21. Index This is a memorial website for Thomas Scott Davidson who died from anencephaly. http://www.geocities.com/thomasscottdavidson/index.html

Thomas Scott Davidson This page is dedicated to the memory of our son, Scott. Click on any of the highlighted words to find further information on that subject as you read this page. Scott was born at Harris Methodist Hospita l in Bedford, Texas on March 18, 2003 at 8:55 pm to Darlene and Troy Davidson. He weighed only 5.9 ounces, and was at that moment both the greatest joy, and the greatest sorrow that his parents have ever known. Scott was stillborn, delivered in only his 20th week due to a tragic twist of genetic fate known as anencephaly . This condition, whose cause is generally unknown, prevents portions of the skull, and sometimes the spinal cord, from developing properly, condemning its victim to inescapable death. Although his life had passed before we ever laid eyes on him, we loved our son from the moment we knew about him, and treasure each moment we had to spend with him, knowing in our hearts that he is waiting for us even now in heaven, our little angel. Knowing that our time with him would be short we tried to capture every memento of his existance that we could, and we would like to share some of them with you including some photos,

22. Http//www.geocities.com/HotSprings/Spa/2147/anencephaly.html http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

23. Prenatal Diagnosis Here is anencephaly, which is one of the more common congenital CNS abnormalities, seen in 0.5 to 1 in 1000 livebirths. Supplementing the maternal diet http://www-medlib.med.utah.edu/WebPath/TUTORIAL/PRENATAL/PREN014.html

Here is anencephaly, which is one of the more common congenital CNS abnormalities, seen in 0.5 to 1 in 1000 livebirths. Supplementing the maternal diet (before and during pregnancy) with folate will greatly reduce the chance for such defects.

24. Jakob: "Los Monstruos Anencéfalos" Electroneurobiología 6, 72-88 (1998) Descripci³n de los tipos existentes de anencefalia. Comentarios sobre su psiquismo y estad­sticas. http://electroneubio.secyt.gov.ar/Anencephaly.htm

Keywords: anencephaly, anencefalia, anencéphale, cadacualtez, Christfried Jakob, desarrollo intelectual embrionario, Hospital Borda, gnoseology, gnoseología, brain-mind issues Gobierno de la ciudad de Buenos Aires Hospital Neuropsiquiátrico "Dr. José Tiburcio Borda" Laboratorio de Investigaciones Electroneurobiológicas y Revista Electroneurobiología ISSN: 0328-0446 LOS MONSTRUOS ANENCÉFALOS Electroneurobiología VI, 1998, pp. 72-88, originalmente publicado en Archivos de Psiquiatría y Criminología , pp. 385-398, 1910) Por CRISTOFREDO JAKOB Contacto: Vixit Electroneurobiología . Esta es una investigación de acceso público; su copia exacta y redistribución por cualquier medio están permitidas bajo la condición de conservar esta noticia y la referencia completa a su publicación incluyendo la URL original (ver arriba). / This is an Open Access article: verbatim copying and redistribution of this article are permitted in all media for any purpose, provided this notice is preserved along with the article's full citation and original URL (above). Tamaño de página impresa / Printed page size (18 pp. en este archivo .

25. Transplantation Of Organs From Newborns With Anencephaly Transplantation of organs from newborns with anencephaly Bioethics Committee, Canadian Paediatric Society (CPS) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

26. Pediatric Pathology The eyes appear proptotic with anencephaly because of the lack of the skull. Note the low set external ear. http://www-medlib.med.utah.edu/WebPath/PEDHTML/PED031.html

The eyes appear proptotic with anencephaly because of the lack of the skull. Note the low set external ear.

27. Http//www.aap.org/policy/04790.html http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. Jasmine Faith, Our Treasure In Heaven The story of my daughter, Jasmine, who was prenatally diagnosed with anencephaly. http://www.geocities.com/hopefulwomen/JasmineFaith.html

Memorial page and graphics made by: Jasmine's Mommy, Michelle Midi playing is: Hello-Goodbye by Michael W. Smith. Respectfully used with permission from Yeshua's Ministry This song was played at Jasmine's memorial. I discovered I was pregnant with our second child almost immediately. I think I sensed when I became pregnant with her. I told Rob, my husband and he said, "Already!" A home pregnancy confirmed my suspicions. At the time, our daughter, Jordan was just turned 2. I couldn't wait to give her a sibling. I dreamed of having a girl, another sweet girl to raise and love. I dreamed of having a boy, a miniature of my husband. Either way, I just wanted a healthy baby. Right from the start though, I felt there was something different about this pregnancy. Instead of gaining weight in the first trimester, I was losing weight. The midwife at the practice I went to did not seem worried, so I put it in the back of my mind. My due date was set for June 26, 1999. Once I made it through the first trimester, what could go wrong? I was so innocent. The next morning, I woke early and went downstairs. I fell to my knees and cried out to God. I said, "This is too much to bear, Lord!" He gave me two scriptures:

29. NINDS Forwarding Page Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/anencephaly_doc.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/anencephaly/anencephaly.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

30. Anencephaly / Family Village anencephaly Support Foundation 30827 Sifton Spring, Texas 77386 anencephaly This is was established for family members, friends, educators and medical http://www.familyvillage.wisc.edu/lib_anen.htm

Anencephaly Also see: Bereavement Support Who to Contact Where to Go to Chat with Others Learn More About It ... Search Google for "Anencephaly" Who to Contact: Anencephaly Support Foundation 30827 Sifton Spring, Texas 77386 Email: asf@asfhelp.com Web: http://www.asfhelp.com/ASF_files/asf_home.htm Our support group consists of families who have had a baby born with anencephaly. All of us chose to continue our pregnancies in the face of this devastating diagnosis. Our purpose is to help parents who wish to continue these pregnancies, and help examine the reasons why we believe carrying a child with anencephaly can be a fulfilling decision. We're here to share some personal stories, medical and causation information, support group resources, and other information. Where to Go to Chat with Others Anencephaly This is was established for family members, friends, educators and medical professionals interested in sharing information and/or support for parents of affected children. Blessings from Above A Christian based support club for parents newly diagnosed and carrying anencephalic babies, or who have carried anencephalic babies to term. Learn More About It NINDS Anencephaly Information Page Management of a Pregnancy With an Anencephalic Baby LLUMC Legacy: Daring to Care: Chapter Four: Anencephalic Infant Donor Protocol Personal Accounts Mary Elizabeth Karg Jessicas Journey A parent's personal experience, relating her daughter's story.

31. (Angel Austin's Site) Poetry, and photos of this child who died May 2, 2002, of anencephaly. http://www.geocities.com/austinspage2002/

As you sleep she watches Comfort in your rest Her hands are softly touching

32. Spina Bifida And Anencephaly - Healthy Kids And Pediatrics - Health And Medical A complete listing of health information about kids and teens, including acne, AIDS awareness, allergies and asthma, attention deficit disorders and http://www.medicinenet.com/spina_bifida_and_anencephaly/article.htm

document.writeln(''); MedicineNet Home Healthy Kids Home Page > Spina Bifida and Anencephaly Search Tips Printer-Friendly Format FREE Newsletters Email to a Friend ... Next Spina Bifida and Anencephaly (Neural Tube Defects) What are spina bifida and anencephaly? How does spina bifida occur? What problems does spina bifida cause? How does anencephaly occur? ... How can women get enough folic acid? What are spina bifida and anencephaly? Spina bifida and anencephaly are neural tube defects (NTDs), which are common birth defects that affect thousands of babies each year in the United States. The neural tube is an early stage of the developing nervous system in the embryo. How does spina bifida occur? Spina bifida results from the failure of the spinal column to close, usually near the bottom of the spinal cord. What problems does spina bifida cause? Persons with spina bifida usually have serious disabilities. Legs and feet are often paralyzed, and there are problems with bowel and bladder control. Learning disabilities are common and mental retardation sometimes occurs. How does anencephaly occur?

33. Www.medicinenet.com/rss/specialty/Spina_Bifida_and http://www.medicinenet.com/rss/specialty/Spina_Bifida_and_Anencephaly.xml

http://www.medicinenet.com/Spina_Bifida_and_Anencephaly/index.htm MedicineNet Spina Bifida and Anencephaly Specialty en-us Tue, 9 Aug 2005 00:00:00 PDT Tue, 9 Aug 2005 00:00:00 PDT http://www.medicinenet.com/images/mn_144x35.gif http://www.medicinenet.com/script/main/hp.asp Tue, 9 Aug 2005 00:00:00 PDT Thu, 14 Jul 2005 00:00:00 PDT Fri, 13 May 2005 00:00:00 PDT Tue, 1 Feb 2005 00:00:00 PDT Sun, 28 Nov 2004 00:00:00 PDT Wed, 26 May 2004 00:00:00 PDT Thu, 26 Feb 2004 00:00:00 PDT Wed, 14 Aug 2002 00:00:00 PDT Thu, 20 Jun 2002 00:00:00 PDT Wed, 17 Apr 2002 00:00:00 PDT Tue, 16 Apr 2002 00:00:00 PDT Tue, 16 Apr 2002 00:00:00 PDT

34. Anencephalic Angels Memorial pages to children lost to anencephaly. http://s.webring.com/hub?ring=jessica

35. Anencephaly anencephaly is a fatal neural tube defect in which the cerebral hemispheres do not develop. Typically some brainstem tissue is present, http://www.geocities.com/HotSprings/Falls/7780/images/anencephaly.html

Anencephaly Anencephaly is a fatal neural tube defect in which the cerebral hemispheres do not develop. Typically some brainstem tissue is present, but it is anatomically highly disorganized. Prenatal screening for neural tube defects has significantly decreased the number of births of infants with anencephaly, and correction of folate deficiency (now known to be an etiologic factor) is expected to reduce the incidence even further. It has been recommended that all women of childbearing age take folate supplements to reduce the risk of this devastating anomaly. With no upper brain development, there is no development of the calvarium. The result is that the eyes and eyelids are the topmost part of the body, giving the head a "frog-eyed" appearance. The side view, shown above, brings to mind some of the depictions of people and gods in Pre-Columbian Mesoamerican art. One could idly speculate that these early artists were inspired by sporadic anencephalic births among their people. The anterosuperior view of the head, shown below, demonstrates the disorganized connective tissue membrane that, in the absence of the calvarium, covers the top of the skull. These photos were shot with a Nikon FE2 on Kodak Elite daylight film, ISO 100, with a blue filter to correct for tungsten illumination.

36. Infos Anencephalie Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. Information in English, German, French, and Dutch http://www.anencephalie-info.org/

www.anencephalie-info.org Willkommen! Welcome! hier Information about the birth defect anencephaly. Help for affected parents, caregivers, family and friends. Click here to enter the English website . Bienvenue! Welkom! ici Informatie over de geboorteafwijking Anencefalie. Hulp voor betroffen ouders, familie, vrienden en andere betroffenen. Om de nederlandse versie te openen, klik hier Bienvenidos! Bem-vindo! Haga click para entrar. Entre Benvenuti! Informazioni sulla malformazione “anencefalia”. Supporto per genitori, famiglia, amici e operatori sanitari. Per accedere alle pagine in italiano, cliccate per favore qui deutsch fran§ais english ... www.anencephalie-info.org

37. My Angel Daniel Memorial to this baby lost to anencephaly on January 17, 1992. Daniel's story, and poems. http://www.geocities.com/myangeldaniel/index.htm

Daniel's Story We found out we were pregnant with Daniel in August 1991.We had only been married a few weeks but were over the moon because I had only ever wanted to be a mummy. We spent all our time from then on popping in and out of baby shops looking at things we were going to buy. I was very, very sick and seemed to be spending whole days with my head down the toilet and mentioned it to the doctor who said not to worry because it was quite normal. Apart from that we progressed nicely and had no problems, by 14 weeks even the sickness had stopped. I was really getting into the whole idea of being pregnant by now and spent large amounts of time just talking to my stomach, I wanted my baby to know my voice when it arrived.

38. Cephalic Disorder - Wikipedia, The Free Encyclopedia Although some individuals with anencephaly may be born with a rudimentary There is no cure or standard treatment for anencephaly and the prognosis for http://en.wikipedia.org/wiki/Anencephaly

Wikimedia needs your help in the final days of its fund drive. See our fundraising page Over US$225,000 has been donated since the drive began on 19 August. Thank you for your generosity! Cephalic disorder From Wikipedia, the free encyclopedia. (Redirected from Anencephaly Cephalic disorders are congenital conditions that stem from damage to, or abnormal development of, the budding nervous system . Cephalic is a term that means " head " or "head end of the body." Congenital means the disorder is present at, and usually before, birth Cephalic disorders are not necessarily caused by a single factor, but may be influenced by hereditary or genetic conditions, nutritional deficiencies, or by environmental exposures during pregnancy , such as medication taken by the mother, maternal infection, or exposure to radiation (such disorders are more common in areas of the former Soviet Union affected by nuclear waste disposal problems, such as the area around the Mayak plant in Chelyabinsk Russia .) Some cephalic disorders occur when the cranial sutures (the fibrous joints that connect the bones of the skull ) join prematurely. Most cephalic disorders are caused by a disturbance that occurs very early in the development of the

39. Anencephaly anencephaly will result if there is failure of complete fusion of the neural tube. This is the most common and most severe form of open neural tube defect http://brighamrad.harvard.edu/Cases/bwh/hcache/37/full.html

Anencephaly Frank H Miller, MD Faye C Laing, MD June 8, 1994 Presentation In this case from 1991, a 19-week fetus with elevated alpha-fetoprotein is scanned for amniocentesis. Imaging Findings Ultrasound Examination Ultrasound examination indicates that the cranium and brain are not formed. The calvarium is not visible above the orbits. Moderate polyhydramnios is apparent. Diagnosis Anencephaly Discussion After 12-13 gestational weeks, the normal fetal brain should be readily visible on transabdominal sonographic examination. Anencephaly will result if there is failure of complete fusion of the neural tube. This is the most common and most severe form of open neural tube defect and has a 5% rate of recurrence in subsequent pregnancies. Ultrasound findings include absence of the cranium cephalad to the orbits and bulging eyes ("frog-like" appearance). Polyhydramnios, which is attributed to insufficient fetal swallowing, occurs in 40-50% of cases after 26 weeks gestational age. References 1. Filly RA. Ultrasound evaluation of the fetal neural axis. In: Callen P, editor. Ultrasonography in obstetrics and gynecology. 3rd ed. Philadelphia: Saunders, 1994:219-21.

40. MyAngelAriel Memorial to baby Ariel Elisabeth Sainte Claire who lived just four hours due to anencephaly. Also a memorial to her sister Catherine Angelica Sainte Claire who was miscarried at three months. Their stories, and poems. http://myangelariel.homestead.com/

E-Mail me : azariahrose@hotmail.com This website is a memorial to my precious Angel, Ariel Elisabeth Sainte Claire, who lived for just four hours, having been born with anencephaly. Ariel became an angel on October 1st 1972 and she will bloom forever in my heart. I have also dedicated a page to her little sister, Catherine Angelica Sainte Claire who was miscarried at three months in February 1973 with, I believe, the same disorder of her beautiful sister. My two little Angels are together in Heaven You are listening to ~Calling All Angels~ Sisters United in Heaven E-Mail me : azariahrose@hotmail.com

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