41. Commonly Asked Questions Is there a special diet required for sufferers? The huntingtons DiseaseSociety of America (HDSA) is a national voluntary nonprofit organization http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/id188.html

Juvenile-HD Commonly Asked Questions Home INDEX Page What Is Huntington's? Commonly Asked Questions 10 The Most Commonly Asked Questions Advocacy/Donations/Press Info Clinical Definitions-Terminology Facing HD~Family Handbook ... INDEX Page Commonly asked questions about HD 1. What is Huntington's Disease? Huntington's Disease (HD) also called Huntington's Chorea is an inherited disorder of the central nervous system. It causes progressive deterioration with varying symptoms which may include involuntary movements, speech impairment, and intellectual and emotional changes. Symptoms usually appear between the ages of 30 and 45, although they may appear earlier or later. 2. How does the disease get its name? The disease is named after Dr. George Huntington, an American physician, who was the first to publish a precise description of the symptoms and course of the disease in an article written in 1872. 3 Who Is Affected? HD is hereditary. Each child of a parent who has HD has a 50/50 chance of inheriting the gene and is said to be at risk. Huntington's Disease affects both genders as well as different races and ethnic groups throughout the world.

42. Download HDA Fact Sheets, Booklets & Forms Eating and swallowing difficulties 204k; Huntington s disease and diet Huntington s disease in the family (1997) - A booklet for young children http://www.hda.org.uk/charity/download.html

The HDA Fact Sheets are available online in PDF format. To download, view and print out the HDA Fact Sheets you will require a copy of Adobe Acrobat Reader on your computer. Acrobat Reader is available for free and can be downloaded from the Adobe web site. You can also obtain printed copies of these fact sheets by contacting: Huntington's Disease Association 108 Battersea High Street, London, SW11 3HP Phone: 020 7223 7000 Fax: 020 7223 9489 email info@hda.org.uk HDA fact sheets available for downloading All about the Huntington's Disease Association General information about Huntington's disease Predictive testing for Huntington's disease Talking to children about Huntington's disease ... Checklist for choosing a care home HDA membership and other forms available for downloading Membership Professional Membership Deed of Covenant Form with Bankers Order Other booklets available from the HDA Huntington's disease in the family (1997) - A booklet for young children Facing Huntington's disease - A handbook for families and friends

43. What Is Huntington's Disease Huntington s disease, which is often called HD, is an hereditary disorder of A high calorie diet can prevent weight loss and improve symptoms such as http://www.hda.org.uk/charity/whatishd.html

What is Huntington's disease? The information contained on this page is available as a Fact Sheet which you can download from our Fact Sheet page. Huntington's disease, which is often called HD, is an hereditary disorder of the central nervous system. It used to be known as Huntington's Chorea or HC. Huntington's disease usually develops in adulthood and can cause a very wide range of symptoms. The disease affects both men and women. Page sections: What causes Huntington's disease? The early symptoms of Huntington's disease How Huntington's disease progresses What treatment and help is available? What causes Huntington's disease? Huntington's disease is caused by a faulty gene on chromosome 4. The gene, which produces a protein called Huntingtin, was discovered in 1993. In some way - which is not yet understood - the faulty gene leads to a damage of the nerve cells in areas of the brain, including the the basal ganglia and cerebral cortex. This leads to gradual physical, mental and emotional changes.

44. HDA NORTH WEST LANCASHIRE BRANCH Huntington s disease is a dominantly inherited neurological disorder of thecentral nervous system. Huntington s disease and diet http://members.aol.com/hdanwlancs/

HUNTINGTON'S DISEASE ASSOCIATION North West Lancashire Branch Dedicated to the Care and Support of Huntington's Families General Information Branch Meetings Local and National Contacts Young Carers ... The whole world owes a debt of gratitude to this community without which the Human Genome Project would not be where it is today! Fact Sheets from the Huntington's Disease Association Fact Sheet 1 All about the Huntington's Disease Association Fact Sheet 2 General Information about Huntington's Disease ... EMail Webmaster - John Griffiths s="na";c="na";j="na";f=""+escape(document.referrer) View My Guestbook Sign My Guestbook [Previous] [Join] ... [Skip Next] This webring is hosted by: HACKERSONS E-Mail: Ringmaster

45. AllRefer Health - Huntington's Disease Prevention (Huntington Chorea) Huntington s disease (Huntington Chorea) information center covers Prevention . Since the odds that the child of a person with Huntington s disease will http://health.allrefer.com/health/huntingtons-disease-prevention.html

AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Web health.allrefer.com You are here : AllRefer.com Health Huntington's Disease : Prevention of Huntington's Disease Huntington's Disease Definition Prevention Treatment Expectations or Prognosis Complications Support Groups ... Go To Main Page Alternate Names : Huntington Chorea Huntington's Disease Prevention Genetic counseling is advised if there is a family history of Huntington's disease. This may include DNA analysis of multiple family members. Since the odds that the child of a person with Huntington's disease will be affected are so high, people with the disorder may wish to consider adoption or forms of assisted reproduction that can reduce the chance that the disease will be passed on to their children. Previous Top Next Jump to another section Definition Huntington's Disease Prevention Huntington's Disease Treatment Huntington's Disease Prognosis Huntington's Disease Complications Huntington's Disease Support Groups ... Calling Your Health Care Provider Topics that might be of interest to you Dementia Organic Brain Syndrome Paranoid Personality Disorder Psychosis ... MRI of the Head Other Topics

46. Huntington's Disease Huntington s disease. By Karen Monte. Huntington s disease (HD) is a dominantgenetic disorder. Each child of a person who has HD has a 50% chance of http://www.lib.uchicago.edu/~rd13/hd/huntingtons.html

Huntington's Disease By Karen Monte Huntington's Disease (HD) is a dominant genetic disorder. Each child of a person who has HD has a 50% chance of inheriting the disease, and the disease does not skip a generation. HD is caused by a larger than normal CAG repeat in the Huntington gene. This larger than normal CAG repeat produces an abnormal protein that begins to kill brain cells when the person who has the gene reaches middle age. The loss of these cells causes intense symptoms and eventually death. HD was named after Dr. George Huntington. In 1872, he was the first person to document an accurate description of the symptoms and course of the disease. At the time he called it “hereditary chorea”. The Huntington gene was discovered in 1993 by the Huntington Study Group. The CAG repeats in the Huntington gene, which is located on chromosome 4, code for the protein huntingtin. The larger than normal number of CAGs in a person with HD causes the huntingtin protein to be abnormal, which leads to symptoms. Even though every cell in the body has the gene, only the cells in the brain seem to be affected. A person has two alleles for every gene. One allele is inherited from the mother and one allele is inherited from the father. If either allele of the Huntington gene has the larger than normal CAG repeat, the person will have HD. If neither allele has the larger than normal CAG repeat, the person will not have HD and will not pass it on. When a person has children, only one allele of each gene is passed on. If a person with HD passes on the allele with the larger than normal CAG repeat, the child will have HD. If the allele with the normal CAG is passed on, the child will not have HD.

47. NINDS Forwarding Page Today, physicians commonly use the simple term Huntington s disease (HD) to The individual s physician can offer additional advice about diet and about http://www.ninds.nih.gov/health_and_medical/pubs/huntington_disease-htr.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/huntington/detail_huntington.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

48. Huntington's Disease Association Of Ireland The Huntington s disease Association of Ireland (HDAI) provides consultation,information and individualised support to those diagnosed with Huntington s http://www.huntingtons.ie/question.html

The ten most commonly asked questions about HD What is Huntington’s Disease? Huntington’s Disease (HD) – also called Huntington’s Chorea – is an inherited disorder of the central nervous system. It causes progressive deterioration with varying symptoms which may include involuntary movements, speech impairment, and intellectual and emotional changes. Symptoms usually appear between the ages of 30 and 45, although they may appear earlier or later. How does the disease get its name? The disease is named after Dr. George Huntington, an American physician, who was the first to publish a precise description of the symptoms and course of the disease in an article written in 1872. How is the disease inherited? This is a genetic disease. Each child of an affected parent has a one in two chance or 50% likelihood of inheriting the gene. People with the abnormal gene will always develop the disease, unless they die of other causes prior to developing signs and symptoms.. People who do not inherit the HD gene will not develop the disease, neither will their children, or the children’s children. The disease does not “skip a generation”. How is it caused?

49. Testing For Huntington's Disease - Part One This is an article on testing for Huntington s disease. The information in thisarticle comes from the booklet entitled, Testing for Huntington s disease http://www.suite101.com/article.cfm/huntingtons/30924

Topics Articles Links Free Courses Home Directory 22 Communities What's New ... Free e-Courses Search Suite101.com Within: Huntington's Disease Health New Topics The Secret Of Intuition Self-Empowerment Eating Disorders Depression ... More... New Articles Fibers and plant cells Why Science Failed to Unravel the Mind Development in Preschoolers: What's Normal? Understanding TSH Receptor Antibodies ... More... New Discussions Stories of hope, please! DUMPED (AGAIN) BY MY N BOYFRIEND Needing Help Running into the ex-N ... More... My Recent Articles Men Dealing With Huntington's Disease Gerry's Story A MOTHERS PAIN Related Online Courses How To Survive An Abusive Relationship Coping With Osteoporosis Introduction to Infertility Testing for Huntington's Disease - Part One Home Applied sciences Medicine and health Diseases Author: Julie Sando Published on: January 12, 2000 Note: We are actively seeking a new Feature Writer to adopt this Retired Topic. If interested, please Contact Member Services for more information.

50. Reader Survey messages from 1 to 1 of Discussions relating to Huntington s disease ReaderSurvey - dewey decimal 616.851. http://www.suite101.com/discussion.cfm/huntingtons/29023

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51. $500,000,000 Market For Huntingtons' Disease Treatment Huntington s disease Fast track approval ofLAX101 for the treatment ofHuntington s disease. Market for LAX-100 estimated at $500000000. http://hdlighthouse.org/treatment-care/treatment/drugs/lax101/human/updates/0034

New to the Huntington's Disease Lighthouse: Welcome, start here Beginners Search Treatment Now ... EPA-DHA Drugs Related Haldol bench human ... human HD Lighthouse Editor's Comment: From this we can estimate the cost of LAX-101 treatment for Huntington's disease. $500,000,000/30,000=$17,000 per patient for a year. Laxdale will get about half. They deserve every penny. Jerry Posted to HDLighthouse: 04 Dec 2002 18:21 HDL Update: $500,000,000 Market For Huntingtons' Disease Treatment Investors waiting "When you cut through all the detail, this could be a drug that is very significant for the treatment of Huntington's", Rick Stewart, Amarin CEO Amarin Corp is a $25 million British company that licenses and sells drugs to treat nerve disorders, like Parkinson's Disease. Amarin's chief executive, Rick Stewart, hails from SkyePharma a British drug developer. Stewart says that Amarin's research partner, Laxdale of Scotland, will follow up any day now on preliminary findings from a Phase III study of LAX-101, a treatment for Huntington's Disease. "This is the first time we have seen anything positive for Huntington's," says Stewart, who is shaking his head about the market's treatment of the preliminary findings. A study of 83 qualifying patients took place at Harvard, Emory and Johns Hopkins universities, and in the United Kingdom and Canada. Huntington's, a genetic disorder, has been diagnosed in about 30,000 Americans and an equal number of patients in Europe. The U.S. Food and Drug Administration has granted LAX-101 a so-called fast-track designation.

52. Cardiovascular Disease: Diet, Nutrition And Emerging Risk Factors - Launch Of Th Despite improvements in death rates from cardiovascular disease (CVD) around theworld Cardiovascular disease diet, Nutrition And Emerging Risk Factors http://www.medicalnewstoday.com/medicalnews.php?newsid=22656

53. Foogle Business - What Is Huntingtons Disease - Hereditary Chorea - Dominant Fau Huntington s disease is due to a dominant and faulty genetic disorder on Huntington s disease was named after the American, Dr. George Huntington, http://www.thesahara.net/huntingtons_disease.htm

Huntington's Disease D ominant and Faulty Genetic Disorder Hereditary Chorea " LEARN MORE, BE MORE " Last-Modified: Foogle Business - Huntington's Disease - Huntingtons - Huntingdons Learn More, Be More What is Huntington's Disease What is Huntington's Disease? It is due to a dominant and faulty genetic disorder on chromosome 4 The consequence of the fault with this gene starts around or just before middle age, and leads to a gradual physical, mental and emotional change in its victim. Huntington's Disease was named after the American, Dr. George Huntington, because in 1872 he was the first person to document an accurate description of the symptoms and the route of the disease. The cause was then unknown. Huntington's Disease - Hereditary Chorea George Huntington (1850-1916) George Huntington was born on 9 April 1850 in the drowsy secluded village of East Hampton, CT, United States. Both his father and grandfather were doctors, and George Huntington junior followed in their footsteps. At an early age, Huntington accompanied his father on his rounds and sick calls and during one of these visits, he gained his first experience of hereditary chorea. At the time he called it Hereditary Chorea.

54. Huntington's Disease - Treatment - Neurologychannel There is no cure for huntingtons disease. Treatment focuses on addressing thedisease s symptoms, preventing associated complications and providing support http://www.neurologychannel.com/huntingtons/treatment.shtml

Home Search SiteMap Ask the Dr. ... Medical Store HUNTINGTON'S DISEASE Overview Symptoms Diagnosis Treatment ... Find a Neurologist CONDITIONS ADHD ALS Alzheimer's Disease Autism ... Carpal Tunnel Syndrome Cephalic Disorders Cerebral Palsy Charcot-Marie-Tooth Disease Chronic Pain Dementia Encephalitis Epilepsy ... Guillain-Barre Syndrome Headache Huntington's Disease Hydrocephalus Lou Gehrig's Disease ... Traumatic Brain Injury Vertigo DIAGNOSTIC TESTS CT Scan MRI Scan TREATMENT OPTIONS Botulinum Toxin Therapy Epidural Injection Trigger Point Injection Vagus Nerve Stimulation RESOURCES Clinical Trials Glossary Links MDLocator ... What Is a Neurologist? Videos FOR DOCTORS ONLY Website Services Get Listed in MDLocator CME ABOUT US Healthcommunities.com Testimonials print this email this Treatment There is no cure for Huntington's disease. Treatment focuses on reducing symptoms, preventing complications, and providing support and assistance to the patient and those close to him or her. Medication Physicians often prescribe various medications to help control emotional and movement problems. Antipsychotics (hallucinations, delusions, violent outbursts): haloperidol, chlorpromazine, olanzapine (contraindicated if patient has dystonia)

55. Untitled Document First we will look at what genetic changes give rise to genetic diseases, huntingtons s disease has a test, which can be performed on a fetus. http://www.stanford.edu/class/bio4/ClassLinks/october11.htm

October 11 - Genetic Disease Suggested Reading Chapter 7 and 8, chapter 9, pp.189-90 Genetic disease information sites: http://www.geneticsnow.com/index.htm http://www.kumc.edu/gec/support/ We all want our children to be better off than we are. We hope they will be better educated, healthier, financially more secure. 5-10% of children inherit and identifiable genetic defect. Some more serious than others i.e. asthma to sickle cell anemia. Till now medicine has largely been about treating the symptoms but now the hope or promise of Biotechnology is that embryos can be prescreened for disease and even diseases that have childhood or adult onset can be treated. First we will look at what genetic changes give rise to genetic diseases, and what are some examples of these diseases. Second we will look at how biotechnology might treat various genetic diseases. Genetic mutations can take the form of the loss or addition of a single of a few bases or large loss or rearrangement of chromosome pieces or abnormal numbers of whole chromosomes. Genetic Disease Alteration in chromosome structure Inversions Base substitutions and insertions -alteration of a single base.

56. ALS Treatment: Amyotrophic Lateral Sclerosis Lou Gehrigs Disease gehrigs disease muscular dystrophy lou gehrig disease huntingtons disease MEGACoQ10 Individuals with Parkinson s disease, ALS, Alzheimer s disease, http://www.enhancedlifesciences.com/

path = "http://www.enhancedlifesciences.com/"; Home About Us Products Disorders ... Cart 15 servings 1 item $34.99 2 or more items $32.99/each 300 g 1 item $11.99 2 or more items $9.99/each 150 mg x 60 capsules 1 item $36.99 2 or more items $32.99/each 600 mg x 60 capsules 1 item $159.99 2 or more items $149.99/each 30 day supply 1 item $12.99 2 or more items $10.99/each 1000 IU x 60 capsules 1 item $15.99 2 or more items $12.99/each 1000mg x 100 tablets 1 item $11.99 2 or more items $8.99/each 200mg x 90 capsules 1 item $15.99 2 or more items $12.99/each 30mg x 60 capsules 1 item $15.99 2 or more items $12.99/each Why Chose Enhanced Life Sciences? Enhanced Life Sciences is dedicated to providing the highest quality supplements at the lowest cost in the industry. Enhanced Life Sciences products are recommended by physicians and nurses for individuals with Parkinson's disease, ALS, MS, CHF, HIV/AIDS and many other disorders. Enhanced Life Sciences offers all of our customer's access to our on-staff Registered Dietitian

57. ALS Treatment: Amyotrophic Lateral Sclerosis Lou Gehrigs Disease lou gehrigs disease muscular dystrophy lou gehrig disease huntingtons disease als Neuromuscular disease Center Clinical services for neuromuscular http://www.enhancedlifesciences.com/resources.php

path = "http://www.enhancedlifesciences.com/"; Home About Us Products Disorders ... Cart Industry Resources : Neuromuscular Disease Muscular Dystrophy Association - The Muscular Dystrophy Association is a voluntary health agency a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans. Neuromuscular Disease Center - Clinical services for neuromuscular disorders as well as the regional MDA Clinic. Strength-L - An internet discussion list dedicated to people who have a form of neuromuscular disease . Information about the group, subscribing instructions and browse the archives. Lincolnshire Post-Polio Library: Neuromuscular Junction Transmission Defects - Article about anticholinesterase-responsive neuromuscular junction transmission defects in post-poliomyelitis fatigue. Neuromuscular Disease Center - Review of various muscle, nerve and neuromuscular disorders; links to relevant sites. Neuromuscular Junction Effects - Description of acetylcholinesterase inhibitors producing destructive changes at the neuromuscular junction. For medical professionals. Disorders of the Neuromuscular Junction - An introduction to disorders of the neuromuscular junction from Baylor College of Medicine.

58. Antibiotic Holds Promise As Huntington's Treatment To learn more about Huntington s disease, visit the huntingtons disease Societyof America (www.hdsa.org ). Copyright © 2005 ScoutNews LLC. http://www.healthcentral.com/newsdetail/408/527273.html

Dr. Dean TV Specials Newsletters Home ... Health Tools Search Choose a Health Topic * All Health Topics * Acne Addictions AIDS/HIV Alcohol Abuse Allergies Alternative Medicine Alzheimer's Arthritis Asthma Attention Deficit Disorder (ADHD) Backache Bipolar Affective Disorder Birth Control Blood Blood Pressure Bone/Joint/Tendon Bowel Brain Breast cancer Cancer Cerebral Palsy Cholesterol Cramps Crohn's Disease Cysts Dental/Oral Depression Diabetes Diet, Fitness, Looks Disabled/Special Needs Drug Abuse Ear/Nose/Throat Eating/Appetite Eczema Encephalitis Eye/Vision Fatigue Fever Flu Food Poisoning Foot Gallbladder Gastrointestinal Genetic/Congenital GERD/Heartburn Hair Loss Hair/Scalp Headache Hearing Heart Disease, Stroke Heat/Sunstroke Hepatitis Hernia Herpes High Blood Pressure Hormonal Immune Disorders Immunizations/Vaccines Impotence Incontinence/Bladder Infections Injuries Kidney/Urinary Kids Learning Disabilities Liver Lung Cancer Men Menopause, Postmenopause Migraine Mobility/Balance Multiple Sclerosis Muscle Neural Nosebleeds Pain Parasites Pituitary PMS Pregnancy Prostate Cancer Prostate Disorders Psoriasis Psychological Raynaud's Disease Respiratory Reye Syndrome Rheumatoid Arthritis Schizophrenia Seniors Sensory Sexually Transmitted Disease Skin Sleep Speech Disorders Spinal Thyroid Trauma Weight Loss Women Yeast Infections Home Diseases Printer Friendly Send to a Friend Antibiotic Holds Promise as Huntington's Treatment But researcher notes finding is preliminary By Randy Dotinga HealthDay Reporter FRIDAY, Aug. 5 (HealthDay News) Preliminary research suggests a decades-old antibiotic may help

59. Antibiotic Holds Promise As Huntington's Treatment To learn more about Huntington s disease, visit the huntingtons disease Societyof America (www.hdsa.org ). SOURCES Stephen Massa, MD, Ph.D., http://ww3.komotv.com/Global/story.asp?S=3688405

60. Huntington Disease Table 1. Molecular Genetic Testing Used in Huntington disease Supportive carewith attention to nursing, diet, special equipment, and eligibility for http://www.geneclinics.org/profiles/huntington/details.html

Huntington Disease [Huntington Chorea] Authors: Brendan Haigh, PhD Mahbubul Huq, MD, PhD, FCCMG Michael R Hayden, MB, ChB, PhD, FRCP(C), FRSC About the Authors Initial Posting: 23 October 1998 Last Revision 30 August 2005 Summary Disease characteristics. Huntington disease (HD) is a progressive disorder of motor, cognitive, and psychiatric disturbances. The mean age of onset is 35 to 44 years and the median survival time is 15 to 18 years after onset. Diagnosis/testing. The diagnosis of HD rests on positive family history , characteristic clinical findings, and the detection of an expansion in the HD gene that is 36 or more CAG trinucleotide repeats Genetic counseling HD is inherited in an autosomal dominant manner. Offspring of an individual with a mutant allele have a 50% chance of inheriting the disease-causing allele Predictive testing in asymptomatic adults at 50% risk is available, but requires careful thought, including pretest and post-test genetic counseling , as no treatment exists. Asymptomatic at-risk individuals younger than 18 years of age should not have predictive testing . Although infrequently requested

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