61. EUROPEAN CYSTIC FIBROSIS SOCIETY ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution http://www.ecfsoc.org/

EUROPEAN CYSTIC FIBROSIS SOCIETY (ECFS) (formerly known as the European Working Group for Cystic Fibrosis) Date of last modification of site : 6th August 2005 HOME Society Details History The Board The Constitution Application for membership ... Membership subscription renewal ECFS Supported Initiatives European CF Registry Pan European Studies Invitation to participate in a Pan European study on Pancreatitis in CF: Prevalence and Outcome Publications The Journal of Cystic Fibrosis The ECFS Newsletter Current and Future Meetings Previous Meetings Presentations. ... ECFS Awards at the ECFC Organisations European Life Science Forum Web sites Other WWW sites of Interest Welcome To the ECFS Web Page Mission Statement: The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis The polymorphic nature of cystic fibrosis has resulted in the involvement of a large number of different clinical and scientific disciplines for the study and treatment of the disease. The European Cystic Fibrosis Society provides a European forum where such clinicians and scientists can meet, present and discuss the latest findings concerning the disease. Membership of the society is open to any clinician or scientist actively engaged in CF research or CF care.

62. Www.IntraBiotics.com Develops antibacterial and antifungal drugs, including protegrins and related antimicrobial peptides, for application in cystic fibrosis. Includes pipeline, publications, and investor information from Palo Alto, California. (Nasdaq IBPI) http://www.intrabiotics.com/

www.IntraBiotics.com http://intrabiotics.com/

63. Walkentalk - Christopher Walken Home Page - Neptune Pictures Film and video company dedicated to the art of storytelling. Projects include Thunderpoint, The Seventh Day and the cystic fibrosis film SWAY. http://neptunepictures.com/

"BEST SHORT WE'VE SEEN THIS YEAR! A hilarious short film.... Wowee wow wow!" Film Threat "Brilliantly funny!" Indie Slate Magazine WALKENTALK has become one of the most acclaimed short films of the year ENTER SITE

64. What Is Cystic Fibrosis? - HealingWell.com Article about diagnosis, symptoms, treatment and research on cystic fibrosis. http://www.healingwell.com/library/cysticfibrosis/info1.asp

HOME VIDEOS RESOURCES NEWSLETTER ... SEARCH Search Site: Search Archives: HealingWell Conditions Cystic Fibrosis Library Article What is Cystic Fibrosis Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. These carriers do not have symptoms of CF, because a person must inherit two defective gene copies-one from each parent-to develop the disease. However, each child of two CF carriers has a one in four chance of being born with CF. Genetic testing is now available to identify couples at risk for having children with CF. Symptoms of Cystic Fibrosis CF affects tissues that produce mucus secretions, such as the airway, the gastrointestinal tract, the ducts of the pancreas, the bile ducts of the liver and the male urogenital tract. Normal mucus forms a gel-like barrier that plays an important role in protecting the cells lining the inside surfaces of these tissues. In the lung, mucus also transports dust and other particles out of the airway and helps to prevent infection. CF alters the chemical properties of mucus; instead of protecting tissues from harm, the abnormal mucus obstructs the ducts and airways, causing tissue damage.

65. Canadian Cystic Fibrosis Foundation Support and resources. Located in Toronto, Ontario. http://www.cysticfibrosis.ca/

66. Charity Cycle From Lands End To John O'Groats A charity event to raise money in Aid of cystic fibrosis Holiday Fund For Children. A 1000mile trek on a Trident across the UK. http://www.3onabike.org.uk/

In Aid of Cystic Fibrosis Holiday Fund For Children Sponsor us by clicking here here...... NEWS FLASH********* Day 9 - They've Done It !!!!! The brave hearts arrive in John O'Groats at 18:15 today 27th July 2001 !!!! Well done lads !!! more news to follow.... Fastest and Youngest Ever - To be Ratified in 6 Weeks !!!!!!!!! Welcome to the charity cycle of the year.... From the sunny Southwest of England to the North-Eastern tip of Stormy Scotland, three friends will be riding one bike all the way. In ten days they aim to ride their triplet*Trident through headwinds, exhaustion and fantastic countryside, in aid of the Cystic Fibrosis Holiday Fund for Children. This is a real Gap-year challenge; few have ever completed the distance on this most unusual of machines. Who knows.... whether you live in Cornwall or the Cairngorms, you may even see them come flying (or panting) past your doorstep this July as they roll up the country................ Free Java applets provided by Website Abstraction sw="none";sd="none";ref=""+escape(document.referrer);

67. Cystic Fibrosis cystic fibrosis Links and Information http://www.goodgulf.com/cystic.html

Cystic Fibrosis Our fifteen year old son, James, has Cystic Fibrosis - CF This page is devoted to the understanding and cure of this debilitating disease. Cystic Fibrosis Foundation Canadian CF Foundation Cystic Fibrosis Victoria - Australia Cystic Fibrosis Resource Centre ... sci.med.diseases.cysticfibrosis newsgroup - not very active, how about some action here? Return to Home Page Questions, suggestions, links ? e-mail us Dudley Leaphart Billings, MT

68. Official Site For CFF Jack Buck Book Event Charity fund raiser sponsored by the announcer. Includes welcome, book of stories and poems for sale, details about the Gateway cystic fibrosis Foundation and CF, and a biography. http://www.jackbuckbook.com/

The Web S.W.O.T. Team in partnership with the Gateway Chapter of the Cystic Fibrosis Foundation honors the passing of a legend.  Thank you very much for visiting the site and for your donations. Jack Buck Mr. Jack Buck passed at 11:08P.M. on June 18th, 2002 at the age of 77 years old. A Memorial service will was held Thursday the 20th of June at Busch stadium 7:00A.M.. to 11:30P.M. Click here for additional memorial information from KMOX Radio. It clinched the 1985 National League Championship Series for the Red Birds. In July 2002, he will be honored at the 33 rd Annual Jack Buck Golf Classic. His tournament attracts more than 300 golfers every year, and has raised $7 million for Cystic Fibrosis research. This year he has stepped up to the plate again. with 100% of the proceeds going directly to Cystic Fibrosis Foundation. For his own enjoyment, Jack has been composing poetry most of his life. Few people outside of his own family have had the opportunity to see his poems. They cover far more subjects than baseball and other sports. Jack has donated eighteen of his poems to the Cystic Fibrosis Foundation to be published and used in the effort to generate donations through this site and other means of distribution.

69. Nederlandse Cystic Fibrosis Stichting Verenigd (ouders van) pati«nten met cystic fibrosis (CF) en geeft informatie over CF en verwijzingen naar andere nuttige websites. http://www.ncfs.nl/

moveTo(0,0);resizeTo(screen.width,screen.height); Dit is de website van de Nederlandse Cystic Fibrosis Stichting. U vindt hier informatie over Cystic Fibrosis (CF), de NCFS, op vakantie gaan met CF, andere websites op het gebied van Cystic Fibrosis enz. Deze website gebruikt zogenaamde frames. Uw internetprogramma is helaas te oud en kan deze frames niet weergeven. Daarom ziet u deze tekst. Probeer uw internetprogramma te vervangen door een nieuwere versie. De Nederlandse Cystic Fibrosis Stichting is geen vereniging, maar een stichting. Zij heeft dus geen leden, maar aangeslotenen. De NCFS is een ouder- en patiëntenorganisatie en behartigt de belangen van CF-patiënten en hun omgeving. Andere namen voor Cystic Fibrosis luiden CF, taaislijmziekte, mucoviscidose, mucoviscidosis, cystische fibrose of kystische fibrose. In Nederland spreken we doorgaans over Cystic Fibrosis. In het Engels duiden wij onze organisatie aan met Dutch Cystic Fibrosis Foundation, Dutch Cystic Fibrosis Organization, Dutch Cystic Fibrosis Organisation, Dutch CF Organization, Dutch CF Organisation of Dutch CF Association. U kunt ons e-mailen via info@ncfs.nl

70. Cystic Fibrosis Disease Information On Symptoms, Treatment And Causes Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html

search home services health information ... BUPA Products and services Health insurance Financial protection Hospitals Care homes ... International cover Visitor interest areas Individuals Business Intermediaries Health professionals ... BUPA members Facilities finder Find local health and fitness facilities World of BUPA BUPA services around the world at bupa.com health information health factsheets Cystic fibrosis Cystic fibrosis (CF) is an inherited condition. It can have many symptoms, affecting different parts of the body, particularly the lungs and digestive system. CF is the most common inherited disease in white people, affecting about 1 in every 2,500 children born. It is much more rare in people of African or Asian descent. Diagnosis of CF About one in five babies with CF are diagnosed at birth, when their gut becomes blocked by extra thick meconium (the black tar-like bowel contents that all babies pass soon after birth). This condition may need surgery. Just over half of people with CF are diagnosed as babies because they are not growing or putting on weight as they should. This is because the pancreas is not producing chemicals (enzymes) which pass into the gut as food leaves the stomach. Without these enzymes, the fat in food cannot be properly digested. In children who are affected, the fat passes straight through the gut. The child does not benefit from the energy from the fat. Since the stools contain an excess of fat, they are oily and very smelly. Other symptoms CF is a "multi-system" disease, meaning that it affects many body organs. However, most of the symptoms are to do with the lungs and the gut.

71. Userdir Rule Failure If You Ask James About cystic fibrosiscystic fibrosis, CF links, cystic fibrosis information including personal experience with CF, treatments, medications, complications, coping, support groups http://vmsb.csd.mu.edu/~5418lukasr/cystic.html

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72. OEF Stichting Ouderen En Cystic Fibrosis Voor volwassen CFpati«nten, hun partners, broers en zussen, met als doel onderling ervaringen uit te wisselen via een mailinglist. http://www.oef.nl/

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73. Cystic Fibrosis - MayoClinic.com It used to be that most people with cystic fibrosis didn t live beyond their teens. But earlier detection and better treatments have improved the outlook. http://www.mayoclinic.com/invoke.cfm?id=DS00287

74. Genentech Uses human genetic information to develop and manufacture pharmaceuticals such as growth hormones, tissueplasminogen activators to dissolve blood clots, and cystic fibrosis therapeutics. http://www.genentech.com/gene/index.jsp

75. The Boomer Esiason Foundation - Fighting Cystic Fibrosis The Boomer Esiason Foundation Home page contains cystic fibrosis news and BEF Highlights. http://www.esiason.org/

For more information on the Logitech Football Challenge click here CYSTIC FIBROSIS PODCAST Hosted by Jerry Cahill www.jerrycahill.com To Listen to Dylan Mortimer Interview click here

76. Fish Oils And Emphysema/cystic Fibrosis Summaries of the latest research concerning fish oils and emphysema and cystic fibrosis. http://www.oilofpisces.com/emphysema.html

Fish Oils and Emphysema/Cystic Fibrosis Summaries of the latest research concerning fish oils and emphysema/cystic fibrosis Lung disease and fish oils - A review of the evidence BOSTON, MASSACHUSETTS. The idea that fish and fish oils may protect against lung disease developed from early studies of the dietary habits of Greenland Eskimos. Dr. D.F. Horrobin hypothesized that the high content of omega-3 fatty acids in the Eskimo diet is at least partially responsible for the low prevalence of lung disease in this population group. This makes biological sense inasmuch as omega-3 fatty acids (notably from fish and fish oils) are known to inhibit the synthesis of the inflammatory eicosanoids involved in lung diseases. Dr. Schwartz concludes that there is a good case for fish and fish oils being protective against the development of chronic lung diseases, but that more research is needed to establish conclusive proof of benefits. Schwartz, Joel. Role of polyunsaturated fatty acids in lung disease. American Journal of Clinical Nutrition, Vol. 71 (suppl), January 2000, pp. 393S-96S Intravenous fish oil infusion safe for CF patients NEW YORK, NY. Seriously ill cystic fibrosis (CF) patients cannot absorb fats and other nutrients properly and therefore often need infusions of essential fatty acids. These infusions are most often based on linoleic acid as many CF patients have been found to have a deficiency of this omega-6 fatty acid. There is now substantial evidence that long-chain omega-3 fatty acids found in fish oils can suppress inflammatory processes such as those involved in CF.

77. On The Edge - May 30, 1999 A tribute to Nikki, who died as a result of cystic fibrosis on May 25, 1999. http://www.chron.com/content/interactive/voyager/edge/99/05/30/

David Galloway Previously on the Edge 5/23: Nice new toy 5/16: Bad day in ComputerLand 5/9: A great use of the Internet 5/2: A new way to browse ... On the Edge archive Lessons from an angel H eaven is an even better place this week than it was last week, with the addition of a special new angel. Marisa Nicole "Nikki" Turrentine-Hejl, my beloved stepdaughter, ended her fight with cystic fibrosis early Tuesday morning. Her mother and I and other family members were at her bedside as she took her final breath. Nikki was special to her family, and she was special to the Virtual Voyager family. She was one of our earliest voyagers when she and her mother, my dear wife Melissa, took us along with them to Australia in A Voyage Through Life . She also joined us a couple of years ago when Virtual Voyager went to Mardi Gras in New Orleans. All her family and friends, quite naturally, are sad beyond words. But in the midst of our despair, Nikki gave us many gifts, and I'd like to share a few of those with you. F irst, Nikki never lost her sense of humor. She fought this horrible disease for 22 years, and she knew the score. She didn't want to die, but by Monday morning, she knew the end was near. Carolyn, a friend and nurse who had taken care of Nikki since she was diagnosed at 5 months old, came to the room at Texas Children's Hospital and stood beside Nikki's bed for a long time as Nikki drifted in and out of consciousness. Many doctors and nurses were there with the friends and family. During one of her lucid periods, she looked up at Carolyn and said, "Fix it." Carolyn assured her everyone was doing all they knew how to do. Nikki looked up at her again and said, "Fix it, or I'm taking you with me." And this room full of people who had been so grim broke into laughter.

78. Cystic Fibrosis cystic fibrosis national and international groups, clinics with genetic counselors and geneticists. http://www.kumc.edu/gec/support/cystic_f.html

Cystic Fibrosis Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 Phone: (800) 344-4823 [FIGHT-CF] or (301) 951-4422 Fax: (301) 951-6378 E-mail: info@cff.org Web site: www.cff.org/ Chapters and Care Centers Teachers Guide to Cystic Fibrosis Legislataive Action ... What is CF International Sites: Association Quebecoise de Fibrose Kystique , Canada, french Belgian Cystic Fibrosis Association , flemish, french Cystic Fibrosis Foundation Canada, research, chapters, clinics, therapy english, french Cystic Fibrosis Worldwide merge of International Cystic Fibrosis Adults (IACFA) and International Cystic Fibrosis (Mucoviscidosis) Association ICF(M)A or (ICFMA) CF - Selbsthilfe Bundesverband e.V , german la Fibrosis Quistica (FQ), JM Pulido, Spain Fibrosis Quistica , AE González Menéndez, Spain Landsforeningen til Bekæmpelse af Cystisk Fibrose Danish CF Association Mukoviszidose e.V. (German CF Association) Nederlandse Cystic Fibrosis Stichting (Dutch CF Association, The Netherlands, English section) S.O.S. Mucoviscidose

79. Telegraph | News 'Pop singer dies after valiant battle with cystic fibrosis'. Includes details of her daily routine of oxygen, chest physiotherapy, intravenous antibiotics and taking 40 pills a day. http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2003/03/08/nalice08.xml

80. Medical References: Cystic Fibrosis cystic fibrosis is an inherited disease that most commonly affects breathing and digestion. There is no cure but advances in treatment have improved patient http://www.marchofdimes.com/professionals/681_1213.asp

View All Chapters Find Your Local Chapter September 20, 2005 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Cystic Fibrosis Cystic fibrosis (CF) is an inherited disease that most commonly affects breathing and digestion. Advances in medical treatment continue to improve the outlook for affected children and adults. However, there is no cure. Most affected individuals survive to about age 30, though some die in childhood and others live to age 40 or beyond. The abnormal gene that causes CF was discovered in 1989. This discovery led to the development of tests that can help determine whether or not couples carry an abnormal gene that can cause CF in their children. Testing usually is offered to couples with a family history of this disease, though now health care providers also are offering this test to couples without a family history of CF who are planning pregnancy or who are already pregnant. Couples will be better able to decide whether they want to have the carrier test if they understand the medical problems that CF can cause and what the tests can and cannot tell them. What Is Cystic Fibrosis?

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