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         Cystic Fibrosis:     more books (100)
  1. Cystic Fibrosis (Genes and Disease) by Sharon Giddings, 2009-06-30
  2. Cystic Fibrosis: A Guide for Patient and Family
  3. CF vs Us: The Story of a Battle Between a Family and Cystic Fibrosis by Karen Dohren, 2008-01-29
  4. The Power of Two: A Twin Triumph over Cystic Fibrosis by Isabel Stenzel Byrnes; Anabel Stenzel, 2007-10-05
  5. Taking Cystic Fibrosis to School by Cynthia S. Henry, Cynthia S. Henry, et all 2000-09
  6. Understanding Cystic Fibrosis (Understanding Health and Sickness Series) by Ph.D.Karen Hopkin, 1998-07-01
  7. Cystic Fibrosis: Everything You Need To Know (Your Personal Health) by Wayne Kepron MDFRCPC, 2004-01-29
  8. Cystic Fibrosis: Handbook for Patient and Family
  9. Cystic Fibrosis (Oxford Respiratory Medicine Library) by Alex Horsley, Steve Cunningham, et all 2010-11-01
  10. The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease by Keith Wailoo, Stephen Pemberton, 2006-04-20
  11. Cystic Fibrosis: Etiology, Diagnosis and Treatments (Genetics-Research and Issues Series)
  12. Cystic Fibrosis by Margaret Hodson, Duncan Geddes, et all 2007-07-05
  13. The Stones Applaud: How Cystic Fibrosis Shaped My Childhood by Teresa Anne Mullin, 2007-03-16
  14. Cystic Fibrosis (Lung Biology in Health and Disease) by Davis, 1993-03-31

161. Cochrane Cystic Fibrosis & Genetic Disorders Homepage
An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders Activities of the Group are co-ordinated by its Editorial Base, located within the Department of Child Health, University of Liverpool, United Kingdom. We very much welcome interest from new consumers, referees and potential reviewers. A list of our priority review titles can be accessed by clicking here . Further information can be found here or by contacting the group The Group has 52 reviews, 11 protocols and 6 titles published on Issue 3, 2005 of The Cochrane Library . The production of these reviews involves a network of 250 authors, consumers and referees throughout the world. Last reviewed 17 June 2002.

162. - Information On Clinical Trials And Human Research Studies:
Search results for cystic fibrosis ALLFIELDS are shown below. Conditions Bronchiectasis; cystic fibrosis; Pancreatic Insufficiency fibrosis
Home Search Browse Resources ... About Search results for cystic fibrosis [ALL-FIELDS] are shown below.
Include trials that are no longer recruiting patients.
25 studies were found. Recruiting Tissue Collection from People with Cystic Fibrosis
Condition: Cystic Fibrosis Recruiting Studying Patients with Cystic Fibrosis and Other Pulmonary and Pancreatic Disorders
Conditions: Bronchiectasis; Cystic Fibrosis; Pancreatic Insufficiency Recruiting Safety and Efficacy Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients with P. Aeruginosa
Condition: Cystic Fibrosis Recruiting International Safety and Efficacy Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients
Condition: Cystic Fibrosis Recruiting A Study to Evaluate Nutropin AQ for the Treatment of Growth Restriction in Children with Cystic Fibrosis
Condition: Cystic Fibrosis Recruiting Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients With P. Aeruginosa
Condition: Cystic Fibrosis Not yet recruiting Comparison of Inhaled Mannitol and rhDNase in Children with Cystic Fibrosis
Condition: Cystic Fibrosis Not yet recruiting Tobramycin Inhalation Powder (TIP) in Cystic Fibrosis Subjects
Condition: Cystic Fibrosis Recruiting Study of Tauroursodeoxycholic Acid for Hepatobiliary Disease in Cystic Fibrosis
Condition: Cystic Fibrosis Recruiting Randomized Study of Alendronate in Adult Patients With Cystic Fibrosis Related Osteoporosis Conditions: Osteoporosis; Cystic Fibrosis

163. Cystic Fibrosis Foundation Of St. Louis
Contact and service information.

164. Cystic Fibrosis Services, Inc. - Home
A subsidiary of the cystic fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF).

165. UK Cystic Fibrosis Gene Therapy Consortium
It was established in 2001 on the initiative of the cystic fibrosis Trust. The Consortium’s work is currently funded mainly by the cystic fibrosis Trust
Home Members Research Publications ... Vacancies About the Consortium The UK Cystic Fibrosis Gene Therapy Consortium (UK CFGTC) is the unified research programme of the three leading gene therapy groups in the UK. It was established in 2001 on the initiative of the Cystic Fibrosis Trust. The three member research groups are headed by Prof. David Porteous at the University of Edinburgh, Drs Deborah Gill and Steve Hyde at the University of Oxford and Prof. Eric Alton at Imperial College in London. Our Aim T he UK has always been at the forefront of gene therapy for cystic fibrosis (CF) and the members of the Consortium have already demonstrated proof-of-principle of correction of the underlying defect in the airways of CF subjects. The aim of the Consortium is to combine the intellectual and practical resources of the three groups and avoid duplication of efforts thereby enhancing progress towards clinically relevant gene therapy for CF. Communication Core Facilities To ensure standardisation of results and high throughput, core facilities staffed by dedicated technicians have been set-up for the assessment of pre-clinical gene transfer. We would be interested to hear from any researchers who would like to test a gene transfer agent in these core facilities. For more information contact

166. Canadian Cystic Fibrosis Foundation - Ottawa Chapter
Volunteer organization to aid afflicted individuals, families and care givers. Profile, events and resources information.

167. My Cystic Fibrosis - Log On For Living With Cystic Fibrosis
An online resource that helps people with cystic fibrosis (CF) monitor their health and improve their understanding of this chronic disease through support is a free resource for people living with cystic fibrosis (CF). The tools and resources on this site enable all members physicians, patients, and caregivers to exchange important information to help ensure optimal living with cystic fibrosis.
Register online today.
On this site, you'll find in-depth articles, an interactive diary, charts, and graphs. For personalized education and support, you can connect online with our site specialists.
Register now to find out about EXTRA HELPINGS , the new program from Solvay Pharmaceuticals and CF Services that provides free vitamins for children, adolescents, and adults with CF.
Receive your free copy of Growing Older With CF , a valuable resource for adults with cystic fibrosis.
(Limited offer, available to US residents only.)
Solvay Pharmaceuticals, Inc. is proud to sponsor an unrestricted educational grant to PDHI for the development of
Date Last Modified: October 01, 2004
E-Mail: Webmaster

168. Canadian Cystic Fibrosis Foundation
Support and resources. Located in Toronto, Ontario.

169. BUBL LINK: Cystic Fibrosis
cystic fibrosis Foundation The mission of the cystic fibrosis Foundation is to Includes chronic bronchitis and emphysema, cystic fibrosis, influenza,
BUBL LINK Catalogue of Internet Resources Home Search Subject Menus Countries ... Z
Cystic fibrosis
Titles Descriptions
  • Cystic Fibrosis Foundation Cystic Fibrosis Trust IACFA Cystic Fibrosis Links LungNet ... OMNI Subject Listing for Digestive System
  • Comments:
    Cystic Fibrosis Foundation
    The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
    Author: Cystic Fibrosis Foundation
    Subjects: cystic fibrosis, health charities
    Resource type: documents
    Cystic Fibrosis Trust
    Information about cystic fibrosis including how it affects the lungs and pancreas, FAQs, a bibliography, and a glossary.
    Author: Cystic Fibrosis Trust
    Subjects: cystic fibrosis
    Resource type: documents
    IACFA Cystic Fibrosis Links
    Links to personal pages, national organisations, events and articles concerned with cystic fibrosis.
    Author: CF Research Inc
    Subjects: cystic fibrosis DeweyClass: Resource type: index
    Information about lung health for healthcare professionals and the public. Includes chronic bronchitis and emphysema, cystic fibrosis, influenza, lung cancer and tuberculosis.

    170. Canadian Cystic Fibrosis Foundation
    Works to raise funding for cystic fibrosis research and care, and lists upcoming events, describes the disease's symptoms and treatments.
    2 Carlton Street, Suite 817 Toronto, ON M5B 1J3 Phone: 416.932.3900 Fax: 416.932.3010 Great Strides™: Taking Steps to Cure CF
    Lace up your sneakers and walk for an excellent cause on Sunday, May 29, 2005 at the Toronto Zoo! The Canadian Cystic Fibrosis Foundation (CCFF) i more
    February 14, 2005
    New Research Initiative Takes Aim at Cystic Fibrosis

    January 12, 2005
    Curcumin Update

    December 16, 2004
    Siemens Canada raises $500,000 for CF
    view all news September 15, 2005
    ADVOCIS- Ontario Sales Congress

    September 17, 2005
    2005 Gobo Con Charity Golf Tournament
    September 28, 2005 Volunteer Opportunities view all events Siemens Canada has raised over $250,000 for CF through it's annual golf tournament

    171. Esmerel's Collection Of Cystic Fibrosis Resources
    This page is dedicated to cystic fibrosis resources. This list is growing constantly. If you know of any other resources or have suggestions, please email
    Cystic Fibrosis Resources
    (Courtesy of Esmerel: Home of Unicorn Quest : The Kids' Typing Tutor Game for One or Two Hands ) Welcome to another part of Esmerel's Collection of Disability Resources. This page is dedicated to cystic fibrosis resources. This list is growing constantly. If you know of any other resources or have suggestions, please email Heather.
    Back to the Disabled Directory This page is maintained by Heather

    172. Cystic Fibrosis Research Center
    Research and Clinical Cores The cystic fibrosis Research Center at the University of Inhaled Bicarbonate for cystic fibrosis PI Joseph M. Pilewski
    CFRC Search Website
    Center Director:
    Dr. Raymond A. Frizzell

    Cystic Fibrosis Research Center with an award of $1.2 million grant over a three-year period in 1997. This innovative CF Research Center consists of investigators brought together in a multidisciplinary approach to cystic fibrosis (CF) research. By creating this Center, the University took advantage of several unique opportunities present at The School of Medicine and the Children’s Hospital at the University of Pittsburgh. These two entities provided a large and accessible patient population for pre-clinical and clinical studies. Greater than 50 lung transplants per year enable access to patient tissue. They also provided the opportunity to engage new, high quality investigators in CF research in an institution that ranks 10 th nationally in extra-mural support by the NIH. The CF Research Center is co-directed by Raymond A. Frizzell, Ph.D., and Robert Bridges, Ph.D, both leaders in CFTR research, and Chairman and Vice-Chairman, respectively, of the Department of Cell Biology and Physiology School of Medicine. The Center is housed in the Department of Cell Biology and Physiology in its 3rd floor Biomedical Science Tower facility.

    173. CNN - Potential New Approach To Cystic Fibrosis Treatment Reported - October 9,

    WORLD U.S. LOCAL ... daily almanac
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    Svenska Norge Danmark ... Italian FASTER ACCESS: europe japan TIME INC. SITES: Go To ... People Money Fortune EW CNN NETWORKS: more networks transcripts SITE INFO: help contents search ad info ... jobs WEB SERVICES: health > story page
    Potential new approach to cystic fibrosis treatment reported
    October 9, 1999 Web posted at: 10:46 p.m. EDT (0246 GMT) In this story: Signs of disease reversed Large doses of supplements not advised RELATED STORIES, SITES SEATTLE (CNN) Researchers have discovered that high doses of a specific fatty acid can reduce symptoms of cystic fibrosis in mice a finding that potentially could lead to a treatment for a disease that is now incurable in humans. People with cystic fibrosis exhibit high levels of arachidonic acid (AA) and low levels of docosahexaenoic acid (DHA). Researchers who bred mice with the genetic defect that causes cystic fibrosis found that the mice exhibited the same imbalance of fatty acids.
    Signs of disease reversed
    But in mice that were fed large doses of DHA for a week, the imbalance was corrected and signs of cystic fibrosis in the pancreas, intestines and lungs were reversed, researchers said.

    174. Cystic Fibrosis Clinical And Research Center - Children's Hospital And RegionalM
    cystic fibrosis Research Center Adult and Pediatric cystic fibrosis Therapeutics Development Network Coordinating Center Suites 90, 122 and 228
    Site Under Construction
    Children's Hospital and Regional Medical Center
    Cystic Fibrosis Center (Pediatrics)
    4800 Sand Point Way NE, 3D-2
    Phone: 206-987-2024
    Fax: 206-987-2639
    University of Washington
    Cystic Fibrosis Clinic (Adults)
    Nurse Coordinator: Gwen McDonald, RN (206) 598-8446
    Clinic Days/Hours: Mondays 8:30-12:30
    Appointments: Rebecca Larson (206) 598-4615
    Cystic Fibrosis Research Center - Adult and Pediatric Research Studies: Sharon McNamara, (206) 987-3921 Research Funding: Emily Sasnett, (206) 987-3861 General Information: Molly Andrina, (206) 987-1208 Cystic Fibrosis Therapeutics Development Network Coordinating Center Suites 90, 122 and 228 2611 NE 125th St. Seattle, WA 98125 Phone: 206-527-5725 Fax: 206-527-5767

    175. Chicago CF Awareness Homepage
    Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.
    Last updated on:
    August 31, 2005
    Countdown for this year's Awareness Day:
    This year's Awareness Day will be held on: November 19, 2005 Welcome to our website!
    Here, you will find information about the Chicago CF Awareness Day, an annual seminar that helps individuals and families become more aware of CF, more aware of each other as a community, and more aware of living life in the midst of disease. By attending Awareness Day, people with CF (along with their friends and families) can learn about the latest medical research on CF, attend educational sessions about managing different aspects of life with CF, and learn about new products and treatments. Most important: they can meet, share their experiences, and ask questions about CF-related issues in a supportive setting. This site continues to serve the Chicago CF community throughout the year. Check here for contact information for the CF clinics in the greater Chicago area, links to many supportive CF sites on the internet, and local items such as clinical trials and our

    176. U.S. Study Backs Early Check For Cystic Fibrosis

    177. Concerned Friends Of Cystic Fibrosis In Israel
    Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.
    C oncerned F riends of C ystic F ibrosis
    Helping CF Children In Israel Breathe Easier! Home A Father's Letter CFCF In Israel Picture Gallery ... Contact Us Help Sarah... ...take another breath. Learn more about CFCF Israel. Concerned Friends of Cystic Fibrosis (CFCF) , established in April 1997, is a non-profit organization dedicated to meet the challenge of aiding CF children and their families in Israel.

    178. Finding May Shed New Light On Cystic Fibrosis

    179. The Genentech Endowment For Cystic Fibrosis
    An independent, nonprofit endowment dedicated to expanding access to Pulmozyme® (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply.
    The Endowment offers three programs designed to meet the special needs of the CF population. Find out additional information here If you would like additional information about the Endowment, you may reach us here

    180. Home Of The New Jersey State Organization Of Cystic Fibrosis - NJSOCF
    NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q A's, news, services offered and coming events.
    Updated: June 23, 2005 Home NJSOCF Services Adult Program People Coming Events Scrapbook Application Forms Pathmark Stores, NJ Donations Links Contact
    Do you have Cystic Fibrosis or know someone who does?
    WHO WE ARE: The New Jersey State Organization of Cystic Fibrosis was founded in 1977 to provide direct, "hands on" financial assistance to cystic fibrosis patients throughout the state. NJSOCF also provides counseling, referrals and educational materials to patients and their families. NJSOCF is a not-for-profit organization that uses its donated dollars to purchase the daily necessities of living for patients with the disease. These include prescription drugs, medical equipment, nutritional supplements and extra nutritious foods. Services are available to patients from birth to adulthood. Adult patients receive services through a special state-funded program specifically for adults with cystic fibrosis. OUR MISSION: To ease the heavy financial burdens placed on CF patients and their families and to provide needed information.

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