41. Anencephaly Of The Brain anencephaly of Brain From the Virtual Pathology Museum, Department of Pathology, University of Connecticut Health Center. http://radiology.uchc.edu/eAtlas/CNS/441.htm

Search Frames Search No frames PathWeb Home Feed Back ... About Anencephaly Click on Image to Enlarge it Anencephaly Shows lack of cerebral hemispheres and overlying skull as well as characteristic bulging eyes. Usually associated with facial and other malformations. Occur in 1:1000 births. If a woman has one infant with a neural tube defect the chance of occurrence of another is l:50. If she has two such infants the chance of another is 1:25. (Description By:Margaret Grunnet,M.D. ) (Image Contrib. by: Hartford Hospital ) Anencephaly Etiology Anencephaly is due to failure of the anterior neural tube to close properly during very early intrauterine life. Mothers with infants having neural tube defects have high levels of alpha feto-protein. Pathogenesis Anencephaly has been related to low levels of folic acid, obesity, hypervitaminosis A and previous infants with neural tube defects. The lesion is sporadic and has no chromosomal abnormality as far as is known.

42. Anencephaly Definition - Medical Dictionary Definitions Of Popular Medical Terms Online Medical Dictionary and glossary with medical definitions. http://www.medterms.com/script/main/art.asp?articlekey=2245

43. Jessica's Journey With Anencephaly (a Neural Tube Defect Incompatible With Life) Lost to anencephaly on December 28, 1998. Jessica's story, and photos. http://www.angelfire.com/mb/jessicasjourney/index.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire Star Wars Share This Page Report Abuse Edit your Site ... Next Jessica's Journey This web page is a memorial to my daughter, Jessica Marie and all the other precious little babies who have left this world too soon. It is my hope that those who enter here will find comfort and support and will feel a little less alone. Jessica's Journey When I was 17wks pregnant with my 5th child, I learned that she had a condition incompatible with life. She had Anencephaly ( the major portion of her brain and the top part of her skull failed to develop). We left the doctor's office devastated and in shock. What should we do? Our daughter was going to die! Should we terminate? We went home and after much prayer and against the Doctor's recommendation, we decided to continue our pregnancy*. She was, afterall, still, our precious little baby even though she had a "broken head". Many people didn't agree with our decision and couldn't understand our need to hold our baby even if only for a moment. To

44. Show HD Leaflets anencephaly is a neural tube defect (a disorder involving incomplete anencephaly occurs when the cephalic or head end of the neural tube fails to http://www.healthtouch.com/bin/EContent_HT/showallLfts.asp?lftname=NINDS194&cid=

45. Michaela Hope Bucher Lost to anencephaly February 18, 1999. Michaela's story, photos, and poems. http://www.angelfire.com/mn/michaelashope/index.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire Murderball Share This Page Report Abuse Edit your Site ... Next Welcome to Michaela's Hope a web site dedicated in memory of our precious angel, Michaela Hope Bucher, and all babies with Anencephaly. Anencephaly is a neural tube defect that causes the brain and skull to stop developing, very early, in fetal development. Anencephaly has no treatment, or cure, and is always fatal. Roughly 1 in every 1,000 pregnancies is affected by this or another neural tube defect, such as Spina Bifida. Consequently, many parents face difficult and heart wrenching decisions regarding their baby's life. They must often make these decisions with very little information about anencephaly itself which is why we have chosen to share our story. In September of 1998 a "routine" ultrasound revealed that our baby's brain and skull had not developed. Not wanting to believe that anything could be wrong with OUR baby, we searced for answers and sought second and third opinions. Doctors explained that Michaela was lacking the upper portion of her skull at about the eyebrow level and that at best, she might live for 48 hours. I was about 20 weeks pregnant at that time and our options were as follows: to have a partial birth abortion, to induce labor, or to continue with the pregnancy. We already had two beautiful healthy little boys at home, ages 4 and 19 months and couldn't imagine life without any of our children, including this one. Faced with the reality that our baby would die, Joey and I did a lot of soul searching, and after several weeks, decided to continue with the pregnancy. The decision gave us peace of mind and allowed us to focus on our baby, and the best way to love her, for however long she might be with us. Having made that decision, we contacted Doctors at Mayo Clinic in Rochester, MN and sought consultation. After a lengthly ultrasound, and discussion with both a perinatologist and a neonatologist, we left Rochester confident in our decision to carry our baby girl to term.

46. Anencephaly anencephaly is a neural tube defect a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings. http://healthlink.mcw.edu/article/921383913.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: Neurology By keywords: Receive Health Link via email! Subscribe now >> Anencephaly Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposednot covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. Although it is believed that the mother’s diet and vitamin intake may play a role, scientists believe that many other factors are also involved.

47. Anencephaly Detailed information on anencephaly, including causes, symptoms, diagnosis, and treatment. http://www.healthsystem.virginia.edu/uvahealth/peds_neuro/anenceph.cfm

[ Skip Navigation ] Health System Home For Health Answers Healthcare Professionals ... Advanced Search Health System Search Search for Information People UVa Home Health System News Health System Events (all) Health System Publications ... Making a Gift Topics Adolescent Medicine Allergy/Asthma/Immunology Blood Disorders Burns Cancer Common Injuries/Poison Tips Craniofacial Anomalies Dermatology Diabetes/Endo/Metabolism Eye Care Genitourinary/Kidney High-Risk Newborn High-Risk Pregnancy Infectious Diseases Medical Genetics Mental Health Nervous System Disorders Normal Newborns Oral Health Orthopaedics Pediatric Surgery Respiratory Disorders Terminal Illness in Children Transplantation UVa Health Topics A to Z FIND A DOCTOR Medical Genetics Pediatric Endocrinology Pediatric Epilepsy ... CLINICAL TRIALS Search This Site Anencephaly What is anencephaly? Anencephaly is a condition present at birth that affects the formation of the brain and the skull bones that surround the head. Anencephaly results in only minimal development of the brain. Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head. What causes anencephaly?

48. Calebs Memorial Memorial to Caleb who was lost to anencephaly on March 30, 1999. http://www.geocities.com/angel33099/

Welcome To Calebs Memorial This Memorial Site is for our baby Caleb, he was diagnosed with Anencephaly when I was 4 months pregnant. On that day we had a very hard decision to make but there was no doubt in my mind that I would try and carry our baby to term. There isn't a decision to me that can be the wrong decision to make, we all love our precious babies very much and will do what we feel is best. This decision is the first hard one we had to make as parents. I have made this site not only in the memory of my little angel, but for other parents who are hurting and need support. I want them to know that they are not alone, we do care. I want them to know that we know and feel their pain, and it's hard. This site is for ALL the Mommy's and Daddy's that have lost a baby to Anencephaly. May God Bless you and give you strength in your time of need. Where would you like to go? SITE MAP Please stay awhile a browse through our pages, I'm sure you'll enjoy your stay. Many thanks to Sassy for this wonderful gift!!! Feel free to place this banner on your website with a link back to this page.

49. FBR Anencephaly, Spina Bifida, And Ventral Wall Defects Pamphlets of pamphlets on anencephaly, Spina Bifida, and Ventral Wall defects....... http://www.fbr.org/publications/pamphlets/uasbvw.html

rdering information available on FBR Order Form (154K PDF) Understanding Anencephaly and Understanding Spina Bifida These two pamphlets sensitively describe the etiology, diagnosis, and prognosis of these two disorders. Line drawings gently portray the distinctive changes seen in the formation of the skull or spinal column. Reference is made to the feelings and emotions experienced by parents faced with these diagnoses prenatally or neonatally. Written at a 9th grade reading level, each pamphlet encourages discussion with genetic specialists to help provide a fuller understanding and acceptance of the situation. The use of folic acid is mentioned as a means to minimize recurrence. Internet resources are also provided. An order form (154K PDF) is available to request copies of these pamphlets. Understanding Ventral Wall Defects The distinctions between omphalocele and gastroschisis are described, including prognosis. Sensitive line drawings are used to help parents understand the diagnosis. Reference is made to the feelings and emotions experienced by parents faced with this diagnosis prenatally or neonatally. The pamphlet, written at a 9th grade reading level, encourages discussion with genetic specialists to help provide a fuller understanding and acceptance of the situation. An order form (154K PDF) is available to request copies of this pamphlet.

50. Anencephaly Provides an article about anencephaly. http://www.healthlink.mcw.edu/article/921383913.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: Neurology By keywords: Receive Health Link via email! Subscribe now >> Anencephaly Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposednot covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. Although it is believed that the mother’s diet and vitamin intake may play a role, scientists believe that many other factors are also involved.

51. EMedicine - Anencephaly Article By Robert G Best, PhD anencephaly anencephaly is a neural tube defect (NTD) in which the brain and cranial vault are grossly malformed. The cerebrum and cerebellum are reduced http://www.emedicine.com/neuro/topic639.htm

52. In Loving Memory Of Annalise Memorial to this child lost August 14, 1998, to anencephaly and spina bifada. http://www.geocities.com/simonmanz/

On The 9th June, 1998, My world came crashing down around me when I was told by two radiologists that my baby had fatal birth defects and would die. Annalise was diagnosed with neural tube defects including both anencephaly and spina bifida I live in Tasmania, Australia, and all of the personal stories on the internet are written by other Mothers who, as far as I am aware, live in America. By writing of my journey through the weeks after the  diagnosis till Annalise's eventual death, I hope my story will be of encouragement to other mothers carrying their babies to term with anencephaly or any fatal defect. I would support and encourage any mother to go with their mothering instinct to continue the pregnancy. It is worth it to be able to hold your baby in your arms. Parents, especially in Australia who need support or would like to ask any questions can feel free to contact me. I haven't seen a memorial page done from anyone in Australia  who has lost a baby to anencephaly. I apologise if I'm wrong and I'd love to hear from you. If Annalise's birth/death touches another family, as it did ours, her life had purpose. Please continue on to read of my experience. thank you for visiting Annalise's site.

53. NORD - National Organization For Rare Disorders, Inc. anencephaly is a disorder involving the incomplete development of major parts or anencephaly is classified as a neural tube defect (NTD), and that term http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Anencephaly

54. ~~~ Mourning Mommies - Welcome ~~~ A support group for women who have lost babies to anencephaly. http://www.geocities.com/mourningmommies/

All heaven was in mourning, The day that young man died. When His eyes were closed in death, Ten thousand angels cried. The angels shed their many tears, Because He was God's Son. But there is a special sadness, When God takes the very young. At times like that, I question God , Why let a child die? I cannot understand it, And I need to ask Him why. I, too, have heard the angels cry, I've heard them cry first hand. For I, too, gave up a child, And I've tried hard to understand. Yes, I received God's comfort, Though I'm grateful, I want more. I want reasons; I want meaning, I am a parent who's heart-sore. God can give, and God can take, I am well aware of this. But, why my baby - why my child? Why did God put him on His list? Did I love my child too much? Was he too good for this old earth?

55. Gross Specimens - Anencephaly anencephaly is characterized by the absence of scalp, calvarium, and normal brain, which is replaced by an angiomatous mass. The typical appearance of the http://almashriq.hiof.no/ddc/projects/health/specimens/gross-specimens/fetuses/a

Previous Index Next Anencephaly "Anencephaly is characterized by the absence of scalp, calvarium, and normal brain, which is replaced by an angiomatous mass. The typical appearance of the face (batracian phenotype) is due to absent frontal bones and shallow orbits causing protrusion of the eyeballs." Potter's Pathology of the Fetus and Infant Edited by Enid Gilbert-Barnes Mosby 1996 from the Gross Specimens collection, courtesy of AUBMC, Department of Pathology Created by the Digital Documentation Center at AUB in collaboration with Al Mashriq of , Norway. 970813/bl - Email: ddc-info@aub.edu.lb

56. For Hope. . .Index Memorial to this daughter who died four hours after birth due to anencephaly. Hope's story, photos, and poems. http://www.angelfire.com/in2/forhope6396/

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire Star Wars Share This Page Report Abuse Edit your Site ... Next I cannot say, and I will not say That she is dead-she is just away! With a cheery smile, and the wave of a hand, She has wandered into an unknown land, And left us dreaming how very fair It needs must be, since she lingers there; So think of her faring on, as dear In the love of there as the love of here; Think of her the same, I say: She is not dead-she is just away! ~ James Whitcomb Riley ~ In a baby castle just beyond my eye, My baby plays with angel toys that money cannot buy. Who am I to wish her back into this world of strife? No, play on my baby, you have eternal life. At night when all is silent and sleep forsakes my eyes, I'll hear her tiny footsteps come running to my side. Her little hands caress me so tenderly and sweet, I'll breathe a prayer and close my eyes, and embrace her in my sleep. Now I have a treasure that I rate above all other.

57. Gross Specimens - Anencephaly anencephaly. from the Gross Specimens collection, courtesy of AUBMC, Department of Pathology. Photography by Børre Ludvigsen, July 1997 http://almashriq.hiof.no/ddc/projects/health/specimens/gross-specimens/fetuses/a

Previous Index Next Anencephaly from the Gross Specimens collection, courtesy of AUBMC, Department of Pathology Created by the Digital Documentation Center at AUB in collaboration with Al Mashriq of , Norway. 970813/bl - Email: ddc-info@aub.edu.lb

58. Margo's Faith Faith was diagnosed with anencephaly while still in the womb. Her mother, Margo, chose to carry her to term. Faith was born in March of 2001, and lived until October, 2003. http://faithaminah.tripod.com/

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Star Wars Share This Page Report Abuse Edit your Site ... Next Faith Aminah Shabazz March 26, 2001 - October 4, 2003 Our Story At 20 weeks inside the womb, Faith Aminah Shabazz was diagnosed as having anencephaly. Anencephaly is a neural tube defect where a major portion of the brain and skull is not developed. Rahim comforted me as I cried and cried and prayed to God not to let this happen to us. The maternal fetal medicine specialist said that most people terminate their pregnancy. We both said that terminating the pregnancy was out of the question. The doctor then said that Faith Aminah would either be stillborn, or die within a few hours, which is typical for anencephalic babies. We kept right on praying to God for the healing of our baby. Visit after visit we kept praying for a change on the ultrasound. The result appeared to always be consistent. We told our family and friends what we were told by the doctor. Their hearts and prayers went out to us. During this time my cousin Armi was reading a Jet magazine. She called me up to share a story about having hope and faith, and believing that what God had done for Olympia McGill and her baby, Felici, he could do the same for me. After reading Olympia's story, I called information for her phone number. I left several messages for her. I was anxious to share my story after hearing how God had healed her baby. She said the doctors had also told her that her baby had no chance of survival. As months passed, Olympia and I became great friends. She was here for the birth of Faith Aminah, along with my mom. Rahim and Olympia were at my side in the delivery room.

59. Anencephaly - Lucile Packard Children's Hospital anencephaly is a condition present at birth that affects the formation of the brain and anencephaly results in only minimal development of the brain. http://www.lpch.org/diseaseHealthInfo/HealthLibrary/neuro/anenceph.html

Electroencephalography (EEG) Laboratory Motion and Gait Analysis Laboratory Movement Disorders Neurology ... Stanford, Lucile Packard Researchers Uncover Mystery Behind How Skull Plates Fuse Neurological Disorders Anencephaly What is anencephaly? Anencephaly is a condition present at birth that affects the formation of the brain and the skull bones that surround the head. Anencephaly results in only minimal development of the brain. Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head. What causes anencephaly? Anencephaly is a type of neural tube defect. Neural tube defects, spina bifida (open spine) and anencephaly (open skull) are seen in one per 1,000 live births. During pregnancy, the human brain and spine begin as a flat plate of cells, which rolls into a tube, called the neural tube. If all or part of the neural tube fails to close, leaving an opening, this is known as an open neural tube defect, or ONTD. This opening may be left exposed (80 percent of the time), or covered with bone or skin (20 percent of the time). Anencephaly and spina bifida are the most common ONTDs, while encephaloceles (where there is a protrusion of the brain or its coverings through the skull) are much rarer. Anencephaly occurs when the neural tube fails to close at the base of the skull, while spina bifida occurs when the neural tube fails to close somewhere along the spine.

60. Loren Memorial to this son lost September 20, 1999, to anencephaly. Loren's story, photo, and poems. http://www.geocities.com/simonmanz/friend.html

The story of Loren Joseph My pregnancy was uneventful from the start...no morning sickness, felt great the whole time, and we were so thrilled to be welcoming another new life. On Friday 9/17 at the 34 week midwife appointment, all was well except for the first time I had too much amniotic fluid (polyhydramnios) and thus it was tough to palpate the baby. Midwife Carol made some dietary recommendations and we planned to meet again in one week. We arrived at Swedish after getting priority loading on the ferry, and after meeting perinatologist Dr. Chuck Petty, I received a dose of terbutaline to try and stop contractions - unsuccessful. I was so thankful for Carol's presence! I was moved to antepartum, where the nurse tried several times with difficulty to get Loren's heartbeat to pick up on the fetal monitor. Dr. Petty planned an ultrasound AND an amniocentesis as he said many times pre-term labor is caused by intra-uterine infections, which the amnio would pick up. I was very hesitant about having one done, but he advised me it would be best, so I agreed. The ultrasound tech had lovely long hair and a grumpy attitude. She scanned my belly then told me we were having a boy! What pleasure I felt...I had been correct all along in my intuition! She left the room soon after beginning the scan, which I didn't even notice as I was still excited about the gender. The radiologist came in and he started scanning, asking me to turn way over on my left side as he "could not get a

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