since moving to Montana we have purchased several horses. We are now breeding and raising registered Paint Horses. I have put up a quick web page on my horses for the time being. I will do a better one later on. You can check it out if you would like. The herd name is "Regal Paints" We have 2 cats. At the present time I have not made a page for them. I will probably do that this winter when I have more time. They are nothing special. Just something that we love. :)

68. Dermatologic Diseases And Problems Of Women Throughout The Life Cycle Article by Brenner and Politi on women's dermatological problems from the International Journal of Dermatology. There is a section on dercum's disease toward the end of the article. http://www.vulvarpain.icomm.ca/brenner.html

69. Dercum's Disease (Adiposis Dolorosa) - PubMed MedLine References This is a listing of the references to dercum's disease culled from Medline, the National Library of Medicine data base.  (aka dercum Syndrome, Adiposis Dolorosa) http://Dercums_Data.tripod.com/ref-list.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Dukes of Hazzard Share This Page Report Abuse Edit your Site ... Next Dercum's Disease PubMed MedLine References This is a listing of the all the references I've found (so far) that discuss Dercum's disease or Adiposis Dolorosa or some aspect that might be of interest. Sometimes there is only the title (typically of foreign language articles) because no abstract is available. The Pub Med document number is included for reference. Web author comments are in blue (like this statement). A few of the articles have links that allow you access the actual article. Dr. Dercum's article (#64) and some other older ones have been recently added and can be found at the bottom of the list. Humangenetik 1973 Mar 23;18(1):89-91 Autosomal dominant inheritance in adiposis dolorosa (Dercum's disease). Cantu JM, Ruiz-Barquin E, Jimenez M, Castillo L, Macotela-Ruiz E PMID: 4721343, UI: 73226373 Am Fam Physician 1981 Nov;24(5):155-7

70. Emerging Worlds Chronic Illness And Viral Infections Specifically for dercum s disease Homeopathic injections 1cc each daily The Homeopathics are specifically for dercum s disease and are geared to reduce http://www.emergingworlds.com/show_subtopic.cfm?ID=38&TopicID=74

71. Qango : Health: Diseases And Conditions: D: Dercum's Disease dercum s disease, all of Qango only this category, Options Help Home Health diseases and Conditions D dercum s disease, Suggest a Site http://www.qango.com/dir/Health/Diseases_and_Conditions/D/Dercum_s_Disease/

Chat Forums Free Email Personals Classifieds ... Help Qango Directory Dercum's Disease all of Qango only this category Options Help Home Health ... D > Dercum's Disease Suggest a Site Health, etc If you would like to suggest a site for this category please click here Home Health Diseases and Conditions ... D > Dercum's Disease Suggest a Site Home Suggest a Site Search ... Login

72. DermIS / Main Menu / DOIA The DOIA, or Dermatological Online Image Atlas, is a listing of images relating to skin diseases. They do not have any pictures of dercum's disease, but they do ask for sufferers to fill out a questionnaire at the bottom of this page (the form doesn't always work properly, so save your answers elsewhere). http://www.dermis.net/doia/diagnose.asp?zugr=d&lang=e&diagnr=214003&

73. Adiposis Dolorosa - Dercum's Disease - Information Page With HONselect A rare disease, believed to be autosomal dominant, manifested by fatty deposits http://www.hon.ch/HONselect/RareDiseases/EN/C17.800.849.077.html

InitBulle("navy","#F8F8F8","#000066",1); HONcode sites All Web sites HONselect News ... Images HONselect Search English French German Spanish Portuguese the word the part of word in MeSH term in MeSH term and description Information on "Adiposis Dolorosa": Medical hierarchy and definition Research Articles Web resources Medical Images Medical News Medical Conferences Clinical Trials Hierarchy English French German Spanish Portuguese Adiposis Dolorosa Definition: A rare disease, believed to be autosomal dominant, manifested by fatty deposits that press on nerves causing weakness and pain. Synonym(s): Dercum's Disease / Dercum Disease / Dercums Disease / Disease, Dercum / Browse New search Web resources for "Adiposis Dolorosa" English French = Site with HON description - = Site with a robot description info: enter the site: (click below) domain of the site: Dercum's Disease (Adiposis Dolorosa) - PubMed MedLine references Dercums_Data.tripod.com Article: Corticosteroid-Induced Juxta-articular Adiposis Dolorosa (Dercum's Disease) dercums_data.tripod.com HONcode - eMedicine - Adiposis Dolorosa : Article by Nada Macaron, MD

74. Subcutaneous Lipomas | Blueprint For Health BluePrint for Health provides information on health and wellness. It this case, it is a general article on lipomas, with reference to dercum's disease. http://blueprint.bluecrossmn.com/topic/sublipomas

personalize this site sign up for free newsletter You are here: Home Subcutaneous Lipomas Subcutaneous Lipomas By Melanie Haiken CONSUMER HEALTH INTERACTIVE Below: What is a lipoma? What causes a lipoma to form? How common are lipomas? Will I get more than one lipoma? ... How is a lipoma treated? Edith Jones* remembers the day she first noticed a small, egg-shaped lump under her arm. Worried about breast cancer, she made an immediate appointment with her doctor. To her overwhelming relief, the lump turned out to be something called a lipoma, a noncancerous lump of fatty tissue. Over the next few years, however, she was less than pleased to find a dozen more lipomas cropping up on different parts of her body, including her chest, thighs, and upper arms. "I know that these run in my family," she says. "But I was still hoping to escape them." What is a lipoma? A lipoma is a round, moveable lump under the skin (they range from pea-sized to the size of an egg, or even larger sometimes). Technically, lipomas are a type of tumor, but don't be alarmed by the term they're benign, which means they aren't cancerous. Lipomas are typically small less than one inch in diameter but can grow much larger in some cases. They are soft to the touch and if you manipulate yours with your fingers you may notice that it moves around a bit. Lipomas grow in the layer of fatty tissue beneath the skin, most commonly on the chest, back, shoulders, neck, and upper arms and thighs. The good news is that a lipoma is likely to grow very slowly; the bad news is that if you have one lipoma you may develop several.

75. EMedicine - Adiposis Dolorosa : Article By Nada Macaron, MD Overview article describing dercum's disease. It is a melding of the various existing dercum articles into a coherent presentation. http://www.emedicine.com/derm/topic839.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Dermatology Diseases Of The Subcutaneous Tissue Adiposis Dolorosa Last Updated: March 27, 2003 Rate this Article Email to a Colleague Synonyms and related keywords: Dercum's disease, Dercum disease, painful lipoma, fatty tissue rheumatism, juxta-articular adiposis dolorosa (occurs around the knees) AUTHOR INFORMATION Section 1 of 9 Author Information Introduction Clinical Differentials ... Bibliography Author: Nada Macaron, MD , Staff Physician, Department of Pathology, Emory University School of Medicine Coauthor(s): Jack Arbiser, MD, PhD , Assistant Professor, Department of Dermatology, Emory University School of Medicine Nada Macaron, MD, is a member of the following medical societies: College of American Pathologists , and United States and Canadian Academy of Pathology Editor(s): C Lisa Kauffman, MD

76. ILDS - Homepage This site contains a list of Dermatology disease codes that include dercum's. Adiposis dolorosa is at the top of list E88.210 (use to be E88200). http://www.ilds.org/icd10_list.php?VIEW=1&START_CODE=E88.2&START_EXT=10

77. Dercum's Disease dercum s disease, also known as Adiposis Dolorosa This site discusses thesymptoms, personal stories and research that has been done in the study of http://www.ability.org.uk/Dercums_Disease.html

Our Aims Services Stats ... Z Dercum's Disease Dercum's Disease, also known as Adiposis Dolorosa - This site discusses the symptoms, personal stories and research that has been done in the study of Dercum's Disease. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

78. Article: Corticosteroid-Induced Juxta-articular Adiposis Dolorosa (Dercum's Dise This article discusses a case of dercum's disease in the knee that was apparently caused by corticosteroid usage. http://members.tripod.com/dercums_data/greenbaum.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Free Games Share This Page Report Abuse Edit your Site ... Next Corticosteroid-Induced Juxta-articular Adiposis Dolorosa By Steven S. Greenbaum, MD, John Varga, MD From the Departments of Dermatology (Dr Greenbaum) and Medicine (Dr Varga), Jefferson Medical College, Philadelphia, Pa. Reprinted from the Archives of Dermatology February 1991, Volume 127, pages 231-233 Long-term treatment with high doses of corticosteroids leads to the development of truncal obesity and focal fatty deposition. These deposits characteristically are located on the face, the nuchal and truncal areas, and episternally, as well as in the mediastinum and epicardium. We studied a patient with juxta-articular adiposis dolorosa who had L-tryptophan-associated eosinophilia-myalgia syndrome and was treated with high doses of prednisone. This is the first reported case of adiposis dolorosa occurring as a complication of corticosteroid treatment. Alterations of fat metabolism induced by corticosteroid excess may have played a role in the development of this unusual painful syndrome. Adiposis dolorosa is an uncommon disorder of subcutaneous tissue that was first described by Dercum in 1892 at Jefferson Medical College, Philadelphia, Pa. The understanding of this disease has not progressed very much in the past 98 years. It remains better understood as a clinical entity than as a physiologic or metabolic process.

79. QueenofPuntSyndrome Proteus Syndrome Achondroplasia XLinked Dominant Hypophosphatemic Rickets Neurofibromatosis Madelungs disease dercum s disease Familial Obesity http://www.geocities.com/madelungs/QueenofPuntSyndrome.html

Queen of Punt Syndrome? According to some medical anthropology experts the Queen of Punt might have had any or all of several disorders. Listed here with links to information these may help confirm or rule out these suggestions. Proteus Syndrome Achondroplasia X-Linked Dominant Hypophosphatemic Rickets ... Back to About Madelungs

80. Dercum's Disease / Adiposis Dolorosa, Eastern Carolina dercum s disease / Adiposis Dolorosa University Health Systems of EasternCarolina serves tarboro, ahoskie, edento, winsor, maxhead, dear county, http://www.uhseast.com/117639.cfm

Health News Health Library Health Topics Healthy Living ... Nutrition Self-Help Resources Information about national and local self-help organizations and support groups. Dercum's Disease / Adiposis Dolorosa This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. Dercum's Disease Online. Founded 1998. Support for persons with Dercum's disease (aka adiposis dolorosa), characterized by fatty lipomas under the skin that cause pain. Aim is to eradicate the pain and suffering of Dercum's Disease through finding the cause and cure. Forum for personal stories, links to support groups, and medical articles. WEBSITE: http://Dercums_Data.tripod.com/indes.html VERIFIED: 5/21/2004 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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