1. UK Creutzfeldt-Jakob Disease Surveillance Unit Summarizes the research in progress at the CJD unit and also provides background information about CJD and other human spongiform encephalopathies. http://www.cjd.ed.ac.uk/

The National Creutzfeldt-Jakob Disease Surveillance Unit The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the National CJD surveillance unit based at the Western General Hospital in Edinburgh, Scotland. The unit brings together a team of clinical neurologists, neuropathologists and scientists specialising in the investigation of this disease. This document is intended to summarise the research in progress at the CJD unit and also provide some background information about CJD and other human spongiform encephalopathies. We have also provided some links to other resources and contrary points of view available on the Web. Creutzfeldt-Jakob Disease Surveillance. Figures for the number of confirmed cases of the new variant of CJD and referrals of suspected cases of CJD to the surveillance unit over the last thirteen years. NCJDSU protocol for CJD surveillance across the UK. National Referral System . From July 2004, a new national reporting system was announced by the Chief Medical Officer . This is centred on the National CJD Reporting Form to be faxed, by the notifying clinician, to the National Creutzfeldt-Jakob Disease Surveillance Unit (NCJDSU), the National Prion Clinic (NPC) and the local CCDC.

2. The Many Faces Of CJD Factsheet, latest news and families'/CJD victims' personal stories and tributes. http://www.fortunecity.com/healthclub/cpr/798/cjd.htm

web hosting domain names photo sharing The Many Faces of Creutzfeldt-Jakob Disease (CJD) Creutzfeldt-Jakob Disease (CJD) is a horrendous infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. One strain, nvCJD, is linked to bovine spongiform encephalopathy (i.e. Mad Cow Disease) in Great Britain. CJD often escapes detection. A common misdiagnosis is Alzheimer's Disease. The personal stories on this website put a face on CJD. The stories are written by teenagers and adults. Most of the stories tell of people who have died of CJD or currently have CJD. These stories describe the symptoms and progression of the disease as well as the problems in getting it correctly diagnosed. Other stories tell what it is like to receive a notice that the blood products your child received as a baby have been recalled from the market due to the theoretical risk of Creutzfeldt-Jakob Disease. While the risk may be theoretical, the anxiety that results from receiving such a notice is very real and changes one's life forever. Another story that deals with the theoretical risk of blood transmission of CJD is by a USAF Retired serviceman and former blood donor.

3. Removed: BSD And CJD Info And Resources | CDC Classic CJD Links to reports on emerging infectious diseases related to BSE and CJD in the USA and UK. http://www.cdc.gov/ncidod/diseases/cjd/cjd.htm

Home About CDC Press Room Funding ... Contact Us Search: CJD (Creutzfeldt-Jakob Disease, Classic) Home The page "BSD and CJD Information and Resources" has been removed. Please visit the following pages for more information about these diseases: Bovine Spongiform Encephalopathy (BSE) Creutzfeldt-Jakob Disease, Classic (CJD) Variant Creutzfeldt-Jakob Disease (vCJD) Prion Diseases Date: June 29, 2005 Content source: National Center for Infectious Diseases Topic Home Infection Control References and Resources Home ... and Human Services Centers for Disease Control and Prevention,1600 Clifton Rd, Atlanta, GA 30333, U.S.A Tel: (404) 639-3311 / Public Inquiries: (404) 639-3534 / (800) 311-3435

4. NINDS Forwarding Page CJD information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/cjd.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/cjd/cjd.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

5. CREUTZFELDT JAKOB DISEASE FACT SHEET 1/1998 of CJD, who gets it, symptoms, CJD and the internet, plus a resource list....... http://www.kansas.net/~cbaslock/cjd1.html

CREUTZFELDT-JAKOB DISEASE FACT SHEET 1/1998 BY DEBORAH ONEY, MASTER OF SOCIAL WORK CO-FOUNDER, BLOOD RECALL/WITHDRAWAL - CJD Creutzfeldt-Jakob Disease (CJD) is an infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. Most scientists believe CJD is caused by a prion, which is a protein. People in the United States and throughout the world get CJD. One strain nvCJD is thought to be related to bovine spongiform encephalopathy (i.e. Mad Cow Disease) in the United Kingdom. To date no nvCJD cases have been observed in the United States. Normal sterilization procedures do not inactivate the CJD infectious agent. The incubation period varies greatly with symptoms emerging in known cases in 15 months to 30 years after exposure. There is no preclinical test to determine if infection took place after a possible exposure. WHO GETS CJD AND HOW? CJD most frequently appears in people ages 50-75. However, there are victims in their 40s, 30s and even 20s. The officially stated mortality rate of about one person per million per year appears to be an under statement since CJD often escapes detection. In a Yale University study 13% of clinically-diagnosed Alzheimer patients were found on autopsy to have CJD. There are three forms of CJD: familial (about 5-10% of cases), sporadic (cause unknown, about 90-95%) and iatrogenic (caused by a medical procedure such as contaminated cadaver-derived growth hormones, dura mater implants, and cornea transplants, less than 1%). Athletes who use cadaver-derived growth hormones are at risk for CJD.

6. Creutzfeldt-Jakob Disease / Family Village Library Contacts, links and information about CJD from Family Village. http://www.familyvillage.wisc.edu/lib_cjd.htm

Creutzfeldt-Jakob Disease Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Creutzfeldt-Jakob Disease" Who to Contact Creutzfeldt-Jakob Disease Foundation, Inc. P.O. Box 5312 Akron, Ohio 44334 800-659-1991 (toll-free) 330-665-5590 (phone) 330-668-2474 (fax) Email: crjakob@aol.com Website: http://cjdfoundation.org/ This foundation was created on April 7, 1993, by two families who had each lost a relative to CJD, and the neurologist who treated the CJD patients. It seeks to promote the research, education and awareness of CJD, as well as to reach out to people who have lost loved ones to this illness. Where to Go to Chat with Others CJD Voice This is a support and discussion group dealing with the topic of Creutzfeldt Jakob Disease. We help families cope with the daily care of a CJD patient as well as discuss issues surrounding this disease. CJD News News and medical journal articles and critical information published about Creutzfeldt Jakob Disease. Learn More About It An overview of Creutzfeldt-Jakob Disease From the Creutzfeldt-Jakob Disease Foundation CJD Defined From the CJD Voice web site Creutzfeldt-Jakob Disease From the Centers for Disease Control and Prevention Web Sites CJD Voice A grass roots organization of individuals formed to support families during and after a CJD crisis.

7. Please Help Fight Creutzfeldt-Jakob Disease Personal stories of CJD and virtual memorials. Links to information and research related to CJD. http://www.angelfire.com/nc/NATURAL1/PAGE2.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire Dukes of Hazzard Share This Page Report Abuse Edit your Site ... Next Sonny's Personal Home Page ~ Page 2 PLEASE HELP FIGHT CREUTZFELDT-JAKOB DISEASE "Links" To Information And Research About CJD ~ What Is It? National Institute of Neurological Disorders and Stroke The Creutzfeldt-Jakob Disease Foundation CJD Is NOT "Mad Cow Disease" Spiroplasma May Cause Creutzfeldt-Jakob Disease ... The "CJD VOICE" Shirley's Memorial and "Reflections" Page at Virtual Memorials This page also has been set up so that the Sponsor's Sites listed below generate income. It is my intention to donate any funds from these to THE CJD FOUNDATION, Inc. and to the "TRIANGLE HOSPICE" in Hillsboro, North Carolina My desire in creating this Web Site is not for "commercial enterprise", but instead it is to raise public awareness, to promote understanding and to raise funds to combat a truly awful human illness, Creutzfeldt-Jakob Disease And I wanted to honor the One Very Special Person in my life, my wife and love Shirley, who was afflicted by CJD.

8. Tufts Neurology: Creutzfeldt-Jakob Disease And Other Prion Diseases Image of brain biopsy specimen of patient with CJD, and links to relevant articles. http://tuftsneurology.org/webres/prion.htm

Creutzfeldt-Jakob Disease Plastic-embedded section of a brain-biopsy specimen from a patient with sporadic Creutzfeldt-Jakob disease, showing intracytoplasmic vacuoles containing fragments and loops of membranes (arrow). (Cresyl violet, x300) N Engl Med 1998 Dec 31;339(27):1994-2004 MEDLINE Medical Progress: Creutzfeldt-Jakob Disease and Related Transmissible Spongiform Encephalopathies .N Engl J Med 1998 Dec 31;339(27):1994-2004.Johnson RT, Gibbs CJJ Jr. Dr. Johnson at Meyer 6-181, Johns Hopkins Hospital, Baltimore, MD 21287. The 14-3-3 brain protein in cerebrospinal fluid as a marker for transmissible spongiform encephalopathies . N Engl J Med 1996 Sep 26;335(13):924-30 Hsich G, Kenney K, Gibbs CJ, Lee KH, Harrington MG. Laboratory of Central Nervous System Studies, National Institutes of Health, Bethesda, MD 20892-4122, USA. Loss of cerebellar Purkinje cells in aged mice homozygous for a disrupted PrP gene . Nature 1996 Apr 11;380(6574):528-31. Sakaguchi S, Katamine S, Nishida N, Moriuchi R, Shigematsu K, Sugimoto T, Nakatani A, Kataoka Y, Houtani T, Shirabe S, Okada H, Hasegawa S, Miyamoto T, Noda T. Department of Bacteriology, Nagasaki University School of Medicine, Nagasaki, Japan. Altered circadian activity rhythms and sleep in mice devoid of prion protein.

9. Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD) Details of the BloodCJD international e-mail support group for blood product withdrawal notification recipients due to the theoretical risk of CJD. http://members.aol.com/debbieoney/blood.htm

Never doubt That a small group Of dedicated people Can change the world. Indeed, It is the only thing That ever has. Margaret Mead Welcome to the Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD) website. This website is the home of the Blood-CJD support/discussion group. It was created to fill the needs of people who have received notices that the blood products that they, or their children, received, or that were used in the In Vitro Fertilization (IVF) cultures that produced their children, were recalled/withdrawn from the market because a member of the donor pool was diagnosed with Creutzfeldt-Jakob Disease (CJD) or was at risk for the disease. CJD is an infectious rapidly progressive fatal brain-deteriorating disease. It is a member of the class of diseases called Transmissible Spongiform Encephalopathies (TSEs). Another TSE is Bovine Spongiform Encephalopathy (i.e. Mad Cow Disease). Note: We try to present different views on issues when possible. Therefore, the views represented by the authors of the linked web pages do not necessarily represent the views of Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD).

10. Creutzfeldt-Jakob Disease Information Page National Institute Of CreutzfeldtJakob Disease (CJD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Creutzfeldt-Jakob Disease Fact Sheet National Institute Of More about CreutzfeldtJakob Disease Studies with patients Research literature Press releases. Disclaimer Search NINDS (help) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Official Mad Cow Disease Home Page The Internet's largest and most authoritative site for prions, mad cow disease (bovine spongiform encephalopathy or BSE), scrapie, CreutzfeldtJakob http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. UK Creutzfeldt-Jakob Disease Surveillance Unit CreutzfeldtJakob Disease Surveillance. Figures for the number of confirmed cases of the new variant of CJD and referrals of suspected cases of CJD http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Creutzfeldt-Jakob Disease Foundation, Inc. Welcome to the CreutzfeldtJakob Disease Foundation Website. We hope you will find all the information you need. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Bovine Spongiform Encephalopathy (BSE) And Creutzfeldt Jakob Disease Bovine Spongiform Encephalopathy (BSE) CreutzfeldtJakob Disease, Classic (CJD) Variant Creutzfeldt-Jakob Disease (vCJD) Prion Diseases http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. Tests Negative For Mad Cow Disease of meat products contaminated with BSE is linked to about 150 human deaths from a fatal disorder called variant CreutzfeldtJakob disease. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Bovine Spongiform Encephalopathy (BSE) Consumer Information. Risks From CattleDerived Cosmetics Ingredients. Travelers' information (CDC) BSE and Creutzfeldt-Jakob disease (CDC) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Creutzfeldt Jakob Disease (WHO) World Health Organization factsheet on CJD. Includes brief history, different forms of the disease, clinical features, diagnosis, epidemiology, CJD/BSE link and WHO involvement. http://www.who.int/inf-fs/en/fact180.html

19. Bovine Spongiform Encephalopathy - Public Inquiry And Response Establish and review the history into the emergence and identification of BSE and new variant CJD in the United Kingdom. Opened 9 March 1998. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. BSEInfo.org The Source For Bovine Spongiform Encephalopathy An information resource produced by National Cattlemen's Beef Association, on Bovine Spongiform Encephalopathy (BSE) and CreutzfeldtJakob Disease http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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