21. NCL-Gruppe Deutschland E.V. Der Verein stellt sich und seine Ziele vor und informiert ¼ber die Erkrankung Neuronale Ceroid Lipofuszinose (NCL, engl. batten disease). http://www.ncl-deutschland.de/

NCL/Neuronale Ceroid Lipofuszinose/Stoffwechselerkrankungen/Epilepsie/Kinder/Batten Disease/Selbsthilfegruppen/Behinderung/Blindheit/Eltern/BAGH/Eurordis/Aktion-Mensch/ NCL-Gruppe Deutschland e.V. Gemeinnütziger Verein zum Wohle an N euronaler C eroid L ipofuszinose erkrankter Kinder Wir über uns Album NCL - Was ist das ? Gästebuch Neues aus der Forschung Links Recht - Aktuell Aktuelles Spendenkonto Regionalgruppen: Kontakt letztes Update am 29.08.2005 NORD WEST Kalender .Besucher MITTE/SÜD OST Für einzelne Inhalte von Internetseiten zu denen wir auf unserer Homepage Links installiert haben, übernehmen wir keine Verantwortung.

22. Hoosiers Raise Millions To Help Find Cure For Batten Disease Yes. No 7 days Archive July 18, 2005. Hoosiers raise millions to help find cure for batten disease. Star report http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

23. Batten Disease / Family Village Library batten disease Support and Research Association (BDSRA) 120 Humphries Dr., Suite 2 Gene for Last Major Form of batten disease Discovered http://www.familyvillage.wisc.edu/lib_batt.htm

Batten Disease Related Disorders: Santavnori, Jansky, Bielschowsky, Spielmeyer, Sjogren, Kuf, Parry. Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Batten Disease" Who to Contact Batten Disease Support and Research Association (BDSRA) 120 Humphries Dr., Suite 2 Reynoldsburg, OH 43068 E-mail: bdsra1@bdsra.org Web: http://bdsra.org/ The Batten Disease Support and Research Association (BDSRA) is an international support and research networking organization that works with families of children and young adults with the inherited neurological degenerative disorder, Battens Disease. They act as a national registry for NCL researchers throughout the world, maximize the opportunities of patients with Batten to lead as normal a life as possible, educate lay persons and professionals about the special needs of patients and their families, and provide a parent communication network for information and emotional support. The association has local chapters and a directory of these is available. They will provide assistance to an individual who wishes to start a local support group, and do parent-to-parent matching. The Batten Disease Support and Research Association publishes a quarterly newsletter

24. BDFA Batten Disease Family Association Homepage batten disease Family Association. A supportive, informative, networking organisation for the families, carers and professional giving care to http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

25. BDSRA - Batten Disease Support And Research Association Although batten disease is usually regarded as the juvenile form of NCL, Juvenile NCL (batten disease) begins between the ages of 5 and 8 years of age. http://www.bdsra.org/batten.htm

Batten Disease General Information What is Batten Disease? What is the history of Batten Disease? What are the other forms of NCL? How many people have these disorders? ... Where can I find more information? What is Batten Disease? Batten Disease is named after the British pediatrician who first described it in 1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses (or NCLs). Although Batten Disease is usually regarded as the juvenile form of NCL, it has now become the term to encompass all forms of NCL. The forms of NCL are classified by age of onset have the same basic cause, progression and outcome but are all genetically different. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten Disease/NCL become blind, bedridden, and unable to communicate and presently is always fatal. Batten Disease is not contagious or, at this time, preventable.

26. Home Page relevant to the discovery of treatments for the most common degenerative brain disease of children, JNCL (commonly known as batten disease). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

27. Introduction: Batten Disease - WrongDiagnosis.com Introduction to batten disease as a medical condition including symptoms, diagnosis,misdiagnosis, treatment, prevention, and prognosis. http://www.wrongdiagnosis.com/b/batten_disease/intro.htm

Home Symptoms Diseases Risks ... Diseases Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Batten Disease Next sections Basic Summary for Batten Disease Prognosis of Batten Disease Types of Batten Disease Symptoms of Batten Disease ... Diagnostic Tests for Batten Disease Next chapters: Ptosis Benign essential blepharospasm Binswanger's Disease Brachial Plexus Injury ... Feedback Introduction: Batten Disease Batten Disease: Rare childhood genetic degenerative nerve system disease. Batten Disease: Batten disease is a fatal, inherited disorder of the nervous system that begins in childhood. Researching symptoms of Batten Disease: Further information about the symptoms of Batten Disease is available including a list of symptoms of Batten Disease , or alternatively return to research other symptoms in the symptom center Treatments for Batten Disease: Various information is available about treatments available for Batten Disease current research about Batten Disease treatments , or research treatments for other diseases.

28. Article: NINDS Batten Disease Information Page: NINDS - WrongDiagnosis.com Medical article NINDS batten disease Information Page NINDS including all symptom,diagnosis, misdiagnosis, treatment and prevention information. http://www.wrongdiagnosis.com/artic/ninds_batten_disease_information_page_ninds.

Home Symptoms Diseases Risks ... Newsletter Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: NINDS Batten Disease Information Page: NINDS Next chapters: NINDS Behcet's Disease Information Page: NINDS NINDS Bell's Palsy Information Page: NINDS NINDS Benign Essential Blepharospasm Information Page: NINDS NINDS Binswanger's Disease Information Page: NINDS ... Feedback NINDS Batten Disease Information Page: NINDS Article title: NINDS Batten Disease Information Page: NINDS Conditions: Batten Disease What is Batten Disease? Batten disease is a fatal, inherited disorder of the nervous system that begins in childhood. In some cases, the early signs are subtle, taking the form of personality and behavior changes, slow learning, clumsiness, or stumbling. Symptoms of Batten disease are linked to a buildup of substances called lipopigments in the body's tissues. Lipopigments are made up of fats and proteins. Because vision loss is often an early sign, Batten disease may be first suspected during an eye exam. Often, an eye specialist or other physician may refer the child to a neurologist. Diagnostic tests for Batten disease include blood or urine tests, skin or tissue sampling, an electroencephalogram (EEG), electrical studies of the eyes, and brain scans. Is there any treatment?

29. The Australian Chapter Of Batten Disease Support And Research Association The Australian Chapter of batten disease Support and Research Association BDSRA Community Support Batten s in the Media Support for Families http://www.battens.org.au/

The Australian Chapter of Batten Disease Support and Research Association - BDSRA Battens.org.au Home About Battens Desease The BDSRA Our Special Children ... Contact Battens Awareness Day March 31st 2005 Click here for more information Site by Daniel McDonagh © BDSRA 2005 Charity No. CFN 14877 ARBN 073 435 202 ABN 56 056 138 994 batten desease bat for battens battens pages The Australian Chapter of Batten Disease Support and Research Association - BDSRA Neuronal Ceroid Lipofuscinoses mcdonalds daniel mcdonagh illadee charity

30. What Is Batten Disease? batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the batten disease is named after the British paediatrician who first http://www.battens.org.au/about.html

The Australian Chapter of Batten Disease Support and Research Association - BDSRA Battens.com.au Home About Battens Desease The BDSRA Our Special Children ... Contact What is Batten Disease? Introduction? What are the different forms? How many people have these disorders? How are the NCL's inherited? ... What Treatment or Research is happening Introduction Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Batten disease is named after the British paediatrician who first described it in 1903. It is one of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs). Although Batten disease is the juvenile form of NCL, most doctors use the same term to describe all forms of NCL. Early symptoms of Batten disease (or NCL) usually appear in childhood when parents or doctors may notice a child begin to develop vision problems or seizures. In some cases the early signs are subtle, taking the form of personality and behaviour changes, slow learning, clumsiness or stumbling. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Children become totally disabled and eventually die.

31. BATTEN DISEASE : Contact A Family - For Families With Disabled Children: Informa Contact a Family is a UK charity for families with disabled children. We offerinformation on specific conditions and rare disorders. http://www.cafamily.org.uk/Direct/b11.html

printer friendly BATTEN DISEASE home how we can help medical information index of conditions ... how you can help Did you find this page helpful? yes no Batten disease: Neuronal Ceroid Lipofuscinosis Type 1 (infantile); Type 2 (late infantile); Type 3 (Juvenile); NCL; Santavuori disease; Santavuori-Haltia disease (Infantile); Jansky-Bielschowsky disease (Late Infantile Type); Vogt-Spielmeyer disease (Juvenile type); Kufs disease (Adult type) The group of diseases known as Batten disease or the neuronal ceroid lipofuscinoses (NCL) are progressive inherited metabolic diseases that occur in children and adults. The condition is named after the British paediatrician who first described it in 1903. Batten disease is relatively rare occurring in about one in 30,000 births. The illness leads to a progressive deterioration of the brain and nervous system. Although our understanding of Batten disease is improving all the time, there is at present no cure or treatment that has any significant impact on the inexorable decline in bodily functions and inevitable early death. A number of different forms of Batten disease have been identified. They are classified by age but are all genetically different.

32. SeeAbility - Press & Literature Home Page - Links - Batten Disease SeeAbility works with people who are blind or partially sighted and have additionaldisabilities such as physical and learning disabilities mential health http://www.seeability.org/press/batten.asp

Leap top navigation Jump to main content Search the site: H ome A bout us ... Jump to main content You can help Find out how you can help us at SeeAbility. Breadcrumb trail link - Home page Breadcrumb trail link - Links Batten Disease Batten Disease BDSRA Batten Disease Family Association - a supportive, informative, networking organisation for families, carers and professionals End of main page content. B ack to top Site map DDA ... Site by Registered charity: 255913. Patron: HRH The Duchess of Gloucester GCVO . SeeAbility is the operating name of The Royal School for the Blind.

33. Batten Disease batten disease Updated August 2, 2005. The Basics batten disease InformationPage National Institute of Neurological Disorders and Stroke More information http://www.noah-health.org/en/bns/disorders/batten/

Skip navigation About NOAH Help English Spanish Both Advanced NOAH Brain and Nervous System Change text size: Batten Disease Updated: August 2, 2005 The Basics Batten Disease Information Page National Institute of Neurological Disorders and Stroke Clinical Trials Batten Disease Clinical Trials.gov Information Resources Batten Disease Support and Research Association Researched by NOAH Contributing Editor: NOAH Team NOAH Brain and Nervous System Specific Nervous System Disorders > Batten Disease Health Topics Index A to Z Page of the Month Advanced Search ... Feedback

34. Search Result For "Batten Disease" batten disease Information Page; batten disease; batten disease Support and batten disease Support and Research Association; Chapters; Nathan s Battle http://www.noah-health.org/search/results.php?lang=1&keyword=Batten Disease&dtyp

35. AllRefer Health - Neuronal Ceroid Lipofuscinoses (NCLS) (Batten Disease, Jansky- Neuronal Ceroid Lipofuscinoses (NCLS) (batten disease, JanskyBielschowsky, Alternate Names batten disease, Jansky-Bielschowsky, Kufs Disease, http://health.allrefer.com/health/lipofuscinosis-info.html

AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Web health.allrefer.com You are here : AllRefer.com Health Neuronal Ceroid Lipofuscinoses (NCLS) Neuronal Ceroid Lipofuscinoses (NCLS) Definition Prevention Treatment Expectations or Prognosis ... Go To Main Page Alternate Names : Batten Disease, Jansky-Bielschowsky, Kufs' Disease, Lipofuscinoses, Spielmeyer-Vogt Definition The neuronal ceroid lipofuscinoses (NCLS) are a group of rare, inherited neurodegenerative disorders. They associated with the accumulation of an abnormal pigment in the brain called lipofuscin. These disorders can be associated with severe diseases including blindness, mental retardation, and early death. There are three main types, depending on the age it begins late infantile (Jansky-Bielschowsky), juvenile (Batten disease), and adult (Kufs or Parry's disease).

36. AllRefer Health - Neuronal Ceroid Lipofuscinoses (NCLS): Prognosis (Expectations Neuronal Ceroid Lipofuscinoses (NCLS) (batten disease, JanskyBielschowsky, Kufs Disease, Lipofuscinoses, Spielmeyer-Vogt) information center covers http://health.allrefer.com/health/lipofuscinosis-prognosis.html

AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Web health.allrefer.com You are here : AllRefer.com Health Neuronal Ceroid Lipofuscinoses (NCLS) : Prognosis of Neuronal Ceroid Lipofuscinoses (NCLS) Neuronal Ceroid Lipofuscinoses (NCLS) Definition Prevention Treatment Expectations or Prognosis Complications Support Groups Calling Your Health Care Provider Go To Main Page Alternate Names : Batten Disease, Jansky-Bielschowsky, Kufs' Disease, Lipofuscinoses, Spielmeyer-Vogt Neuronal Ceroid Lipofuscinoses (NCLS): Prognosis (Expectations) progressive visual disturbance to blindness mental deterioration if the disease is apparent in the first year of life the child is unlikely to survive beyond 10 years of age adult onset disease may be milder and associated with no loss of vision and a normal life expectancy Previous Top Next Jump to another section Definition Neuronal Ceroid Lipofuscinoses (NCLS): Prevention Neuronal Ceroid Lipofuscinoses (NCLS): Treatment Neuronal Ceroid Lipofuscinoses (NCLS): Prognosis Neuronal Ceroid Lipofuscinoses (NCLS): Complications Neuronal Ceroid Lipofuscinoses (NCLS): Support Groups Calling Your Health Care Provider Topics that might be of interest to you

37. New Center Focuses On Rare Batten Disease ? For children with batten disease and their families, the cruelty of the disease,which robs children of their sight, their cognitive faculties and http://www.news-medical.net/?id=8502

38. Protein That Causes Juvenile Batten Disease Also Plays A Key Role In Normal Cell ? The aberrant protein that causes juvenile batten disease, a fatal neurodegenerativedisorder of childhood, also plays a key role in normal cell function, http://www.news-medical.net/?id=4818

39. Health Care Information Resources Batten Disease Links batten disease Links. For more information, see Genetic conditions, batten disease batten disease Support Research Association formed in July, http://www-hsl.mcmaster.ca/tomflem/batten.html

The address of this page is: http://hsl.mcmaster.ca/tomflem/batten.html Batten Disease Links For more information, see: Genetic conditions , also in the Illness section of this resource. For more information, see: Illness, in childhood , also in the Illness section of this resource. Batten disease - formed in July, 1986, by Gary and Judith Grant Batten disease - Battens Pages from the Australian chapter of the BDSRA (above) Batten disease - Batten Disease Family Association for parents and carers of those with Batten disease in the U.K. Batten disease - raising awareness and funding to support research in Britain Batten disease - Batten Disease Information Page from the U.S. NINDS Batten disease - JNCL Research Fund Juvenile Neuronal Ceroid Lipofuscinoses is also known as Batten Disease Please read

40. Batten Disease batten disease is the juvenile form of a group of progressive neurological diseasesknown as neuronal http://my.webmd.com/hw/health_guide_atoz/nord259.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center XML News via RSS Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Health Tools Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Choose a Topic Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... For a Complete Report Batten Disease Important It is possible that the main title of the report Batten Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Batten-Mayou Syndrome Batten-Spielmeyer-Vogt's Disease Batten-Vogt Syndrome Neuronal Ceroid Lipofuscinosis, Juvenile Type Spielmeyer-Vogt Disease Spielmeyer-Vogt-Batten Syndrome Stengel's Syndrome Stengel-Batten-Mayou-Spielmeyer-Vogt-Stock Disease Disorder Subdivisions None General Discussion Batten disease is the juvenile form of a group of progressive neurological diseases known as neuronal ceroid lipofuscinoses (NCL). It is characterized by accumulation of a fatty substance (lipopigment) in the brain as well as in tissue that does not contain nerve cells. This lipopigment storage disorder is inherited, and is marked by rapidly progressive vision failure (optic atrophy), and neurological disturbances, which may begin before eight years of age. Occurring mostly in families of Northern European Scandinavian ancestry, the disorder affects the brain and may cause both deterioration of intellect and neurological functions.

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