81. NINDS Forwarding Page Today, physicians commonly use the simple term Huntington s disease (HD) to describe (A list of such centers can be obtained from the Huntington disease http://www.ninds.nih.gov/health_and_medical/pubs/huntington_disease-htr.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/huntington/detail_huntington.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

82. Welcome To The Huntington's Disease Association The HDA provides news of UK fundraising events, health care information and details of medical research into curing Huntington s disease. http://www.hda.org.uk/

Latest news - click on the headlines for details HDA Head Office is on the move! HDA grand prize draw 2005 fundraising news HDA wins Health and Social Care Award ... HDA wrist bands - order yours while stocks last Make a difference - make a donation Giving online is a great way to help us save time and money on processing donations, and it's completely secure. If you pay tax in the UK, a donation to the HDA through Justgiving can add 28% to your donation at no cost to you through the government's Gift Aid Scheme. Please give generously. Welcome to the web site of the Huntington's Disease Association The HDA is a UK registered charity which supports people affected by Huntington's disease (HD). We also provide information and advice to families, friends and health care professionals whose task it is to support Huntington's disease families. About this site information about HD download fact sheets health care contact information medical research news fundraising news purchase books about HD document.write("Updated:" + document.lastModified);

83. What Is Huntington's Disease The HDA provides news of UK fundraising events, health care information and details of medical research into curing Huntington s disease. http://www.hda.org.uk/charity/whatishd.html

What is Huntington's disease? The information contained on this page is available as a Fact Sheet which you can download from our Fact Sheet page. Huntington's disease, which is often called HD, is an hereditary disorder of the central nervous system. It used to be known as Huntington's Chorea or HC. Huntington's disease usually develops in adulthood and can cause a very wide range of symptoms. The disease affects both men and women. Page sections: What causes Huntington's disease? The early symptoms of Huntington's disease How Huntington's disease progresses What treatment and help is available? What causes Huntington's disease? Huntington's disease is caused by a faulty gene on chromosome 4. The gene, which produces a protein called Huntingtin, was discovered in 1993. In some way - which is not yet understood - the faulty gene leads to a damage of the nerve cells in areas of the brain, including the the basal ganglia and cerebral cortex. This leads to gradual physical, mental and emotional changes.

84. Huntington's Disease Information For more current information, see the Huntington s disease Advocacy The Huntington s disease Information web site has grown so much since it began in http://www.lib.uchicago.edu/~rd13/hd/

Huntington's Disease Information Announcements Documents Maintained at This Site Links to Outside Resources I am not a health professional or an official representative of any organization - just a librarian with an interest in Huntington's Disease. This is a personal home page, and although it is housed on a computer at The University of Chicago Library, it does not represent the university or the library. Announcements Personal Note from Renette From July 1997 to July 1999, this web site was not maintained because my husband Paul had a malignant brain tumor. He died on April 11, 1999. During his illness I sent email messages to the family telling about options for treatment, symptoms he was having, etc. I have put those messages together into the "Diary of a Brain Tumor Patient's Wife" and put it on my web site at: http://www.lib.uchicago.edu/~rd13/bt/diary.html I have now started working on this site again in a limited fashion, but it no longer includes the most current information on Huntington's Disease. For more current information, see the Huntington's Disease Advocacy Center at http://www.hdac.org/

85. Electronic Resources On Huntington's Disease, 1990-1999 The Life and Times of a Person With Huntington s disease. (HD resources available from Huntington s disease Society of America) Mode of access Internet http://www.lib.uchicago.edu/~rd13/hd/electron.html

Electronic Resources on Huntington's Disease, 1990-1999 Compiled by Renette Davis This document is no longer being maintained in terms of adding new resources. However, information on existing resources will be maintained if possible. If you discover a link on this page which doesn't work, please notify Renette Davis at rd13@midway.uchicago.edu , giving the new address if you know it. "2nd Annual Jay Peddy Memorial Raffle." http://www.lib.uchicago.edu/~rd13/hd/2nd.html "10 Easy Ways to Help an HD Family." http://www.lib.uchicago.edu/~rd13/hd/10easy.html "10 Facts About Family Caregivers." Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/facts.html 17th International Meeting of the World Federation of Neurology Research Group on Huntington's Disease. Mode of access: Internet and World Wide Web. Address: http://prospero.fmc.flinders.edu.au/hd_conference.html "20 Steps to Help Caregivers." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/steps.html Adams, Sue. The Life and Times of a Person With Huntington's Disease.

86. Huntington's Disease Advocacy Center - HDAC Home Page Information, questions and answers, problemsharing, personal experiences and articles on Huntington s disease. http://www.hdac.org/

home message board faq hd library ... site map HDAC Home Page Places to Visit HDAC Home Page Message Board Online Support Living Positive Caregiving ... Photo Gallery Community News more Sept 24 8th annual Huntington Shooting Event in Chatham, Ontario S.T.A.R. Retreat at Bass Lake near Yosemite CA Recommended Sites more Stanford University's "Hopes" "The HD Lighthouse" Jim's CureHD Site ... Jean's "HD Support" HD families send up wishes for a future without HD at the Guthrie Center, spiritual home of the HD community. Visitors since April 9, 2000 Basement Stuff About Us Site Guide Research Updates more RNAi update - macular degeneration clinical trial going well. Enrollment opens for Miraxion clinical trials U. Iowa Researchers Improve Huntington's Disease Symptoms In Mice ... Curry may be a treatment for HD Caregiving more The caregiving portlet is now available. It contains frequently asked for documents as well as stories that will have an interest to HD Caregivers. Be sure to also check out our Frequently Asked Questions page. Self Advocacy - Equipping Yourself and Preparing Your Approach by Marsha Miller, Ph.D. This is the first part of a series of articles authored by Marsha Miller that constitute lessons learned through her efforts to self-advocate for her HD afflicted family and friends. I hope you find this as invaluable as I have. Enjoy!

87. Huntington's Disease Advocacy Center - Organizations And Businesses Supporting H This is our links page to businesses and nonprofits that provides services of interest to the HD Community. http://www.hdac.org/orglinks.php

home message board faq hd library ... site map Organizations and Businesses Supporting HD Families Places to Visit HDAC Home Page Message Board Online Support Living Positive ... Photo Gallery Position page on ... HD Societies and Associations Research Organizations and Medical Sites Caregiving and Support Organizations Advocacy and Awareness Basement Stuff About Us Site Guide Organizations and Businesses Supporting HD Families The following is a list of links that we've found for businesses and non-profit organizations that we have found of interest to HD families. Please let us know if you find a broken link. And don't forget that we also have a list of links to the Web sites of HD Familes. Thanks. Asociacion Argentina de Huntington Somos un grupo de personas (pacientes, familiares y doctores) afectadas por HD, nucleados en el pais de Argentina. Nuestro objetivo es poder ayudarnos mutuamente para poder sobrellevar lo mejor posible está enfermedad e impulsar la investigación hasta conseguir la anciada cura. Translation : We are a group of people (patients, family members and doctors) affected by HD. We live in Argentina. Our aim is to help us each other live with the disease as better as possible and to stimulate research so that we can find the desired cure.

88. Huntington Society Of Canada The Huntington Society of Canada is a national health charity, consisting of volunteers and professionals united against huntington disease, an inherited http://www.hsc-ca.org/

89. Hereditary Disease Foundation Home Page The Hereditary disease Foundation focuses on Huntington s disease, a fatal, By focusing on Huntington s disease as a model, the Hereditary disease http://www.hdfoundation.org/

Click below to donate to our effort. Academy Elects 225th Class of Fellows and Foreign Honorary Members Class Includes Scholars, Scientists, Artists, Civic, Corporate and Philanthropic Leaders, Cambridge, MA, April 26, 2005 - The American Academy of Arts and Sciences today announced the election of 196 new Fellows and 17 new Foreign Honorary Members. The 213 men and women are leaders in scholarship, business, the arts, and public affairs. Full article in .PDF HDF HERO BRACELETS are available for purchase. These rubber-band bracelets are being sold in honor of Michael O'Brien's memory and to raise awareness and money for hereditary disease research. Now you can show your support for the doctors searching for cures for Huntington’s, Parkinson’s, ALS, MS, and Alzheimer’s as well as the millions who suffer from these diseases. To place an order send a check made out to the Hereditary Disease Foundation for the amount purchased $2.00 each ( min 3 per order ) to: Jeff Rosenthal, 9006 N.Clifton Ave., Niles, IL, 60714 Jeffrosey@sbcglobal.net

90. Hereditary Disease Foundation Links HDA Online the Web site of the UK s Huntington s disease Association, which offers HD Lighthouse - Huntington s disease Information and Community http://www.hdfoundation.org/links.htm

Huntington's Disease Organizations Australian Huntington Disease Association, (Inc.) New South Wales Queensland Western Australia Austrian Huntington Association ... Enfermedad de Huntington - for information in Spanish. Georgia Chapter of HDSA German Huntington Help - you can also navigate this site in either French or English by clicking on one of the flags on the home page. HDA Online HD Lighthouse - Huntington's Disease: Information and Community HOPES: Huntington's Outreach Project for Education - at Stanford. Huntington's Disease Advocacy Center - By HD Families for HD Families. Huntington's Disease Society of America Huntington Society of Canada - offers information in both English and French. International Huntington Association (IHA) - a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease (HD) and their families. Each agency promotes lay and professional education; individual and family support; psycho-social, clinical and biomedical research; and ethical and legal considerations related to Huntington's Disease in its respective country. Los Angeles chapter of the Huntington's Disease Society of America National Huntington Disease Research Roster A research roster of Huntington Disease patients and families was established in 1979 at Indiana University in response to a recommendation from the Commission for the Control of Huntingtons Disease and its Consequences. Brought to you by the

91. Huntington's Disease As brain cells become depleted in Huntington s disease (HD), problems may Huntington s disease is a devastating illness that affects every aspect of a http://www.asha.org/public/speech/disorders/Huntington-Disease.htm

@import url( /styles/importmenuP.css ); Skip to: content navigation Our site's pages are optimized for Web browsing software that supports current Web standards, as established by the World Wide Web Consortium (http://www.w3c.org/) . Content is accessible from older or less standards-compliant technologies, but its presentation will not be identical to visitors with standards-compliant software. Read more on our site's changes and accessiblity. Find a Professional Shop My Account Guest Login Search for: Advanced Search Home Site Location: Home For the Public Disorders and Diseases Huntington's Disease Based on a brochure developed by Lynn Rhoades, M.S., CCC-SLP for the Huntington's Disease Society of America ( www.hdsa.org ) with financial support of the American Speech-Language-Hearing Association. Why Communication and Swallowing Symptoms Arise As brain cells become depleted in Huntington' s Disease (HD), problems may develop in the following three areas: motor control (movement); cognition (thinking); and behavior. Speech and swallowing problems arise when the centers of motor or cognitive control are affected that cause muscle weakness or discoordination, chorea, and problems with memory, sequencing, new learning ability, reasoning, and problem solving. Typically, speech and language functions are primarily controlled in the left side of the brain and swallowing function is controlled in the brainstem (at the base of the brain). Cognitive function is believed to be controlled in the right side of the brain. HD typically begins in the caudate nucleus and putamen, which are located in the central part of the brain (core), and spreads to these other control centers, causing communication and swallowing problems as the disease progresses. Communication

92. The Australian Huntington Disease Association (Victoria) Information about Huntington disease and HD support services available in Victoria. http://www.ahda.com.au/

Welcome to the Home Page of the Australian Huntington Disease Association (Vic) The AHDA (Vic) promotes the needs and interests of people affected by Huntington Disease. If you are viewing this text it is because your browser does not support frames. Please make use of the menu below to view the Australian Huntington Disease Association (Vic) web site. About the AHDA What is Huntington Disease (HD)? Services Provided by the AHDA (Vic) Other Huntington Disease Specific Services in Victoria ... Contact the Australian Huntington Disease Association (AHDA)

93. Huntington's Disease Information The Glaxo Neurological Centre, Non medical advice and information for people with neurological conditions and their carers. http://glaxocentre.merseyside.org/huntsfacts2.html

Huntington's Disease Information For information about Huntington's Disease please see the following website: UK Huntington's Disease Association: http://www.hda.org.uk More links will be added soon. Please contact the Information Officer if you are looking for information about Huntington's Disease (contact details below). There are Huntington's Disease advice clinics held monthly, on the 1st Tuesday of the month at the Glaxo Centre, Liverpool, UK. Please contact the Glaxo Centre to make an appointment. The Glaxo Neurological Centre is a unique non-medical advice and information centre for people with neurological conditions and their carers For more information about neurological conditions contact the Information Officer by e-mailing mnt@gnc.u-net.com , or phoning 0151 298 2999, or using our textphone 0151 298 3289 Return to the Glaxo Centre's Homepage Last Updated July 2003

94. HDA NORTH WEST LANCASHIRE BRANCH Information about the North West Lancashire branch of the UK Huntington s disease Association. http://members.aol.com/hdanwlancs/

HUNTINGTON'S DISEASE ASSOCIATION North West Lancashire Branch Dedicated to the Care and Support of Huntington's Families General Information Branch Meetings Local and National Contacts Young Carers ... The whole world owes a debt of gratitude to this community without which the Human Genome Project would not be where it is today! Fact Sheets from the Huntington's Disease Association Fact Sheet 1 All about the Huntington's Disease Association Fact Sheet 2 General Information about Huntington's Disease ... EMail Webmaster - John Griffiths s="na";c="na";j="na";f=""+escape(document.referrer) View My Guestbook Sign My Guestbook [Previous] [Join] ... [Skip Next] This webring is hosted by: HACKERSONS E-Mail: Ringmaster

95. Welcome To The New Jersey Chapter Of The Huntington's Disease Society Of America The New Jersey Chapter is part of the national Huntington s disease Society The Huntington s disease Society of America (HDSA) is dedicated to finding http://www.hdsanj.org/

About HD NJ Chapter Chapter Events Family Service Center ... Recruitment for Research on Huntington's Disease The Huntington's Disease Society of America - New Jersey Chapter 114B South Main Street P.O. Box 67A Cranbury, NJ 08512 (609) 448-3521 fax info@hdsanj.org Member of Community Health Charities Upcoming Chapter Events Paws for a Cause - Dog Walk Sunday, September 11, 2005 / Medford, NJ Team Hope - Walk for HD Sunday, September 25, 2005 / Pt. Pleasant Beach, NJ (visit our Chapter Events page for more information) The New Jersey Chapter of the Huntington's Disease Society of America was founded in 1976 to assist affected families and support research to find a cure. It is the only voluntary health agency dedicated to serving HD families in the state and sponsors family services, education and research. The Chapter helped found and is affiliated with the Samuel L. Baily Huntington's Disease Family Service Center at the University of Medicine and Dentistry of New Jersey. Services for Huntington's families are provided at three sites across the state. The New Jersey Chapter is part of the national Huntington's Disease Society of America with chapters across the country. The mission statement of the organization is as follows:

96. Huntington's Disease Florida Huntington s disease Sprint and Olympic Distance Triathlon, Sunday, August 7, 2005 Crandon Park (south beach entrance) 4000 Crandon Blvd Key Biscayne, FL http://www.huntingtonsdiseasefl.org/

Huntington's Disease Sprint and Olympic Distance Triathlon Sunday, August 7, 2005 Crandon Park (south beach entrance) 4000 Crandon Blvd Key Biscayne, FL Online. Act Now! Online Registration Host Hotels Eligibility and Rules Map to Race Location Contact Us Course Maps Olympic Distance Map Sprint Distance Map Bike Transition Map The maps were created for Adobe Acrobat. If you do not have Adobe Acrobat Reader you can dowload it from HERE.

97. Huntington's Disease Society Of America: Northeast Ohio Chapter Both funds and volunteers are needed to help the Huntington s disease Society of America grow. To make a donation, to offer your time or for more http://www.lkwdpl.org/hdsa/

Huntington's Disease Society of America Northeast Ohio Chapter Chapter Board Medical Advisory Committee Approved Testing Centers Chapter History ... Welcome (313K) from Barbara Boyle, National Executive Director/CEO, Huntington's Disease Society of America SUPPORT GROUP MEETINGS HD patients, those at risk, caregivers and friends are all welcome. For more information, please contact Chapter President Don Barr by phone at (440) 423-4372 or by e-mail at dbarrhome@aol.com , or Chapter social worker Cece Cornell at (216) 844-8572. Cleveland area - 7:00 - 8:30 p.m. 3rd Monday of each month UH Chagrin Highlands Medical Center 3909 Orange Place, Orange Village, OH 44122 MAP DIRECTIONS Akron Support Group - 6:45 p.m. Meetings are on a Monday or Tuesday, based on the availability of a meeting room. Ellet Community Center 2449 Wedgewood Drive Akron, OH 44312

98. Huntington's Disease - Genetics Huntington s disease (HD) is an inherited disease of the brain that affects the nervous system. The faulty gene interferes with the functioning of a http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Huntingtons_disea

99. Huntington's Disease - Behavioural Problems Huntington s disease (HD) is an inherited disease of the brain. As the disease progresses, damage to the brain can cause a wide range of behavioural http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Huntingtons_disea

100. Huntington's Disease - Wikipedia, The Free Encyclopedia Huntington s disease or Huntington s chorea (HD) is an inherited disorder Huntington s disease is inherited in the autosomal dominant fashion, http://en.wikipedia.org/wiki/Huntingtons_disease

Huntington's disease From Wikipedia, the free encyclopedia. (Redirected from Huntingtons disease Huntington's disease Huntington's disease or Huntington's chorea (HD) is an inherited disorder characterized by abnormal body movements called chorea , and loss of memory . There also is evidence that doctors as far back as the Middle Ages knew of this devastating disease. The incidence is 5 to 8 per 100,000. It takes its name from the New York physician George Huntington who first described it precisely in Contents Short Summary Symptoms Genetics Diagnosis ... edit Short Summary Huntington's disease is inherited in autosomal dominant fashion, meaning that it is a dominant allele . People with Huntington's disease have a 50% chance of passing the disease to each of their children. Symptoms of the disorder include loss of cognitive ability (thinking, speaking), changes in personality, jerking movements of the face and body in general and unsteady walking. These symptoms develop into dementia and cognitive decline (not mental retardation which is an older term referring to the lack of development of mental ability rather than loss of it.) and an advanced form of jerking called chorea , the Greek word for dance.

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