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         Cystic Fibrosis:     more books (100)
  1. For Love Of Life by Laura J. Scott Ferris, 2001-05
  2. Understanding Cystic Fibrosis (Understanding Health and Sickness Series) by Karen Hopkin, 1998-06
  3. Alive at 25: How I'm Beating Cystic Fibrosis (Understanding Health and Sickness Series) by Andy Lipman, 2002-01
  4. Cystic Fibrosis: Nutri-tional and Intestinal Disorders by Ross W. Shepherd, Geoffrey J. Cleghorn, 1989-09-30
  5. The Cystic Fibrosis Transmembrane Conductance Regulator (Molecular Biology Intelligence Unit)
  6. Rainy Day Magic by Jan Finks, 2000-04-01
  7. Treatment of the Hospitalized Cystic Fibrosis Patient (Lung Biology in Health and Disease)
  8. ALEX, THE LIFE OF A CHILD - The unforgettable story of a courageous little girl's battle for life against Cystic Fibrosis by Frank Deford, 1983
  9. A Parent's Guide to Cystic Fibrosis (University of Minnesota Guides to Birth and Childhood Disorders) by Burton L. Shapiro, Ralph C. Heussner, 1991-02
  10. Diseases and Disorders - Cystic Fibrosis (Diseases and Disorders) by Melissa Abramovitz, 2003-03-19
  11. Cystic Fibrosis Care: A Practical Guide by Allison Peebles, Gary J. Connett, et all 2005-06-14
  12. Cystic Fibrosis: The Facts by Ann Harris, Maurice Super, 1995-01-15
  13. Inner Strength: One Family's Experience With Cystic Fibrosis by Cloyce Jones, 2004-10-30
  14. Recent Advances in Cystic Fibrosis Research (Monographs in Paediatrics)

21. Solvay, Berna Biotech Agree Jv For Cystic Fibrosis Vaccine Aerugen
has agreed a joint venture with Swiss firm Berna Biotech Ltd for the marketing, distribution and licensing of cystic fibrosis vaccine Aerugen.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

22. Canadian Cystic Fibrosis Foundation
The Canadian cystic fibrosis Foundation (CCFF) is a Canadawide health The Foundation’s primary objective is to fund cystic fibrosis research and care.
http://www.ccff.ca/home.asp
About the Foundation How to donate Organ Donation CARSTAR presents FrightLites Our Celebrity Patron ... Volunteering
Update:
var mvName = '%2Fcontent%2F%2E%2E%2Fmedia%2FPSA%5FLaundry%5FEN%2Ewmv'; Video Presentation Click here to view one of our public service announcements. (WMV 1.34 MB).
Extranet
Contact Us Français Information designed for you
Charitable Registration No. 10684-5100 RR0001.

23. Respiratory Medicine
Includes information on asthma, copd, cystic fibrosis, telemedicine, spirometry, scientific publications, meetings and pulmonary medicine.
http://users.pandora.be/spirometrie/
topics publications links news ... contact Wellcome ! This site is dedicated to respiratory medicine and may be of interest to you if you are a respiratory patient, a General Practitioner, a Specialist or just interested in Respiratory Medicine. We will provide you with information on respiratory diseases like asthma and COPD , respiratory diagnostics like spirometers , and interesting articles and links to other sites containing valuable information in the field of respiratory medicine. Please visit us frequently as we plan to keep this site updated. If you have an interesting article or link you would like to see here, feel free to contact us. Have fun! This site gives information on medical issues in the field of respiratory medicine to the author's best knowledge. If you feel incorrect information is given, please contact us with your remarks.

24. Cystic Fibrosis Trust Aiming To Understand, Treat And Cure Cystic
Welcome to the cystic fibrosis Trust homepage
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

25. Cystic Fibrosis Research, Inc. (CFRI)
News about CF research. Site also has a newsletter available.
http://www.cfri.org/

26. PUSH4Johnny.com
Pictures and articles about his life and his battle with cystic fibrosis. Includes poetry, a video tribute and information about the Bowl for Breath fundraising drive.
http://push4johnny.com/
Welcome to:
PUSH4Johnny.com P ray U ntil S omething H appens For the Cure for C.F. Updated 8/23/05 Another life claimed by C.F. This Morning Friday, August 12, 2005 at 1:05 am Maggie passed away, and is now in the hands of the Lord. Maggie has claimed her victory in Jesus! Our hearts and our prayers are with the Mackey Family in this time of need. We need to P.U.S.H for a cure for this horrible disease! P.U.S.H. Pray Until Something Happens We love you Maggie and we will see you soon in Heaven! Great News! A Young Man With Cystic Fibrosis Michael Livingston On August 6th 2005 Michael Livingston received a new set of Lungs! He was released from the hospital this last Friday. He is doing very well so far, but we should still keep him in our prayers as he has a long recovery ahead. The transplant took place at the University of San Diego. Thank you Lord for the Great Doctors. We are so excited to here the great news Michael From; John, Esther and Trisha (Johnny's Family)

27. Pathophysiology And Management Of Pulmonary Infections In Cystic
Pathophysiology and Management of Pulmonary Infections in cystic fibrosis Ronald L. Gibson , Jane L. Burns and Bonnie W. Ramsey
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. -+=CFRI=+- Cystic Fibrosis Research, Inc.

http://www.cfri.org/home.htm

29. Alice Martineau
Official site. Photos, forum, her music, and information about cystic fibrosis, from which she died.
http://www.alicemartineau.com/

30. Cystic Fibrosis Information And Resources For Patients, Relatives And Medical Pr
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and
http://www.cysticfibrosismedicine.com/
Best viewed with Internet Explorer ver 5.5 or above at a resolution of 800x600
This site needs Javascripting and Cookies turned on for optimum browsing articles

31. Cystic-L - Cystic Fibrosis Info Support
CYSTICL is a free email service dedicated to the exchange of information and support specific to cystic fibrosis. Members include people with CF and
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

32. Cystic Fibrosis Mutation Database
Database of cystic fibrosis mutations plus other relevant information on these mutations.
http://www.genet.sickkids.on.ca/cftr/

33. Cystic Fibrosis Gene Therapy: Oxford Gene Medicine
Focused on the development gene therapies for diseases of the airway, such as asthma, lung cancer and in particular, cystic fibrosis (CF). Work includes formulation development, reagent production, preclinical testing, and human clinical trials.
http://users.ox.ac.uk/~genemed/default.htm

Click to enter
Cystic Fibrosis is one of the most common genetic diseases. Research is directed towards developing a treatment for the pulmonary symptoms of cystic fibrosis using, primarily, non-viral (plasmid/liposome) delivery systems for gene transfer. Laboratory studies focus on understanding the factors which limit gene transfer and developing improved gene transfer reagents and delivery methods. These reagents are tested in transgenic mouse models prior to entering optimal formulations into an ongoing clinical trials programme

34. Home
For infomation related to this mutation database, please send email to . For general information on cystic fibrosis, please use our linked sites.
http://www.genet.sickkids.on.ca/cgi-bin/WebObjects/MUTATION
Search Database CFTR Gene About CFMDB Consortium Data ...
About

New! 2002 Update
CFMDB Statistics

Cystic Fibrosis Consortium
Background
Guidelines
Contact

About This Database . For general information on cystic fibrosis, please use our linked sites
Comments or questions? Please email to There are 364806 visitors since October 2, 2003. This web site was last updated at Aug 26, 2005

35. A-Z Medical Directory & Electronic Journal For AIDS, Cancer, Cystic Fibrosis And
AZ listings for over 4,000 treatment centers, research institutes, charities and hospitals in the areas of AIDS/HIV, Diabetes, cystic fibrosis and cancer.
http://www.cellscience.com

directory for health care, charity and research
Cancer

Cystic Fibrosis

Diabetes

Journal
...
Nervous Disorders

WWW Cellscience

36. Cystic Fibrosis
Article detailing therapeutic options for comanagement.
http://www.thorne.com/altmedrev/fulltext/cystic.html
Cystic Fibrosis: Therapeutic Options For Co-management.
Patrick L. Bufi, N.D.
Abstract Introduction Cystic fibrosis (CF) is the most common lethal autosomal recessive disease found in the Caucasian population, with a frequency of approximately one in 2,500 births. There are at least 500 different genetic mutations associated with the disease, thus making homozygous and heterozygous screening procedures difficult. However, approximately 70% of the mutations are found to be delta F508, making it the most common CF mutation. Delta F508 mutation is consistently associated with a single haplotype "B" which seems to support a "selective advantage" hypothesis. The possible selective advantage for the carriers of CF mutations (heterozygote advantage) could be a defense against the profuse diarrhea and fluid loss seen in cholera. Other selective advantage ideas exist as well. The hypothesis of increased resistance to human strain Mycobacterium tuberculosis, increased resistance to influenza, and protection against bronchial asthma in childhood and early adult life all present interesting possibilities. The primary CF defect is expressed as altered ion transport via the cystic fibrosis transmembrane conductance regulator (CFTR), which is the protein regulating cyclic-AMP-mediated chloride conductance at the apical membranes of secretory epithelia.

37. CFW Is An Organization Representing The CF Community With A Worldwide Mandate.
This site contains information relating to cystic fibrosis with a worldwide mandate. Plan your own event to help people with cystic fibrosis.
http://www.cfww.org/
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Visit our project pages for the latest information on our
work in developing countries.
REPUBLIC OF GEORGIA
Building a CF clinic

INDIA
Capacity building program

Newsletters
Edition 5
English

Italian Spanish German Portuguese French Dutch Greek Hindi INDEX SEARCH S ubscribe today and be sure to receive your copy mailed to your door! Search Search the library and find the information you need! Browse our extensive database WHO The molecular genetic epidemiology of cystic fibrosis.

38. Genetic Disorders: The Links To Diet
Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis.
http://www.ctds.info/genetic_disorders.html

Con
nective Tissue Disorder Home Search Site Map ... Links

Genetic Disorders
The Links to Diet
Read my
Contents:
Overview
Many researchers and support groups state that birth defects and genetic disorders, especially connective tissue disorders such as Marfan syndrome osteogenesis imperfecta and Ehlers-Danlos syndrome , can't possibly be cured through diet because they are inherited genetic disorders. This conclusion is invalid simply because many birth defects and inherited genetic disorders have been found to be improved, or even cured, through diet. The old school of thinking that a birth defect or inherited disorder had to be caused by a single gene is no longer widely held in medical circles. The breakthrough concept in research is that many birth defects and inherited disorders are influenced by both genes and environmental factors, especially nutrition. Genes may make people susceptible to certain defects and disorders, but they are often only a part of the picture. "Genes are not necessarily destiny. They are influenced by the chemistry of what we consume." - article on

39. Cystic Fibrosis Australia - Education And Research Organisation - CFA - National
cystic fibrosis Australia CFA is a national body comprising member State Associations. It assists the member organisations to achieve common objectives by
http://www.cysticfibrosisaustralia.org.au/
Home About Us/Aims and Objectives Events List Current Newsletter ... Contacts and Links
"I want everyone to know about Cystic Fibrosis. At least 30% of teenagers with the disease pass away and I have lost many childhood friends from the condition" Emmah Money - Cystic Fibrosis Ambassador and 2005 Girlfriend of the Year winner.
Emmah Money's Inspirational Story - Living with CF was televised during the week commencing August 8 2005 on ABC's Australian Story Click here to for Australian Story article and transcript
6th Australian and New Zealand Cystic Fibrosis Conference
The 6th Australian and New Zealand Cystic Fibrosis Conference was held in Adelaide 20-23rd August 2005. 380 Delegates attended our unique style of conference which, consisted of medical, scientific, allied health and lay programs. A diverse range of speakers from Australia and overseas were well received by the delegates. The theme "CF People and Science" gave a wonderful overview of the new thoughts and developments, which have come about in the past two years in all areas.

40. Cystic Fibrosis Nurses: The International Specialist Group
Includes objectives, constitution, officers, events, meeting archives, and discussion forum.
http://www.cfnurses.net/
UK CF Nurse Specialist Group's Consensus Standards for the Nursing management of CF
T H E I N T E R N A T I O N A L N U R S E S P E C I A L I S T G R O U P - C Y S T I C F I B R O S I S
c/o Susan Madge, Department of Cystic Fibrosis, Royal Brompton Hospital, Sydney Street, London SW3 6NP, UK. Tel +44 207 352 8121 ext 4053, bleep 6013 email: S.Madge@rbh.nthames.nhs.uk
Comments, suggestions, ideas ? Send us an email
Last update: August 26, 2005
Webmaster:
Filippo Festini, RN, BA, BSN

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