161. Cochrane Cystic Fibrosis & Genetic Disorders Homepage An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders. http://www.liv.ac.uk/CFGD/

Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders Activities of the Group are co-ordinated by its Editorial Base, located within the Department of Child Health, University of Liverpool, United Kingdom. We very much welcome interest from new consumers, referees and potential reviewers. A list of our priority review titles can be accessed by clicking here . Further information can be found here or by contacting the group The Group has 52 reviews, 11 protocols and 6 titles published on Issue 3, 2005 of The Cochrane Library . The production of these reviews involves a network of 250 authors, consumers and referees throughout the world. Last reviewed 17 June 2002.

162. ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies: Search results for cystic fibrosis ALLFIELDS are shown below. Conditions Bronchiectasis; cystic fibrosis; Pancreatic Insufficiency http://www.clinicaltrials.gov/search/term=cystic fibrosis

Home Search Browse Resources ... About Search results for cystic fibrosis [ALL-FIELDS] are shown below. Include trials that are no longer recruiting patients. 25 studies were found. Recruiting Tissue Collection from People with Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Studying Patients with Cystic Fibrosis and Other Pulmonary and Pancreatic Disorders Conditions: Bronchiectasis; Cystic Fibrosis; Pancreatic Insufficiency Recruiting Safety and Efficacy Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients with P. Aeruginosa Condition: Cystic Fibrosis Recruiting International Safety and Efficacy Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients Condition: Cystic Fibrosis Recruiting A Study to Evaluate Nutropin AQ for the Treatment of Growth Restriction in Children with Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients With P. Aeruginosa Condition: Cystic Fibrosis Not yet recruiting Comparison of Inhaled Mannitol and rhDNase in Children with Cystic Fibrosis Condition: Cystic Fibrosis Not yet recruiting Tobramycin Inhalation Powder (TIP) in Cystic Fibrosis Subjects Condition: Cystic Fibrosis Recruiting Study of Tauroursodeoxycholic Acid for Hepatobiliary Disease in Cystic Fibrosis Condition: Cystic Fibrosis Recruiting Randomized Study of Alendronate in Adult Patients With Cystic Fibrosis Related Osteoporosis Conditions: Osteoporosis; Cystic Fibrosis

163. Cystic Fibrosis Foundation Of St. Louis Contact and service information. http://www.tenholder.net/gatewaycff/

164. Cystic Fibrosis Services, Inc. - Home A subsidiary of the cystic fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF). http://www.cfservicespharmacy.com/

165. UK Cystic Fibrosis Gene Therapy Consortium It was established in 2001 on the initiative of the cystic fibrosis Trust. The Consortium’s work is currently funded mainly by the cystic fibrosis Trust http://www.cfgenetherapy.org.uk/

Home Members Research Publications ... Vacancies About the Consortium The UK Cystic Fibrosis Gene Therapy Consortium (UK CFGTC) is the unified research programme of the three leading gene therapy groups in the UK. It was established in 2001 on the initiative of the Cystic Fibrosis Trust. The three member research groups are headed by Prof. David Porteous at the University of Edinburgh, Drs Deborah Gill and Steve Hyde at the University of Oxford and Prof. Eric Alton at Imperial College in London. Our Aim T he UK has always been at the forefront of gene therapy for cystic fibrosis (CF) and the members of the Consortium have already demonstrated proof-of-principle of correction of the underlying defect in the airways of CF subjects. The aim of the Consortium is to combine the intellectual and practical resources of the three groups and avoid duplication of efforts thereby enhancing progress towards clinically relevant gene therapy for CF. Communication Core Facilities To ensure standardisation of results and high throughput, core facilities staffed by dedicated technicians have been set-up for the assessment of pre-clinical gene transfer. We would be interested to hear from any researchers who would like to test a gene transfer agent in these core facilities. For more information contact products@cfgenetherapy.org.uk

166. Canadian Cystic Fibrosis Foundation - Ottawa Chapter Volunteer organization to aid afflicted individuals, families and care givers. Profile, events and resources information. http://www.ccffottawa.ca/

167. My Cystic Fibrosis - Log On For Living With Cystic Fibrosis An online resource that helps people with cystic fibrosis (CF) monitor their health and improve their understanding of this chronic disease through support http://www.mycysticfibrosis.com/

Mycysticfibrosis.com is a free resource for people living with cystic fibrosis (CF). The tools and resources on this site enable all members physicians, patients, and caregivers to exchange important information to help ensure optimal living with cystic fibrosis. APPLY HERE Register online today. On this site, you'll find in-depth articles, an interactive diary, charts, and graphs. For personalized education and support, you can connect online with our site specialists. Register now to find out about EXTRA HELPINGS , the new program from Solvay Pharmaceuticals and CF Services that provides free vitamins for children, adolescents, and adults with CF. Receive your free copy of Growing Older With CF , a valuable resource for adults with cystic fibrosis. (Limited offer, available to US residents only.) Solvay Pharmaceuticals, Inc. is proud to sponsor an unrestricted educational grant to PDHI for the development of mycysticfibrosis.com. Date Last Modified: October 01, 2004 E-Mail: Webmaster

168. Canadian Cystic Fibrosis Foundation Support and resources. Located in Toronto, Ontario. http://www.cysticfibrosis.ca/

169. BUBL LINK: Cystic Fibrosis cystic fibrosis Foundation The mission of the cystic fibrosis Foundation is to Includes chronic bronchitis and emphysema, cystic fibrosis, influenza, http://bubl.ac.uk/link/c/cysticfibrosis.htm

BUBL LINK Catalogue of Internet Resources Home Search Subject Menus Countries ... Z Cystic fibrosis Titles Descriptions Cystic Fibrosis Foundation Cystic Fibrosis Trust IACFA Cystic Fibrosis Links LungNet ... OMNI Subject Listing for Digestive System Comments: bubl@bubl.ac.uk Cystic Fibrosis Foundation The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Author: Cystic Fibrosis Foundation Subjects: cystic fibrosis, health charities DeweyClass: Resource type: documents Cystic Fibrosis Trust Information about cystic fibrosis including how it affects the lungs and pancreas, FAQs, a bibliography, and a glossary. Author: Cystic Fibrosis Trust Subjects: cystic fibrosis DeweyClass: Resource type: documents IACFA Cystic Fibrosis Links Links to personal pages, national organisations, events and articles concerned with cystic fibrosis. Author: CF Research Inc Subjects: cystic fibrosis DeweyClass: Resource type: index LungNet Information about lung health for healthcare professionals and the public. Includes chronic bronchitis and emphysema, cystic fibrosis, influenza, lung cancer and tuberculosis.

170. Canadian Cystic Fibrosis Foundation Works to raise funding for cystic fibrosis research and care, and lists upcoming events, describes the disease's symptoms and treatments. http://www.ccfftoronto.ca/

2 Carlton Street, Suite 817 Toronto, ON M5B 1J3 Phone: 416.932.3900 Fax: 416.932.3010 Great Strides™: Taking Steps to Cure CF Lace up your sneakers and walk for an excellent cause on Sunday, May 29, 2005 at the Toronto Zoo! The Canadian Cystic Fibrosis Foundation (CCFF) i ...read more February 14, 2005 New Research Initiative Takes Aim at Cystic Fibrosis January 12, 2005 Curcumin Update December 16, 2004 Siemens Canada raises $500,000 for CF view all news September 15, 2005 ADVOCIS- Ontario Sales Congress September 17, 2005 2005 Gobo Con Charity Golf Tournament September 28, 2005 Volunteer Opportunities view all events Siemens Canada has raised over $250,000 for CF through it's annual golf tournament

171. Esmerel's Collection Of Cystic Fibrosis Resources This page is dedicated to cystic fibrosis resources. This list is growing constantly. If you know of any other resources or have suggestions, please email http://www.esmerel.org/specific/cystic.htm

Cystic Fibrosis Resources (Courtesy of Esmerel: Home of Unicorn Quest : The Kids' Typing Tutor Game for One or Two Hands ) Welcome to another part of Esmerel's Collection of Disability Resources. This page is dedicated to cystic fibrosis resources. This list is growing constantly. If you know of any other resources or have suggestions, please email Heather. Cystic Fibrosis.com Cystic Fibrosis Cystic Fibrosis 101 ... Norma Kennedy Plourde CF Page This site has many links and various information for the average person with cystic fibrosis. Sarah's Cystic Fibrosis Page Web Creations Cystic Fibrosis Page Back to the Disabled Directory This page is maintained by Heather

172. Cystic Fibrosis Research Center Research and Clinical Cores The cystic fibrosis Research Center at the University of Inhaled Bicarbonate for cystic fibrosis PI Joseph M. Pilewski http://www.cbp.pitt.edu/centers/cfrc.html

CFRC Search Website Center Director: Dr. Raymond A. Frizzell Cystic Fibrosis Research Center with an award of $1.2 million grant over a three-year period in 1997. This innovative CF Research Center consists of investigators brought together in a multidisciplinary approach to cystic fibrosis (CF) research. By creating this Center, the University took advantage of several unique opportunities present at The School of Medicine and the Children’s Hospital at the University of Pittsburgh. These two entities provided a large and accessible patient population for pre-clinical and clinical studies. Greater than 50 lung transplants per year enable access to patient tissue. They also provided the opportunity to engage new, high quality investigators in CF research in an institution that ranks 10 th nationally in extra-mural support by the NIH. The CF Research Center is co-directed by Raymond A. Frizzell, Ph.D., and Robert Bridges, Ph.D, both leaders in CFTR research, and Chairman and Vice-Chairman, respectively, of the Department of Cell Biology and Physiology School of Medicine. The Center is housed in the Department of Cell Biology and Physiology in its 3rd floor Biomedical Science Tower facility.

173. CNN - Potential New Approach To Cystic Fibrosis Treatment Reported - October 9, CNN http://www.cnn.com/HEALTH/9910/09/cystic.fibrosis/index.html

MAIN PAGE WORLD U.S. LOCAL ... daily almanac MULTIMEDIA: video video archive audio multimedia showcase ... more services E-MAIL: Subscribe to one of our news e-mail lists. Enter your address: document.write(' '); Or: Get a free e-mail account E-MAIL DISCUSSION: message boards chat feedback CNN WEB SITES: AsiaNow Svenska Norge Danmark ... Italian FASTER ACCESS: europe japan TIME INC. SITES: Go To ... Time.com People Money Fortune EW CNN NETWORKS: more networks transcripts SITE INFO: help contents search ad info ... jobs WEB SERVICES: health > story page Potential new approach to cystic fibrosis treatment reported October 9, 1999 Web posted at: 10:46 p.m. EDT (0246 GMT) In this story: Signs of disease reversed Large doses of supplements not advised RELATED STORIES, SITES SEATTLE (CNN) Researchers have discovered that high doses of a specific fatty acid can reduce symptoms of cystic fibrosis in mice a finding that potentially could lead to a treatment for a disease that is now incurable in humans. People with cystic fibrosis exhibit high levels of arachidonic acid (AA) and low levels of docosahexaenoic acid (DHA). Researchers who bred mice with the genetic defect that causes cystic fibrosis found that the mice exhibited the same imbalance of fatty acids. Signs of disease reversed But in mice that were fed large doses of DHA for a week, the imbalance was corrected and signs of cystic fibrosis in the pancreas, intestines and lungs were reversed, researchers said.

174. Cystic Fibrosis Clinical And Research Center - Children's Hospital And RegionalM cystic fibrosis Research Center Adult and Pediatric cystic fibrosis Therapeutics Development Network Coordinating Center Suites 90, 122 and 228 http://depts.washington.edu/cfcenter/

Site Under Construction Children's Hospital and Regional Medical Center Cystic Fibrosis Center (Pediatrics) 4800 Sand Point Way NE, 3D-2 Phone: 206-987-2024 Fax: 206-987-2639 University of Washington Cystic Fibrosis Clinic (Adults) Nurse Coordinator: Gwen McDonald, RN (206) 598-8446 Clinic Days/Hours: Mondays 8:30-12:30 Appointments: Rebecca Larson (206) 598-4615 Cystic Fibrosis Research Center - Adult and Pediatric Research Studies: Sharon McNamara, (206) 987-3921 Research Funding: Emily Sasnett, (206) 987-3861 General Information: Molly Andrina, (206) 987-1208 Cystic Fibrosis Therapeutics Development Network Coordinating Center Suites 90, 122 and 228 2611 NE 125th St. Seattle, WA 98125 Phone: 206-527-5725 Fax: 206-527-5767

175. Chicago CF Awareness Homepage Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives. http://chicagocfawareness.org

Last updated on: August 31, 2005 Countdown for this year's Awareness Day: This year's Awareness Day will be held on: November 19, 2005 Welcome to our website! Here, you will find information about the Chicago CF Awareness Day, an annual seminar that helps individuals and families become more aware of CF, more aware of each other as a community, and more aware of living life in the midst of disease. By attending Awareness Day, people with CF (along with their friends and families) can learn about the latest medical research on CF, attend educational sessions about managing different aspects of life with CF, and learn about new products and treatments. Most important: they can meet, share their experiences, and ask questions about CF-related issues in a supportive setting. This site continues to serve the Chicago CF community throughout the year. Check here for contact information for the CF clinics in the greater Chicago area, links to many supportive CF sites on the internet, and local items such as clinical trials and our

176. U.S. Study Backs Early Check For Cystic Fibrosis CNN http://cnn.com/2001/HEALTH/01/09/health.cf.reut/index.html

177. Concerned Friends Of Cystic Fibrosis In Israel Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information. http://www.cfcfisrael.org

C oncerned F riends of C ystic F ibrosis Helping CF Children In Israel Breathe Easier! Home A Father's Letter CFCF In Israel Picture Gallery ... Contact Us Help Sarah... ...take another breath. Learn more about CFCF Israel. Concerned Friends of Cystic Fibrosis (CFCF) , established in April 1997, is a non-profit organization dedicated to meet the challenge of aiding CF children and their families in Israel.

178. Finding May Shed New Light On Cystic Fibrosis CNN http://cnn.com/2001/HEALTH/conditions/03/01/cystic.fibrosis.ap/index.html

179. The Genentech Endowment For Cystic Fibrosis An independent, nonprofit endowment dedicated to expanding access to Pulmozyme® (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply. http://www.genentechcfendowment.org

The Endowment offers three programs designed to meet the special needs of the CF population. Find out additional information here If you would like additional information about the Endowment, you may reach us here Home Contact the Endowment Privacy Statement

180. Home Of The New Jersey State Organization Of Cystic Fibrosis - NJSOCF NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q A's, news, services offered and coming events. http://www.njsocf.org

Updated: June 23, 2005 Home NJSOCF Services Adult Program People Coming Events Scrapbook Application Forms Pathmark Stores, NJ Donations Links Contact Do you have Cystic Fibrosis or know someone who does? WHO WE ARE: The New Jersey State Organization of Cystic Fibrosis was founded in 1977 to provide direct, "hands on" financial assistance to cystic fibrosis patients throughout the state. NJSOCF also provides counseling, referrals and educational materials to patients and their families. NJSOCF is a not-for-profit organization that uses its donated dollars to purchase the daily necessities of living for patients with the disease. These include prescription drugs, medical equipment, nutritional supplements and extra nutritious foods. Services are available to patients from birth to adulthood. Adult patients receive services through a special state-funded program specifically for adults with cystic fibrosis. OUR MISSION: To ease the heavy financial burdens placed on CF patients and their families and to provide needed information.

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