101. Children Living With Inherited batten disease – Infantile Form batten disease – Late Infantile Form.batten disease – Northern Epilepsy. Progressive Epilepsy with Mental Retardation http://www.climb.org.uk/Disorders/Bravo.htm

Search Our Site C hildren L iving with I nherited M eta b olic Diseases Metabolic Diseases 'B' The National Information and Advice Centre for Metabolic Diseases Disease Also Known as Bannayan Riley Ruvulcaba Syndrome Bardet-Biedl Syndrome Bartter Syndrome Bartter Syndrome - Neonatal Batten Disease – Adult Form Kufs Batten Disease – General Batten Disease – Infantile Form Batten Disease – Juvenile Form Batten Disease – Late Infantile Form Batten Disease – Northern Epilepsy Progressive Epilepsy with Mental Retardation Batten Disease – Variant Forms Beals Syndrome Becker Muscular Dystrophy BEHR Syndrome Bernard Soulier Syndrome Bethlem Myopathy Bifunctional Protein Deficiency Bilateral Striatal Necrosis Biopterin Metabolism Defects Biotinidase Deficiency Bisphosphoglycerate Mutase Deficiency Blepharophimosis Bloom Syndrome Blue Diaper Syndrome Blue Rubber BLEB Nevus Syndrome

102. Crop For Chris batten disease is a fatal, inherited disorder of the nervous system that Eventually, children with batten disease is often fatal by the late teens and http://www.scrapbookingmomentsintime.com/batten.htm

WHAT IS BATTEN DISEASE? Batten Disease is a fatal, inherited disorder of the nervous system that begins in childhood. Early symptoms of the disorder usually appear between the ages of 5 and 10 when parents or physicians may notice a previously normal child has begun to develop vision problems or seizures. In some cases the early signs are subtle, taking the form of personality and behavior changes, slow learning, clumsiness, or stumbling. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten Disease is often fatal by the late teens and twenties Batten disease is named after the British pediatrician who first described it in 1903. Also known Spielmeyer-Vogt-Sjogren-Batten disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses (or NCLs). Although Batten disease is usually regarded as the juvenile form of NCL, some physicians use the term Batten disease to describe all forms of NCL HOW MANY PEOPLE HAVE THESE DISORDERS?

103. Welcome To Nathan's Battle Details a boy's fight against batten's disease and dedication to promote awareness to help find a cure. http://www.nathansbattle.com

Giving Opportunities Scientific Effort NB in the Media What is Batten's? ... Other Ways to Help Current Events/News as of 07/05 Click for upcoming Fund Raisers 05/05 - "Nathan's House" is being built to raise money for NBF 01/05 - Stem Cells Inc. Files IND for human clinical trials 06/04 - Gene transfer clinical trial begins!!- Winning Battles to win the war! ... 6/01 - CBS 48 Hours, More Details Check out History of Accomplishments and Scientific Effort to find out the latest Now by Targeting Potential Donors Read the History of Accomplishment to see the chronicle of our successes We founded the Nathan's Battle Foundation to aid in the development of therapies for this deadly disease. Through the foundations efforts we found a potential cure. In late 2000, we initiated a formal project with Cornell University's Weill Medical College to develop this life saving treatment and initiate a clinical trial.

104. BBC NEWS | Health | Batten's Disease Claims Rhys's Sister Charly Daniels, the 10year-old sister of batten s disease victim Rhys Daniels,dies after losing her fight against the same crippling condition. http://news.bbc.co.uk/hi/english/health/newsid_277000/277237.stm

CATEGORIES TV RADIO COMMUNICATE ... INDEX SEARCH You are in: Health News Front Page World UK ... Programmes SERVICES Daily E-mail News Ticker Mobile/PDAs Text Only ... Help EDITIONS Change to World Wednesday, 10 February, 1999, 23:48 GMT Batten's disease claims Rhys's sister Rhys and Charly with their parents Charly Daniels, the 10-year-old sister of Batten's disease victim Rhys Daniels, has died after losing her fight against the same condition. Her death came within weeks of her brother's. He died from the rare genetic disease three days before Christmas last year. Charly Daniels: Always looked content Batten's disease is a progressive disorder which causes blindness, deafness and loss of muscle control. It is usually fatal by the age of 10. It is understood that Charly's funeral will be on Friday, the day before her parents are due to host a charity Valentine's Ball at the Hilton Hotel in London. A number of celebrities - including Pauline Quirke and Samantha Janus - who support the Rhys Daniels Trust are expected to attend. Double tragedy The children's parents, Barry and Carmen Daniels, have campaigned tirelessly to help other sufferers of Batten's disease. They also have a healthy three-year-old daughter called Bliss.

105. Health Information Resource Database: Batten's Disease Support And Research Asso The batten s disease Support and Research Association (BDSRA) was formed by a The Association assists with the National batten s disease Registry which http://www.health.gov/NHIC/NHICScripts/Entry.cfm?HRCode=HR2451

106. BBC - Radio 4 - Woman's Hour -Batten's Disease The group of diseases known as batten s disease are degenerative and geneticdiseases that occur in both children and adults. The first sign that something http://www.bbc.co.uk/radio4/womanshour/2002_05_mon_03.shtml

@import url('/includes/tbenh.css') ; @import url(/radio4/womanshour/secondary.css); Home TV Radio Talk ... A-Z Index 8 September 2005 Text only BBC Homepage BBC Radio Listen online to Radio 4 Listen Live Woman's Hour home Listen Again ... Help Like this page? Send it to a friend! Batten's Disease Monday 28 January 2002 Listen to this item The group of diseases known as Batten's disease are degenerative and genetic diseases that occur in both children and adults. The first sign that something is wrong is that a person has seizures and becomes unsteady on their feet. The illness leads to a progressive deterioration of the brain and nervous system and eventually death. There is a one in a million chance of carrying the defective gene, but if both parents are carriers, then the disease is likely to be passed on to their children. Jenni talks to Dr Ruth Williams from Great Ormond Street Hospital who works with families like the Shones, and also to Dr Chris Markland from the Batten's Disease support group. And Jill Hopkins talks to the Shone family both of whose daughters have the disease. Shone Family Website UK Batten's Support Group The BBC is not responsible for the content of external websites.

107. SeeAbility - About Us Home Page - Research - Juvenile Batten's Disease Links SeeAbility works with people who are blind or partially sighted and have additionaldisabilities such as physical and learning disabilities mential health http://www.seeability.org/about/juvenile.asp

Leap top navigation Jump to main content Search the site: H ome A bout us ... Jump to main content Appeals Can you help us with our current appeals You can help Find out how you can help us at SeeAbility. Breadcrumb trail link - Home page Breadcrumb trail link - About us home page ... Research Juvenile Batten's Disease links Juvenile Batten's Disease links Juvenile Neuronal Ceroid-Lipofuscinosis Until recently young people with Juvenile Batten's Disease in Britain have had nowhere that caters specifically for them. SeeAbility now provide a residential and day activity centre for young people with this disease together with an information network, database and support group. We have also produced a range of literature and research documents to help health professionals, parents and carers, available on request, these include: an overview research document, Care in Partnership, a study in to the social care needs of young people with Juvenile Batten's disease and their families, an Information leaflet for Parents and Carers an Information leaflet for General Practitioners an Information leaflet for Nurses - the latter stages of the disease.

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Page 6     101-107 of 107    Back | 1  | 2  | 3  | 4  | 5  | 6