41. Special Child: Disorder Zone Archives - Arthrogryposis Multiplex Congenita arthrogryposis Multiplex Congenita (AMC) is a musculoskeletal disorder He was diagnosed as having severe arthrogryposis Multiplex Congenita and http://www.specialchild.com/archives/dz-036.html

Disorder Zone Archives Arthrogryposis Multiplex Congenita Dylan Brown Jess Daniel Introduction Arthrogryposis Multiplex Congenita (AMC) is a musculoskeletal disorder characterized by the presence of multiple joint contractures (limitation of the range of motion of a joint) at birth. In some cases, only a few joints may be affected, however, in the classic cases of AMC, hands, wrists, elbows, shoulders, hips, feet, and knees are affected. In the more severe cases, joints in the back and jaw can be affected as well. In addition to having joint contractures, children also experience muscle weakness, which further limits movement. There may be as many as 10 to 20 different arthrogrypotic disorders, all with similar joint manifestations. However, the most common form of AMC is amyoplasia. There are many different causes of AMC, but typically it is a result of either problems with joint growth and development, decreased fetal movement (not enough room in the uterus to move), or problems with spinal development in the first 3 months of pregnancy. AMC occurs in 1 out of every 3,000 live births. In most cases, AMC is not inherited and does not occur more than once in a family. However, in about 30% of the cases, a genetic cause has been identified.

42. Arthrogryposis Definition - Medical Dictionary Definitions Of Popular Medical Te Online Medical Dictionary and glossary with medical definitions. http://www.medterms.com/script/main/art.asp?articlekey=7546

43. Index Living with arthrogryposis multiplex congenita. http://www.geocities.com/Lil_Miss_Speedie/

NAME: Jennifer Lee D.O.B: Home: New Zealand Hobbies: Listening to music (Loud!!!) Going Cross Country through the local forest in my Motorised Wheelchair yeeeehaaa!!!! Motor Sports WATCHING :o( Cuz my chair doesn't go fast enough YET for me to join in LOL :oP Crafts and Folkart Painting Socialising And best of all Entertaining my Baby Neice and Nephew Living with Arthrogryposis Multiplex Congenita Hey there, my name is Jenny, I was born with a condition called Arthrogryposis Multiplex Congenita, (AMC). Which has effected both of my shoulders, elbows, wrists, knees and feet. I was born with one straight leg and one bent leg (which I broke in the womb), and both feet are clubbed. I've had several corrective surgeries on both legs from the age of 1 to 12 years old. And thankfully have had no surgery on my arms. They gave me my first motorised wheelchair at the age of 4, but like alot of people with disabilties, they had me trying all sorts of contraptions to get me mobile, I tried trolleys 3 inches off the ground (boye did spiders look big ...), my first trolley was made by my Father.

44. Arthrogryposis Multiplex Congenita (AMC) Definition - Medical Dictionary Definit Online Medical Dictionary and glossary with medical definitions. http://www.medterms.com/script/main/art.asp?articlekey=7534

45. Stetson's AMC Help Page I have severe arthrogryposis but I am making incredible progress with a lot of love and craniosacral therapy. http://members.hometown.aol.com/_ht_a/mommy2stetson/myhomepage/profile.html

Stetson's AMC Help Page Basic Facts My name is Stetson Frogge' and I was born on January 10th, 2001. I have severe arthrogryposis but I am making incredible progress with a lot of love and cranio-sacral therapy. I have blue eyes, red hair, and a heart warming smile. I have been undergoing cranio-sacral therapy and it has improved my condition a lot. My mom would love to hear from you if you would like more information about this therapy. Her e-mail address is mrs_frogge@yahoo.com My Online Life My mom is helping me to get the word out about the incredible differance that cranio-sacral therapy is making in my life and how it has helped other people with AMC too. Please see my links. They tell you about the institute that teaches this therapy and where you can locate a therapist in your area. Cranio-sacral links The upledger institute Cranio-sacral therapists Neat page on AMC child Download AOL Instant Messenger page created with Easy Designer

46. IGA-Home Translate this page arthrogryposis eV. Auf den folgenden Seiten erhalten Sie einige Informationenrund um die AMC ( arthrogryposis Multiplex Congenita) und über unseren Verein. http://www.iga-ev.de/

Hier klicken, um Informationen anzufordern! G¤stebuch zur¼ck Letzte „nderung: webmaster@iga-ev.de IGA e.V. Herzlich Willkommen auf der Homepage der INTERESSENGEMEINSCHAFT ARTHROGRYPOSIS e.V. Auf den folgenden Seiten erhalten Sie einige Informationen rund um die AMC A rthrogryposis M ultiplex C ongenita) und ¼ber unseren Verein. Wir bitten alle Besucher unserer Homepage an der Umfrage teilzunehmen. (Befristet bis 30.09.2005) Unter Kontakte finden Sie unter anderem den zust¤ndigen Ansprechpartner aus Ihrem Bundesland HIER geht’s zum Mitgliederbereich - Zugang nur mit Benutzername und Kennwort, welches Sie nach dem Ausf¼llen des Formulars per eMail erhalten. Link

47. Tucker's Home On The Web All about a child who was born with arthrogryposis. http://members.aol.com/_ht_a/momlov4u/

Welcome to Tuckers home on the web. This is me at one hour old! This is me and my coach...Aka..Daddy! This is me now! This is my new best friend Cody. He is 2wks older then me and has amc too. This is me writing with my foot. This is how I eat. This school year, the most amazing thing happend to me. The school finally listened to me when I was complaining about the work being to easy. They gave me a test and found out that I was working way above my grade level. They moved me up to the second grade. I am the youngest in the class but I am still the smartest in there. I hope that everyone that reads my page will see that just because someone is physically handicap dosen't mean we don't have a brain. I am very smart just like many others that have to sit in a wheelchair. I don't want people to feel sorry for me because there is really nothing to feel sorry for. HOW IMPORTANT ARE GOALS IN LIFE? Making and keeping goals are the most important thing in life if we want to achieve happiness. From losing that extra weight we might have gained to finally cleaning out that junk drawer, that one that seems to catch all that little stuff, that always adds up!

48. ARTHROGRYPOSIS : Contact A Family - For Families With Disabled Children: Informa Contact a Family is a UK charity for families with disabled children. We offerinformation on specific conditions and rare disorders. http://www.cafamily.org.uk/Direct/a72.html

printer friendly ARTHROGRYPOSIS home how we can help medical information index of conditions ... how you can help Did you find this page helpful? yes no Arthrogryposis: Arthrogryposis Multiplex Congenita; AMC Arthrogryposis Multiplex Congenita (AMC) is not a diagnosis but a descriptive term which is used to describe a baby born with joint contractures affecting at least two different areas of the body. The joints may be fixed in a bent or straightened position. It is believed that such contractures may result from one of several processes that cause the unborn baby's limbs not to move properly at the time the joints are being formed. These processes fall into four main categories: problems with the nerve supply, the muscles, the connective or supporting tissues and external factors such as the blood supply to the baby or the shape of the womb. Approximately 1 in 5,000 babies are affected. Arthrogryposis includes over 150 different conditions. These include diagnoses such as Multiple Pterygium syndrome, Larsen syndrome and Freeman Sheldon syndrome . Some are relatively mild whilst others involve problems with other organs such as the brain, nervous system or muscles.

49. HannasStory Hanna Burton is a little girl with arthrogryposis. http://www.prissylady.com/

@import url(http://www.homestead.com/~media/elements/Text/font_styles.css); Judye Rodabough Judye Clisby. Geneva Clisby Michael Graham Burton Genna Clisby Geneva Burton Michael Burton Michael Clisby This is Hanna's Site! You will need the password to view some of the links. "        "  to the side of any link means that you will need the password for access. If you would like the password please The purple numbers beside the links indicate when they were last updated. All sibling and family pages have moved to the "Meet the Burton Brood" link. Have fun! P P P August 2003 New The Latest: If you would like to see what we are doing with school click on the "our homeschool" Link

50. Arthrogryposis arthrogryposis MULTIPLEX CONGENITA (AMC). Definition; Epidemiology; Pathophysiology;Etiology; Clinical Manifestations; Diagnosis; Treatment; Prognosis http://www.dpo.uab.edu/~birmie/amc.htm

ARTHROGRYPOSIS MULTIPLEX CONGENITA (AMC) Definition Epidemiology Pathophysiology Etiology ... Reference Page Definition AMC is a nonprogressive congenital neuromuscular syndrome characterized by severe joint contractures, muscle weakness, and fibrosis. Epidemiology AMC occurs in 1 out of every 3000 live births. Amyoplasia, characterized by fatty and fibrous tissue replacement of the limb muscles, is the most common form (43%). Pathophysiology The principle cause of AMC is believed to be decreased fetal movements (akinesia) caused by maternal or fetal abnormalities. It is associated with neurogenic and myopathic disorders. It is believed that the neuropathic form of AMC involves a deterioration in the anterior horn cell leading to muscle weakness and fibrosis. Etiology Several factors are implicated in AMC including hyperthermia of the fetus, prenatal virus, fetal vascular compromise, septum of the uterus, decreased amniotic fluid, muscle and/or connective tissue developmental abnormalities. Clinical Manifestations The primary joints involved (in order of decreasing prevalence) include the foot, hip, wrist, knee, elbow, and shoulder. AMC is typically symmetrical and

51. ILEANA I was born with a disability called arthrogryposis multiplex congenita, aka AMC. http://www.geocities.com/tinkerilie/

52. Introduction: Arthrogryposis - WrongDiagnosis.com Introduction to arthrogryposis as a medical condition including symptoms, diagnosis,misdiagnosis, treatment, prevention, and prognosis. http://www.wrongdiagnosis.com/a/arthrogryposis/intro.htm

Home Symptoms Diseases Risks ... Diseases Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Arthrogryposis Next sections Basic Summary for Arthrogryposis Types of Arthrogryposis Glossary for Arthrogryposis Next chapters: Polymyalgia rheumatica Hip Replacement Ankylosis Shoulder tendinitis ... Feedback Introduction: Arthrogryposis Arthrogryposis: Permanent joint spasm Contents for Arthrogryposis: Basic Summary for Arthrogryposis Types of Arthrogryposis Glossary for Arthrogryposis Diseases Did we miss something? Please provide feedback or suggestions By using this site you agree to our . Information provided on this site is for informational purposes only; it is not intended as a substitute for advice from your own medical team. The information on this site is not to be used for diagnosing or treating any health concerns you may have - please contact your physician or health care professional for all your medical needs. Please see our IMPORTANT! Use of this site is subject to our

53. Theresa's Page A personal story of an artistic woman with arthrogryposis. http://members.aol.com/terry2745/

htmlAdWH('93212823', '728', '90'); Main Physical Believe in yourself-... in the power you have to control your own life,... day by day, ...Believe in the strength that you have deep inside, ...and your faith will help show you the way. Believe in tomorrow and what it will bring- ...Let a hopeful heart carry you through, ...For things will work out if you trust and believe there's no limit to what you can do. ~Emily Mathews Family Trait: ''Always laugh, no matter how bad things are... prayer a smile will see you though" ~Grandma Rose Hi! My name is Theresa, I'm years old I was born with Arthrogryposis. When I was born the doctors told my parents that I would never be able to walk or do things for myself. We proved them wrong! With the help encouragement of my family, I walked at age My Sister had a lot to do with that, I think she was tired of carrying me! At age most children are enrolled in kindergarten with no problems. My parents had to fight to get me enrolled in public school in a regular classroom. They won, (of course!) I went to regular public schools graduated in I did everything a "normal" child would do growing up like girl scouts, camping trips, attending basketball games in high school (I live in Indiana

54. Introduction: Congenital SMA With Arthrogryposis - WrongDiagnosis.com Introduction to Congenital SMA with arthrogryposis as a medical condition includingsymptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis. http://www.wrongdiagnosis.com/c/congenital_sma_with_arthrogryposis/intro.htm

Home Symptoms Diseases Risks ... Diseases Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Congenital SMA with arthrogryposis Next sections Basic Summary for Congenital SMA with arthrogryposis Prevalence and Incidence of Congenital SMA with arthrogryposis Symptoms of Congenital SMA with arthrogryposis Statistics about Congenital SMA with arthrogryposis ... Statistics by Country for Congenital SMA with arthrogryposis Next chapters: Congenital hypothyroidism Agenesis of the corpus callosum Aicardi syndrome Anencephaly ... Feedback Introduction: Congenital SMA with arthrogryposis Congenital SMA with arthrogryposis: Type of SMA (genetic motor neuron disease) appearing from birth Researching symptoms of Congenital SMA with arthrogryposis: Further information about the symptoms of Congenital SMA with arthrogryposis is available including a list of symptoms of Congenital SMA with arthrogryposis , or alternatively return to research other symptoms in the symptom center Statistics and Congenital SMA with arthrogryposis: Various sources and calculations are available in statistics about Congenital SMA with arthrogryposis prevalence and incidence statistics for Congenital SMA with arthrogryposis , and you can also research other medical statistics in our statistics center Contents for Congenital SMA with arthrogryposis: Basic Summary for Congenital SMA with arthrogryposis Prevalence and Incidence of Congenital SMA with arthrogryposis Symptoms of Congenital SMA with arthrogryposis Statistics about Congenital SMA with arthrogryposis ... Diseases Did we miss something? Please provide

55. JDnD Dylan has a condition called arthrogryposis. http://groups.msn.com/JDnD/

var nEditorialCatId = 334; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(' Groups Groups Home My Groups Language ... Help JDnD JDnD@groups.msn.com What's New Join Now Welcome Pictures of Me!!! ... Tools Dylan Wade Brown Hi, my name is Dylan Brown, AKA, "Dylan the Villian" and I am 6-years-old. I was born with a type of Muscular Dystrophy called Neurogenic Arthrogryposis, which makes my joints stiff and makes it hard for me to move. But I don't let that get in my way. I drive my power chair like a speed demon and let very little slow me down. I am an in 1st grade this year and getting smarter everyday. I am a Pokemon Master these days, and love battling other Pokemon trainers. I've come a very long way since I was born and plan to go even further. I am all about "Me" these days and have no concept of the word "Can't". Even though I'm not able to walk or do things the same way other kids can, I know there is no limit to what I can do or become. I go ice skating, roller skating, and just started playing baseball this year. I know I'm the best...just ask me. There are tons of pictures of me on these pages if you want to take a look. I also have a little brother named Casey who is 3-years-old. We love to play and have Pokemon battles and love to gang up on mom and dad. If you would like to see pictures of him check out

56. ForAbby.com - Arthrogryposis Multiplex Congenita - Amyoplasia A site dedicated to our daughter Abby whom was born with arthrogryposis MultiplexCongenita. http://www.forabby.com/

Welcome to ForAbby.Com. This site is dedicated to our beautiful daughter Abigail Marie. Abby is a typical 3 year old girl with lots of energy and determination. She has always been a strong little girl and continues to show us how determined she is to persevere. She may have weak muscles but she has a strong heart! Abigail has a rare muscle disease called Amyoplasia a form of Arthrogryposis Multiplex Congenita. This site has been up for a little over 2 years now....and I have yet to put up information on Arthrogryposis and how it affects our little girl. I know a lot of visitors come here to research this disease...so I will try and provide as much information as possible. If you use any of this for research projects or presentations please give credit where credit is due. Also if you are using specifics about our daughter please ask us before using her info or pictures in your reports. Arthrogryposis Multiplex Congenita and Amyoplasia Arthrogryposis = curved joints Multiplex = multiple Congenita = evident at birth A = absent myo = muscle plasia = development Arthrogryposis is a rare muscle condition that occurs in approximately 1 in 3000 births. The most common form of Arthrogryposis Multiplex Congenita is Amyoplasia (40% of AMC cases or 1 in 10,000 births). Causes are varied including lack of intrauterine movement - which is suspected in our case. Multiple joint contracture can occur in all limbs but some may be more affected in the upper or lower extremities. Some cases are more severe than others including those that involve the internal organs. Treatment usually occurs soon after birth through splinting, casting, therapy and in some cases surgery. Intellectually, AMC children develop normally and in Abby's case she is a few months behind in her gross and fine motor skills and has a 4-6 month delay in speech.

57. Our Sisters Of The Heart Club Life story of a woman with multiple disabilities, including arthrogryposis multiplex congenita. http://groups.msn.com/OurSistersoftheHeartClub/arthrogryposismultiplexcon

var nEditorialCatId = 106; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(' Groups Groups Home My Groups Language ... Help Our Sisters of the Heart Club OurSistersoftheHeartClub@groups.msn.com What's New Join Now Our Sisters of the Heart Club Kimberly's Story ... Tools Welcome to "Our Sisters of the Heart Club"; a "club" designed for fun and information; to share ideas and links, etc. especially for persons who live with a disability... from a mother and daughter who are "sisters of one heart"! This website is for ALL persons- all genders and abilities included! ...feel free to post a message or links to your site! ...keep in mind that this is a family site; and is from a family- we are not responsible for content of this website- it is for fun and information-sharing. It is not for professional use. The links and information are universal web-sharing. Please ask for appropriate permissions as in photos and writings. This MSN Group is moderated by Leslie Ann Englehardt Notice: Microsoft has no responsibility for the content featured in this group. Click here for more info.

58. Our Daughter's Arthrogryposis Special needs adoption story a baby with arthrogryposis grows up to be a talentedyoung girl. http://www.comeunity.com/adoption/special_needs/arthrogryposis.html

Our Daughter's Arthrogryposis By Barb Burke Our family has come in contact with so many beautiful children and families struggling with Arthrogryposis. They have been such an inspiration and encouragement to our family! My husband and I did some ground work prior to accepting the referral of our daughter from the adoption agency. We attended a full-day seminar on Arthrogryposis at our local Children's Hospital headed by Dr. Judith Hall, the leading expert on the subject. She has researched this condition for the past 20 years and revealed cutting-edge information on the subject. I also contacted a few parents who were raising children with arthrogryposis and found them most helpful. Initial Contact We first heard of our daughter residing in a babies home in Seoul, Korea when she was 4 months old. At that time, she had been diagnosed as being born with a type of Arthrogryposis known as Amyoplasia, affecting only her upper limbs. Within 10 days of life, her biological parents placed her in the care of an agency for adoption because they were given little hope for her future, and felt unable to afford the needed care. We first met Soo (Excellent) Hee (Brilliant) through a picture at age four months. She was born with shoulders internally rotated, elbows fixed in extension,and flexion contracture of her wrists. She received range of motion by a therapist visiting her 3x's weekly in the orphanage. The US doctors believe this saved her small muscles from atrophying.

59. SupportPath.com: Arthrogryposis Multiplex Congenita SupportPath.com leads you to Internet resources for supportrelated informationon hundreds of health, personal, and relationship topics. http://www.supportpath.com/sl_a/arthrogryposis_multiplex_congenita.htm

Arthrogryposis Multiplex Congenita Also called: AMC, Amyoplasia Congenita Other topics of interest on SupportPath.com: Birth Defects disABILITIES About Us Add-A-Link ... here Online Communities / Message Boards... Adults with AMC (amc_adults) Website: http://groups.yahoo.com/group/amc_adults/ Description: "This is a mailing list for adults with arthrogryposis to come together and communicate with others affected with amc." You must register to post to this Yahoo Group Date Added: 07/19/2002 Website: Description: Yahoo Group Date Added: 08/08/2002 Arthrogryposis Support Group (arthrogryposissupportgroup) Website: http://groups.yahoo.com/group/arthrogryposissupportgroup/ Description: This Yahoo Group states: "This group was created for children and adults with amc to communicate with one another." Registration is required to post. Date Added: 07/19/2002 Online Chats... Note: Regularly scheduled chats are listed on our NEW Online Events Calendar Links in this section are primarily to chat rooms open 24/7 which may or may not be moderated. None Listed Usenet Groups...

60. Helpful Arthrogryposis Links Avenues A National Support Group for arthrogryposis Multiplex Congenita What Is arthrogryposis - From the Avenues Pamphlet http://www.angelfire.com/journal/adoptionhelp/helparthro.html

Helpful Arthrogryposis Links Arthrogryposis: A Text Atlas by Lynn T. Staheli (Editor), Judith G. Hall (Editor), Diane O. Paholke (Editor), Kenneth M. Jaffe (Editor) Avenues - A National Support Group for Arthrogryposis Multiplex Congenita What Is Arthrogryposis - From the Avenues Pamphlet Malignant Hypothermia and Arthrogryposis Arthrogryposis Clinics ... Personal Websites of Patients with Arthrogryposis Barbara Burke, owner of this website has 2 stories published in this book of 84 short stories to help others adopt. [Click on the book to order your copy] Tomorrow IS A Gift Website: Table Of Contents Introduction Older Parenting Bring the Child back... What is Christian Adoption? ... Educational SOFTWARE for KIDS Adopt Shop for a specific Adoption Book, or Click on one of my links below Adopting From: CAMBODIA PHILIPPINES DOMESTIC ... WebPage Editing This Our Adoption Families site owned by Tomorrow Is A Gift Previous 5 Sites Previous Next ... WebRings Our Site Belongs to

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