1. Alstrom Syndrome UK Support Group Information centre and discussion forum for anyone with an interest in this disorder. http://www.alstrom.org.uk/

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2. Alstrom Syndrome Supporting those affected by alstrom syndrome photographs of five children with Alström Syndrome International. alstrom syndrome International logo http://www.jax.org/alstrom/

Clinical Features Mode of Inheritance Alstrom Research Medical Literature ... Resources Alstrom Syndrome We subscribe to the HONcode principles of the Health On the Net Foundation. Verify here Portions of this site require the Adobe Acrobat Reader. Click on the image below to download the reader. Alström Syndrome is a very rare, hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. Since then, there have been only 91 cases reported in the medical literature. We currently have identified 322 individuals with Alström Syndrome in thirty-nine different countries. Alström Syndrome is progressive. The first sign observed in infants is usually extreme light sensitivity (photophobia) and a wobbling of the eyes (nystagmus). Another of the first signs MAY be dilated cardiomyopathy and congestive heart failure in infants under 1 year of age. Children rapidly gain weight during their first year and become obese as young children. Later, multiple organ systems in the body can be affected resulting in blindness, hearing impairment, type 2 diabetes, heart failure, liver disease, urological dysfunction, pulmonary fibrosis, and renal failure. For additional information see Clinical Features and Gene Reviews Alström Syndrome International Our mission To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome

3. Alstrom Syndrome Clinical Features Mode of Inheritance Alstrom Research Medical Literature alstrom syndrome International ASI Conferences For Professionals Memorials http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

4. Alstrom Syndrome International UK TQ3 1LH alstrom@syndromeuk.freeserve.co.uk. Alström Syndrome Canada RR 2Box 204 Finch, Ontario K0C 1K0 613 346-2604 Randy.Douglas@nbpcd.com http://www.jax.org/alstrom/documents/sasf.html

Clinical Features Mode of Inheritance Alstrom Research Medical Literature Alstrom Syndrome International ASI Conferences For Professionals Memorials Resources ... Alstrom Syndrome We subscribe to the HONcode principles of the Health On the Net Foundation. Verify here Portions of this site require the Adobe Acrobat Reader. Click on the image below to download the reader. Mission To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome Alström Syndrome International was formed in August, 1995 at the First International Alström Syndrome "Reunion" in Yarmouth, Nova Scotia. Alström Syndrome International is intended for families, friends, and professionals worldwide whose lives have been touched by Alström Syndrome. Alström Syndrome International is reliant on membership and charitable contributions to continue to foster its goals, and is a registered nonprofit corporation. Alström Syndrome International Conferences Alström Syndrome International Board of Directors Alström Syndrome International Scientific Advisory Board The Beauty Behind the Alström Syndrome International Logo How to Become Involved?

5. Alstrom Syndrome International Medical Literature. alstrom syndrome International ASI 2004 Conference For Professionals Memorials Resources alstrom syndrome. We subscribe to the http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

6. ? Alstrom Syndrome A medical encycopedia article on the topic alstrom syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. AllRefer Health - Alstrom Syndrome alstrom syndrome information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs, tests, support groups http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. Alstrom Syndrome Definition - Medical Dictionary Definitions Of Popular Medical Online Medical Dictionary and glossary with medical definitions. http://www.medterms.com/script/main/art.asp?articlekey=20241

9. Alstrom Syndrome UK Support Group Support for people with Alstr m Syndrome and their carers This website is under constructions. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. That Stinks People With Rare Obesity Syndrome Can't Sense Odors alstrom syndrome Genetics Studied At Jackson Laboratory (July 20, 1998) Scientists at The Jackson Laboratory are working towards http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Alstrom Syndrome / Family Village Library Learn More About It * Web Sites * Search Google for alstrom syndrome Web http//www.jax.org/alstrom/. Alström Syndrome International (formerly known http://www.familyvillage.wisc.edu/lib_alst.htm

Alstrom Syndrome Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Alstrom Syndrome" Who to Contact Alström Syndrome International 14 Whitney Farm Road Mount Desert, Maine 04660 800-371-3628 (toll-free) E-mail: jdm@jax.org Web: http://www.jax.org/alstrom/ Alström Syndrome International (formerly known as Society for Alström Syndrome Families) was formed in August, 1995 at the First International Alström Syndrome "Reunion" in Yarmouth, Nova Scotia. Alström Syndrome International is intended for families, friends, and professionals worldwide whose lives have been touched by Alström Syndrome. Alström Syndrome International is reliant on membership and charitable contributions to continue to foster its goals, and is a registered nonprofit corporation. Where to Go to Chat with Others Alström Syndrome discussion group For families, professionals and anyone interested in Alström Syndrome. Learn More About It What are the clinical signs of Alström Syndrome? Alstrom Syndrome - from OMIM Web Sites Alstrom Syndrome Society Web Page Alstrom Syndrome UK Support Group Back to [ A - B Family Village Home Library Coffee Shop ... Information Last Updated 8/18/2005 by familyvillage@waisman.wisc.edu

12. Alstrom Syndrome Canada Home Page. What is Alstr m Syndrome? About Alstr m Syndrome. ASC Objectives. Director's Remarks. ASC Initiatives. What's new? http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Alstrom Syndrome links to national and international support groups, clinics with genetic counselorsand geneticists. http://www.kumc.edu/gec/support/alstrom.html

Alstrom syndrome Alstrom Syndrome International 14 Whitney Farm Road Mount Desert, ME 04660 USA Phone: 800.371.3628 E-mail: jdm@jax.org Web site: www.jax.org/alstrom Alstrom Syndrome Support Group , United Kingdom Canada Genetic counselors and clinical geneticists: Professional Genetics Societies Genetic clinics, centers, departments Alstrom Syndrome , Online Mendelian Inheritance in Man (OMIM) #203800 See Also: National organizations information on genetic conditions or birth defects Revised September 2, 2004 Genetic Societies Clinical Resources Labs Clinics ... Search Genetics Education Center Debra Collins, M.S. CGC , Genetic Counselor, dcollins@kumc.edu This site subscribes to the principles of the HONcode (Health on the Net, Code of Conduct for Medical and Health Web Sites) of the Health On the Net Foundation

14. MedlinePlus Medical Encyclopedia Alstr M Syndrome Support Groups Alstr m Syndrome International 14 Whitney Farm Road Mount Desert, Maine 04660 Expectations (prognosis) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Alstrom Syndrome / Family Village Library Who to Contact Where to Go to Chat with Others Learn More About It Web Sites Search Google for "alstrom syndrome" http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. ► Alstrom Syndrome A medical encycopedia article on the topic alstrom syndrome. http://www.umm.edu/ency/article/001665.htm

var MenuLinkedBy='AllWebMenus [2]', awmBN='530'; awmAltUrl=''; Disease Nutrition Surgery Symptoms Injury ... Z Maryland Medical Center Programs Joslin Diabetes Center Home Medical Reference Encyclopedia (English) Toggle English Spanish Alstrom syndrome Overview Symptoms Treatment Prevention Definition: an inherited disease characterized by progressive blindness juvenile onset diabetes mellitus, obesity deafness , and normal mental capacity. Alternative Names: Alstrom-Hallgren syndrome; Alstroem's retino-otodiabetic syndrome Causes, incidence, and risk factors: This is an autosomal recessive , inherited disorder. It is extremely rare. The syndrome has a higher incidence in Holland and Sweden. Review Date: 6/16/2001 Reviewed By: Elizabeth Hait, M.D., Department of Pediatrics, Rainbow Babies and Children’s Hospital, Case Western Reserve University, Cleveland, OH. Review provided by VeriMed Healthcare Network.

17. Alstrom Syndrome alstrom syndrome Support Group, United Kingdom. Alstr m Syndrome Canada Genetic counselors and clinical geneticists http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. NORD - National Organization For Rare Disorders, Inc. Synonyms of alstrom syndrome. ALMS. Disorder Subdivisions. General Discussionalstrom syndrome is a rare genetic disorder most often characterized by vision http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Alstrom Syndr

19. NORD - National Organization For Rare Disorders, Inc. alstrom syndrome UK is an international voluntary health organization dedicated alstrom syndrome is a rare genetic disorder characterized by progressive http://www.rarediseases.org/search/orgdetail_full.html?org_name=Alstrom Syndrome

20. AllRefer Health - Alstrom Syndrome Treatment alstrom syndrome information center covers Treatment. http://health.allrefer.com/health/alstrom-syndrome-treatment.html

AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Web health.allrefer.com You are here : AllRefer.com Health Alstrom Syndrome : Treatment of Alstrom Syndrome Alstrom Syndrome Definition Treatment Expectations or Prognosis Complications Support Groups Calling Your Health Care Provider ... Go To Main Page Alstrom Syndrome Treatment There is no specific treatment for this syndrome. Diabetes can be treated with oral medications, insulin, or a combination of both. Cholesterol can be reduced with medications. Hearing can be augmented with hearing aids. If heart abnormalites are present, medications such as ACE inhibitors, beta-blockers, or spironolactone can be given to improve heart function. Hypothyroidism can be treated with thyroid hormone replacement. Previous Top Next Jump to another section Definition Alstrom Syndrome Treatment Alstrom Syndrome Prognosis Alstrom Syndrome Complications Alstrom Syndrome Support Groups Calling Your Health Care Provider Topics that might be of interest to you Cardiomyopathy Diabetes Hypothyroidism Type 1 Diabetes ... Triglyceride Level Other Topics Autosomal Recessive Blindness Hearing Loss Obesity ... Vision Problems Review Date : 1/28/2003

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