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         Hemophilia:     more books (100)
  1. Hemophilia and Hemophilioid Diseases
  2. Social Work and Chronic Health Conditions: An Orientation Manual With Special Reference to Hemophilia by John R. McDonald, 1984-11
  3. 34th Hemophilia Symposium Hamburg 2003: HIV Infection and Epidemiology; Management of Bleedings in Hemophiliacs with Inhibitors;Orthopedic Problems and ... C;Pediatric Hemostaseology;Free Lectures
  4. Hemophilia Foundation Gives Bayer A Headache.(Brief Article): An article from: The Non-profit Times by Matthew Sinclair, 2001-01-01
  5. Hemophilia - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by Health Publica Icon Health Publications, 2004-01-09
  6. Avigen granted broad hemophilia A gene therapy patent.: An article from: BIOTECH Patent News
  7. Hemophilia and Von Willebrand's Disease in the 1990's: A New Decade of Hopes and Challenges : Proceedings of the XIX Congress of the World Federatio (World Federation of Haemophilia//Proceedings) by Jeanne M. Lusher, 1991-07
  8. The experience of children with hemophilia and HIV infection. (human immunodeficiency virus): An article from: Journal of School Health by Christopher S. Hall, 1994-01-01
  9. 30th Hemophilia Symposium Hamburg 1999: HIV Infection and Epidemiology in Hemophilia; Gene Therapy in Hemophilia A and B; Therapy of Hepatitis C; Inhibitors ... Pediatric Hemostasiology; Case Reports
  10. Hemophilia: An entry from Thomson Gale's <i>Gale Encyclopedia of Science, 3rd ed.</i> by Rosalyn Carson-DeWitt, 2004
  11. 35th Hemophilia Symposium Hamburg 2004: Epidemiology;Risk of Infections and Inhibitors in Hemophilia; Chronic lic Synovitis and Long-term Results of Orthopedic ... Hemostaseology;Free Lectures
  12. Let Harold (A Boy with hemophilia) Do it by Nan Frelander, 0001-01-01
  13. Hemophilia Care in the New Millennium (Advances in Experimental Medicine and Biology)
  14. The Hemophilias. International Symposium Washington by Kenneth M. Brinkhous, 1964

101. Hemophilia Causes - EMedicine Health
Learn about the causes of hemophilia. How hemophilia disorder affects men and women.
http://www.emedicinehealth.com/articles/6481-2.asp
Search September 22, 2005 Registration Healthcare Professionals You are in: Blood and Lymphatic System
Hemophilia
Hemophilia Causes
  • Men have only one X chromosome. If that chromosome carries the abnormal hemophilia gene, the man will have the disease hemophilia. Both hemophilia A and B are linked to the X chromosome, which means they primarily affect men.
    Women have two X chromosomes. Even if one of the X chromosomes carries the defective gene, the normal gene on the other X chromosome will protect the woman from hemophilia. The gene does not affect them, but they carry it and pass it on to their children.
    • A man who has hemophilia has a 50% chance that his daughters will be carriers, although his sons will not be affected if the mother is not a carrier.

    The transmission of this gene to offspring accounts for 70% of the cases of hemophilia. The remaining 30% occur from spontaneous changes in genes responsible for causing hemophilia.
Hemophilia Overview Hemophilia Symptoms Sections Hemophilia Overview Hemophilia Causes Hemophilia Symptoms When to Seek Medical Care Exams and Tests Hemophilia Treatment ... Authors and Editors Dementia is not something that happens only to older people. Learn about causes and treatment options.

102. Hemophilia / Family Village Library
The World Federation of hemophilia is an international notfor-profit organization To this effect, the WFH works with national hemophilia organizations,
http://www.familyvillage.wisc.edu/lib_hemp.htm
Hemophilia
Who to Contact
Where to Go to Chat with Others

Learn More About It

Web Sites
...
Search Google for "Hemophilia"
Who to Contact
National Hemophilia Foundation (NHF)
116 West 32nd Street, 11th Floor
New York, NY 10001
800-424-2634 (toll-free)
212-431-0906 (fax)
Web: http://www.hemophilia.org/ NHF publishes a monthly newsletter, Community Alert , at no charge, and has numerous brochures that are free if you are requesting one copy. They also provide a new parent packet for parents of newly diagnosed children. The Foundation has a library of journals, books and articles relating to bleeding disorders/HIV that are free to members. NHF collects information on physicians and researcher who treat/study the condition and disseminates the research information to its members. They operate a toll-free information line that provides referrals and information. They host a national conference, call for further information.
World Federation of Hemophilia
1425 René Lévesque Blvd. W. Suite 1010 Montréal, Québec, H3G 1T7 Canada

103. English

http://www.hemophilia.is/english/Main.htm
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104. New Page 2

http://www.gatewayhemophilia.org/
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105. HIV & Hemophilia: Introduction
hemophilia is a disorder in which one of the plasma proteins needed to form a clot is The most common type of hemophilia is factor VIII deficiency,
http://www.hivpositive.com/f-HIVyou/f-Hemophilia/3-intro.html
Introduction to Hemophilia
What Is Hemophilia?
How Common Is Hemophilia? How Does Someone Get Hemophilia? Symptoms and Treatment of Bleeding Episodes ...
Return to the Hemophilia Menu
What Is Hemophilia?
Hemophilia is a disorder in which one of the plasma proteins needed to form a clot is missing or reduced. The most common type of hemophilia is factor VIII deficiency, or hemophilia A. The second most common type is factor IX deficiency or hemophilia B. When a person with hemophilia is injured, he does not bleed harder or faster than normal, but will have prolonged bleeding because he cannot make a firm clot. Small cuts on the skin are usually not a problem, but bleeding in any deeper area can be prolonged. Some bleeding episodes occur as a result of injury, but many occur seemingly without cause.
Go to the HIVpositive.com Main Menu
Return to the Hemophilia Menu
How Common Is Hemophilia?
Estimates indicate that approximately one in 10,000 males born in the US has hemophilia. All races and socio-economic groups are affected equally.
Go to the HIVpositive.com Main Menu

106. HIV & Hemophilia Menu
Introduction to hemophilia Important Questions Answers About HIV and hemophilia Report from The Institute of Medicine
http://www.hivpositive.com/f-HIVyou/f-Hemophilia/3-HemoSubMenu.html

Introduction to Hemophilia

HIV and Hemophilia
Report from The Institute of Medicine New Recombinant Product for Hemophilia B

Introduction to Hemophilia

HIV and Hemophilia
Report from The Institute of Medicine New Recombinant Product for Hemophilia B ...
Go to the HIVpositive.com Main Menu

107. Federal Hemophilia Treatment Centers / Region IX
Visit this site to learn more about hemophilia Treatment in California, Nevada, Hawaii and Guam!
http://www.hemophiliaregion9.org/
Welcome to the
Federal Hemophilia Treatment Centers / Region IX
Web Site 2005

Regional Grantee, Children's Hospital of Orange County
Regional Director, Diane J. Nugent, M.D.

Browse: Community Treatment Centers Hemophilia? Von Willebrand Disease? ... CDC TREATMENT CENTERS Choose... Alta Bates CHLA CH Oakland CHOC CH San Diego City of Hope Hawaii Nevada Orthopedic LA Stanford UC Davis UCSD UCSF Valley COMMUNITY-BASED ORGANIZATIONS Choose... CCHF HASDC HF Hawaii HF Nevada HFSC HFNC
Hemophilia Information Articles
Von Willebrand Disease Information Articles
Thrombophilia Information More Articles
Federal Program
NEW CDC LINK!
CDC CDC Web Site Information To view or print PDF documents, you need Adobe Acrobat Reader. A free copy is available from the Adobe website. Follow the instructions to download and save this software to your hard drive, return to this site, then click on any PDF document link to view or print. Acrobat Reader 6.0.1 What's New? Federal Hemophilia Treatment Centers / Region IX Annual Conference at the Hilton Pasadena Pasadena, California INVITATION AGENDA FORM Registration deadline: Jan 30, 2004

108. Hemophilia
hemophilia is a rare genetic bleeding disorder that prevents the blood from clotting properly. About one in every 8000 boys is born with hemophilia.
http://www.utoronto.ca/kids/Hemophilia.htm
Hemophilia
by Dr. Saul Greenberg What is it? Hemophilia is a rare genetic bleeding disorder that prevents the blood from clotting properly. About one in every 8,000 boys is born with hemophilia. It is inherited as an X-linked disorder which means an affected male cannot pass the gene for hemophilia to his sons, but his daughters will be carriers of the disease gene. Every female who carries the gene for hemophilia has about a one in four chance of having a child who has hemophilia. Human blood contains special proteins, known as clotting factors , which help stop bleeding. People with hemophilia are deficient in one of those factors, either factor VIII or IX and as a result, their blood cannot clot properly. Hemophilia A , also known as factor VIII deficiency, is the cause of about 80% of cases. Hemophilia B, which comprises the majority of the remaining 20%, is a deficiency of factor IX. Patients are classified as mild, moderate, or severe, based on the amount of factor present in the blood. What does is look like? A patient with hemophilia may only bleed occasionally, whereas another patient with a milder form may bleed more often. About 30% of infant males with hemophilia bleed excessively with circumcision and 1% to 2% of newborns with hemophilia may have an intracranial hemorrhage (bleeding within the skull). Once babies with hemophilia begin crawling and cruising, parents may notice raised bruises on the stomach, chest, buttocks, and back. The most common type of bleeding in hemophilia involves muscles and joints. A child with hemophilia will usually refuse to move the affected joint or muscle because of pain and swelling. Recurrent joint bleeding can also lead to chronic damage. Other signs may be prolonged nosebleeds, excessive bleeding following a tooth extraction or surgery, blood in the urine, or heavy menstrual periods in adolescents.

109. Hemophilia
hemophilia is the most common inherited coagulation factor deficiency. hemophilia A is a result of a deficiency of factor VIII, and hemophilia B of factor
http://www.upei.ca/~cidd/Diseases/clinical pathology/hemophilia.htm
related terms: hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency, Christmas disease) What is hemophilia? Hemophilia is a bleeding disorder of varying severity that is due to a deficiency in specific clotting factors. Normally the body responds to an injury that causes bleeding through a complex defence system. This consists of local changes in the damaged blood vessels, activation of blood cells called platelets, and the coagulation (clotting) process. Most inherited bleeding disorders are the result of abnormal platelet function or a deficiency in one or more of the factors involved in the blood clotting system. Hemophilia is the most common inherited coagulation factor deficiency. Hemophilia A is a result of a deficiency of factor VIII, and hemophilia B of factor IX. Hemophilia A is more common than hemophilia B, and varies in severity depending on the level of factor VIII activity. Hemophilia B is often a severe bleeding disorder. How is hemophilia inherited?

110. Medem: Medical Library: Hemophilia
hemophilia. Background. hemophilia is the oldest known hereditary bleeding disorder. There are two types of hemophilia, A and B (Christmas Disease).
http://www.medem.com/MedLB/article_detaillb.cfm?article_ID=ZZZZ907LUJC&sub_cat=5

111. Hemophilia Treatment Center
ALBANY REGIONAL hemophilia AND vonWILLEBRAND S TREATMENT CENTER The Regional Comprehensive hemophilia Treatment Center incorporates the skills and
http://www.amc.edu/patient/Hemophilia_Treatment_Center/hemophilia_treatment_cent
Albany Medical Center ALBANY REGIONAL HEMOPHILIA AND vonWILLEBRAND'S TREATMENT CENTER
at Albany Medical Center Hospital

Providing comprehensive health care for patients with mild to severe Hemophilia A, Hemophilia B, von Willebrand's disease and Thrombophilia in the Albany, New York region. What is Hemophilia?
Hemophilia is a hereditary clotting disorder. It occurs when a male individual lacks one of the blood proteins needed to clot blood. The only way to correct the effects of hemophilia is to infuse the missing clotting factor or to use DDAVP. Women, although carriers of the Hemophilia gene, do not generally exhibit symptoms of Hemophilia. Hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency) and other factor deficiencies are all coagulation (clotting) disorders. They are treated with a variety of products that enable a person with hemophilia to lead a very normal life.
What is vonWillebrand's Disease?
Also a heredity clotting disorder. Both men and women may have this diagnosis, some more seriously than others. Generally, the patient lacks what is known as the vonWillebrand protein, which causes varying degrees of blood loss, usually in and around mucus membranessuch as frequent nosebleeds, heavy uterine bleeding, and extended bleeding after surgeries or dental work. Medications are also available to treat this disorder and patients lead a normal life.
What is "Comprehensive" Care?

112. Hemophilia, HIV, Hepatitis C HCV Lawsuit: 2005 Update
hemophiliacs around the world have filed lawsuits in the United States courts against American manufacturers for allegedly selling blood factor contaminated
http://www.hemophilia-litigation.com/
SUMMARY
Persons with hemophilia in the United States, Latin America, Europe, Asia, the Middle East and Africa were infected with contaminated blood products. Lieff Cabraser is representing clients from around the world in lawsuits filed in U.S. courts against American blood companies that sold in the U.S. and exported contaminated blood worldwide.
E-mail Us

COURT DOCUMENTS
To read a copy of the Court's October 14, 2004 Case Management Order in the Blood Factor litigation, click here (Adobe Acrobat format).
We are investigating the blood factor products and conduct of the American blood companies around the world. We are currently representing clients from the following nations:
Argentina Austria Brazil Chile Colombia Costa Rica Denmark Germany Honduras Hong Kong Israel Italy New Zealand Nigeria Norway Panama Peru South Africa Sweden Taiwan United Kingdom Venezuela
Introduction: Lawsuits by Persons with Hemophilia Printer-friendly version Lieff Cabraser Heimann & Bernstein, LLP, represents persons with hemophilia worldwide, or their survivors and estates, who received blood products manufactured by American companies in the early to mid-1980's. The blood products were known as factor concentrate, Factor VIII ("antihemophilic factor" or "AHF") and Factor IX, and were manufactured and sold in the U.S., and exported worldwide. The blood products were known as anti-hemophilic factor or "Factor VIII" and "Factor IX."

113. Bayer Hemophilia Awards Program
Early Career Investigator Award Clinical Scholarship Award hemophilia Caregivers Education Award Bayer hemophilia Awards Program, Bayer HealthCare
http://www.bayer-hemophilia-awards.com/index.cfm
Application Process Deadlines for Awards Review Process Research Priorities ... Browser Requirements Attention: Your browser does not support Javascript, or Javascript support has been disabled. This web site utilizes the latest Internet technology, and in order to experience the full functionality of this web site you will need to ensure that Javascript is enabled. Bayer Global Bayer US Living with Haemophilia Kogenate FS ...
See timelines for 05/06 awards

Dr Maria Vittoria Rizzo receives her certificate of recognition at the Bayer Hemophilia Awards gala dinner, held in Bangkok during the WFH congress. Professor Gil White (left) and Mr Mike Mathews (Bayer, right) made the presentation. For more than 30 years, scientists and researchers at Bayer Biological Products have been dedicated to developing and producing novel treatments that extend and enhance the lives of people with hemophilia. Bayer believes the Hemophilia Awards Program can improve the lives of patients with hemophilia by supporting research and education worldwide.

114. UniProt Knowledgebase Keyword: Hemophilia
Protein which, if defective, causes hemophilia, a genetic disease characterized by libs={swiss_prot}keywords hemophilia libs-keywords hemophilia.
http://www.expasy.org/cgi-bin/get-entries?KW=Hemophilia

115. Department Of Medicine - Hemophilia Treatment Center
The hemophilia Treatment Center provides comprehensive services to children, adults and their families with hemophilia, Von Willebrand Disease and related
http://www.lij.edu/lijh/hemophilia.html
LINKS:
Comprehensive Hemophilia Treatment Center
At Long Island Jewish Medical Center
Richard Lipton, MD, MPH; Physician-In-Charge
Steven Arkin, MD, Pediatric Hematologist
Martin Schachter, DMD, Hemophilia Dentist
Jahan Roofeh, MD, Orthopedist About the Hemophilia Treatment Center
The Long Island Jewish Hemophilia Treatment Center serves as the Federally designated regional hemophilia program for Long Island. The center provides comprehensive services to children, adults and their families with hemophilia, von Willebrand Disease and related disorders. The Treatment Center is located in the Hematology/Oncology Building in Room 350. Telephone:
Fax:
ER Hotline:
E-Mail:
hemophilia@lij.edu
Mission/Purpose "We are committed to providing lifelong, accessible, state of the art, family centered hemophilia treatment. Our mission is to foster a high level of autonomy in the management of hemophilia through continuous family and patient education. We believe this goal is facilitated through community advocacy that promotes optimum treatment for all affected families." The Team Approach The Regional Comprehensive Hemophilia Treatment Center offers the skills of experienced hemophilia specialists and provides the following services:

116. Hematology And Blood Disorders - Hemophilia
hemophilia is an inherited bleeding, or coagulation, disorder. hemophilia may be mild, moderate, or severe, depending upon the level of the blood
http://www.schneiderchildrenshospital.org/peds_html_fixed/peds/hematology/bledhe
Hematology and Blood Disorders
Hemophilia
What is hemophilia?
Hemophilia is an inherited bleeding, or coagulation, disorder. Children with hemophilia lack the ability to stop bleeding because of the low levels, or complete absence, of specific proteins, called "factors," in their blood that are necessary for clotting. Proper clotting of blood helps prevent excessive bleeding. In the US, there are about 20,000 people with hemophilia. Each year, approximately 400 babies are born with the disorder.
What are the different types of hemophilia?
There are many factors in the blood that are involved in the function of forming clots to stop bleeding. A child with hemophilia is missing, or has a low supply of, one of the factors needed in order for the blood to clot. Two factors that affect blood clotting are factor VIII and factor IX. Hemophilia is classified by its level of severity. Hemophilia may be mild, moderate, or severe, depending upon the level of the blood clotting factors in the blood. The three main forms of hemophilia include the following:
  • hemophilia A - caused by a lack of the blood clotting factor VIII; approximately 85 percent of hemophiliacs have type A disease.

117. Hemophilia Foundation Of Oregon | Welcome - Hemophilia Oregon Information
Welcome to the hemophilia Foundation of Oregon s website! Find links to the Oregon hemophilia Treatment Center, pharmaceutical companies and home health
http://www.hfo.info/
Hemophilia Foundation of Oregon HOME CONTACT ABOUT SERVICES ... Sponsor Your Camper with a "Camper Connection" Welcome
Welcome to the Hemophilia Foundation of Oregon's website!
This site is dedicated to providing information to Oregon and SW Washington families who are affected by Hemophilia or von Willebrand disease. If you or a member of your family have been diagnosed with an inherited bleeding disorder, we invite you to contact us for more information. Services
We offer:
Information and Referral Quarterly Newsletter Summer Youth Camp Education Programs ... Advocacy Assistance News
Read the latest:
Summer 2005 Newsletter NEW eLines Sign Up Events
Current events include A Trip to the Zoo! NEW HFO Parent Support Grou p Women's Issues
Get your questions answered regarding carrier information and women's bleeding. - more Medical Insurance Resource Center
Finding, keeping, and understanding medical insurance and all its related issues can be complicated, especially for the bleeding disorders community. Our Medical Insurance Resource Center is designed to give you the tools to advocate for your family’s insurance needs. -more- Resources
Find links to the Oregon Hemophilia Treatment Center, pharmaceutical companies and home health care companies and other informational sites. -

118. Texas Central Hemophilia Association
Texas Central hemophilia Association, Inc. 3530 Forest Lane Suite 116 Dallas, Texas 75234 (214) 3514595. Kristie L Cimino. Executive Director
http://www.texcen.org/
Texas Central Hemophilia Association, Inc. 3530 Forest Lane Suite 116 Dallas, Texas 75234 (214) 351-4595 Robert E. Champagne President About Us Calendar of Events Medical Advisories www.resources ... From the President Home Your browser does not support inline frames or is currently configured not to display inline frames.

119. DermAtlas: Online Dermatology Image Library Dermatology Image,vascular Malformat
hemophiliahemophilia is a genetic (inherited) bleeding disorder caused by a shortage of substances called clotting
http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=-97811613

120. Hemophilia Society Of Colorado
The hemophilia Society of Colorado advocates for persons living with The society also strives to increase public awareness about hemophilia and related
http://www.cohemo.org/
Mission Statement
The Hemophilia Society of Colorado advocates for persons living with hemophilia and other coagulation disorders and their related complications by providing assistance, support, and education. The society also strives to increase public awareness about Hemophilia and related disorders. 655 Broadway, Suite # 575
Denver CO 80203
(888) 687-CLOT
FAX: (303) 629-7035
Email: hsc@cohemo.org
Mountain States Regional Hemophilia
and Thrombosis Center
Website design and website hosting by EduCyber

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