101. Huntington's Disease Links Ask Jeeves Links to Huntington s disease Resources is an outstanding compilation of Huntington s disease Advocacy Center is a wonderful new site by HD http://carmenleal.com/WS/Faces/hdlinks.html

Huntington's Disease Links What is Huntington's Disease? Huntington's Book Reviews Reviews of two new books about Huntington's Disease. Ask Jeeves Links to Huntington's Disease Resources is an outstanding compilation of HD links in a variety of categories. Huntington's Disease Society of America Huntington Society of Canada Hereditary Disease Foundation International Huntington's Association ... CureHD.com is Jim Pollard's ever growing, wonderfully creative site. A must see for anyone wanting to learn more about how th epublic perceives HD and the beginnings of what is now the HDSA. Huntington's Disease Advocacy Center is a wonderful new site by HD Families for HD Families. Their goal is to "discuss ways of providing help to caregivers, families, and patients with Huntington's Disease (Phds)." This is an outstanding site that grows daily. This is a must visit often site and extremely well done. Kudos to Christy, Marsha and Cristy. Huntington's Disease Message Board Hope Through Research From the National Institute of Neurological Disorders and Stroke (NINDS) Current Scientific Findings and Articles - All Neurological Disorders Current articles on research for all of the neurological diseases.

102. New Insights Into How Huntington's Disease Attacks The Brain Scientific theory holds that Huntington s disease (HD) is caused by a mutant protein that arises within brain cells and kills them, triggering the genetic http://www.medicalnewstoday.com/medicalnews.php?newsid=23855

103. Molecular Trigger For Huntington's Disease Found Researchers have discovered a key regulatory molecule whose overactivation by the abnormal protein produced in Huntington s disease (HD) causes the central http://www.medicalnewstoday.com/medicalnews.php?newsid=27037

104. CureHD Foundation; Creating Awareness And Fund-raising To Cure Huntington's Dise Help eradicate Huntington s disease by funding research to cure this genetic illness; killing over 100000 people and destroying their families. http://www.curehd.org/

- CureHD Foundation - Dedicated to funding a cure for Huntington's Disease. Robert Bishop Introduction HD family tree Why I do this Family photos What is HD? Definition The HD secret How many have HD The cruelest illness The HD nightmare My experience Other experiences HD research Hope for a cure North America How can I help? Make a donation Contact the media Ask legislators... I need your help Contact info CureHD Foundation CureHD sponsors HD web sites Other info Content © 1999-2003 CureHD Foundation www.curehd.org Last updated: Mar 13, 2003 huntington's disease huntington's disease huntington's disease huntington's chorea huntington's chorea huntington's chorea huntingtons disease huntingtons disease huntingtons disease huntingtons chorea huntingtons chorea huntingtons chorea huntington disease huntington disease huntington chorea huntington chorea hd, hd, hd, hd, hd hd, hd, hd, hd, hd (50% at-risk for HD) (50% at-risk for HD) (50% at-risk for HD) (50% at-risk for HD) (50% at-risk for HD) (Bishop Family) PLEASE HELP ME SAVE MY KIDS!!!

105. Huntington's Disease ACEi Treatment We report on a woman with Huntington s disease whose condition deteriorated dramatically during treatment with the angiotensin converting enzyme inhibitor http://hdlighthouse.org/treatment-care/treatment/drugs/related/updates/0056acei.

New to the Huntington's Disease Lighthouse: Welcome, start here Beginners Search Treatment Now ... EPA-DHA Drugs Related Haldol bench human ... human Huntington's disease ACEi Treatment HD Lighthouse Contributing Editor's Comment: GenoMed is currently recruiting HD patients for trials of it's angiotensin converting enzyme inhibitor (ACEi). A drug that is generally safe may not be safe for Huntington's disease (HD). It is good science to test candidate drugs for the treatment of HD with lab animals first . Jerry Posted to the HDL: 10 Jul 2003 Huntingtons disease: deterioration in clinical state: during treatment with angiotensin converting enzyme inhibitor We report on a woman with Huntington's disease whose condition deteriorated dramatically during treatment with the angiotensin converting enzyme inhibitor captopril and improved on withdrawal of the drug. Case report A 47 year old woman who had been diagnosed eight years earlier as suffering from Huntington's disease was admitted to hospital, for control of newly diagnosed hypertension (210/120 mm Hg). She had previously been managed at home with haloperidol l'5 mg.thrice daily. On examination she walked without help and had typical features of Huntington's disease, with diffuse involuntary choreiform movements, facial apraxia, and inability to protrude her tongue for longer than five seconds. Her higher mental functions were impaired, although she could communicate and follow simple commands. She was otherwise medically well and had no clinical features of end organ damage due to hypertension.

106. LAX-101 AND HUNTINGTON'S DISEASE: QUESTIONS AND ANSWERS Huntington s disease Questions and answers about LAX101, the first statistically significant treatment for Huntington s disease in phase 3 clinical http://hdlighthouse.org/treatment-care/treatment/drugs/lax101/human/updates/0033

New to the Huntington's Disease Lighthouse: Welcome, start here Beginners Search Treatment Now ... EPA-DHA Drugs Related Haldol bench human ... human HD Lighthouse Editor's Comment: LAX-101 treats HD, not just the symptoms but the disease itself. The active molecule in LAX-101 is Eicosapentaenoic Acid (EPA). All molecules of EPA are identical. The molecules of EPA found in LAX-101 are identical to the molecules of EPA found in fish oil food supplements. There is no scientific support for the belief that any molecule produced by a cold water fish is harmful to humans. There is scientific support that other molecules in fish oil are beneficial to humans. The importance of essential poly-unsaturated fatty acids (PUFA’s), found in fish oil, as dietary supplement has become well established since their beneficial effects were described in the late 1920’s. Unlike the bread mold Penicillium, fish oil supplements are available in commercially pure and assayed form. LAX-101 bears the same sort of relationship to fish oil as does pure vitamin C to oranges, in the sense that LAX-101 and vitamin C each represent a purified, refined and tested pharmaceutical product derived from a natural source. Laxdale has developed and proven a prescription drug to treat HD. With FDA approval this will enable medical workers and insurance companies to bring treatment to suffers of HD. This is great news for the HD community. See

107. SupportPath.com: Huntington's Disease SupportPath.com leads you to Internet resources for supportrelated information on hundreds of health, personal, and relationship topics. http://www.supportpath.com/sl_h/huntingtons_disease.htm

Huntington's Disease Also called: HD, Huntington's Chorea Other topics of interest on SupportPath.com: Dementia Rare Disorders About Us Add-A-Link ... here Online Communities / Message Boards... Braintalk Communities: Huntingtons Disease Website: Description: A part of the BrainTalk Communities website. Registration is required to post to this message board. Date Added: 06/06/2002 Online Chats... Note: Regularly scheduled chats are listed on our NEW Online Events Calendar Links in this section are primarily to chat rooms open 24/7 which may or may not be moderated. None Listed Usenet Groups... Note: Your browser must be properly configured to access Usenet groups from this site. None Listed Mailing Lists... None Listed National / International Organizations... INTERNATIONAL International Huntington Association (IHA) Website: Description: The IHA is "a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease (HD) and their families". Website had numerous HD articles Date Added: 07/11/2002 BELGIUM HUNTINGTON LIGA Website: http://www.huntingtonliga.be/

108. Huntington's Disease - Swedish Medical Center, Seattle, Washington Huntington s disease Swedish Medical Center, Seattle, Washington. http://www.swedish.org/14448.cfm

PDF Version Search Send-to-Friend Health Library Home ... Conditions InBrief Huntington's Disease (Huntington's Chorea) by Rick Alan Definition Causes Risk Factors ... Organizations Definition Huntington's disease (HD) is an inherited disorder that affects the brain. HD causes slow, progressive degeneration of nerve cells in certain areas of the brain. Eventually, HD results in: Abnormal body movements Gradual deterioration or loss of intellectual abilities (dementia) Behavior problems The disease is named for George Huntington, the physician who first described the condition in the 1870s. Causes HD is caused by a faulty gene on the #4 chromosome. All people who inherit the faulty gene will eventually develop HD. Risk Factors A risk factor is something that increases your chances of getting a disease or condition. Family members with HD. Each person whose parent has HD has a 50% chance of inheriting the disorder. Age: Onset of symptoms on average 35-50. Symptoms Symptoms are mild at first and are often barely noticeable. Symptoms usually worsen over a 15-20 year period. Physical symptoms may include: Abnormal body movements that worsen over time, including:

109. Huntington Disease Huntington disease is going to serve as our prototype. Huntington is a dominantly inherited disorder. It is a disease of brain cells, a loss of neurons, http://www.accessexcellence.org/AE/AEPC/BE02/zanko/huns3.html

Huntington Disease is going to serve as our prototype... for more discussion into the nuances of what we're here for today because it is a single gene disorder for which we have DNA prediction of a disease in a healthy individual. You're going to hear me say the prediction word throughout the afternoon because that is the difference. Huntington is a dominantly inherited disorder. It is a disease of brain cells, a loss of neurons, which results in an array of changes. You have a handout that lists many of the changes, looking at the physical changes, the intellectual and the emotional/behavioral. I try to present many things, which unfortunately may change the essence of the person over time. In fact, the physical changes are often the things that the people find the least disturbing. It's the dementia and most of all the behavioral and emotional changes that are so disturbing to my families. The causative gene is at the distal end of the short arm of chromosome 4. It is one of the CAG-trinucleotide repeat mutations. If there are less than 30 repeats, that's OK. 40 or more, absolutely, without question if you live long enough, you will get Huntington. It's not a susceptibility, it's not a percentage, it's an absolute. Again, the

110. Huntington Disease Unit Hartwyck Centers Nursing, Convalescent Rehabilitation center is a network of three nonprofit, long-term care facilities located in central New Jersey http://www.solarishs.org/hartwyck/hun_disease_unit.html

Huntington's Disease Unit Solaris Health System e-mail: webmaster@solarishs.org Hartwyck Home Contact Us

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