1. NOAH - The National Organization For Albinism And Hypopigmentation An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences. http://www.albinism.org/

Albinism On Line Community (Formerly The Webboards) Join NOAH! Albinism Information About NOAH NOAH Events ... THANKS! Information for people who have: NOAH News Ontario, Canada Bay Area: Pennsylvania: NEW ENGLAND REGIONAL NOAH MEMBER DINNER Saturday October 1st NOAH New York City at The Jewish Museum! Thursday October 27th 6:00 pm until 7:30pm at Christmas Mountain Village on October 28-29 Press Release Conference 2004 DVDs and Merchandise still available! NOAH The National Organization for Albinism and Hypopigmentation PO Box 959, East Hampstead, NH 03826-0959 Phone: 800 473-2310 (US and Canada) Phone: 603 887-2310 Fax: 800-648-2310 http://www.albinism.org If you have any questions or comments, please e-mail us at webmaster@albinism.org NOAH is a volunteer organization for persons and families involved with the condition of albinism. It does not diagnose, treat, or provide genetic counseling. It is involved in self-help, while trying to promote research and education. Specific information for people who have: Albinism Children with albinism Patients with albinism Students with albinism ... Albinism On Line Community (Formerly The Webboards) Albinism Information About NOAH NOAH Events NOAH Projects ... Return to Top of Page This page meets the Bobby AAA (highest) accessibility rating and the US Section 508 requirements for accessibility. Read the

2. Albinism In Popular Culture Explore the mythology of albinism. http://www.lunaeterna.net/popcult/

A L B I N I S M I N P O P U L A R C U L T U R E I N T R O D U C T I O N A R T L I T E R A T U R E F I L M ... O T H E R back to the NOAH Home Page Have you come across something I may have missed? Do you have any comments? Please e-mail me and let me know LUNAETERNA ["at" sign] MINDSPRING.COM Created on July 18, 1997 by LunaEterna (Last updated January 2004)

3. Albinism Fellowship UK - Welcome Voluntary organisation that aims to provide information, advice and support, for people with albinism. http://www.albinism.org.uk/

Registered Charity in Scotland No. SC009443 Enter Standard Text Site Enter Large Text Site Discussion Forum This site is best viewed in 800x600 or 1024x768 with Mozilla Firefox , Internet Explorer 4.0+ or equivalent Unauthorised reproduction of any part this site is prohibited. Website designed, built and maintained by Daniel Hill: webmaster@albinism.org.uk All general enquiries should be e-mailed to info@albinism.org.uk If a photograph of you or a member of your family appears on this website it has been placed here in good faith, should you not wish any photo/s connected with you to be used on the site, please e-mail us and we will remove it as soon as we can.

4. MedlinePlus Medical Encyclopedia: Albinism Adam.com looks at this disorder and its alternative names. A definition and a look at the causes, incidence and risk factors. http://www.nlm.nih.gov/medlineplus/ency/article/001479.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Albinism Contents of this page: Illustrations Alternative names Definition Causes, incidence, and risk factors ... Prevention Illustrations Nevus, halo Alternative names Return to top Hypopigmentation; Oculocutaneous albinism; Ocular albinism Definition Return to top Albinism refers to a group of related conditions. These conditions are the result of altered genes that cause a defect of melanin production. This defect results in the partial or full absence of pigment from the skin, hair, and eyes. Causes, incidence, and risk factors Return to top Albinism results when the body is unable to produce or distribute pigment, called melanin, because of one of several possible genetic defects. In Type 1 albinism defects in the metabolism of tyrosine lead to failure in converting this amino acid to melanin. This is due to a genetic defect in tyrosinase the enzyme responsible for metabolizing tyrosine. Type 2 albinism is due to a defect in the "P" gene. Those with this type have slight pigmentation at birth.

5. International Albinism Center At the University of Minnesota a team of dedicated research professionals interested in understanding the basis of albinism in humans. Facts about this disorder as well as glossary of terms provided. http://albinism.med.umn.edu/

Welcome to the homepage of the International Albinism Center at the University of Minnesota. The International Albinism Center is a team of dedicated research professionals interested in understanding the basis of albinism in humans. We are a multi-disciplinary group of researchers that include interests in clinical genetics, molecular biology, ophthalmology, dermatology, and biochemistry, all with a central theme of understanding the cause and effect of albinism and other forms of pigment loss in humans. We have published several papers on different aspects of albinism as a result of this collaborative effort. Facts About Albinism - Revised This is an electronic copy of the publication Facts About Albinism written by Drs. Richard A. King, C. Gail Summers, James W. Haefemeyer and Bonnie LeRoy. This is a good source of basic information about albinism. This also contains a list of Definitions of Words at the end of the book. This is a link to a review paper on the different types of albinism and the affect of albinism on the eye. Are you doing a report on albinism?

6. Albinogene Article discussing the interactions of the incompletely dominant albinism alleles of Siamese and Burmese. http://homepages.tig.com.au/~coslinka/albinogene.html

The first of the colour-conformation genes affect coat pattern is the albinism gene. This gene controls the amount of body colour and comes in five alleles: full colour, "C", Burmese, "cb", Siamese , "cs", blue- eyed albino, "ca", and albino, "c". The full colour allele, "C" is wild, is dominant, and produces a full expression of the coat colours. This is sometimes called the non- albino allele. The Burmese allele, "cb", is mutant, is recessive to the full colour allele, codominant with the Siamese allele, and dominant to the blue- eyed albino and albino alleles, and produces a slight albinism, reduc- ing black to a very dark brown, called sable in the Burmese breed, and producing green or green-gold eyes. The Siamese allele, "cs", is mutant, is recessive to the full colour allele, codominant with the Siamese allele, and dominant to the blue- eyed albino and albino alleles, and produces an intermediate albinism, reducing the basic coat colour from black/brown to a light beige with dark brown "points" in the classic Siamese pattern and producing bright blue eyes.

7. NOAH - The National Organization For Albinism And Hypopigmentation An organization where people with albinism, their families and those that work with them can get information, ask questions and share their http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. NOAH — Publications NOAH The National Organization for albinism and Hypopigmentation logo http//www.albinism.org. If you have any questions or comments, please e-mail us http://www.albinism.org/publications/

Publications Download the pdf version. Requires Adobe Acrobat Reader You are encouraged to download these Information Bulletins as text or print from pdf format and distribute them to family, friends and appropriate professionals as long as the documents are not altered in any way. If you have any questions regarding these Information Bulletins, don't hesitate to contact NOAH for more information. English What is Albinism Que es el Albinismo? African Americans with Albinism Albinismo y Afro-Americanos ... What Do You See? La venida Pronto (coming soon) Social Aspect of Albinism Aspectos Sociales y Emocionales del Albinismo Sun Protection ... Recursos para Personas con Abinismo Funding for the development and original printing of these Information Bulletins was provided by the Innovating Worthy Projects Foundation of Somers Point, New Jersey. NOAH gratefully acknowledges their assistance. Top of Page NOAH The National Organization for Albinism and Hypopigmentation PO Box 959, East Hampstead, NH 03826-0959

9. NOAH - What Is Albinism? Types of albinism. While most people with albinism have very light skin and hair, not all do. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. Www.cbc.umn.edu/iac/facts.htm International albinism CenterThe International albinism Center Web page has moved to a new location at. http//albinism.med.umn.edu. You can click on this link, or you will be http://www.cbc.umn.edu/iac/facts.htm

11. Low Vision Associates Helping patients with the latest on low vision, whether from injury, aging, glaucoma, macular degeneration, albinism, retinitus pigmentosa, diabetes or other, specialty lenses or contacts may help. http://lowvisionassociates.com

What is Low Vision? Low Vision is a condition in which a person has some vision but it is limited.   This condition may interfere with daily pastimes such as reading and watching television.  People with low vision generally have some remaining vision with reduced sharpness, narrowed vision, haziness or blind areas. Who has Low Vision? About one out of every 6 Americans has low vision.  It can affect people of all ages. What causes Low Vision? Low vision is often the result of an injury, birth defect, the aging process, disease or condition such as ocular albinism, retinitis pigmentosa, or stargardts macular dystrophy.  If the condition develops later in life, it is usually caused by glaucoma, cataracts, macular degeneration or diabetes. Can people with Low Vision be helped? Yes!  Today many new optical devices and systems can help Low Vision patients see better.  However the patient must be motivated to see better and show a willingness to work toward that goal. Company Profile Low Vision Associates was founded in 1986 to help people with vision problems.  In that time, we have assisted thousands of patients.  Even many patients who were told by other doctors that "they could do nothing more to help them" have been helped here. Low Vision Associates specializes in fitting the latest eyeglass and contact lenses including telescopic and microscopic lenses, filtered lenses, high powered and prismatic lenses which may be helpful for many conditions.

12. Albinism albinism About one in every 17 000 people have albinism. International albinism Center The International albinism Center is a team of dedicated http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. The Low Vision Gateway Resources for finding low vision information, equipment and services on the Internet. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Albinism Fellowship UK - Home Welcome to the albinism Fellowship website. We are pleased that you have found 28th May 05 Full details of the 2005 REAL LIVES albinism Fellowship http://www.albinism.org.uk/home.html

Welcome to the Albinism Fellowship website. We are pleased that you have found us online. Please browse the site at your leisure. We look forward to continuing to be of help to you and meeting your expectations of the organisation. If you have any comments or feedback about the fellowship or the new website, please do not hesitate to e-mail us at info@albinism.org.uk Latest Updates 7th Sept 05 Booking for the 2005 'Real Lives' conference is now open . Visit the page for prices and a booking form. Book before 14th October to take advantage of our Early Bird discounts!. Please note that all bookings must be made before Friday 4th November 2005 A number of other conference pages have been updated, see the Conference Updates page for details. 18th Aug 05 - The conference information has been updated with a Places to Eat page, listing places to eat around the conference venue. 17th Aug 05 - Conference pages updated, with an international invitation letter and hostel information New group picture added to the Trustees page 31st May 05 - Details of a summer event in Dublin added to the Events Page 28th May 05 Full details of the 2005 'REAL LIVES' Albinism Fellowship Conference have now been posted on the Conferences Page 25th Apr 05 The Albinism Fellowship is currently looking for up to three new trustees to join us from autumn 2005. For more details and to apply, please see the

15. Vision Of Children - Childhood Blindness And Vision Impairment Groups aims include the eradication of hereditary childhood blindness, ocular albinism and other blindness. http://www.visionofchildren.org

Our Mission: To cure hereditary childhood blindness and other vision disorders, and to improve the lives of visually impaired individuals and their families VOC art contest coming soon! Gene Therapy for OA Mice Researchers at the Telethon Institute of Genetics and Medicine (TIGEM) recently published data from their gene therapy research on mouse models with Ocular Albinism. A summary of their article can be found here For 20 San Diego residents, VOC's fundraising dinner on February 11th combined all the elements of a perfect evening. more Grants 2005 County of San Diego * Las Patronas * William H. Donner Foundation * Warren Family Foundation * Pechanga Band of Mission Indians * Century Club of San Diego * Cubic Corporation * Delta Gamma Foundation * Sundt Foundation * The Country Friends A Vision of Hope Dimension One Spas , a leader in the spa industry, recently announced that $1 from every "Vision" cartridge sold will be donated to

16. International Albinism Center Welcome to the homepage of the International albinism Center at the University of Minnesota. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Eye Conditions > Albinism -- EyeMDLink.com An article about albinism as well as ocular albinism, related conditions, testing and who treats this. http://www.eyemdlink.com/Condition.asp?ConditionID=59

18. Heliophobe Worldwide Index A notso-sexual fetish magazine exclusively devoted to pale-skinned women. Each issue contains how-to advice on avoiding sunlight, beauty tips on accentuating paleness, and notices honoring albinism. Also, we print fiction, comics, and the photos of readers. http://www.hotweird.com/heliophobe/

Welcome to Heliophobe Worldwide, the Internet tentacle of Heliophobe magazine News Flash Forrest Jackson, PO BOX 600318, Dallas, TX, 75360 What's new? Heliophobe #3 now available! see ordering information below Heliophobe is a not-so-sexual fetish magazine exclusively devoted to pale -skinned women. Each issue contains how-to advice on avoiding sunlight, beauty tips on accentuating paleness , and notices honoring albinism . Also, we print fiction, comics, and the photos of readers. Heliophobe is certainly of interest to all Gothic girls and Death-Rock chicks (and the men who love them!). If you are a pale -skinned woman, you need this zine in order to survive the ozoneless nightmare of the future! A sample issue costs only $3.00 (US). Heliophobe does not make money by selling ad space like so many other zines out there. This is a labor of LOVE! For the sake of your only hope for a future , send a check, money order, or cleverly concealed cash to: New Address Forrest Jackson, P. O. Box 600318, Dallas, TX 75360 I have generated several web pages of material taken from published issues of Heliophobe. Click on the magazine covers below to view an index of the stories and articles.

19. MedlinePlus Medical Encyclopedia Albinism Hypopigmentation; Oculocutaneous albinism; Ocular albinism Definition Return to top. albinism refers to a group of related conditions. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Albinism Picture of Young Girl About one in every 17000 people have albinism. In ocular albinism, the hair and skin pigmmentation may not be effected. http://www.lowvision.org/albinism.htm

Albinism About one in every 17,000 people have Albinism. These individuals fail to produce melanin, a photoprotective pigment. While melanin's role in protecting us from ultraviolet light is understood, it also has other important functions in the development of the retina and brain and their interconnection of which we know much less.. Macular Hypoplasia: The fovea a tiny area in the center of the macula region of the retina, the most sensitive area of vision in the retina fails to fully develop. Iris Color and Transillumination: The pigmentation of iris and choroid may be lacking causing light to penetrate directly through the structures of the eye rather than only through the pupil. In some cases the iris may be pink. Skin and Hair Hypopigmentation: Hair and eyelashes may be under pigmented. In ocular albinism, the hair and skin pigmmentation may not be effected. Nystagmus, a jerky motion to the eyes is usually present. Strabismus: Often the eyes may not work together as a binocular team. An eye may cross in or turn out. Brain Retina Connections: The pathways from the retina to brain may follow different pathways than in non-albinos.

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