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         Cystic Fibrosis:     more books (100)
  1. Cystic Fibrosis - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
  2. Cystic Fibrosis by Michael E. Fritz, 1973-06
  3. Recent Advances in Cystic Fibrosis Research (Monographs in Paediatrics)
  4. Cystic Fibrosis by Dennis J. Shale, 1996-04-18
  5. The 2002 Official Patient's Sourcebook on Cystic Fibrosis
  6. Cystic Fibrosis (Wellcome Witnesses to Twentieth Century Medicine)
  7. Cystic Fibrosis: A Family Affair by Jane Chumbley, 1999-03
  8. Cystic Fibrosis Pulmonary Infections: Lessons from Around the World (Respiratory Pharmacology and Pharmacotherapy)
  9. Cystic Fibrosis Methods and Protocols (Methods in Molecular Medicine)
  10. Diseases and Disorders - Cystic Fibrosis by Melissa Abramovitz, 2003-03-19
  11. Cystic fibrosis: Projections into the future : an international conference held at the Israel National Academy of Sciences, Jerusalem, Israel, May 25-27, 1976
  12. Troubled Dream of Genetic Medicine Ethnicity & Innovation in Tay-Sachs, Cystic Fibrosis, & Sickle Cell Disease by KeithWailo&StephenPemberton, 2006
  13. Immunological Aspects Of Cystic Fibrosis (Crc Series in Immunology and Lymphoid Cell Biology) by Emmanuel Shapira, 1984-12-21
  14. Chronic Respiratory Disorders : Cystic Fibrosis (DVD)

61. Cystic Fibrosis Victoria
Information about cystic fibrosis and the organisation, online chat room and message board.
var monthList = new Array('January', 'February', 'March', 'April', 'May', 'June', 'July', 'August', 'September', 'October', 'November', 'December'); Latest information on Cystic Fibrosis, Services offered by Cystic Fibrosis Victoria, CF chat room and forum, free 65 Roses Magazine, CF shop, fundraising events.

62. Walkentalk - Christopher Walken Home Page - Neptune Pictures
Film and video company dedicated to the art of storytelling. Projects include Thunderpoint, The Seventh Day and the cystic fibrosis film SWAY.
"BEST SHORT WE'VE SEEN THIS YEAR! A hilarious short film.... Wowee wow wow!" Film Threat "Brilliantly funny!" Indie Slate Magazine WALKENTALK has become one of the most acclaimed short films of the year ENTER SITE

63. Charity Cycle From Lands End To John O'Groats
A charity event to raise money in Aid of cystic fibrosis Holiday Fund For Children. A 1000mile trek on a Trident across the UK.
In Aid of Cystic Fibrosis Holiday Fund For Children Sponsor us by clicking here here...... NEWS FLASH********* Day 9 - They've Done It !!!!! The brave hearts arrive in John O'Groats at 18:15 today 27th July 2001 !!!! Well done lads !!! more news to follow.... Fastest and Youngest Ever - To be Ratified in 6 Weeks !!!!!!!!!
Welcome to the charity cycle of the year....
From the sunny Southwest of England to the North-Eastern tip of Stormy Scotland, three friends will be riding one bike all the way. In ten days they aim to ride their triplet*Trident through headwinds, exhaustion and fantastic countryside, in aid of the Cystic Fibrosis Holiday Fund for Children. This is a real Gap-year challenge; few have ever completed the distance on this most unusual of machines. Who knows.... whether you live in Cornwall or the Cairngorms, you may even see them come flying (or panting) past your doorstep this July as they roll up the country................ Free Java applets provided by
Website Abstraction

64. Cystic Fibrosis
cystic fibrosis Links and Information
Cystic Fibrosis
Our fifteen year old son, James, has Cystic Fibrosis - CF
This page is devoted to the understanding and cure of this debilitating disease.

Questions, suggestions, links ?
e-mail us

Dudley Leaphart Billings, MT

ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution
(formerly known as the European Working Group for Cystic Fibrosis)

Date of last modification of site : 6th August 2005
HOME Society Details
The Board

The Constitution

Application for membership
Membership subscription renewal
ECFS Supported Initiatives
European CF Registry
Pan European Studies
Invitation to participate in a Pan European study on Pancreatitis in CF: Prevalence and Outcome
The Journal of Cystic Fibrosis
The ECFS Newsletter Current and Future Meetings Previous Meetings Presentations. ... ECFS Awards at the ECFC Organisations European Life Science Forum Web sites Other WWW sites of Interest
Welcome To the ECFS Web Page
Mission Statement: The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis The polymorphic nature of cystic fibrosis has resulted in the involvement of a large number of different clinical and scientific disciplines for the study and treatment of the disease. The European Cystic Fibrosis Society provides a European forum where such clinicians and scientists can meet, present and discuss the latest findings concerning the disease. Membership of the society is open to any clinician or scientist actively engaged in CF research or CF care.

66. Official Site For CFF Jack Buck Book Event
Charity fund raiser sponsored by the announcer. Includes welcome, book of stories and poems for sale, details about the Gateway cystic fibrosis Foundation and CF, and a biography.
The Web S.W.O.T. Team in partnership with the Gateway Chapter of the Cystic Fibrosis Foundation honors the passing of a legend.  Thank you very much for visiting the site and for your donations. Jack Buck
Mr. Jack Buck passed at 11:08P.M. on June 18th, 2002 at the age of 77 years old.
A Memorial service will was held
Thursday the 20th of June at Busch stadium
7:00A.M.. to 11:30P.M. Click here for additional memorial information from KMOX Radio. It clinched the 1985 National League Championship Series for the Red Birds. In July 2002, he will be honored at the 33 rd Annual Jack Buck Golf Classic. His tournament attracts more than 300 golfers every year, and has raised $7 million for Cystic Fibrosis research. This year he has stepped up to the plate again. with 100% of the proceeds going directly to Cystic Fibrosis Foundation. For his own enjoyment, Jack has been composing poetry most of his life. Few people outside of his own family have had the opportunity to see his poems. They cover far more subjects than baseball and other sports. Jack has donated eighteen of his poems to the Cystic Fibrosis Foundation to be published and used in the effort to generate donations through this site and other means of distribution.

67. Userdir Rule Failure
Canadian cystic fibrosis FoundationSupport and resources. Located in Toronto, Ontario.
The server was unable to resolve the requested /~ username reference, possible causes include:
  • Username invalid Server is unable to determine username's login directory due to insufficient privilege to read the SYSUAF data.

68. Nederlandse Cystic Fibrosis Stichting
Verenigd (ouders van) pati«nten met cystic fibrosis (CF) en geeft informatie over CF en verwijzingen naar andere nuttige websites.
moveTo(0,0);resizeTo(screen.width,screen.height); Dit is de website van de Nederlandse Cystic Fibrosis Stichting. U vindt hier informatie over Cystic Fibrosis (CF), de NCFS, op vakantie gaan met CF, andere websites op het gebied van Cystic Fibrosis enz. Deze website gebruikt zogenaamde frames. Uw internetprogramma is helaas te oud en kan deze frames niet weergeven. Daarom ziet u deze tekst. Probeer uw internetprogramma te vervangen door een nieuwere versie. De Nederlandse Cystic Fibrosis Stichting is geen vereniging, maar een stichting. Zij heeft dus geen leden, maar aangeslotenen. De NCFS is een ouder- en patiëntenorganisatie en behartigt de belangen van CF-patiënten en hun omgeving. Andere namen voor Cystic Fibrosis luiden CF, taaislijmziekte, mucoviscidose, mucoviscidosis, cystische fibrose of kystische fibrose. In Nederland spreken we doorgaans over Cystic Fibrosis. In het Engels duiden wij onze organisatie aan met Dutch Cystic Fibrosis Foundation, Dutch Cystic Fibrosis Organization, Dutch Cystic Fibrosis Organisation, Dutch CF Organization, Dutch CF Organisation of Dutch CF Association. U kunt ons e-mailen via

69. If You Ask James About Cystic Fibrosis
cystic fibrosis, CF links, cystic fibrosis information including personal experience with CF, treatments, medications, complications, coping, support groups
If You Ask James About Cystic Fibrosis Home CYSTIC FIBROSIS CF Links Kids and Parents ... Cystic Fibrosis Web Ring Cystic Fibrosis,CF links,diagnosis of cystic fibrosis,CF treatments,CF medications,cystic fibrosis foundations,cystic fibrosis awareness,complications of CF,symptoms of cystic fibrosis,causes of cystic fibrosis,cystic fibrosis information,Pseudomonas,Burkholderia cepacia,Pseudomonas aeruginosa,respiratory treatment,chest physiotherapy,cpt,digestive enzymes,mucus,sputum,mal absorption,chronic lung infections,antibiotics,James,James Binegar ENTER if(this.options[this.selectedIndex].value)> HOME Cystic Fibrosis Information CF. Complications CF Kids / Parents What is Cystic Fibrosis CF Research/ Health News Treatments/ Medications Environmental Complications Cystic Fibrosis Journal CF Zone Nutritional Needs Fundraising/ Awareness/ Products Work/ Insurance Transplant Links Featured CF Fundraiser My Profile Website Dedication My Artwork Gallery I Gallery II Gallery III Gallery IV Gallery V Gallery VI Gallery VII Personal CF Web Sites CF Peacock Awards CF Tributes/ Memorial Sites Awards and Recognitions value="">My Favorite links

70. Cystic Fibrosis -
It used to be that most people with cystic fibrosis didn t live beyond their teens. But earlier detection and better treatments have improved the outlook.

71. OEF Stichting Ouderen En Cystic Fibrosis
Voor volwassen CFpati«nten, hun partners, broers en zussen, met als doel onderling ervaringen uit te wisselen via een mailinglist.
Op deze pagina worden frames gebruikt, maar uw browser ondersteunt geen frames.

72. The Boomer Esiason Foundation - Fighting Cystic Fibrosis
The Boomer Esiason Foundation Home page contains cystic fibrosis news and BEF Highlights.
For more information on the Logitech Football Challenge click here CYSTIC FIBROSIS PODCAST
Hosted by Jerry Cahill
To Listen to Dylan Mortimer Interview click here

73. Genentech
Uses human genetic information to develop and manufacture pharmaceuticals such as growth hormones, tissueplasminogen activators to dissolve blood clots, and cystic fibrosis therapeutics.

74. Fish Oils And Emphysema/cystic Fibrosis
Summaries of the latest research concerning fish oils and emphysema and cystic fibrosis.
Fish Oils and Emphysema/Cystic Fibrosis
Summaries of the latest research concerning fish oils and emphysema/cystic fibrosis Lung disease and fish oils - A review of the evidence
BOSTON, MASSACHUSETTS. The idea that fish and fish oils may protect against lung disease developed from early studies of the dietary habits of Greenland Eskimos. Dr. D.F. Horrobin hypothesized that the high content of omega-3 fatty acids in the Eskimo diet is at least partially responsible for the low prevalence of lung disease in this population group. This makes biological sense inasmuch as omega-3 fatty acids (notably from fish and fish oils) are known to inhibit the synthesis of the inflammatory eicosanoids involved in lung diseases. Dr. Schwartz concludes that there is a good case for fish and fish oils being protective against the development of chronic lung diseases, but that more research is needed to establish conclusive proof of benefits.
Schwartz, Joel. Role of polyunsaturated fatty acids in lung disease. American Journal of Clinical Nutrition, Vol. 71 (suppl), January 2000, pp. 393S-96S Intravenous fish oil infusion safe for CF patients
NEW YORK, NY. Seriously ill cystic fibrosis (CF) patients cannot absorb fats and other nutrients properly and therefore often need infusions of essential fatty acids. These infusions are most often based on linoleic acid as many CF patients have been found to have a deficiency of this omega-6 fatty acid. There is now substantial evidence that long-chain omega-3 fatty acids found in fish oils can suppress inflammatory processes such as those involved in CF.

75. Cystic Fibrosis
cystic fibrosis national and international groups, clinics with genetic counselors and geneticists.
Cystic Fibrosis
Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 Phone: (800) 344-4823 [FIGHT-CF] or (301) 951-4422 Fax: (301) 951-6378 E-mail: Web site:
International Sites:

76. On The Edge - May 30, 1999
A tribute to Nikki, who died as a result of cystic fibrosis on May 25, 1999.
David Galloway Previously on the Edge
5/23: Nice new toy

5/16: Bad day in ComputerLand

5/9: A great use of the Internet

5/2: A new way to browse
On the Edge archive
Lessons from an angel
H eaven is an even better place this week than it was last week, with the addition of a special new angel. Marisa Nicole "Nikki" Turrentine-Hejl, my beloved stepdaughter, ended her fight with cystic fibrosis early Tuesday morning. Her mother and I and other family members were at her bedside as she took her final breath. Nikki was special to her family, and she was special to the Virtual Voyager family. She was one of our earliest voyagers when she and her mother, my dear wife Melissa, took us along with them to Australia in A Voyage Through Life . She also joined us a couple of years ago when Virtual Voyager went to Mardi Gras in New Orleans. All her family and friends, quite naturally, are sad beyond words. But in the midst of our despair, Nikki gave us many gifts, and I'd like to share a few of those with you. F irst, Nikki never lost her sense of humor. She fought this horrible disease for 22 years, and she knew the score. She didn't want to die, but by Monday morning, she knew the end was near. Carolyn, a friend and nurse who had taken care of Nikki since she was diagnosed at 5 months old, came to the room at Texas Children's Hospital and stood beside Nikki's bed for a long time as Nikki drifted in and out of consciousness. Many doctors and nurses were there with the friends and family. During one of her lucid periods, she looked up at Carolyn and said, "Fix it." Carolyn assured her everyone was doing all they knew how to do. Nikki looked up at her again and said, "Fix it, or I'm taking you with me." And this room full of people who had been so grim broke into laughter.

77. Medical References: Cystic Fibrosis
cystic fibrosis is an inherited disease that most commonly affects breathing and digestion. There is no cure but advances in treatment have improved patient
View All Chapters Find Your Local Chapter September 8, 2005
Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics
Research Funding

Perinatal Statistics

Medical References

Continuing Education

Quick Reference and Fact Sheets Cystic Fibrosis
Cystic fibrosis (CF) is an inherited disease that most commonly affects breathing and digestion. Advances in medical treatment continue to improve the outlook for affected children and adults. However, there is no cure. Most affected individuals survive to about age 30, though some die in childhood and others live to age 40 or beyond.
The abnormal gene that causes CF was discovered in 1989. This discovery led to the development of tests that can help determine whether or not couples carry an abnormal gene that can cause CF in their children. Testing usually is offered to couples with a family history of this disease, though now health care providers also are offering this test to couples without a family history of CF who are planning pregnancy or who are already pregnant. Couples will be better able to decide whether they want to have the carrier test if they understand the medical problems that CF can cause and what the tests can and cannot tell them.
What Is Cystic Fibrosis?

78. Telegraph | News
'Pop singer dies after valiant battle with cystic fibrosis'. Includes details of her daily routine of oxygen, chest physiotherapy, intravenous antibiotics and taking 40 pills a day.

79. Cystic Fibrosis - Lungs: Pulmonary And Respiratory Health And Medical Informatio
Focus on Lung Therapies Respiratory Health, including extensive medical information about asthma, lung cancer and pneumonia.
document.writeln(''); MedicineNet Home Lungs Home Page > Cystic Fibrosis Search Tips
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Cystic Fibrosis
Alternative names for the disease:
Cystic fibrosis (CF)
Cystic fibrosis of the pancreas
Cystic fibrosis transmembrane conductance regulator (CFTR) Respiratory problems:
Chronic infections of the lungs
Progressive respiratory insufficiency Gastrointestinal problems (including pancreas and liver):
Pancreatic insufficiency (with no secretion of trypsin and other digestive enzymes into the intestine)
Intestinal obstruction at birth (due to this lack of digestive enzymes) Continuing deficiency of pancreatic enzymes Biliary tract obstruction (blockage of the bile system) Constriction of the common bile duct Cirrhosis of the liver (of the type called biliary cirrhosis) Recurrent episodes of pain in the right lower part of the abdomen (mimicking appendicitis) Adenocarcinoma of the ileum, a part of the small intestine (a rare problem) Heart problem: Cor pulmonale (progressive overwork and failure of the right side of the heart from the task of pumping blood through the diseased lungs) Reproductive problem: Infertility of males Laboratory findings: Positive sweat test for CF (due to salty sweat) Lack of trypsin in the stool (and high level of trypsin in blood serum) DNA testing for CF (demonstrates the presence of the common delta-F508 codon deletion or one of the other variant CF mutations)

80. Copernicus Theraputics - Home
Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors.
Copernicus Therapeutics, Inc. is a privately-held company developing products for human gene therapy and vaccination. Copernicus was established in 1997 based on technologies discovered at Case Western Reserve University that provide the foundation for the use of DNA as drugs.
Copernicus is not involved in gene discovery or the linkage of genetic defects to disease. Copernicus' business focuses on using its technologies to make and sell gene therapy products to treat, cure or prevent human diseases - products that work.
Copernicus Therapeutics, Inc. presented data at the American Society of Gene Therapy meeting showing that their compacted DNA formulation can effectively transfect non-dividing human cells, solving the problem of restricted access of plasmid DNA to the nucleus. more
Copernicus has developed three technology platforms that provide unique opportunities to develop novel therapeutics. These platforms have separate therapeutic applications but, when combined, can result in synergistic advantages. more
Copernicus' technologies present opportunities for products in many important markets. The Company's delivery technologies solve many of the problems that have hindered gene therapy, with a market projected to be worth $12 billion by 2007.

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