21. Avenues: A National Support Group For Arthrogryposis Multiplex Congenita Avenues a national support group for arthrogryposis. Networking MedicalProfessionals Research Publications Other Resources http://sonnet1.sonnet.com/avenues/

news Kids To Adopt Baby needs adoption Study seeks subjects e-mail avenues@sonnet.com e-mailing lists List by Diane Voigt Adults with AMC avenues: a national support group for arthrogryposis multiplex congenita networking ... melissa schmidt

22. Avenues: A National Support Group For Arthrogryposis Multiplex Congenita A support group for individuals, families, and medical professionals interested in arthrogryposis Multiplex Congenita (AMC). http://www.sonnet.com/avenues/

news Kids To Adopt Baby needs adoption Study seeks subjects e-mail avenues@sonnet.com e-mailing lists List by Diane Voigt Adults with AMC avenues: a national support group for arthrogryposis multiplex congenita networking ... melissa schmidt

23. ARTHROGRYPOSIS Contact A Family - For Families With Disabled more about us using this site how you can help Did you find this page helpful? yes no arthrogryposis arthrogryposis Multiplex Congenita; http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

24. Arthrogryposis Clinics avenues national support group for arthrogryposis networking medicalprofessionals research publications other resources about us site http://sonnet1.sonnet.com/avenues/medpros/clinic.htm

home networking medical professionals research ... other resources Arthrogryposis clinics Jump to: California Delaware Michigan New York ... Washington California Shriners Hospitals for Children, Los Angeles 3160 Geneva Street Los Angeles, CA 90020-1119 Phone: 213-388-3151 Linda Howat, NP, Clinic Coordinator Clinic held 2nd Thursday of every month. Delaware A. I. DuPont Hospital for Children P.O. Box 269 Wilmington, DE 19899 Website: http://www.nemours.org/no/aidhc/svcs/div2019.html Dr. Jayakumar, lead orthopedist Dr. Susan Nasser-Sharif , hand surgeon Marnie King, O.T. Mking@nemours.org Maureen Donohoe, P.T. Rdonohoe@nemours.org Please contact Marnie King when scheduling the first appointment so the team can be coordinated. Dr. Mena Scavina is the neurologist that the team refers to (302-651-5930). Clinic held 2nd and 3rd Friday of every month or by appointment. Michigan The University of Michigan Pediatric AMC Clinic F7822 Mott Children's Hospital Ann Arbor, MI 48109-0230

25. Arthrogryposis Multiplex Congenita (AMC) Syndrome arthrogryposis multiplex congenita (AMC) Synonyms Spine Scoliosis and kyphosis. Bones and joints arthrogryposis. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

26. Kassandra's Arthrogryposis Page For those that do not know me and about my disability, I will tell you my story. http://hometown.aol.com/arthrogryposisc/index.html

htmlAdWH('93212816', '728', '90'); Main My First Home Page Kassandra's Arthrogryposis Page Hello My Name is Kassandra Ahuero. I am fifteen years old I am A Nineth Grader at Lowry High School In Winnemucca Nevada. I am going to tell you a little about me. For those that do not know me and about my disabilaty I will tell you my story. I was Born on December 25th 1984 In Austin,Texas. I was 5lbs 2oz. My mom said I came fast,It only took 18 miniutes for me to be deliverd. When I came out the Doctors looked at me and rushed me out of the delivery room. My mom told me that she Got rely scared. It was about two hours later before my mom was allowed to see me. The doctor told her that when I cam out I was all Twisted up , My hands were curled under And my feet were turned in. At that tme my mom was very upset. She asked the doctor what was wrong with me. The doctor said" I think she has a rare condition called Arthrogryposis Multiplex Congentia. It came to be that it was my initial diagnosis. I also had an intestinal blockage as well. I have the condition named above. This condition is Multible joint contracures that are present at birth. Wich causes

27. Arthrogryposis Multiplex Congenita arthrogryposis Multiplex Congenita, a rare disorder that is present at birth (congenital), is characterized by reduced mobility of many joints of the http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. Arthrogryposis - DrGreene.com - Caring For The Next Generation Although arthrogryposis is not a familiar term to most people, arthrogryposismultiplex congenita (AMC) affects about 3 out of 1000 people, or about 750000 http://www.drgreene.com/21_107.html

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29. Kassandra's Arthrogryposis Page For those that do not know me and about my disability, I will tell you my story. http://hometown.aol.com/arthrogryposisc/

htmlAdWH('93212816', '728', '90'); Main My First Home Page Kassandra's Arthrogryposis Page Hello My Name is Kassandra Ahuero. I am fifteen years old I am A Nineth Grader at Lowry High School In Winnemucca Nevada. I am going to tell you a little about me. For those that do not know me and about my disabilaty I will tell you my story. I was Born on December 25th 1984 In Austin,Texas. I was 5lbs 2oz. My mom said I came fast,It only took 18 miniutes for me to be deliverd. When I came out the Doctors looked at me and rushed me out of the delivery room. My mom told me that she Got rely scared. It was about two hours later before my mom was allowed to see me. The doctor told her that when I cam out I was all Twisted up , My hands were curled under And my feet were turned in. At that tme my mom was very upset. She asked the doctor what was wrong with me. The doctor said" I think she has a rare condition called Arthrogryposis Multiplex Congentia. It came to be that it was my initial diagnosis. I also had an intestinal blockage as well. I have the condition named above. This condition is Multible joint contracures that are present at birth. Wich causes

30. Jamie-Lee's Arthrogryposis Multiplex Congenita Page Includes information, photographs and useful links. http://www.geocities.com/SouthBeach/Surf/7325/jamielee.html

Hello fellow cyber users! Im Jamie-Lee. This is a picture of me advertising for the Crippled Children's Association in South Australia. It's a few years old now, but a favourite. I am 11 years old, and I am new to the internet. I was born with Arthrogryposis Multiplex Congenita. Basically, this mean that my joints (i.e. elbows, knees....etc) are fixed. They don't bend....and I can't walk. Last year, I came to live with my Dad (Scott) and his wife Karen. Karen left her job so she could take the best possible care of me and my brothers and sister. Karen has made this page for me to try and locate anyone else in the world with the same condition as me. If there is anyone out there who has this condition, or knows of someone else who has, please, please email us below and tell us how it has affected you. In particular, if you are a doctor or physiotherapist who has treated anyone with this disability, also, please contact us. You may recognise me from the commercials for the "Down Every Street Appeal".

31. Arthrogryposis Multiplex Congenita / Family Village Library Learn More About It * Web Sites * Search Google for arthrogryposis MultiplexCongenita arthrogryposis Multiplex Congenita, Neurogenic Type from OMIM http://www.familyvillage.wisc.edu/lib_arto.htm

Arthrogryposis Multiplex Congenita Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Arthrogryposis Multiplex Congenita" Who to Contact Avenues-Arthrogryposis Multiplex Congenita PO Box 5192 Sonora, California, USA 95370 avenues@sonnet.com http://sonnet1.sonnet.com/avenues/ Avenues is a national support group that provides education and networking for parents and medical professionals concerned with Arthrogryposis. They have local chapters, with a directory available, and will provide parent-to-parent matching. Avenues publishes a bi-annual newsletter, Avenues , and a brochure, "What is Arthrogryposis?" This is offered in English and Spanish. Additionally, they have a new parent packet, that includes the newsletter, and brochure. Avenues has a bibliography of abstracts that are available to members and audio Cassettes for distribution. They collect information on physicians and researchers who treat/study the condition and disseminate this information to its membership. They also offer a resource packet that includes interested doctors, therapists, families, pen pals, support groups and clinics. Where to Go to Chat with Others Avenues The Avenues mailing list was created to enable discussion about Arthrogryposis and any issue related to Arthrogryposis. Anyone who is interested in discussing this is welcome to join in.

32. Victoria's Story With Arthrogryposis Living with arthrogryposis. http://members.aol.com/_ht_a/crazyus5/myhomepage/family.html

Victoria's Story with Arthrogryposis Living with Arthrogryposis Victoria was born full term weighing 5 IBs 2.5 ounces, on April 1st 1997, born with Arthrogryposis. For those of you who may not know, arthrogryposis is the precense multiple joint contractures. Victoria had them, and at every joint ex. her ankles, knees, hips, shoulders, elbows, wrists, and fingers all ten... Arthrogryposis is corrected by therapies, braces, splinting and surgery as a last resort. Victoria was transferred to Miami Childrens Hospital when she wa only 3 hours old was Victoria's 1st surgery was when she was 7 months old she had a ten hour surgery with 2 surgeons. An orthopedic and a plastic/hand specialist. They both worked together in the O.R. She had a bilateral club foot release and a right thumb release with skin graphs from her groin area. Pins were placed in her hand at 2 places and her legs. She wore casts for 6 weeks. Our Favorite Family Activities Our Future Plans Fun Family Links See more family home pages "You've Got Pictures" My Favorite Products Download AOL Instant Messenger page created with 1-2-3 Publish

33. Arthrogryposis arthrogryposis information and international support groups, clinics with geneticcounselors and geneticists. http://www.kumc.edu/gec/support/arthrogr.html

Arthrogryposis AVENUES National Support Group for Arthrogryposis PO Box 5192 Sonora, CA 95370 Phone: (209) 928-3688 E-mail: avenues@sonnet.com Support groups in USA and Internationally Arthrogryposis Group (TAG), United Kingdom (UK), physiotherapy overview (.pdf) Also See: Arthrogryposis multiplex congenita , I Alfonso, O Papazian, et. al., ( .pdf file , International Pediatrics 15(4):197-204, 2000 , Pediatric Neurology, Miami Children's Hospital Aufgrund der Seltenheit der AMC (German) Arthrogryposis multiplex congenita , Pediatric Pathology List,Wide World of Physical Therapy Arthrogryposis , Orthopedic Topics Arthrogryposis Multiplex Congenita OMIM (Online Mendelian Inheritance in Man) #108110, clinical synopsis Your child has been diagnosed with Arthrogryposis , Shriner's Hospital Arthrogryposis Multiplex Congenita (Belgian) Arthrogryposis: Personal Pages , Open Directory To locate a genetic counselor or clinical geneticist in your area: Professional Genetics Societies Genetic clinics, centers, departments

34. Arthrogryposis Multiplex Congenita (AMC) Summary, arthrogryposis marked by congenital contractures involving two or more Distal arthrogryposis is further divided into two types At least 3 http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome039.html

Multiple Congenital Anomaly/Mental Retardation (MCA/MR) Syndromes View the Full Record Syndrome arthrogryposis multiplex congenita (AMC) Synonyms Guérin-Stern syndrome Otto syndrome Rocher-Sheldon syndrome Rossi syndrome amyoplasia congenita congenital arthromyodysplastic syndrome congenital articular rigidity congenital contractures of extremities multiple congenital articular rigidity multiple congenital contractures myodysplasia fibrosa multiplex myodysplasia foetalis deformans myodystrophia foetalis deformans neuro-arthromyodysplasia pterygium universale pterygo-arthromyodysplasia congenita Summary Major Features Head and neck: Facial asymmetry, micrognathia, immobile facies, notched chin, and malar hypoplasia. Ears: Low-set ears posteriorly angulated ears, and overfolded helices. Eyes: Keratoconus, downslanting palpebral fissures, blepharoptosis, hypertelorism, ophthalmoplegia, and retinopathy. Nose: High nasal bridge. Mouth and oral structures: Highly arched palate, cleft lip, cleft palate, and trismus. Neck: Short neck, fused cervical vertebral, and pterygia.

35. LittleDeniseandherfamily My name is Denise and I was born with arthrogryposis. http://www.geocities.com/denisecsus/LittleDeniseandherfamily.html

Little Me Home    My name is Denise. I was born on November 15th 1972. I was diagnosed with Arthrogryposis Multiplex Congenita. The actual cause of the condition is unknown in my situation.     At birth my feet were clubbed, my hands were in an abnormal position and I had a cleft pallate, acutally three of them. I have had numerous surgeries and only some of them were successful.  Years of physical and speech therapy proved to be the most helpful intervention for me. Therapy only worked for me because it began at a very early age, I was still an infant.     I can speak with out any type of defect and I am mobile. I discontinued physical therapy as a pre-teen. I have since suffered for that decision. I have lost fleibility and range of motion. I have recently tried to stretch my joints but I am very forgetful and need to motivate or pay the price even further. This is me at the begining of it all, in December of 1972. Here I am at about two years of age sitting in our hallway. Life is what you make of it. It is either good or it is bad, whatever you choose.

36. Www.nlm.nih.gov/cgi/mesh/2K/MB_cgi?term=Arthrogryposis JamieLee s arthrogryposis Multiplex Congenita Pagearthrogriposis, arthrogryposis, arthrogriposis multiplex congenita, arthrogryposismultiplex congenita, Disabled, disability, crippled, wheelchair, http://www.nlm.nih.gov/cgi/mesh/2K/MB_cgi?term=Arthrogryposis

37. Desertroses_Page I was born with a condition called arthrogryposis multiplex congenita. http://www.geocities.com/desertroze2000/Desertroses_Page.html

Desertrose - Arthrogryposis Muliplex Congenita My Personal Info: I was born with a condition called Arthrogryposis Multiplex Congenita Name: Jennifer Lee Sosich D.O.B: Hobbies: Listening to Music (loud) Going Cross Country through the forest in my chair.....yeeehaaa! WATCHING Motor Sports (cuz my chair doesn't go fast enoungh for me to join in...lol) Crafts and Painting Animals Socialising with Friends Email: desertrose@zfree.co.nz

38. Dan's Place Adult male in Kentucky with arthrogryposis shares his interests. http://www.dango727.com

Last updated on August 25, 2005 My CD's My Autographs My Links FAQ ... Guestbook Hi, welcome to my page! Click around and learn a little bit about me and my interests. (Click each pic to enlarge) Me at 8 months. My parents told me I cried when they pulled the bow off...OUCH!!! Me (5) with Spiderman. Me (8) with E.T. at Universal Studios in Hollywood, California. If you have Yahoo! Messenger AOL Instant Messenger , or Google Talk my screen name is dango727. Look below to see if I'm online. Download AOL Instant Messenger In the October 2000 issue of the East Lake Eagle (a local monthly newspaper,) there was a story about me helping a lady find her lost dog. The article is below. The funny thing about it is the pic they show is not of me, the dog, or its owner. Oh well, it's about me though, so here it is for your reading pleasure. Dan's CD's - My favorite type of music is Hip-Hop. I've been into it since the early 80's. I am always looking to expand my CD collection. If you are interested in trading CD-R's with me, check out the link. Dan's Autographs - One of my biggest hobbies is collecting autographs. I don't buy, sell, or trade autographs, but if you're interested in looking at whose autographs I've obtained, check out the link.

39. Arthrogryposis Article describes arthrogryposis, its diagnosis, and treatment. http://rarediseases.about.com/cs/arthrogryposis/a/121403.htm

var zLb=4; var zIoa1 = new Array('Suggested Reading','Internet links on arthrogryposis','http://rarediseases.about.com/cs/arthrogryposis'); zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases A - B Rare Diseases: A Arthrogryposis Rare Diseases Essentials Rare Diseases: Basic Information Rare Diseases Support Groups ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); FREE Newsletter Sign Up Now for the Rare / Orphan Diseases newsletter! See Online Courses Search Rare / Orphan Diseases Stay up to date! Compare Prices Email to a friend ... Print this page Suggested Reading Internet links on arthrogryposis Most Popular Muscular Dystrophy ALD and Lorenzo's Oil Progeria Syndromes Leprosy (Hansen's Disease) ... The Elephant Man What's Hot Muscular Dystrophy Autoimmune Kidney Disease Minamata Disease Charcot-Marie-Tooth Disease ... Meckel-Gruber Syndrome adunitCM(150,100,'x55') Arthrogryposis From Mary Kugler Your Guide to Rare / Orphan Diseases FREE Newsletter.

40. Arthrogryposis Links to articles, information, and resources for arthrogryposis. http://rarediseases.about.com/cs/arthrogryposis/

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases Essentials ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); FREE Newsletter Sign Up Now for the Rare / Orphan Diseases newsletter! See Online Courses Search Rare / Orphan Diseases Arthrogryposis Guide picks A disorder in which an infant is born with contracted joints. Arthrogryposis Article describes arthrogryposis, its symptoms, diagnosis, and treatment. From the About.com Guide to Rare/Orphan Diseases. AVENUES Support group offers info, lists of doctors and hospitals, resources, and newsletter. The Arthrogryposis Group (U.K.) Site offers info, newsletter, contact lists, and resources. Contact a Family: Arthrogryposis U.K. group offers information and resources. NORD: Arthrogryposis Brief definition of the disorder, from the National Organization for Rare Disorders (U.S.). Topic Index Email to a Friend Our Story Be a Guide ... New York Times Company Hurricane Katrina About's Hurricane Blogs NY Times Coverage Where to Donate Exclusive: One Family's Story ... How to Explain to Kids Related Topics Multiple Sclerosis Parenting Special Needs Sleep Disorders Headlines Cystic Fibrosis Foundation helps Hurricane Katrina victims Robert J. Beall, Ph.D, President and CEO of the Cystic...

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