Geometry.Net - the online learning center
Home  - Basic_S - Scleroderma Bookstore
Page 1     1-20 of 130    1  | 2  | 3  | 4  | 5  | 6  | 7  | Next 20
A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z  

         Scleroderma:     more books (100)
  1. The Scleroderma Book: A Guide for Patients and Families by Maureen D. Mayes, 2005-05-01
  2. Scleroderma: The Proven Therapy that Can Save Your Life by Henry Scammell, 2003-11-25
  3. Scleroderma: A New Role For Patients and Families by Michael Brown, 2002-03
  4. A Place to Go: How Scleroderma Changed My Life by Maureen Taylor, 2006-08-27
  5. The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed (The First Year Series) by Karen Gottesman, 2003-12-15
  6. A Journey Towards Health ... Reversing Scleroderma by Jane M. Parker, Victor Dyment, 2005-07-29
  7. Connective Tissue Diseases: Holistic Therapy Options--Sjoegren¿s Syndrome; Systemic Sclerosis - Scleroderma; Systemic Lupus Erythematosus; Discoid Lupus Erythematosus; Secondary and Primary Raynaud¿s phenomenon; Raynaud¿s Disease; Polymyositis ¿ Dermatomyositis by Hannelore Helbing-Sheafe, 2003-08-28
  8. Scleroderma, An Issue of Rheumatic Disease Clinics (The Clinics: Internal Medicine) by Fredrick M. Wigley, 2008-02-28
  9. Voices of Scleroderma Volume 1 by International Scleroderma Network, 2003-05-13
  10. Voices of Scleroderma by International Scleroderma Network, 2006-01-17
  11. Voices of Scleroderma Volume 2 by International Scleroderma Network, 2004-08-26
  12. It's Not Just Growing Pains: A Guide to Childhood Muscle, Bone and Joint Pain, Rheumatic Diseases, and the Latest Treatments by Thomas J. A. Lehman, 2004-05-20
  13. The Official Patient's Sourcebook on Scleroderma by James N. Parker, Icon Health Publications, 2002-08-26
  14. Scleroderma: Surviving a seventeen-year itch by Dana Lovvorn, 1994

1. The Scleroderma Research Foundation
Information about the organization, research, mailing list and resources.

2. Scleroderma Foundation - Home Page
The scleroderma Foundation is a national nonprofit health organization dedicatedto a threefold mission of Support, Education, and Research to help fight
<% dim url = "" Response.Redirect (url) %> Welcome! Sign Up for Our Free Email Newsletter! Search our site using keywords: Sign Up for Our Free Email Newsletter! Get Connected! Bulletin Board Health Professionals Contact Us ... "Living Well with Scleroderma" video We subscribe to the HONcode principles. Verify here Resources for Our Patients in Hurricane Affected Areas 2005 National Gala Being Held in New York City Presented by:
"Shedding Light on Pulmonary Arterial Hypertension"
Next Chat: Weds., Sept. 28, 9:30 p.m. Eastern Time
This will be an open Chat. Learn more about our twice-monthly online Chats.
Stepping Out to Cure Scleroderma"

3. Scleroderma -
scleroderma is a rare, progressive disease that involves hardening and thickeningof the skin and may damage internal organs as well.

4. Scleroderma
scleroderma is chronic, which means it can last a long time. There are two typesof scleroderma. Localized scleroderma mainly affects the skin.
Log In
Create Profile Search Keyword
advanced search Español Questions and Answers Assess Your Joint Health ... 51 Ways to Be Good to Your Joints
Scleroderma If your question is not
answered here, please
one of our
information specialists.
What Is It?
What Are the Symptoms?

What Causes It?

How Is It Diagnosed?
More Information About Scleroderma
What Is It? Scleroderma (sclaire-row-DER-ma) is a disease that can cause thickening, hardening, or tightening of the skin, blood vessels and internal organs. Scleroderma is chronic, which means it can last a long time. There are two types of scleroderma:
  • Localized scleroderma mainly affects the skin. There are two types of localized scleroderma:
    • Morphia (hard, oval shaped patches on the skin. The patches usually are whitish with a purplish ring around them.) Linear (lines or streaks of thickened skin in areas such as the arms, legs or forehead.)
    Generalized scleroderma may affect many parts of the body. There are two types of generalized scleroderma:

Stories of real people who have scleroderma. Living and coping with scleroderma.A site by people with scleroderma, for people with scleroderma.
Our stories: Form to submit story

Excuse me


Post its
Post it archives

Kate's original Post its

Who we are

Privacy statement
... Translation The Scleroderma Foundation has posted a page of resources for scleroderma patients who have been affected by Hurricane Katrina at
New on our site...
Diffuse stories: Kim I battle flare-ups on what is almost a monthly basis and can almost predict the weather by the way my body feels. Kim Stuurman My own doctor was telling me over and over again it was because of my puberty. Dutch and English Joanne At this time I was so sick I couldn’t even open my mouth to eat... Michelle The disease spread so quick throughout my body. CREST/limited stories: 'Nita After all, I appear, on first glance, healthy, active and normal. Becky Instead of Aloha it has changed to HOWDY since i now live in central Texas. Sarita Who would want to nurse my ulcer ridden body?

6. EMedicine - Scleroderma : Article By Sergio Jimenez, MD
scleroderma scleroderma is derived from the Greek words skleros (hard orindurated) and derma (skin). Hippocrates first described this condition as
(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Medicine, Ob/Gyn, Psychiatry, and Surgery Rheumatology
Last Updated: May 21, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: systemic sclerosis AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography
Author: Sergio Jimenez, MD , Vice-Chairman for Research, Director, Dorrance H Hamilton Professor Endowed Chair, Department of Medicine, Division of Rheumatology, University Hospital, Thomas Jefferson University Coauthor(s): Andrew S Koenig, DO , Consulting Staff, Department of Internal Medicine, Division of Rheumatology, Rancoccas Hospital; Sergio Jimenez, MD , Vice-Chairman for Research, Director, Dorrance H Hamilton Professor Endowed Chair, Department of Medicine, Division of Rheumatology, University Hospital, Thomas Jefferson University Sergio Jimenez, MD, is a member of the following medical societies:

7. Edgar Cayce's Scleroderma Treatment: Case Studies
Two case studies (one with morphea) demonstrating the efficacy of Edgar Cayce's approach to treating scleroderma.
Edgar Cayce's Scleroderma Treatment: Case Studies
A 13 year old girl suffering from scleroderma with morphea (lesions on the skin) achieved reduction of symptoms within one month of starting a therapy recommended by Edgar Cayce and continued gradual improvement during a three year follow-up period.
Margie was a 13 year old girl who first came to the A.R.E. Clinic in October, 1980, with a diagnosis of scleroderma with morphea. Previous treatment by a dermatologist and family physician failed to provide results. Margie's parents were alarmed by the poor prognosis given for this progressively debilitating illnessan 80% chance of death within ten yearsand were anxious to find help for their daughter.
Medical History
In May, 1979, Margie's mother noticed a tiny spot on the skin overlying her upper breastbone. As it looked like ringworm, they applied some anti-fungal ointment and promptly forgot about it. In August, it was still present and had enlarged. Their family physician discovered a similar lesion on her back and agreed that it was fungal in origin. She did not respond to the medication he prescribed. Her hands became very sore, swollen, cracked, and bleeding.
In September, he referred her to a dermatologist who biopsied the lesion on her back and diagnosed morphea. He told them "it wasn't leprosy and it wasn't cancer, but it wasn't something you'd want for Christmas either." He gave her a dry skin cream for her hands and recommended vitamin E to slow down the morphea. Margie began to feel sick, fatigued, and complained of headaches and backaches often. Both hands and feet became affected.

8. Scleroderma Lupus Information - Scleroderma
Hunter Area Pathology Service, Australia, The Hunter Region s quality pathologyprovider.
Home Patient Resources Scleroderma Information Sheets
Scleroderma Lupus Information Sheets
Scleroderma is one of a group of chronic autoimmune diseases including systemic lupus erythematosis and Sjögren's syndrome. These diseases form a spectrum, and feature various combinations of the same set of symptoms. Skin thickening is the hallmark of the disease. Traditionally, the term "scleroderma" has encompassed two groups: "localised scleroderma", where problems are confined to the skin, and "systemic sclerosis", where internal organs and vessels are involved as well as the skin.
Localised Scleroderma
Localised scleroderma includes a heterogeneous group of conditions characterised by circumscribed, patchy, or linear scleroderma without the typical serological and visceral manifestations of systemic sclerosis (see below). This condition should not be confused with limited cutaneous scleroderma (CREST), which is a systemic variety of scleroderma. Localised scleroderma primarily affects children and young adults, especially females.
Localised scleroderma is characterised by one or more erythematous or violaceous areas of the skin which evolve to become sclerotic and waxy. Plaques may grow during the active phase up to several centimetres in diameter with violaceous inflammatory borders, before spontaneously softening after several months to a few years.

9. The Scleroderma Society
Offers support and information. Includes an introduction, news and a message board.
The Scleroderma Society The Scleroderma Society

10. Handout On Health: Scleroderma
In some forms of scleroderma, hard, tight skin is the extent of this abnormal Localized types of scleroderma are those limited to the skin and related

En español

Health Information Health Topics Order Publications Studies with Patients Patient Research Registries ... NIAMS Coalition Members Health Topics
PDF version
Publication Date: May 2001 Handout on Health: Scleroderma This booklet is for people who have scleroderma, as well as for their family members, friends, and others who want to find out more about the disease. This booklet describes the different forms of scleroderma and provides information on their symptoms, diagnosis, and treatment, including what patients can do to help manage their disease and the problems associated with it. It also highlights current research efforts into the understanding and treatment of scleroderma, many of which are supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and other components of the National Institutes of Health (NIH). If you have further questions after reading this booklet, you may wish to discuss them with your doctor.

11. Scleroderma Clinical Trials Consortium
Information about this international organization which is dedicated to finding a better treatment for this disorder. Includes current studies and a newsletter.
Contact Existing members: Pay dues here

The EULAR Scleroderma Trials and Research group (EUSTAR) -

Are you a scleroderma patient looking for support and information?
See our Links page
SCTC Research Study Application (Word)
Latest issue!
Scleroderma Care and Research journal

Contact webmaster with corrections. Last update - 6/20/2005

12. Sklerodermie Selbsthilfe | Scleroderma Liga E.V.
Informationen zur Sklerodermie und Vorstellung der Selbsthilfevereinigung mit Verzeichnis der Regionalgruppen. In einem Diskussionsforum ist Austausch zum Thema m¶glich.
Buchtipps SELBSTHILFE Scleroderma Liga Medizin. Beirat Regionalgruppen Infomaterial Termine Sponsoren Mitgliedschaft KONTAKT Kontakt Postkarten Impressum MITGLIEDER Mitgliederbereich
Selbsthilfe Sklerodermie: Kranke helfen Kranken
Aufruf an alle Sklerodermie-Betroffenen
Machen Sie mit: zur Umfrage . Vielen Dank!
Akupunktur ist ein Placebo
, Jutta an Michael: Mucokehl D6 , Theresia Enderlein Methode Isopathie , Jutta Penicillin , alexandra Penicillin , alexandra An Alex , Nadine an Michael , ClaudiaT Enderlin Methode ... , Michael 2 Teil : , Michael SANUM Therapie , Michael Alle
19. Mai Paul Klee und die Medizin Infos: arte 08. April Der neue Scleroderma Infobrief
  • Die Seite 2 Einladung zur Therapietagung Sklerodermie Manuelle Lymphdrainage Organisationsreform in der Rentenversicherung Tag der rheumakranken Kinder und Jugendlichen Aus den Regionalgruppen
Ab sofort ist der Infobrief im Mitgliederbereich 11. Januar Vortrag: Zur Krankheit von Paul Klee Donnerstag, 20. Januar 2005, 18.15 - 19.30 h

13. Kids Get Scleroderma Too!!!
Organization that is working to provide educational programs about JSD, and to help children and their families to gain a better understanding.
A Message From Kathy... If you are looking for emotional reassurance, look no further! You will find it here with the JSDN! Our network is set in a positive environment. We are keeping our literature updated to ensure that families are provided with the best coverage on JSD. Most of all we know what every parent is going through having a child diagnosed with JSD. I have a son, BJ, who was diagnosed with JSD in August 1996. Living with JSD can be exhausting mentally and physically for both of us with trips to the pediatric rheumatologist, blood tests, PT/OT. Sometimes it is stressful just getting your child to take their medication. It is a helpless feeling not knowing what to do for your child. We are here to help you as much as we can for each and every one of you. We may not be close by, but we are a phone call or email away when you need us. Please feel free to call or email us at anytime to let us know what we can do for you. Our thoughts and prayers are with you and your family.
Founder/President How?

14. International Scleroderma Network
Resource for medical and support information including symptoms, treatments, clinical trials, and support group listings. So you'd like to learn more about scleroderma? an Amazon guide by Shelley Ensz, ISN President Our site menu requires pop-ups and javascript enabled. About the ISN Join/Donate Languages Medical Scleroderma Experts Symptoms Newsroom Message Board Support Stories Support Groups SWA Sites to Surf! Hope on Horizon ISN Gift Shop Email ISN ISN Medical

15. Scleroderma Foundation - Home Page
The scleroderma Foundation is a national nonprofit health organization dedicated to a threefold mission of Support, Education, and Research to help

16. Scleroderma Foundation - Research Grant Application Introduction
The scleroderma Foundation is the leading nonprofit supporter of sclerodermaFoundation Announces $1 Million in New Research Grants for 2005! more
Membership dues are $25/year. Details. Introduction Research Objectives Grant Application ... Marta Marx Fund Introduction Grant Application Deadline: Sept. 15, 2005 allotting over $1 million each year to find the cause and cure of scleroderma.
Research News Scleroderma Foundation Announces $1 Million in New Research Grants for 2005! more
Research Grants Awarded, 1989-2005. more The Challenge of Scleroderma

Scleroderma, which literally means "hard skin," can cause thickening and tightening of the skin, as well as serious damage to internal organs including the lungs, heart, kidneys, esophagus, and gastrointestinal tract. It is often life-threatening. Scleroderma occurs three to four times more often in women than in men.

The scleroderma FAQ is a comprehensive document about scleroderma and CREST targeted at patients family members, and physicians.

18. Pediatric Rheumatology Home Page
A resource for families and physicians caring for children with arthritis, lupus, scleroderma, Kawasaki disease and other rheumatic diseases.
id=13897 All information is provided as a public service and no warranty is expressed or implied.
KEY WORDS: arthritis scleroderma childhood arthritis dermatomyositis JRA juvenile rheumatoid arthritis Kawasaki Disease pediatric rheumatology polyarteritis nodosa SLE systemic lupus erythematosus vasculitis CLICK for Patient and Family Information Information about juvenile rheumatoid arthritis More Information about childhood arthritis Information about systemic lupus ... CLICK for Books on Childhood Arthritis Is your child getting the best care My book
not just growing pains.
A guide to childhood muscle, bone
A guide for parents and professionals
Reviewer’s comments
Dr. Tom Lehman’s experience and compassion are evident on every page of this book, and they help guide the reader—child, parent, and healthcare professional alike – through the world of childhood arthritis. This book is an absolute gem written with a single goal in mind: improve the lives of kids with arthritis. Jack Klippel , M.D. President and CEO of the Arthritis Foundation “Dr. Lehman has given parents and families of children with arthritis the first book that speaks to the parent and child as equals.

19. MedlinePlus Scleroderma

20. Raynauds & Scleroderma Association
Information about the organization, contact information, publications and the latest research.

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z  

Page 1     1-20 of 130    1  | 2  | 3  | 4  | 5  | 6  | 7  | Next 20

free hit counter