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         Cystic Fibrosis:     more books (100)
  1. Cystic Fibrosis: Everything You Need To Know (Your Personal Health) by Wayne Kepron, 2004-01-29
  2. Cystic Fibrosis by Margaret Hodson, Duncan Geddes, et all 2007-07-05
  3. With Every Breath: stories by and about people living with cystic fibrosis
  4. Cystic Fibrosis in the 20th Century: People, Events, and Progress
  5. Cystic Fibrosis in the 21st Century (Progress in Respiratory Research)
  6. The Stones Applaud: How Cystic Fibrosis Shaped My Childhood by Teresa Anne Mullin, 2007-03-16
  7. Cystic Fibrosis - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-20
  8. Cystic Fibrosis: The Ultimate Teen Guide (It Happened to Me) by Melanie Ann Apel, 2006-04-28
  9. Cystic Fibrosis: A Guide for Patient and Family
  10. Little Brave Ones: For Children Who Battle Cystic Fibrosis by Carrie Lux, 2006-03-08
  11. David's Promise: A Young Man's Struggle with Cystic Fibrosis by Kathy Sykes, 2006-04-06
  12. Taking Cystic Fibrosis to School by Cynthia S. Henry, 2000-09
  13. Living on Borrowed Time: Life with Cystic Fibrosis by Debbie Pitts, 2007-01-17
  14. Psychosocial Aspects of Cystic Fibrosis

161. ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies:
Search results for cystic fibrosis ALLFIELDS are shown below. Conditions Bronchiectasis; cystic fibrosis; Pancreatic Insufficiency
http://www.clinicaltrials.gov/search/term=cystic fibrosis
Home Search Browse Resources ... About Search results for cystic fibrosis [ALL-FIELDS] are shown below.
Include trials that are no longer recruiting patients.
35 studies were found. Recruiting Treatment of Metabolic Alkalosis in Acute Exacerbations of Cystic Fibrosis
Condition: Cystic Fibrosis Recruiting Effectiveness of Pulmozyme in Infants with Cystic Fibrosis
Condition: Cystic Fibrosis Recruiting Tissue Collection from People with Cystic Fibrosis
Condition: Cystic Fibrosis Recruiting Studying Patients with Cystic Fibrosis and Other Pulmonary and Pancreatic Disorders
Conditions: Bronchiectasis; Cystic Fibrosis; Pancreatic Insufficiency Recruiting Safety and Efficacy Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients with P. Aeruginosa
Condition: Cystic Fibrosis Recruiting International Safety and Efficacy Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients
Condition: Cystic Fibrosis Recruiting A Study to Evaluate Nutropin AQ for the Treatment of Growth Restriction in Children with Cystic Fibrosis
Condition: Cystic Fibrosis Recruiting Study of Aztreonam Lysinate for Inhalation (AI) in Cystic Fibrosis Patients With P. Aeruginosa

162. Cystic Fibrosis Foundation - Northeast Texas Chapter -- Tyler Branch
Contact information, events, ways to volunteer and upcoming Great Strides walks.
http://www.cff.org/Chapters/tyler/
Advanced Search Northeast Texas Chapter Tyler Branch 122 South College Suite 209 Tyler, TX 75702 Main Phone: (903) 597-6237 Fax: (903) 597-6273 Director of Development: Ms. Mercedes Chase Sign up to Volunteer!
Chapter Events
Great Strides Walks City of Walk Date/Time Canton - Lakeside Baptist Church Sep 17, 2005
9:30 AM Register Longview - McWhorter Park April 2006 Contact Us Tyler - Bergfeld Park Sep 24, 2005
8:00 AM Register Our Volunteers Click here to learn how you can volunteer with the Tyler Branch! With so many events each year, the Northeast Texas Chapter Tyler Branch relies heavily on the time and talent of our dedicated volunteers in fund-raising efforts. We need you! We are always looking for a fresh face with great ideas. Please consider: Our Sponsors We Need Sponsors! The Cystic Fibrosis Foundation is always looking for sponsors! It is through the generosity of our sponsors and volunteers that we are able to wage our battle against cystic fibrosis. Consider the following ways to get involved:
  • Event Sponsorships Marketing Opportunities Cause-related Marketing Programs Matching Funds Corporate Underwriting Opportunities Employee Volunteer Programs In-kind Donations
For each day we work, and for every dollar we raise, we are adding tomorrows every day to the lives of those with cystic fibrosis.

163. Cystic Fibrosis
cystic fibrosis is an inherited disorder that affects the cystic fibrosis can cause lung disease, failure to grow, clubbed fingers and toes,
http://www.savebabies.org/diseasedescriptions/cysticfibrosis.php
Search Our Site!
Cystic Fibrosis (CF)
Save Babies Through Screening Foundation is comprised of volunteers. Some have children who were helped by newborn screening, and some have children who have died, or suffered brain damage. For many of the Foundation's volunteers, joy comes from knowing that your child was saved. Many hours of hard work have been done to help children, maybe even yours. Please let us hear from you.
What is it?
Cystic fibrosis is an inherited disorder that affects the mucus-producing glands. Mucus is thick, and can obstruct air passages in the lungs. It also causes dysfunction of the sweat and salivary glands, and blocks the enzymes secreted by the pancreatic duct, resulting in incomplete digestion.
Inheritance and Frequency
Incidence is 1 in 2,500 white live births and 1 in 17,000 African American live births.
Long Term Effects
Cystic fibrosis can cause lung disease, failure to grow, clubbed fingers and toes, muscular weakness, and visual impairment.
Treatment
Treatment usually includes high doses of ibuprofen, antibiotics for pulmonary disease, and clearing of the airways with intermittent aerosol therapy. History Screening For Visit the "

164. Cochrane Cystic Fibrosis & Genetic Disorders Homepage
An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
http://www.liv.ac.uk/CFGD/
Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders Activities of the Group are co-ordinated by its Editorial Base, located within the Department of Child Health, University of Liverpool, United Kingdom. We very much welcome interest from new consumers, referees and potential reviewers. A list of our priority review titles can be accessed by clicking here . Further information can be found here or by contacting the group The Group has 52 reviews, 11 protocols and 6 titles published on Issue 3, 2005 of The Cochrane Library . The production of these reviews involves a network of 250 authors, consumers and referees throughout the world. Last reviewed 17 June 2002.

165. Cystic Fibrosis Services, Inc. - Home
A subsidiary of the cystic fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF).
http://www.cfservicespharmacy.com/

166. Cystic Fibrosis Foundation Of St. Louis
Contact and service information.
http://www.tenholder.net/gatewaycff/

167. UK Cystic Fibrosis Gene Therapy Consortium
It was established in 2001 on the initiative of the cystic fibrosis Trust. The Consortium’s work is currently funded mainly by the cystic fibrosis Trust
http://www.cfgenetherapy.org.uk/
Home Members Research Publications ... Vacancies About the Consortium The UK Cystic Fibrosis Gene Therapy Consortium (UK CFGTC) is the unified research programme of the three leading gene therapy groups in the UK. It was established in 2001 on the initiative of the Cystic Fibrosis Trust. The three member research groups are headed by Prof. David Porteous at the University of Edinburgh, Drs Deborah Gill and Steve Hyde at the University of Oxford and Prof. Eric Alton at Imperial College in London. Our Aim T he UK has always been at the forefront of gene therapy for cystic fibrosis (CF) and the members of the Consortium have already demonstrated proof-of-principle of correction of the underlying defect in the airways of CF subjects. The aim of the Consortium is to combine the intellectual and practical resources of the three groups and avoid duplication of efforts thereby enhancing progress towards clinically relevant gene therapy for CF. Communication Core Facilities To ensure standardisation of results and high throughput, core facilities staffed by dedicated technicians have been set-up for the assessment of pre-clinical gene transfer. We would be interested to hear from any researchers who would like to test a gene transfer agent in these core facilities. For more information contact products@cfgenetherapy.org.uk

168. BUBL LINK: Cystic Fibrosis
cystic fibrosis Foundation The mission of the cystic fibrosis Foundation is to Includes chronic bronchitis and emphysema, cystic fibrosis, influenza,
http://bubl.ac.uk/link/c/cysticfibrosis.htm
BUBL LINK Catalogue of Internet Resources Home Search Subject Menus Countries ... Z
Cystic fibrosis
Titles Descriptions
  • Cystic Fibrosis Foundation Cystic Fibrosis Trust IACFA Cystic Fibrosis Links LungNet ... OMNI Subject Listing for Digestive System
  • Comments: bubl@bubl.ac.uk
    Cystic Fibrosis Foundation
    The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
    Author: Cystic Fibrosis Foundation
    Subjects: cystic fibrosis, health charities
    DeweyClass:
    Resource type: documents
    Cystic Fibrosis Trust
    Information about cystic fibrosis including how it affects the lungs and pancreas, FAQs, a bibliography, and a glossary.
    Author: Cystic Fibrosis Trust
    Subjects: cystic fibrosis
    DeweyClass:
    Resource type: documents
    IACFA Cystic Fibrosis Links
    Links to personal pages, national organisations, events and articles concerned with cystic fibrosis.
    Author: CF Research Inc
    Subjects: cystic fibrosis DeweyClass: Resource type: index
    LungNet
    Information about lung health for healthcare professionals and the public. Includes chronic bronchitis and emphysema, cystic fibrosis, influenza, lung cancer and tuberculosis.

    169. Canadian Cystic Fibrosis Foundation - Ottawa Chapter
    Volunteer organization to aid afflicted individuals, families and care givers. Profile, events and resources information.
    http://www.ccffottawa.ca/

    170. MUSC Cystic Fibrosis Center

    http://www.musc.edu/cfcenter/
    Best when viewed with Internet Explorer and the Flash Player. Click the links below to download. Pediatric Program
    Dept of Pediatrics
    135 Rutledge Ave
    Suite 279
    PO Box 250561
    Charleston, SC 29425 Adult Program
    Dept of Medicine - Pulmonary
    96 Jonathan Lucas Street
    P.O. Box 250623
    Charleston, SC 29425

    171. Cystic Fibrosis Research Center
    Research and Clinical Cores The cystic fibrosis Research Center at the University of Inhaled Bicarbonate for cystic fibrosis PI Joseph M. Pilewski
    http://www.cbp.pitt.edu/centers/cfrc.html
    CFRC Search Website
    Center Director:
    Dr. Raymond A. Frizzell

    Cystic Fibrosis Research Center with an award of $1.2 million grant over a three-year period in 1997. This innovative CF Research Center consists of investigators brought together in a multidisciplinary approach to cystic fibrosis (CF) research. By creating this Center, the University took advantage of several unique opportunities present at The School of Medicine and the Children’s Hospital at the University of Pittsburgh. These two entities provided a large and accessible patient population for pre-clinical and clinical studies. Greater than 50 lung transplants per year enable access to patient tissue. They also provided the opportunity to engage new, high quality investigators in CF research in an institution that ranks 10 th nationally in extra-mural support by the NIH. The CF Research Center is co-directed by Raymond A. Frizzell, Ph.D., and Robert Bridges, Ph.D, both leaders in CFTR research, and Chairman and Vice-Chairman, respectively, of the Department of Cell Biology and Physiology School of Medicine. The Center is housed in the Department of Cell Biology and Physiology in its 3rd floor Biomedical Science Tower facility.

    172. Canadian Cystic Fibrosis Foundation
    Works to raise funding for cystic fibrosis research and care, and lists upcoming events, describes the disease's symptoms and treatments.
    http://www.ccfftoronto.ca/
    2 Carlton Street, Suite 817 Toronto, ON M5B 1J3 Phone: 416.932.3900 Fax: 416.932.3010 Great Strides™: Taking Steps to Cure CF
    Lace up your sneakers and walk for an excellent cause on Sunday, May 29, 2005 at the Toronto Zoo! The Canadian Cystic Fibrosis Foundation (CCFF) i
    ...read more
    February 14, 2005
    New Research Initiative Takes Aim at Cystic Fibrosis

    January 12, 2005
    Curcumin Update

    December 16, 2004
    Siemens Canada raises $500,000 for CF
    view all news September 28, 2005
    Volunteer Opportunities

    November 17, 2005
    Chauffeured Elegance
    December 30, 2005 More events to come... view all events In 2002, Zellers achieved record-breaking results, raising more than $2.5 million (gross) to help beat cystic fibrosis. This brings Zellers cumulative contribution to the CCFF to over $20 million.

    173. Cystic Fibrosis - Vitacost
    cystic fibrosis (CF) is an inherited disease that results in impaired transport of chloride into and out of cells. The digestive and respiratory systems are
    http://www.vitacost.com/science/hn/Concern/Cystic_Fibrosis.htm

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    Cystic fibrosis (CF) is an inherited disease that results in impaired transport of chloride into and out of cells. The digestive and respiratory systems are most affected.

    174. Health Library -
    cystic fibrosis. Topic Overview. What is cystic fibrosis? cystic fibrosis (CF) is a chronic and progressive disease usually diagnosed in childhood that
    http://yalenewhavenhealth.org/library/healthguide/IllnessConditions/topic.asp?hw

    175. CNN - Potential New Approach To Cystic Fibrosis Treatment Reported - October 9,
    CNN
    http://www.cnn.com/HEALTH/9910/09/cystic.fibrosis/index.html

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    Potential new approach to cystic fibrosis treatment reported
    October 9, 1999 Web posted at: 10:46 p.m. EDT (0246 GMT) In this story: Signs of disease reversed Large doses of supplements not advised RELATED STORIES, SITES SEATTLE (CNN) Researchers have discovered that high doses of a specific fatty acid can reduce symptoms of cystic fibrosis in mice a finding that potentially could lead to a treatment for a disease that is now incurable in humans. People with cystic fibrosis exhibit high levels of arachidonic acid (AA) and low levels of docosahexaenoic acid (DHA). Researchers who bred mice with the genetic defect that causes cystic fibrosis found that the mice exhibited the same imbalance of fatty acids.
    Signs of disease reversed
    But in mice that were fed large doses of DHA for a week, the imbalance was corrected and signs of cystic fibrosis in the pancreas, intestines and lungs were reversed, researchers said.

    176. Medem: Medical Library:
    People with cystic fibrosis may also experience liver disease, diabetes, inflammation of the pancreas and cystic fibrosis Foundation (800) 3444823
    http://www.medem.com/MedLB/article_detaillb.cfm?article_ID=ZZZIX1MDUEC&sub_cat=6

    177. Chicago CF Awareness Homepage
    Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.
    http://chicagocfawareness.org
    Last updated on:
    September 12, 2005
    Countdown for this year's Awareness Day:
    This year's Awareness Day will be held on: November 19, 2005 Welcome to our website!
    Here, you will find information about the Chicago CF Awareness Day, an annual seminar that helps individuals and families become more aware of CF, more aware of each other as a community, and more aware of living life in the midst of disease. By attending Awareness Day, people with CF (along with their friends and families) can learn about the latest medical research on CF, attend educational sessions about managing different aspects of life with CF, and learn about new products and treatments. Most important: they can meet, share their experiences, and ask questions about CF-related issues in a supportive setting. This site continues to serve the Chicago CF community throughout the year. Check here for contact information for the CF clinics in the greater Chicago area, links to many supportive CF sites on the internet, and local items such as clinical trials and our

    178. U.S. Study Backs Early Check For Cystic Fibrosis
    CNN
    http://cnn.com/2001/HEALTH/01/09/health.cf.reut/index.html

    179. Concerned Friends Of Cystic Fibrosis In Israel
    Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.
    http://www.cfcfisrael.org
    C oncerned F riends of C ystic F ibrosis
    Helping CF Children In Israel Breathe Easier! Home A Father's Letter CFCF In Israel Picture Gallery ... Contact Us Help Sarah... ...take another breath. Learn more about CFCF Israel. Concerned Friends of Cystic Fibrosis (CFCF) , established in April 1997, is a non-profit organization dedicated to meet the challenge of aiding CF children and their families in Israel.

    180. Finding May Shed New Light On Cystic Fibrosis
    CNN
    http://cnn.com/2001/HEALTH/conditions/03/01/cystic.fibrosis.ap/index.html

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