61. Matt Klimshuk's Home Page Information on von Willebrand's Disease and links to von Willebrand's and hemophilia sites. http://www.mindspring.com/~mattrk/

"Information is Power" Providing Information on von Willebrand's Disease Go To Personal Information What Is Von Willebrand's Disease? Von Willebrand's Disease (vWD) is not a disease at all, but the most common genetic disorder in the world (classic hemophilia is more well known due to its connection with the royal families of Europe). In fact, vWD is times more common than classic hemophilia! It was discovered by a Finnish doctor in the 1920s, who named it after himself and called it a disease. Later, Dr. von Willebrand discovered in truth that the illness was linked to a missing blood factor, which assists with the clotting of blood. He named the factor after himself as well - von Willebrand's Factor (vWF). The disorder is not sex linked (autosomal), meaning that both men and women can have it, but some can be carriers only and not manifest any of the symptoms. VWD occurs when the body makes either inferior vWF or none at all. Other blood factors can be short-changed as well. Generally, vWD is divided into three types: Type I (mild), Type II (Medium) and Type III (severe). The lower the type, the less the symptoms will occur and the less strenuous they will be. What Are the Symptoms?

62. EMedicine - Hemophilia, Type A : Article By Brendan R Furlong, MD hemophilia, Type A hemophilia A is an inherited, X-linked, recessive disorder resulting in deficiency of functional plasma coagulation factor VIII. http://www.emedicine.com/emerg/topic239.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Emergency Medicine Hematology And Oncology Hemophilia, Type A Last Updated: June 23, 2004 Rate this Article Email to a Colleague AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Brendan R Furlong, MD , Clinical Chief, Department of Emergency Medicine, Georgetown University Hospital Coauthor(s): Mary A Furlong, MD , Assistant Professor, Department of Pathology, Georgetown University School of Medicine Brendan R Furlong, MD, is a member of the following medical societies: American College of Emergency Physicians Editor(s): William Gossman, MD , Assistant Professor, Department of Emergency Medicine, Rosalind Franklin University of Medicine and Science, Project Medical Director, Department of Emergency Medicine, Mount Sinai Hospital; Francisco Talavera, PharmD, PhD

63. GAHD Represents and advocates the interests of people with hemophilia in Georgia. Includes overview, information about hemophilia and details of current projects. http://www.gahd.org.ge

Welcome to GAHD's Web-Site!

64. Bayer Kogenate FS the electronic patient diary. Bayer s Reimbursement Support Program Bayer offers special initiatives to support patients and families with hemophilia. http://www.kogenatefs.com/

Attention: Your browser does not support Javascript, or Javascript support has been disabled. This web site utilizes the latest Internet technology, and in order to experience the full functionality of this web site you will need to ensure that Javascript is enabled. Want to make life simpler? Try EZ-Log, the electronic patient diary. Bayer's Reimbursement Support Program Bayer offers special initiatives to support patients and families with hemophilia. In the News In the aftermath of Hurricane Katrina Bayer pledges US$ 2 million for flood victims Clinical Publications BAYER, the Bayer Cross, and Kogenate are trademarks of Bayer General Conditions of Use Privacy Statement Imprint The most frequently reported adverse event was local injection site reactions. Known hypersensitivity to mouse or hamster protein may be a contraindication to the use of Kogenate FS. Please see full prescribing information on www.kogenatefs.com.

65. Blood Diagnostics, Inc. - Index Wholesale distributor of plasma derived pharmaceuticals, including IVIG, hemophilia fators VII, VIII IX, albumins and hyperimmunes and injectables. http://www.blooddiagnostics.com

window.location.replace('../index.htm') Purity Delivered Introducing Rho phylac a new RhIg product from one of the most trusted names in plasma derived therapies. To learn more about Rho phylac visit this link. click here Visit the ASHP web site for information about the ASHP Midyear Clinical Meeting and Exhibit as well as important information regarding the practice of pharmacy in hospitals and Health Systems. For important Medicare Reimbursement changes Click here To assist you in addressing these issues we have included CMS Sample letters Sample A Sample B Sample C For the latest CMS Information release Click here Let Us Engineer Your Supply Chain Solution! BDI Logistics serves as an extension of your organization to provide you with a seamless and efficient supply chain solution. Learn more about BDI Logistics Intramed Plus is a provider of innovative and cost effective home infusion therapy VISION: To offer hope to all people with HIV / AIDS and other chronic illness.

66. Copernicus Theraputics - Home Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors. http://www.cgsys.com/index/index.asp

Copernicus Therapeutics, Inc. is a privately-held company developing products for human gene therapy and vaccination. Copernicus was established in 1997 based on technologies discovered at Case Western Reserve University that provide the foundation for the use of DNA as drugs. Copernicus is not involved in gene discovery or the linkage of genetic defects to disease. Copernicus' business focuses on using its technologies to make and sell gene therapy products to treat, cure or prevent human diseases - products that work. Copernicus Therapeutics, Inc. presented data at the American Society of Gene Therapy meeting showing that their compacted DNA formulation can effectively transfect non-dividing human cells, solving the problem of restricted access of plasmid DNA to the nucleus. ..read more Copernicus has developed three technology platforms that provide unique opportunities to develop novel therapeutics. These platforms have separate therapeutic applications but, when combined, can result in synergistic advantages. ..read more Copernicus' technologies present opportunities for products in many important markets. The Company's delivery technologies solve many of the problems that have hindered gene therapy, with a market projected to be worth $12 billion by 2007.

67. ïÂÝà ÓÔ×Ï âÏÌØÎÙÈ çà ÍÏÆÉÌÉà Ê óÁÎËÔ-ðà Ôà ÒÂÕÒ ÐŸÑ€Ð¾Ð±Ð»ÐµÐ¼Ñ‹ гемофилии в СанктПетербурге, деятельность местного Общества БольныѠГемофилией. Актуальные материалы, связанные с гемофилией, для врачей и больныѠ, подписка на новости, форумы. http://hemophilia.spb.ru/

68. Great Lakes Hemophilia Foundation Wisconsin Von Willebrand Disease Bleeding Diso Education Services of the Great Lakes hemophilia Foundation Wisconsin von Willebrands Disease Bleeding Disorders. http://www.glhf.org/

Home Donate Contact Us Email List About GLHF Our Mission What We Do Advocacy Staff ... Volunteering Information Education Glossary Hemophilia FAQs vonWillebrand FAQs ... National Treatment Centers Services Camperships Financial Services Patient Notification Publications ... Women's Outreach Events Calendar Family Events Fundraising Events Sponsored Events Links Kids, etc. HomeCare Companies Helpful Links 3.1% of every dollar we receive goes directly towards patient services and programs. Important Information (click on links) Mark your Calendars! Watch for new events Mission in Motion upcoming events in Click for information Newsletters GLHF Headline News Summer 2005 Archives TEEN TALK Issue No. 5 Archives Parent Empowerment Newsletter Contains Information on current issues May 2005 November 2004 Join in our Fun draising Events!

69. Hemophilia, Heredity Blood Disorders, NCBDDD, CDC The National Center on Birth Defects and Developmental Disabilities promotes child development, prevents birth defects and developmental disabilities, http://www.cdc.gov/node.do/id/0900f3ec8000d022

NCBDDD Home Hereditary Blood Disorders About CDC Activities Health care ... Contact Us Thank you for visiting the CDC-NCBDDD Web site. In order to contact the National Center on Birth Defects and Developmental Disabilities, please click here For persons with hemophilia and other bleeding disorders Anyone in need of emergency medical assistance should call 911 or go to your nearest hospital emergency room. For patients and families from the Louisiana Comprehensive Hemophilia Center: If you are in need of factor products please call Gulf States Hemophilia and Thrombophilia Center in Houston, TX If you need a consultation from the Louisiana Comprehensive Hemophilia Center, please call any of the following numbers and please keep trying until you get through: Anyone who has been relocated to the Houston area contact the Gulf States Hemophilia and Thrombosis Center at 713.500.8360. They can provide treatment and referral. If you have been relocated to the Southeast, contact one of the following:

70. THE MERCK MANUAL, Sec. 11, Ch. 131, Hemostasis And Coagulation Disorders Information for doctors from this online textbook. http://www.merck.com/pubs/mmanual/section11/chapter131/131c.htm

var locationOverride = "http://www.merck.com/pubs/"; This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 11. Hematology And Oncology Chapter 131. Hemostasis And Coagulation Disorders Topics [General] Hemostasis Hereditary Coagulation Disorders Acquired Coagulation Disorders Hereditary Coagulation Disorders HEMOPHILIA Common forms of hereditary bleeding disorders caused by clotting factor deficiencies of factor VIII, IX, or XI. Hemophilia A (factor VIII deficiency), which affects about 80% of hemophiliacs, and hemophilia B (factor IX deficiency) have identical clinical manifestations, screening test abnormalities, and X-linked genetic transmission. Specific factor assays are required to distinguish the two. Genetics Hemophilia may result from gene mutations: point mutations involving a single nucleotide, deletions of all or parts of the gene, and mutations affecting gene regulation. About 50% of cases of severe hemophilia A result from a major inversion of a section of the tip of the long arm of the X chromosome. Because factor VIII and factor IX genes are located on the X chromosome, hemophilia affects males almost exclusively. Daughters of hemophiliacs will be obligatory carriers, but sons will be normal. Each son of a carrier has a 50% chance of being a hemophiliac, and each daughter has a 50% chance of being a carrier. (See also Ch. 286.

71. Hereditary Blood Disorders, NCBDDD, CDC Mountain States Regional hemophilia and Thrombosis Center. PO Box 6507 Mail Stop F416 Medical College of Georgia Pediatric hemophilia Program http://www.cdc.gov/ncbddd/hbd/htc_list.htm

NCBDDD Home Hereditary Blood Disorders About CDC Activities Health care ... Contact Us Thank you for visiting the CDC-NCBDDD Web site. In order to contact the National Center on Birth Defects and Developmental Disabilities, please click here For persons with hemophilia and other bleeding disorders Anyone in need of emergency medical assistance should call 911 or go to your nearest hospital emergency room. For patients and families from the Louisiana Comprehensive Hemophilia Center: If you are in need of factor products please call Gulf States Hemophilia and Thrombophilia Center in Houston, TX If you need a consultation from the Louisiana Comprehensive Hemophilia Center, please call any of the following numbers and please keep trying until you get through: Anyone who has been relocated to the Houston area contact the Gulf States Hemophilia and Thrombosis Center at 713.500.8360. They can provide treatment and referral. If you have been relocated to the Southeast, contact one of the following:

72. MSN Encarta - Hemophilia hemophilia, hereditary blood disease involving the inability of blood to clot, or coagulate, leading to hemorrhage, or bleeding. http://encarta.msn.com/encnet/refpages/RefArticle.aspx?refid=761570021

73. Hardin MD : Hemophilia From the University of Iowa, the *best* lists of Internet sources in hemophilia. http://www.lib.uiowa.edu/hardin/md/hemophilia.html

Hemophilia A service of the University of Iowa Site Map Diseases Home ... Diseases Search Hardin MD See also: Home Blood Diseases Genetic Disorders Popular Women's Health Dermatology Nursing Pharm Infect Disease ADHD +Pictures AIDS +Pictures Arthritis +Pictures Blood Diseases Child Diseases +Pictures Genetic Disorders +Pictures Hepatitis C +Pictures Medical Pictures Prednisone +Pictures Skeletal System Virus Diseases +Pictures Hemophilia Pictures MEDLINE plus Hemophilia National Library of Medicine WWW resources National Hemophilia Foundation Open Directory Project : Health : ... : Blood disorders : Hemophilia (Other versions: Google Karolinska : Hemophilia Medical Library, Karolinska Institute, Sweden LookSmart : Hemophilia Yahoo : Hemophilia Hemophilia Pictures Haemophilia (Click links in right margin for more pictures) Scroll down for pictures Clotting Heredity Joint damage David Page, Canadian hemophilia society Factor VIII Pictures Rajalaxmi McKenna / eMedicine.com MEDLINEplus Health Encyclopedia : Hemophilia A Hemophilia B A.D.A.M. / National Library of Medicine

74. Hemophilia Foundation Of Nevada: Serving The Bleeding Disorders Community Of Nev A nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community in Nevada. http://www.hemophilianevada.org

preloadRollover("images/scrolling/scroll_sm_up.gif", "scroll_sm_up"); preloadRollover("images/scrolling/scroll_sm_down.gif", "scroll_sm_down"); var n=14; NEWSLINE HOMEPAGE What's New with the HFNV H.F.N.V. About H.F.N.V. Our Services HFNV Forum HEMOPHILIA What is Hemophilia? Treatment VON WILLEBRAND About von Willebrand Treatment Resources HOW TO HELP How Can You Help? H.T.C. LAS VEGAS About Us EVENT CALENDAR Event Calendar EVENT PHOTOS Past Event Photos ORGANIZATION LINKS Bleeding Disorders Resources CORPORATE LINKS Home Health Care Manufacturers BOARD OF DIRECTORS Executive Committee and Board Members EXECUTIVE DIRECTOR Executive Directors Page Welcome to the H.F.N.V. Web Site The HFNV would like to welcome Ramona Alicea as the new President of the Board of Directors. The next time you see her at an event, please give the warmest of welcomes. When you get a chance we added a new feature to the site check out the HFNV Forum Also stay tuned for the details of our upcoming newsletters. Keep your eyes open, you could be famous!!! Any persons with HFNV event pictures, or anyone who would like to write about an event and have it printed in our newsletter is welcome to do so. Please e-mail any input or pictures to Ian Corona at: Iancorona@msn.com

75. Hemophilia Resource Network Clinical care pathways and administrative services to hematologists managing hospitalized persons with hemophilia. http://www.hemophilia.net/

76. THE MERCK MANUAL, Sec. 11, Ch. 131, Hemostasis And Coagulation hemophilia may result from gene mutations point mutations involving a About 50% of cases of severe hemophilia A result from a major inversion of a http://www.merck.com/mrkshared/mmanual/section11/chapter131/131c.jsp

77. Choice Source Therapeutics Provide hemophilia care for patients. http://www.choicesource.com

About Us Services Contacts Resources About Us Services Contacts Resources ... Español

78. Inheritance Of Hemophilia hemophilia is a sex linked trait in humans, inherited in the same way white eye color in Drosophila. Males are hemizygous, receiving their only X chromosome http://www.accessexcellence.org/RC/VL/GG/x-linked.html

X-linked Inheritance: Hemophilia Legend: Hemophilia is a sex linked trait in humans, inherited in the same way white eye color in Drosophila. Males are hemizygous, receiving their only X chromosome from their mother. Females are heterozygous, inheriting X chromosomes from both parents. If a female has a defective gene on one of her two X chromosomes, she will be protected from its effects by the normal gene on her second X chromosome. If a male has a mutant X and a normal Y chromosome, he will be affected by a X-linked disease. A son, whose mother has two normal alleles, will not be affected by hemophilia even if the father has the disease and the defective gene. A daughter of the same parents will be a heterozygous carrier. A heterozygous carrier mother and a normal father pass the gene for hemophilia on to possibly one- half of their children. Half the daughters will be carriers and half the sons will be hemophilic. The rest of the siblings will be normal. Daughters, as long as one parent is genotypically normal, can only be carriers. The normal gene on the second X chromosome counteracts the defect and the daughters do not suffer from the trait. If a son receives the defective gene from his mother, he will be hemophilic because the Y chromosome can not counteract the defective gene located on his X chromosome. Graphics Gallery Index About Biotech Index Feedback About AE Discussions Sitemap ... Access Excellence Home

79. Welcome To Hemophilia Options Home Page hemophilia Options is a speicialty care pharmacy offering therapies for patients with bleeding disorders. Services include pharmacy, nursing care, http://www.hemophiliaoptions.com/

click here! Who We Are Hemophilia Options is a specialty care pharmacy offering therapies for patients with bleeding disorders. Services include pharmacy, nursing care, home medical supplies and equipment, and reimbursement services. Centers of Excellence Experienced nursing teams trained in bleeding disorder and pediatric proficiencies 24-hour pharmacy/nursing services for rapid response to patient needs Providing a wide selection of factor and factor-related products Continuous Infusion Protocols Patient Care Coordination for product needs, medical equipment, physical therapy, dental care, education and training Hemophilia Options works closely with physicians and caregivers to deliver the appropriate level of service and support. Working in cooperation with physicians, insurance companies, and other healthcare professionals, we implement personal treatment plans designed to meet the special needs of each patient. Some patients become independent very quickly with their therapy, others need on-going support. To assure consistency and quality of care, Hemophilia Options assigns a Patient Care Coordinator to each patient. The patient is also supported by a clinical pharmacist and a nursing team. This individual approach is cost-effective, and helps to ensure that each patient receives and administers the proper medication for the best possible results. Therapies for Patients with Bleeding Disorders Hemophilia Options service for pediatric and adult factor programs are on the leading edge of industry standards in approach to new therapies, products and service.

80. Hemophilia - Medical Information On Treatment Options, And Links To Other Sites. Information on hemophilia, diagnosis, symptoms, treatment issues, and patient information. http://www.sniffeuxdenapalm.qc.ca/hemophilia.html

REFINE YOUR SEARCH hemophilia hemophilia Haemophilia or hemophilia is the name of any of several hereditary genetic illnesses that impair the body's ability to control bleeding. Genetic deficiencies (or, very rarely, an autoimmune disorder) cause lowered plasma clotting factor activity so as to compromise blood-clotting; when a blood vessel is injured, a scab will not form and the vessel can continue to bleed excessively for a very long period of time. The bleeding can be external, if the skin is broken by a scrape, cut or abrasion, or it can be internal, into muscles, joints or hollow organs. Causes Haemophilia is generally caused by a mutation affecting the genes encoding one of the clotting factors. The genes for the most common form, Haemophilia A , are located on the X chromosome, so haemophilia is usually a sex-linked trait. Women have two X-chromosomes, whereas men have one X and one Y chromosome. Since the mutations causing the disease are recessive, a woman carrying the defect on one of her X-chromosomes will not be affected by it, as the equivalent allele on her other chromosome would express itself to produce the necessary clotting factors. However the Y-chromosome in men has no gene for factors VIII or IX. If the gene responsible for blood clotting on a man's X-chromosome is deficient there is no equivalent on the Y-chromosome, so the deficient gene is not masked by the dominant allele and he will develop the illness. Since a man receives his single X-chromosome from his mother, the son of a healthy woman silently carrying the deficient gene will have a 50% chance of inheriting that gene from her and with it the disease. In contrast, for a woman to inherit the disease, she must receive two deficient X-chromosomes, one from her mother and the other from her father (who must therefore be a haemophiliac himself). Hence haemophilia is far more common among men than women. However, haemophiliac daughters are more common than they once were, as improved treatment for haemophilia means that more men survive to adulthood and become parents. Adult women with haemophilia menstruate periodically, so they must take clotting factor to survive.

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