81. Colorado Spina Bifida Association He had been born with spina bifida and hydrocephalus, but what did that mean Copyright © 2000 Colorado spina bifida Assoc., Site desiged and hosted by http://www.coloradospinabifida.org/news/q3_2001.html

"Climb Every Mountain" Home About News Guestbook ... Contact CSBA Insider July/August/September 2001 The CSBA'S First Annual 5K Walk/Run/Roll March of Dimes/Folic Acid Campaign The 4th Annual CSBA Fall Conference Parade of Possibilities ... Need A Laugh? The CSBA'S First Annual 5K Walk/Run/Roll The CSBA is pleased to announce that our First Annual 5K Walk/Run/Roll will be held Sunday, Sept. 30th, 2001. Please note that this is the day after the Annual Fall Conference on Saturday, Sept. 29th. This will be an incredible opportunity to participate in a fun, family event that promotes awareness of spina bifida and celebrates children, teenagers and adults with spina bifida in our community. It's time to get involved... we can't do it without you! Invite your family, friends, co-workers and neighbors to participate with your family. You will receive a registration form in the mail in August. Extra forms can be obtained easily to hand out to others. Your pre-registration will help us in the planning process, but walk-in registration will also be accepted on Sunday, Sept. 30th. Details are as follows: PLACE: Washington Park, Denver, CO

82. SPINA BIFIDA : Contact A Family - For Families With Disabled Children: Informati About 80 per cent of people with spina bifida have hydrocephalus. Inheritance patterns spina bifida has some genetic predisposition. http://www.cafamily.org.uk/Direct/s42.html

printer friendly SPINA BIFIDA home how we can help medical information index of conditions ... how you can help Did you find this page helpful? yes no Spina bifida is a neural tube defect and is a developmental anomaly which occurs very early in pregnancy. The neural tube develops to form the spinal cord, brain and spine. When Spina Bifida occurs, the tube is split and one or more vertebrae (small bones of the back) fail to form properly, thus leaving a gap. There are three main types of spina bifida. Spina bifida occulta where the only sign of the malformation is a dimple or hair at the site of the defect on the skin of the back. This condition is very mild and is usually symptomless although occasionally there may be continence problems and difficulties with mobility. In Spina bifida cystica a sac or cyst is visible on the back covered by a thin layer of skin. There are two forms: a meningocele and a myelomeningocele. In a meningocele the sac contains tissues which cover the spinal cord and cerebro-spinal fluid. The nerves are not normally badly damaged and there is little or no malfunction. This is the least common form of spina bifida. Myelomeningocele is the most common and severest form and is characterised by the inclusion in the sac of nerves and part of the spinal cord as well as tissue and cerebral-spinal fluid. Some degree of paralysis and loss of sensation occur below the site of the defect. The extent of the disability is dependent upon the extent of nerve damage.

83. Spina Bifida: Definition And Much More From Answers.com These malformations fall into three categories spina bifida occulta, In approximately 90% of the people with myelomeningocele, hydrocephalus, http://www.answers.com/topic/spina-bifida

showHide_TellMeAbout2('false'); Business Entertainment Games Health ... More... On this page: Dictionary Health Medical WordNet Wikipedia Mentioned In Or search: - The Web - Images - News - Blogs - Shopping spina bifida Dictionary spi·na bif·i·da spī nə bĭf ĭ-də n. A congenital defect in which the spinal column is imperfectly closed so that part of the meninges or spinal cord protrudes, often resulting in hydrocephalus and other neurological disorders. Also called schistorrhachis [New Latin spīna bifida : Latin spīna , spine + Latin bifida , feminine of bifidus , split in two.] var tcdacmd="cc=hlt;dt"; Health spina bifida A congenital condition that involves an imperfectly closed spinal column, often resulting in neurological disorders. Medical spina bif·i·da bĭf ĭ-də n. A congenital defect in which the spinal column is imperfectly closed so that part of the meninges or spinal cord may protrude, often resulting in neurological disorders. Also called hydrocele spinalis WordNet Note: click on a word meaning below to see its connections and related words. The noun spina bifida has one meaning: Meaning #1 a not uncommon congenital defect in which a vertebra is malformed; unless several vertebrae are affected or there is myelomeningocele there are few symptoms; can be diagnosed by amniocentesis

84. Hydrocephalus Association for spina bifida and hydrocephalus 42 Park Road Peterborough PE1 2UQ England Tel 01733 555988 Fax 01733 555985 Email postmaster@asbah.org http://www.psychnet-uk.com/dsm_iv/hydrocephalus.htm

85. Medicdirect - Comprehensive UK Health Information of spina bifida is not known, but there seems to be a genetic link in some Cerebral palsy, hydrocephalus and spina bifida are often first noticed by http://www.medicdirect.co.uk/clinics/default.ihtml?step=4&pid=1463

86. AllRefer Health - Spina Bifida - Resources (Resources - Spina Bifida) Association for spina bifida and hydrocephalus ASBAH House 42 Park Road Peterborough PE1 2UQ, England Tel 01733 555988 www.asbah.org http://health.allrefer.com/health/spina-bifida-resources-info.html

AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump Adolescent Development Aging Changes in Skin Alcohol Use Body Mass Index Breast Lump Self Exam Condoms, Female Condoms, Male Contraception and Family Planning Developmental milestones Diabetic Education Drug abuse Emergency Contraception Exercise/Physical Activity Fetal Development Fitness Tips Genetics Heart Disease and Women Hormone Replacement Therapy Immune Response Immunizations/Vaccinations Infant/Newborn Development Living Will Orgasmic Dysfunction Physical Exam Frequency Pregnancy Care Puberty/Adolescence Rape Recognizing Emergencies Safe Sex Safety Sexual Problems Smoking/Tobacco Use Stress Management Weight Management 500+ More Special Topics Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Web health.allrefer.com You are here : AllRefer.com Health Special Topic Spina Bifida - Resources Alternate Names : Resources - Spina Bifida Information The following organizations are good sources of information on spina bifida Spina Bifida Association of America 4590 MacArthur Boulevard, NW

87. Hydrocephalus Association for spina bifida and hydrocephalus. 42 Park Rd., Peterborough, PE1 2UQ. UK 0173 355 5988. Fax 017 3355 5985. postmaster@asbah.org. http://www.healthatoz.com/healthatoz/Atoz/ency/hydrocephalus.jsp

88. ARC Glossary Of Terms VILLUS TEST, GENE, spina bifida. CHROMOSOMES, GENETIC ABNORMALITY, SYNDROME The causes vary, but it is rarely genetic. The effects of hydrocephalus vary http://www.arc-uk.org/glossaryofterms/glossaryofterms.htm

89. Geneticalliance.org What is a Genetic Disease? spina bifida Support Groups Association for spina bifida hydrocephalus ASBAH House, 42 Park Road GB PE124Q Peterborough http://www.geneticalliance.org/ws_display.asp?filter=support_groups_by_disease&t

90. Hydrocephalus hydrocephalus may result from genetic inheritance (aqueductal stenosis) or associated with neural tube defects including spina bifida and encephalocele. http://www.med.umich.edu/1libr/aha/umbrain19.htm

Adult Health Topics All Health Topics Smart Moms, Healthy Babies Find a UMHS Doctor Search Adult Topics Search All Topics This information is approved and/or reviewed by U-M Health System providers but it is not a tool for self-diagnosis or a substitute for medical treatment. You should speak to your physician or make an appointment to be seen if you have questions or concerns about this information or your medical condition. Hydrocephalus What is Hydrocephalus? Hydrocephalus is a condition in which the primary characteristic is excessive accumulation of fluid in the brain. Although hydrocephalus was once known as "water on the brain". The "water" is actually cerebrospinal fluid (CSF) - a clear fluid surrounding the brain and spinal cord. The excessive accumulation of CSF results in an abnormal dilation of the spaces in the brain called ventricles. This dilation causes potentially harmful pressure on the tissues of the brain. What are the different types of hydrocephalus?

91. Julia's Journey With Spina Bifida Support and information for families who have children or loved ones with the disabling birth defect spina bifida and hydrocephalus. http://www.juliasjourney.com/geobook2.html

Guestbook Viewing 1999 "One touch is worth a thousand words." -H. Bloomfield Sherry Leslie My Email: sleslie5@bellsouth.net Comments: I also have a child with sb and hc he is 3yrs old he is a level L4 and had a club foot [severe] up until he was 18 months shriners did surgery x2 that summer and now he is walking and running on loft cruches but also walks alone for short distances. I love this amazing little guy and couldnot imagine life without him. MAY GOD BLESS Deanna My Email: DLBaez@cs.com Comments: Brenda Martin My Email: eyes47@gateway.net Comments: My first Grandson will be born on Feb. 2, 2000 and has been diagnoised with Hydrocephalus. We did not find out until my daughter was 30 weeks. Reading your story has really helped us a lot. God bless you and your family and keep us in your prayers. The Martins Rebecca My Email: angel96042@aol.com Comments: leanne mc eneaney My Email: pclme@ourladys.com Comments: belkis concepcion Comments: I LOVE YOUR FAMILY STORY. I ALSO HAVE A SPINA BIFIDA BORN GIRL. HER NAME IS IBELKA (2 1/2 YEARS OLD). I HAVE SHARED ALL YOUR FEELINGS AND DOUBTS, BUT I ALSO FEEL VERY SPECIALY LOVED BY GOD BECAUSE HE TRUSTED ME ALOT BY GIVING ME SUCH A SPECIAL AND DEAR GIRL. Donna Perry My Email: donna47donna@playful.com

92. EMedicine - Spina Bifida : Article By Mark R Foster, MD, PhD A genetic defect has been identified in families with spina bifida. These would include hydrocephalus, cephalocele, and the ArnoldChiari malformations. http://www.emedicine.com/orthoped/topic557.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Orthopedic Surgery Spine Spina Bifida Last Updated: November 11, 2004 Rate this Article Email to a Colleague Synonyms and related keywords: spina bifida cystica, spina bifida occulta, SBO, myelomeningocele, myelodysplasia, syringomeningocele, rachischisis posterior, syringomyelocele, diastematomyelia, dysraphia, Arnold-Chiari deformity, craniorachischisis, spondyloschisis AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Indications Relevant Anatomy And Contraindications ... Bibliography Author: Mark R Foster, MD, PhD , Clinical Instructor, Department of Orthopedic Surgery, University of Pittsburgh Mark R Foster, MD, PhD, is a member of the following medical societies: American Academy of Orthopaedic Surgeons American Association for the Advancement of Science American College of Surgeons Christian Medical and Dental Society ... Orthopaedic Research Society , and Pennsylvania Orthopaedic Association Editor(s): Lee H Riley III, MD

93. Fetal Surgery Restores Brain To More Normal Shape In Spina Bifida Tulipan said the reduction in shunting of hydrocephalus translates into a There have been 64 fetal surgeries to repair spina bifida to date and 57 http://www.pslgroup.com/dg/14529e.htm

94. Parenting And Child Health - Health Topics - Physical Disability physical; disability; Duchenne; genetic; congenital; spinabifida ; Association of spina bifida and hydrocephalus (UK), Children with spina bifida at http://www.cyh.com/HealthTopics/HealthTopicDetails.aspx?p=114&np=306&id=1874

95. BBC - Health - Conditions - Spina Bifida Facts about spina bifida and where to go for support. Association for spina bifida hydrocephalus The genetic lottery http://www.bbc.co.uk/health/conditions/spinabifida2.shtml

@import url('/includes/tbenh.css') ; Home TV Radio Talk ... A-Z Index MONDAY 26th September 2005 Text only BBC Homepage Lifestyle Health ... Help Like this page? Send it to a friend! Spina bifida Dr Trisha Macnair Dr Rob Hicks At its worse, spina bifida can have devastating effects. But by simply taking a supplement before and during pregnancy, the risk can be reduced by 70 per cent. In this article What is it? Symptoms Treatment Prevention What is it? Spina bifida means 'split spine'. There are 33 vertebrae in the spine; if one or more of these don't form properly in early pregnancy, the nerves in the spine may be unprotected, leading to damage of the central nervous system. This damage may cause mobility difficulties, bladder and bowel problems and, in more severe cases, paralysis below the affected part of the spine. Disruption of the nervous system depends on how high up the spine the problem lies and how well the spinal cord below the defect works. Symptoms In spina bifida occulta , which affects up to one in ten people, there may be visible signs of a dimple or small hair growth on the back. This is a mild form and rarely causes disability. In spina bifida cystica there is a sac or cyst (like a blister) on the back, covered by a thin layer of skin. The sac contains tissues that cover the spinal cord, cerebrospinal fluid and sometimes even the nerves and tissues of the spinal cord itself.

96. RACGP | The Spinal Cord And Brain In Myelodysplasias | Spina Bifida Continence M All those with spina bifida and their relatives require genetic counselling prior to Most individuals with spina bifida and hydrocephalus require a http://www.racgp.org.au/document.asp?id=5292

97. Birth Defects - Central Nervous System Types of neural tube defects include spina bifida, anencephaly and encephalocele. Neural tube defects are thought to be caused by a range of genetic and http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Birth_defects_cen

98. CDC - Folic Acid Frequently Asked Questions (FAQs) Folic Acid can help reduce the risk of spina bifida by up to 70%. National Society of Genetic Counselors. Go to International Directory of Genetic http://www.cdc.gov/doc.do/id/0900f3ec8000d558

99. Maxine Dunitz Neurosurgical Institute - Pediatric Neurosurgery interaction of environmental and genetic factors, such as spina bifida. Most children with these malformations who do not have spina bifida will http://www.csmc.edu/pf_3584.html

Maxine Dunitz Neurosurgical Institute - Pediatric Neurosurgery Pediatric Neurosurgery Program The Maxine Dunitz Neurosurgical Institute recognizes that the prospect of neurosurgery on an infant or child is physically and emotionally trying for patients and their families. As such, the Institute has brought together a specialized team for the treatment of pediatric brain tumors, as well as other nervous system disorders, such as congenital malformations, spinal cord disorders, epilepsy, craniofacial surgery and hydrocephalus. Our team includes a dedicated pediatric neurosurgeon working with supportive specialists from pediatric oncology, neurology, endorcinology, neuroradiology, neuropsychology, social support and genetics. At the Maxine Dunitz Neurosurgical Institute, excellence starts with ensuring all patients needs are met by our team. Pediatric Brain Tumors The Institute provides state-of-the-art diagnosis and therapy for benign and malignant central nervous system tumors. By combining neurosurgical expertise with interoperative brain mapping and monitoring of tumor resection, the Institute's surgeons are able to maximize tumor removal while maintaining patient safety. Treatment is enhanced with access to the Institute's tumor vaccine program, which focuses on using the patient's own immune system in helping to control tumor growth. Furthermore, the Institute participates in National Institutes of Health (NIH) - sponsored clinical trials and the National Children's Oncology Group clinical trials, enabling the medical team to provide leading-edge care for pediatric patients and spinal cord tumors.

100. Hydrocephalus Association hydrocephalus in infants and young children is frequently diagnosed at Meningitis is an inflammation of the membranes of the brain and spinal cord. http://www.hydroassoc.org/information/infant.html

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